going to try some constrictive stuff

[jetedwardz]

hi my names jim im 31 I took a devastating elbow to the dong about a yr ago and since july of this year have been dealing with the effects. i have hr glassing on once side and curvature in that direction it begins about 2/3 s up and the degree is id say 20. i feel im lucky cuz if it were lower i think id be a bit more self conscous of it. ive been to a urologist and the first thiong he says is we dont know much about this.....so anyways i leave there and i get nothin from itthat was 2 months ago. for a month now ive been bending in the opposite direction a couple times for a few seconds at a time during masturbation. i also started takin about 1000 dv of vit e and i throughout the day try to seperate the areas of scar tissue by pinching and massaging them hard but havent seen much change. during masturbation after i bend it does stay a little straighter but there is no change to the hour glassed area;which gets me frustrated esspecially since i cant grab at the scar tissue in times of erection. SORRY FOR ALL THE BACK GROUND INFO THIS IS MY FIRST POST.  

ANYWAYS MY QUESTION AND HOW I CAME TO THE IDEA: ive been on this site off and on for a few months and have heard of the ved so today i looked up what it was and the definition etc. anyways the pics i saw of it had a constricive ring that would trap the blood in the penis so itll stay hard, for a half hr at a time was deemed appropriate by this brand of ved's instructions.  Since i dont have ED (although since ive been trying to masturbate each day as an attempt to slow or reverse my condition with the added blood flow to my unit;it isnt as rigid as it could be,but i believe that to be from lack of interest) cant i just get aroused and then put on the constrictve ring for a half hr and save money by not buying the device.   ALSO any extra advice would be great. i called and left a message wanting a perscription for pentox but i never heard back from my urologist so i was wondering if anyone knows a urologist that is good with peyronies in massaahusetts. THANX im also gonna try the acetLANX...OR WHAT EVER THE VITAMN IS CALLED TODAY TOO    thanx alot  

[newguy]

1) Your urologist didn't sound very helpful. It would have been useful to put you on a treatment regimen there and then. Still, all is not lost, starting now would be a good next step. I'd definitely try to get pentox from a urologist ASAP. Evidence for its effectiveness is here and here. Also, consider buying the supplement COQ10, and there was a positive study for it recently. You do not require a prescription for it. There are two forms of CoQ10. The very general idea appears to be that if you're under 40 you should buy the ubiquinone variety , and over 40 the ubiquinol one.

2)  You're misunderstanding VED use for peyronie's disease sufferers. In ED the VED and ring are used to get a usable erection. In VED use for Peyronies Disease no ring is used. Instead a protocol is follows where you use the VED to gain a straight hard erection, then you release the pressure, and repeat. My explanation is very rough, we have VED experts around here who will be pleased to help you, and lots of info here: https://www.peyroniesforum.net/index.php/board,38.0.html (be sure not to avoid the top 'sticky' threads)

[George999]

Newguy is right about this.  The ring is ONLY useful for ED, if anything, it might be harmful for Peyronie's.  Guys without ED should never use a constriction ring.  Also, the sooner you get yourself on Pentoxifylline and Ubiquinone the better.  400mg of Pentoxifylline 3X per day and 100mg of Ubiquinone 3X per day.  - George

[jetedwardz]

thanks alot new guy and george i will begin looking for this stuff today and also i will try to get in touch with a knowledgeable urologist today thank s definetly good to know about the tension ring as i thought i was on to something.

