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Johncb63

Hello all been following this forum for a few weeks and find it very helpful and supportive
I am 61yrs old and living in Scotland uk
About 12-18 mths ago I found a small painless lump on shaft of penis.   After procrastinating for a few months I went to GP and was referred to Urology.  Thankfully only had to wait about 6-8 weeks.  However the appointment with urologist was brief.  I was in and out within 10 mins.  A quick examination and told it was not cancer but was Peyronnies.  Asked if any curving, which I said yes only very slightly, the Dr said "well it will get worse, if gets painful come back and we can put a stitch in other side to offset the curve". With that consultation was over.  No information or advice.
Since the the curving (to left ) now at about 11 o'clock and in last few weeks also noticed upward bend too.
Long story short my wife is on meds for neurological condition and knocks her out at night but when we go somewhere warm she doesn't need her meds and we "make up for lost time". However since diagnosis of Peyronies Disease this affected my confidence.   I bought some 5mg tadalafil online and these certainly boosted my confidence, however after a week I developed dull ache in lower back/ pelvis area and also intense heartburn.    I am considering asking my gp if can go on 3 month trial of tadalafil and hope can get over the side effects.  Can anyone give any advice on this?
Age. 61
Committed relationship or single. Married/heterosexual
Approx Date of symptoms. Nov23
type of symptoms. Initially small painless lump
Diagnosed (what doctor) Urologist
treatments tried. Official none

Mikel7

Welcome Johncb63 to the forum. Please fill out your signature line --> Signature Line . This gives a quick snapshot of your history. Then you can download and study our survival guide -->Survival Guide . This will give you a comprehensive list about peyronies and it's different treatments.

So your urologist did not perform an ultrasound? That is typical. You said that it is painless for you other than the deformity that formed later. The procedure that your Dr wants to do is called a Nesbit and it shortens your penis to one degree or another.

It is good that you are taking Tadalafl but maybe you need a lower dosage around 2.5mg. Yes back pain is a mild side effect that usually dissipates when you body adjusts. I would say you could look into our VED guide and also trying some light traction for your curvatures? If you are not in pain and can live with a small deformity but everything works fine, then leave things alone. Traction does work but is a time investment and so does VED to a certain degree. One thing that really helped me through the pain was using heat therapy daily. I believe it also accelerates internal healing in your penis.  

This is a large forum and there are no dumb questions. It is best for you to educate yourself on this disease as you will find out that there are few who do in the medical field, it is not a $$  maker.      Welcome   :)

  Mikel7


 
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

MRFOOTBALL101

6 to 8 weeks to see a Urologist in Scotland?
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BentKnob

That's great you got seen to!

Due to my age being only 36 the NHS in England didn't want to help.

I had to tell them I had peyronies disease for them to send me in for an ultrasound.

They then said I didn't have it when I clearly do.

So I went back and told them to refer me to a urologist.

It's been 3-4 months now and still haven't heard anything.
36 yrs old
Married & open relationship
In 2023 injury by repeated trauma, first noticed in early 2024
20-30° up and left curvature
RestoreX BentKnob Journal

Johncb63

@bentknob. I am waiting in a further consultation with urologist the curve has become much worse not painful as such just uncomfortable.  
Age. 61
Committed relationship or single. Married/heterosexual
Approx Date of symptoms. Nov23
type of symptoms. Initially small painless lump
Diagnosed (what doctor) Urologist
treatments tried. Official none

BentKnob

I'm not expecting much help from them.

Have been consistently taking 5mg Tadalafil daily combined with RestoreX.

I am now looking at having collagenase injections (Xiaflex/Xiapex)
36 yrs old
Married & open relationship
In 2023 injury by repeated trauma, first noticed in early 2024
20-30° up and left curvature
RestoreX BentKnob Journal