My journey with diffuse Peyronie’s and corporal fibrosis — sharing to help other

[stanleyliu39]

I wanted to share my full history in case it helps anyone else going through something similar to share experiences and navigate this together. I believe I'm dealing with a combination of extensive Peyronie's disease and corporal fibrosis.

My timeline and progression
✅ November 2023:
I suffered a penile injury (manual trauma). Afterward, I noticed some discoloration and loss of rigidity. There wasn't any pain, and I didn't feel a hard plaque — just subtle changes.

✅ December 2023:
I had a complete loss of erections — no nocturnal erections at all. I thought just resting would be best, and things did come back the next month. At the time, I saw that as a good sign.

✅ January–March 2024:
I started to notice indentation, hourglassing, and a subtle chord-like feeling on one side. Erections became harder to maintain, but I could still achieve them, especially in the mornings. There was no hard plaque I could feel, but the areas over what I now understand as fibrosis looked like loose skin over a less elastic internal structure.

✅ April 2024:
Things took a turn for the worse. The chord-like feeling became more pronounced, and the curve and hourglass deformity worsened. Erections became more difficult, and I eventually developed complete ED. I began to feel a constant tearing sensation at the fibrosis site, causing more curvature. I saw multiple Peyronie's specialists. No one could feel a palpable plaque, but ultrasounds showed good inflow with severe veno-occlusive dysfunction. I thought this was just due to inflammation and would stabilize.

✅ May–June 2024:
I abstained from sex and climax, and focused on oral medications (Cialis daily, Pentoxifylline, NAC, Omega-3, SOD, ALC, Propolis..). This seemed to help — my erections improved, morning wood returned, and the deformity wasn't worsening. I felt cautiously hopeful.

✅ June 26, 2024:
After two months of solid erections and stability, I believed I had reached the remodeling stage and began VED pumping.

This is where I experienced a setback. Despite gentle use, I believe VED caused microtrauma. My erections (both spontaneous and nocturnal) deteriorated over two weeks to nothing, even with 7 mg Cialis. The chord-like feeling progressed, and I now have diffuse fibrosis across large areas of the corpora. There's no hard, discrete plaque — just internal stiffness, a cord-like band, and significant loss of function.

My VED progression
Day 1: 100% erect going in, +1 inHg, 20 sets (10s on / 10s off) — no immediate issue. Climaxed for first time in 2 months. Had frequent, random erections for 2 days after.

Day 2: Same routine, still frequent unsolicited erections.

Day 3: Light traction (1.5 lbs, 45 min total over 3 sessions) + VED (same pressure, increased to 30s on / 30s off). After 5 sets, I experienced a sudden loss of erection capacity.

Current state
👉 The areas of fibrosis correspond to loose skin in the flaccid state — the internal structure is scarred underneath.
👉 I have severe veno-occlusive dysfunction — complete ED, nocturnal erections are decreasing in quantity and quality to barely happening now.
👉 The fibrosis feels like it's spreading and becoming more diffuse — no longer localized.

My staging as I see it
Nov–March: Early/acute phase — micro-injury, subtle deformity, early fibrosis

April: Active scar progression — worsening chord effect, increased deformity

May–June: Late remodeling — stabilized with meds + abstinence

Post-June 26: Reactivated scar formation, active flare, rapid diffuse fibrosis progression

Final thoughts
I really feel for anyone going through this. Like many, I'm confused and searching for answers. I don't know if a penile implant will be the solution, but I'm trying to stay hopeful. If anyone else is dealing with diffuse, internal fibrosis — without a clear hard plaque, but with increasing cord-like tension — let's keep sharing, learning, and fighting together.

If there's anyone out there like this. You're not alone