[jetedwardz]

man that q10 is pricey i put it off till after the holidays i was lookin at a bottle for 11 bux but it wouldve been a 10 day supply im gonna see if i can get a script for it and use my insurance for the bill. anyway s i at least got the acelcarmine stuff to try to get stiffer if i have an opportunity to get with my girlfriend tonight.its not from the peyronies its from getting shut down left and right after the last 2 months my member doesnt know if its going to go so it doesnt respond like it used to b4. before when we wre have routine sex it was no probs but since id be ready to go and id get the im tired or whatev. i just got some for the first time in over 2 months the other night and i was trying like a mofo to not lose anything.but again its pressure to perform after my body has gotten used to not getting aroused due to being shot down repeatedly; when its kinda routine again everythin should be back to normal. sorry bout too much insight but ive not discussed this stuff with anyone. how much acetylcarmine is recommended for optimal results? i got the 100 mg capsules thanx again

[newguy]

I get the healthy origin brand: http://www.iherb.com/Search?kw=coq10+healthy#p=1&sr=0 (though see earlier messages about getting the type that best suits your age range).  

[George999]

Yup, if you are under 40 years old you should be able to use the less expensive Ubiquinone type CoQ10 OK.  - George

[jetedwardz]

I have another appointment tomorrow with a different urologist near me so i am going to ask if i can get a script for pentox(what strength should i request), topical thermapril(15% is what im going to try to get), and also a sript for a ved is this guy gonna think im a nut ? anyways any advice about how to approach these topics and suggestions on potency,ved brand or anything is greatly appreciated. also i since a few days ago am taking 1) 500 mg of l caramine in morning and 500 mg at night
                   2) And tonight i just bought a couple bottles of L arginine 500 mg capsules (not sure what dosage to do so im going to follow the 500 in am and 500 in pm unless i read differently on here. thanx Jim

[George999]

Jim,  You need to download the Pentox papers from the resource section of this website and take them with you to the doctor.  The standard prescription is 400mg Pentoxifylline ER 3X per day (should be taken WITH meals).  Most on this forum have found Topical Verapamil pretty useless.  - George

[jetedwardz]

thanks i will do that i also was reading about a substance called trapozone in a topic on this site. the post im  reading are 5 yrs old now and it basically says a 25 mg dose of the drug creat nocturnal erections which i fig will be good. is this still possibly a good thing or is there side affects found since those 5 yr old postings? thanks

[crashbandit]

jetedwards, it's called Trazodone. They come in 50mg tabs and I just take 1, 25mg half before bed. They make me drowzy and I certainly had big time nocturnal erections that would last through the night right until I woke up in the morning. Also, I know alot of people thought topical Verapimil is a waste but if you can get it covered like myself then why not. I noticed the topical Verpamil gave me a nicer hanging flaccid state, which can really help the ego during the day.

[jetedwardz]

HI I WENT TO THE NEW uro today and it was a lot better than the previous. he actually seemed to know a bit about the issue and also even new about this site. i didnt press too hard about the pentox just yet he really wanted me to do vit e 200 iu daily for 3 months first but after me suggesting pentox and some other stuff that ive read about on here (and i think he knows i was concerned) he decided to set another appointment in 2 weeks and he said hed give me a script for it next time i came in that was b4 he switched the appointment to an earlier day though so hopefully hes still on board......i wrote down all this stuff to ask about and misplaced my paper so he asked what strength pentox and i said 400 mgs 3xs daily but couldnt remeber the whole pentox title as he wanted to know who makes it or somrthing like that.if this makes sense to anyone i would appreciate it cuz im not too sure what he wanted for a name i thought the pentox word and the dosage would surfice.he did give me  a few levitra 10 mgs each cuz he asked bout my erections and i said they werent as stiff as b4 but i really only think thats because im a little nervous and genuinely board with the masturbation thing( cuz ive basically know been seeing the same stuff online for weeks now). anyways because its just how i roll,doin g stuff sooner than later i was like @#$% it ill just pop one of these things now. so i ate a levitra pill on the ride home. went ojn the computer and very very hard erection and i didnt even have to like stay on top of good porno stuff and plot. it was like no effort so that was good. thanx for reading all of this long post and im takin a gm and a half of acetyl l carnitine a day and 2 gms of aganine is this enough or should i go for 2gs daily of l carnatine

[mike67]

It is Apo- Pentoxifylline.

[jetedwardz]

thanx. and im going to ask about getting a ved too next time. what should i say...i want to get one and i want my insurance to cover it ???or something like that not really sure. i guess im a little concerned that he didnt know about the pentox but he did also have topical verapimil(or whatever its called too) ALSO where are those resource pages that i can download to bring with me...thanx again

[Old Man]

jetedwardz:

Most insurance companies will only pay a small portion of the cost of a VED if prescribed for Peyronies Disease. Most will pay some if the VED is prescribed for ED. So when you approach your company state that it will be for erectile dysfunction and not Peyronies Disease.

However, each company has their own rules about which they will pay for, so keep that in mind when you ask how about coverage from the company.
The Vitality OTC VED system does not require a prescription and some insurances won't pay because of that reason. You have to negotiate with them about coverage. Discuss all this with your doctor who would prescribe one for you too.

Old Man

[ComeBacKid]

I ran into this problem when I got my VED.  I would recommend just getting it prescribed for ED, not getting it for peyronies and then trying to switch it after talking to the insurance company.  It then looks like your trying to commit insurance fraud, and while they probably won't come after you, they probably won't pay out the claim then.  It kind of makes it look like your trying to get the doc to adjust your prescription to fit their rules and codes.  The VED isnt considered a valid prescription for peyronies, even though we know this works, but it is for ED.

Comebackid

[jetedwardz]

thanx alot u guys. i just went out and bought good quality vitamin e as opposed to the dollar tree vit e id been taking previosly. im gonna look into the cost of the ved myself and forget about the insurance. are the over the counter ones good or can i look to get one online thanx i will also look on the site too cuz im sure different models hav been discussed

[jetedwardz]

also i believe i wrote somewhere in my posts that i had a 20 degree bend. i was wrong i meant it was about 40 degrees i was thinkin that 45 degrees was 3 o'clock not 90 degrees. i f someone can get rid of the curve without surgery does it stay gone after the plaque is gone from pentox and whatever else or do you still have to take the pills and or ved; basically do u have to maintain the results?  

[George999]

While it should be theoretically possible to get rid of plaque and curvature and keep it off after treatment, I don't think any of us around here have accomplished that.  Accomplishing that would require eliminating the underlying processes that caused us to have Peyronie's in the first place.  I think we are getting closer to making that happen, but we are not quite there yet.  If we can permanently kill underlying systemic inflammation, we are there, that is the challenge.  - George

[jetedwardz]

very well put george thank u. in my case since it was trauma it may stay gone but trust me I DONT CARE if i hav to maintain it at all.I M more than happy to get it to be pretty straight and i ll kinda count my blessings. I being a guy cannot believe i have never heard of this before, if i had i think i woulda been wearing a cup that day, not that takin a shot to the nuts is a picnic but id rather that than this any day. i read in a post on here someone who got peyronies from a soccer injury when he was i think around fifteen.thats tough especially considering all the regular insecurities at that age. thanx again you guys  

[George999]

Jim,  Peyronie's results from underlying metabolic issues.  Healthy guys can get their penis cut off and sown back on and heal up pretty OK.  If injury causes Peyronie's, its because something has gone wrong with the healing process in our bodies.  Its like how some people get injured and heal up with no trace of the injury and others get nasty scars.  It involves genetics + environmental issues.  Peyronie's is especially common among diabetics for example.  So the injury does *trigger* it, but the underlying cause is something else far more insidious.  Until you start addressing the underlying cause you are just treating the symptoms.  You have to start asking questions like: "how large is my waist size?" "Is my serum vitamin D level optimal?" "How high is my serum glucose level?"  "Am I getting sufficient aerobic exercise?"  "Am I taking steps to get any heavy metals out of my body?"  etc. etc.  The questions are endless.  All of these things and more can make one more vulnerable to issues like Peyronie's.  And it can be much worse if it is your heart or brain that gets "sick" rather than your penis.  - George

