22 Year old boyfriend just diagnosed - scared and in need of help :(

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

A

I am 20 years old and have just found out that my 22 year old boyfriend has Peyronie's. I am scared and worried about him and I feel horrible knowing that I may have been the cause of this via trauma during sex. Is it possible that the plaque can show up later from trauma that has occurred with previous sexual partners or does it usually show up straight away? I feel like it's my fault but I never considered a disease like this existed, let alone the fact that it could be caused through rough sex. I know it is very rare for men of his age to get Peyronie's but I am wondering if there is any research that shows that his age will be a positive or negative factor in the treatment process. I also want to know how I should help him because I have read that sufferers often withdraw from their partners after being diagnosed. If anyone can help me please respond.  :'(

sgtnick

A

Peyronies Disease did not show up for me until 6 months after my injury.  Many people who have this disease have not had an injury.  Age may or may not be a factor, however, the best thing he can do is find a Urologist today!  I would suggest that he find a Doc who treats Peyronies Disease.

I would also suggest that you search THIS FORUM and educate yourselves before you go to the doctor.  The people who have posted here for years are experts about this condition.

You are a God send for him because you are willing and understanding.  You will also learn that you did not cause or even contribute to this thing, nor did he.  Do NOT believe that Peyronies Disease can't be arrested. (It may even be cured)  You may feel devastated today, however, you can change that by fighting back.  Peyronies Disease is not a problem, it is an unsolved opportunity.  

jackp

A

Peyronies can strike any man at any age. A lot times there is no reason.

How long has he had peyronies? What doctors has he seen? Any treatments?

Remember it is not your fault or his fault. You are a great young lady to stick with him through this. My wife was my rock through all my troubles. God Bless you for that.

There is a lot of great information on this forum. I would suggest you go to the VED (pump) section and have him start that treatment ASAP. It will help keep his penis healthy, and over time can help with the curve. It can also help keep down the loss of penile size that comes with peyronies.

Most of all he needs to see a really good Male Sexual Function Specialist not a general practice urologist.

Any way I can help just let me know. If you want to chat send me a PM or email to jwp104@att.net.

Remember this you two are not alone.

Jackp

A

He was just diagnosed yesterday but first felt a small lump around 2 months ago and then had ultrasounds etc. He has only seen his family doctor so far who is going to refer him to a urologist and specialists. So no treatments as of yet. And although I have been researching on here and other websites about good treatments for the early stages, it all seems confusing and ambiguous.

So far there is no curve, just the plaque and pain. Will it definitely curve or is there a chance it will not progress to that point? As for the loss of size, I am not too concerned about this but obviously my boyfriend is...Is there always a loss of length?

The thing that I hate the most about the situation is that it has happened to him so young. I understand that it would be a devastating condition at any age but it seems unfair that he is (potentially) going to be affected by it for a lot longer than most. The time we have spent together so far, he has always been very confident sexually and otherwise and I'm scared he might change. Before yesterday we had never heard of the condition and now it's going to become a major factor of his life and our relationship...it's a lot to handle.

Thankyou all for your support.  

chefcasey

A

don't let him be overwhelmed by it.  There are actually a lot of us, including myself that have this in our 20's.  

There is no way to tell for sure if it will progress to a curve or not.  We all have different types of Peyronies Disease.  Some men get a curve, some get slight indentations along the shaft, and some just have a general loss of elasticity or hardening.  Some of us have loss of length, or loss of girth.  Others don't lose any size at all.  2 months is just too early to tell. The best thing to day is to take an aggressive approach in seeing the right urologist.

The best thing to do is to start oral therapy right away with a variety of meds and supplements.  The main thing he would want to do is ask for a prescription for pentoxifylline.  This is by far the best oral medicine for Peyronies Disease that we know of.  It is sometimes hard to get doctors to prescribe it, but it is something to definitely push when seeing the doctor.  Other non-prescription drugs that are helpful include: L-arginine, Acetyl-L-Carnitine, and ubiquinol.  All of these can be picked up at any health food store.

These things do get better with time and the right therapy, and because he's young, he has a good chance of healing.  You've definitely come to the right place.  A great deal of us on here have become experts in this, so there is a wealth of information on this forum.

lespleen

I got it when i was 22 during the month of march 2002.......hang in there........there are so many more treatment methods available now then when i was first diagnosed so avail yourselves of these recent advances they should really make a difference long term. I wish i'd had them at my disposal all those years ago.   I would latch on to this forum. When i was 22 there was nothing out there except the cold hand of compassionless urologists and their silly pamphlets aimed at geriatrics. I was so full of anger. I was as incredulous as you are: how could something like this not be known more generally...How is it that i'd never heard of such a thing......something so horrific...i was surprised that such a thing could happen to the human body.....everyone's peyronie's is unique so time, patience, a positive attitude will see you through to the other side. there's no point in worrying about the fact that he was struck with it so young i life.....asking ourselves " why " is disheartening and not especially productive...having done all the stand stand and press on. You guys will get through this......take advantage of the new technologies. Also if your interested in ethnographic technologies why no try judeo-christianity: get someone to lay hands on him. i'm serious...i'm not a religious fanatic ....i'm doing graduate work in psychophysics and the philosophy of science... sometimes  it works and a radical reversal in symptoms might occur...When i was young they prayed for my broken leg and it was healed. Probably shouldn't share religious views on the forum but if you can think of any  viable  SAFE  alternative go for it .......what do you have to lose?  I don't mean that in a desperate sense but just as another way to combat this thing. otherwise, the rate of increase in innovation is exponential such that in ten years time we will have achieved far greater leaps and bounds in the sciences generally than in previous decades. They will find a cure for this thing. I know this thing sucks but honestly you are in a much better position than i was back in 2002( the worst year of my life) and with the treatment modalities available today there's a good chance he'll be able to seriously hinder  the evolution of his peyronie's if not reverse it altogether. i'm sorry this happend to you guys . i wish i could make it go away.

Worried Guy

Hello A, I am 28 and am still in the early stages (just 3 months in) to this horrible disease.  One of the things that has really helped me is talking to my girlfriend.  She has been amazing really and has been there when I am down.  She has told me so many times she does not care if it is a little bent and that she will be there for me no matter what.  She came with me at the weekend down to London to visit my new urologist and that was nice just to have her there as I was very nervous.  He is very lucky to have your support.  It might help if you could tell us what country you both live in and we may be able to recommended a good urologist as there are many out there who just don't know much about the disease.  I searched the web and have found a Dr who is really willing to help me attack this at the early stage instead of sitting around and waiting for 6 months.

Noway

Get your boyfriend too go see a urologist or your general doctor too get an appointment with a peyronies disease specialist even if you have too travel which i have too. Basic urologist know squat in this field and will be a waste of your time. you will actually learn more on this forum than going too see a urologist.

MattFoley

Noway, that's good advice but I don't think you realized the last post here is from 2 years ago. ;)

Got Testosterone?

james1947

Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Noway

Well ive had peyronies for longer than 2 years so I check around he probably does too and probably checks this post daily.