I hate this thing

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bakerfromhell

Hi, i'm 21 years old dude from brazil and I have peyronies disease.
I didnt counted, but i believe i have it since 2009 or something like that, so im not new to the disease.
I'm a shy person, and even though i know im not ugly i never had a GF... As i said i'm shy, i was bullied in high school, this and some others factors "helped" in it. And on top of that i have this damn disease.
When i first noticed this thing i thought "damn is this cancer or something?". Well, now I wish it was, at least it could be cured. So I diagnosed myself, but only some months later i went to a local uro. But it was a very bad uro, it was a old guy that said that he didnt believed that it was peyronies cuz its rare for my age. He said to me to take vitamin E and return some time later. I was not optimistic with it but i take vitamin e, a lot of it (i mean, i stayed in it for months). At this point i was doing some more research and read somewhere that vitamin E never helps, only outdated docs receipt it. Conclusion : i didnt even went back for a reconsult.
Ok at this point a year or even more passed, since i didnt have a GF, i'm a very close person and i was so busy with college i felt things were "ok". At some point i though "ok you have nothing to lose, why not see a better doc?". So thats what i did. I went to a nice doc here in my city (I live in a big city here in brazil). He was very cool, and he actually knew enough about the disease. He diagnosed and "confirmed" that it was peyronies but he asked me to do some exams. Exams that i didnt did, F~@< i am a retard. He said that i should do feces/urine/blood exam and an xray of my penis. The reason why i didnt did them is because i didnt wanted to have more people involved in my little secret (like, i cant do the xray alone right?) Ok it sounds stupid but when i went to the other uro i said early, a girl working in the hospital actually laughed at me quietly when she called my name to go to the uros room, THAT PISSED ME OFF. Anyway the doc said that at the moment there was no efficient treatment for this disease (old news) but he said that medicine is evolving fast and that i should just live my life as it is unless the state of the disease is too bad. I have a considerable bent near the base of the penis, 30 degrees. I read that this quantity is ok to live your sex life normally. But i randomly have pain in that area (sometimes i get no pain in erections but other times i feel considerably pain plus the erection doesn't feel the same, its like a little weakened). So because he said that i should just live my life i ended not doing the exams/xray and i never had an consult again. I decided to live my life as it is. Time have passed, 1 year or so and the worst thing i could imagine happened, 1 week ago i  diagnosed a new bent near the gland, a little small one but its noticeable when my penis is full erect, i think a girl would not notice that one but still, F~@< what im supposed to expect? I find this really strange cuz i dont did anything strange with my penis, this disease is supposed to happen after an bad healed injury right? But i already know that for ages i obviously would not do anything like that. I just masturbate normally, not more than once a day and not everyday. That made me think of all that stuff again. Should i see a doc and this time actually do the exams? Should i wait for the damn xiaflex to come to brasil (2014 maybe? more 2 years lost?) I have no one to talk about this. The only person that i would feel ok to talk with would be my father, but he passed away some years ago.

Anyway, i already accepted my state, but im not giving up on life. I want to be a father someday, create a family, you know, but this damn disease is not helping this very shy guy. I dont know exactly why im posting here, i already know that it has no decent treatment available yet and that i should wait for xiaflex... Maybe if i find a cure for my mind state it will be already ok, because im not any optimistic for a cure. I mean, xiaflex sounds legit but some people from this forum got bad results from the testing phase, some others talk crap... Maybe theyre right, i dont know...

Even though i visit this forum for an year or so i didnt read much of it, sorry for being lazy, its just that i lost most hope. What you guys think I should do? That doc said that the surgery also exists, but i would be circumcised because of how the process is and that i would lose some lenght (14cm is not big, I pass) and i also read somewhere that surgery isnt always very effective...
I also would like to question one more thing: If i ever manage to get a gf, will it be problematic? I fell so insecure about that, i read some story from some user of this forum months ago about his douchebag gf ridiculing his state, i would prefer to be alone than with an gf like that, wish you the best bro.
By the way, any comment is welcome. And thanks for creating this forum, i really appreciate you guys effort and sorry for this wall-o-text and for my poorly written english, its not my native language.

james1947

It is normal to be upset because you have Peyronie's. You are right that don't have by now a solution that works for all, from the other side is not true that don't have what to do.
Until Xiaflex will be available (or some other treatment) you can do a lot.
Some on the forum benefited from a combination of Pentox, L-arginine and Cialis. Using VED also working for some people. You have to read more what is available on the forum and to decide what is good for you.Regarding feces/urine/blood tests your doctor is asking you to do, my opinion is that he can maybe find something and help with his knowledge. You have stated that he knew enough about Peyronie's.
Regarding X-Ray for the penis I don't know, maybe have other people on the forum have done, most of the doctors using ultrasound to see the plaques.
You have also stated (if I understand correct) you have good erections except if they are accompanied by pain. Again, read the forum what other people solution to pain was.
Regarding a girlfriend, my opinion is don't run away from girls. You don't have to rush to the bad with them, you can approach things slowly and see first of all if you like her personality, what you have in common with her. If you will find one as I say, things will be much easy regarding the Peyronie's.  
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum