My story with Peyronie's disease

[ak123]

Hi all,

I'm a 26 y.o. guy and I live in an Arab country. My story with Peyronie's disease starts when I was 22 years old, when I had to do urinal Catheter and a F**** stupid fresh graduate Doctor who did it to me. They had only the maximum cross sectional area tubes for the Catheter and then when he started to insert it into my penis he found a difficulty entering it so instead of stopping it, he just inserted violently and I felt an extreme pain during that. When we finished and he removed it I found internal bleeding and he told that it's normal after Catheter and gave me some anti-biotics. Actually, after about 3-4 weeks, when I woke up in the morning I found my penis to have changed. It became flabby/ limp downward and the urine goes easier than before. And the 1st time I had erection I found my penis to have a curvature downward and the downside area of penis remain soft when it's erected.

I'm really not sure whether the bleeding caused by the Catheter who caused it or not b/c it happened after 3-4 weeks but I don't see any other reasons. If there's specialists listening to me they can inform us.

Anyway, I went to an experienced Urologist who started testing my penis by his hand and he told me that he don't see any fibrosis at all and that he believes that it's minor and won't affect my future sexual life and just gave me Vit. E and told me to take it for 4 months. I took it regularly for the 4 months and I didn't see any enhancement and I started to get depressed. I then went to another experienced Urologist who tested me by his hand as well and he told me that also he doesn't see any problem and told me to take Selenium (instead of Vit. E) and another medication that enhance blood flow. I told him that I'm afraid to get married like that and that the curvature is about 30 deg but my problem is in the pain which will make me lose orgasm. So he told me to get married and if I failed then to come back to him to do the operation. But doing the operation now while we are not sure if I'll fail or not isn't a good choice because it's very dangerous.

I took these medications and didn't make any enhancement as I expected and I during the past 4 years I went to many many experienced Urologists who didn't help me at all. But the strange thing which maybe is positive, is that until now the plaque didn't harden which means that until now, whether in the erected or non-erected state the area with the problem is still soft and didn't change since I had the disease. Can anyone explain the reason.

Anyway, during these four years I got really depressed and I remained single and sexually inactive. Here we don't have sex before marriage. So whenever a good suitable girl wants me and I start to love her, I suddenly remember my disease and I remember our 1st day of marriage when I'll fail to have intercourse and about our honeymoon who will become a salt moon so I simply withdraw from the relationship before it starts.

All my colleagues and relatives in my same age got married successively and my mother passed away and I started to become alone. My father is making big pressures on me (here we get married at very young ages) while he doesn't understand what's wrong with me. I'm handsome, successful and I have a very good work, but in my opinion all of that are null. I really wish if I was much less than that but just to be normal, i.e. to be of the 99.99 %. I don't think that we are more 0.01 % suffering from this disease, which is why Doctors are unaware of it and which is why medical companies never cared about this disease.

Anyway, I then realized that I have 2 choices that both are worse than each others. Whether to remain single the rest of my life which is very dangerous of course and whether to take the risk and to get married. But in this latter case, it will be a scandal in the family and friends to know that I'm not able to have intercourse. However, my biggest problem is that the girl who will simply be divorced and she didn't do anything to have this destiny. I won't forgive myself for that.

Few months later, I decided not to give up and to start my own research online and if it necessitated for me to travel abroad to the US or Europe to get a certain new treatment I wouldn't hesitate to. Before that, I always said "keep it to the specialists, you would never find a better solution that theirs".

When I started searching the Internet, I've found a lot of good information and found many new treatments, however, the success stories are really very few and most of them are in the acute phase I guess.

Anyway, I came through this website for a man who claim to have had PDS and could win and defeat it and he had put the plan he did:
mypeyroniestreatment.com/p/my-treatment-plan.html

It consists of a Mechanical treatment (traction device), Oral treatment (Vitamins and supplements) and a topical treatment (massaging).

So I decided to start this plan, but I decided to postpone the traction device because of the dangers I've heard about it. And I also added to the plan pills and a cream of  superoxide dismutase, b/c I've read on Wikipedia PDS page that it's effective.

Formulations of superoxide dismutase are also reported to be effective in Peyronie's disease.[18]
en.wikipedia.org/wiki/Peyronie%27s_disease

So what I started from few days is as follows:

1. Oral treatment:

- Superoxide dismutase

- Serrapeptase

- Nattokinase

- Acetyl L-Carnitine

- Real Krill Enhanced with DHA & EPA


2. Topical treatment

which is massaging the penis with Pure Vit. E + DMSO + SSKI / Potassium Iodide

So what do you think about this treatment plan? I'm still in the very early stages of the plan but I'll tell you the results of course. What are your advices for me? Can I do anything else?

Sorry for the very long post but I really needed to exhaust a bit of what is inside me.

[james1947]

First I would like to express my appreciation to you thinking about the woman you will maybe divorce. I know how difficult life a divorced woman may have in your society.
Second you are not in the 0.01% unlucky man having Peyronie's, you are in the 3 to 10% of the population having this decease.
You have not mentioned if you can have an erection and sustain it, you just mentioned that the down side area remain soft.
Regarding your treatment, you have to spend some time on this forum to see what can be, in your opinion, the best treatment for you.
Read the topics and you will find many people that successfully over come Peyronie's, with different solutions.
In any case, using VED daily can improve many things because of the forced blood flow into your penis. Try taking Pentox for the pain, have many people on the forum that Pentox helped them, not just with the pain. Myself also had started Pentox 2 weeks ago.
You are lucky that your plaque don't calcified, it may be o good sign that your Peyronie's is not progressing.
James

[dioporcolorisolvo]

Hi all,

I'm a 26 y.o. guy and I live in an Arab country. My story with Peyronie's disease starts when I was 22 years old, when I had to do urinal Catheter and a F**** stupid fresh graduate Doctor who did it to me. They had only the maximum cross sectional area tubes for the Catheter and then when he started to insert it into my penis he found a difficulty entering it so instead of stopping it, he just inserted violently and I felt an extreme pain during that. When we finished and he removed it I found internal bleeding and he told that it's normal after Catheter and gave me some anti-biotics. Actually, after about 3-4 weeks, when I woke up in the morning I found my penis to have changed. It became flabby/ limp downward and the urine goes easier than before. And the 1st time I had erection I found my penis to have a curvature downward and the downside area of penis remain soft when it's erected.

I'm really not sure whether the bleeding caused by the Catheter who caused it or not b/c it happened after 3-4 weeks but I don't see any other reasons. If there's specialists listening to me they can inform us.

Anyway, I went to an experienced Urologist who started testing my penis by his hand and he told me that he don't see any fibrosis at all and that he believes that it's minor and won't affect my future sexual life and just gave me Vit. E and told me to take it for 4 months. I took it regularly for the 4 months and I didn't see any enhancement and I started to get depressed. I then went to another experienced Urologist who tested me by his hand as well and he told me that also he doesn't see any problem and told me to take Selenium (instead of Vit. E) and another medication that enhance blood flow. I told him that I'm afraid to get married like that and that the curvature is about 30 deg but my problem is in the pain which will make me lose orgasm. So he told me to get married and if I failed then to come back to him to do the operation. But doing the operation now while we are not sure if I'll fail or not isn't a good choice because it's very dangerous.

I took these medications and didn't make any enhancement as I expected and I during the past 4 years I went to many many experienced Urologists who didn't help me at all. But the strange thing which maybe is positive, is that until now the plaque didn't harden which means that until now, whether in the erected or non-erected state the area with the problem is still soft and didn't change since I had the disease. Can anyone explain the reason.

Anyway, during these four years I got really depressed and I remained single and sexually inactive. Here we don't have sex before marriage. So whenever a good suitable girl wants me and I start to love her, I suddenly remember my disease and I remember our 1st day of marriage when I'll fail to have intercourse and about our honeymoon who will become a salt moon so I simply withdraw from the relationship before it starts.

All my colleagues and relatives in my same age got married successively and my mother passed away and I started to become alone. My father is making big pressures on me (here we get married at very young ages) while he doesn't understand what's wrong with me. I'm handsome, successful and I have a very good work, but in my opinion all of that are null. I really wish if I was much less than that but just to be normal, i.e. to be of the 99.99 %. I don't think that we are more 0.01 % suffering from this disease, which is why Doctors are unaware of it and which is why medical companies never cared about this disease.

Anyway, I then realized that I have 2 choices that both are worse than each others. Whether to remain single the rest of my life which is very dangerous of course and whether to take the risk and to get married. But in this latter case, it will be a scandal in the family and friends to know that I'm not able to have intercourse. However, my biggest problem is that the girl who will simply be divorced and she didn't do anything to have this destiny. I won't forgive myself for that.

Few months later, I decided not to give up and to start my own research online and if it necessitated for me to travel abroad to the US or Europe to get a certain new treatment I wouldn't hesitate to. Before that, I always said "keep it to the specialists, you would never find a better solution that theirs".

When I started searching the Internet, I've found a lot of good information and found many new treatments, however, the success stories are really very few and most of them are in the acute phase I guess.

Anyway, I came through this website for a man who claim to have had PDS and could win and defeat it and he had put the plan he did:
mypeyroniestreatment.com/p/my-treatment-plan.html

It consists of a Mechanical treatment (traction device), Oral treatment (Vitamins and supplements) and a topical treatment (massaging).

So I decided to start this plan, but I decided to postpone the traction device because of the dangers I've heard about it. And I also added to the plan pills and a cream of  superoxide dismutase, b/c I've read on Wikipedia PDS page that it's effective.

Formulations of superoxide dismutase are also reported to be effective in Peyronie's disease.[18]
en.wikipedia.org/wiki/Peyronie%27s_disease

So what I started from few days is as follows:

1. Oral treatment:

- Superoxide dismutase

- Serrapeptase

- Nattokinase

- Acetyl L-Carnitine

- Real Krill Enhanced with DHA & EPA


2. Topical treatment

which is massaging the penis with Pure Vit. E + DMSO + SSKI / Potassium Iodide

So what do you think about this treatment plan? I'm still in the very early stages of the plan but I'll tell you the results of course. What are your advices for me? Can I do anything else?

Sorry for the very long post but I really needed to exhaust a bit of what is inside me.

Take care about nutrition, take pentox and do VED 3 cylinders. If you want you can add carnitine and ubiquinol.
This is all that you can do.
There aren't other alternatives.

I personally think that the most important is VED, but for many people also pentox has been very usuful (not for me).

This is the life friend.
Randomness events.

[ak123]

Thanks James and dio for your replies.

In any case, using VED daily can improve many things because of the forced blood flow into your penis.

OK, I've thought about that, but which is better VED or the traction device?

I know the risks of using both so I'll have to be careful about using any of them.

peyroniesassociation.org/treatment/treatment-comparison/

By visiting the above mentioned link, you can select both devices and see a comparison between them. What I see is that the traction devise is safer and better in results. What do you think?


Dr. Herazy, in the below link advises a manual treatment by hand instead of traction and VED. What do you think of it? Did anyone try it?

peyronies-disease-help.com/ved-treatment-peyronies-disease/

Try taking Pentox for the pain, have many people on the forum that Pentox helped them, not just with the pain. Myself also had started Pentox 2 weeks ago.

OK, thanks for the advice, I bought it now and I should start adding it to the treatment plan.

"If you want you can add carnitine and ubiquinol"

I already take Acetyl L-Carnitine and I'm thinking about taking ubiquinol and L-Arginine too. Will there be a problem in taking all these supplements together?

Thank you very much for your help and support.

[james1947]

I am using VED, not tried traction device.
From what I read on the forum, I get to conclusion that VED is more safe, just the treatment longer. I am talking about the VED with manual pump, not electrical.
Try reading all the posts regarding VED and Traction devices before you get started with one of.
Regarding the manual treatment by hand, I am doing sometime, but VED is the main tool.
James

[dioporcolorisolvo]

In my opinion VED is better than traction.
But in case of pain you have to stop application.
Try it...

[ak123]

OK, thank you very much.

Which VED brand do you recommend for me? Or in other words from which company/site can i purchase it?

James, do you have an instruction video for the manual hand treatment?

[james1947]

No, I don't have an instruction video, but everything you need can find in  "Vacuum Erection Devices (VEDs) for Peyronie's Disease" including protocols, type of VED's and many other usefull information.
The Guru of the VED is Old man.
James