[jetedwardz]

thanks again. i am in very good shape and athletic/active but i dont eat or drink dairy nor do i eat land meat( i dont know it seemed easy to describe), i eat just fish and i dont eat dairy. you wrote about metals maybe being a cause. i recently quit eating sea food all together as i believe i was putting my self at risk for mercury poisoning. i heard about too much tuna was bad but didnt care i figured it wasnt a big deal so after a few months or more i figure what the heck i ll look into it and then i see that a full grown person should have a can of tuna every 3 days or so roughly. i was averaging close to a can a day if not more i was eating sushi, my girlfriend had a bag of crab meat i for some stuff she was going to make; i chowed that whole bag. so is mercury potentially a culprit. ........i do take a multi vitamin so i believe i gfet enough d and at a physical i had my test results were very good aside from my platelette count bein a little low but i beleive that was due to me takin a half vitamin a dayand my doctor said not to anymore

[George999]

The ONLY way to tell whether you have enough vitamin D is with a blood test.  Its not something you can guess about just because you are taking a multivitamin.  I was only able to get my vitamin D normal by taking 12,000IU a day.  I've been taking that amount for over two years now and getting tested every six months to verify my blood level adequate.  As for heavy metals, tuna is not the only culprit.  They are everywhere including in the air we breath.  Take a look at a label for balsamic vinegar for example.  In California it has a warning not to use too much since it contains lead.  All of the risk factors require medical testing.  They are not something that you can just eliminate by figuring you are OK.  After all, it is not uncommon for guys (even young guys) who run marathons all the time to drop dead of massive heart attacks and outwardly they seemed to be in the best health.  You don't know what your health really is without being thoroughly tested.  - George

[jetedwardz]

goin to the uro today and i contacted the local pharmacy to see what kind od pentox they carry they have teva 400 mq extended release so thats what ill be using. does anyone else use this type? also ive noticed some straightening but may have as much hour glassing as before i m going to start to take pics for reference. I ve been taking
400 mg 3x l carnitine
500 mg 2-3x l arginine  
100 mg of some  coq10
200 iu 2-3x vitamin e  
200 mg 2-3x alpha lipoic acid (it is in the carnitine supplement i take; it was the cheapest price for the carnitine i saw)

 

[George999]

Pentox ER by Teva is fairly common.  Teva in Israel is one of the major manufacturers of Pentoxifylline.  100mg of CoQ10 is not nearly enough to have any effect on Peyronie's.  At least 300mg per day of regular CoQ10 would be required to be effective for Peyronie's.  - George

[jetedwardz]

hi thanx alot george. my dr says that the plaque is scar tissue and cant go away etc etc and that he doesnt want to give me the pentox script due to possible side effects( and prob because he doesnt know about it based on the questions he had about it). anyways i have now got a script for the topical verapamil which is something at least. the coq10 that i take claims to be 3x s more absorbant than regular coq10 so a 100 mg would be the same as 300 mgs regular coq10. anyways im gonna up it to 100 mg 2x daily now.  

[chefcasey]

Get on the pentox even if you have to go through another doctor or several.  It suprises me that anyone would still prescribe topical verapamil, i think it's been established that it does nothing.  Don't waste your money on it.

[jetedwardz]

does anybody no of a urologist in Massachusetts that will prescribe pentox. also any one know the best price for a ved that has multi tubes. thanx

[jetedwardz]

update on treatment per day
2g of acetyl carnatine
2g arginine
200- 300 mg coq10
1100 iu vit e
fish oil
and i apply verapamil pentravan 15% about three times daily at least i was perscribed to do it once a day but .....i am looking into any prob with this.if any one has any insight on if the verapamil is harmful etc or other recommendations are greatly appreciated thanx. going to get the ved within a month hopefully.

[jetedwardz]

also my curvature has gone down from about forty or so to id say twenty five to thitry degrees. this seems to of happened before the verapamil cream.ive been usin that for about a week. but the damn hour glassing is still as prominant as ever and might even be extending towards the tip so know it is less lik a indent and more like my unit it thick from the bottom till about two thirds up and then is skinnier on one side till the top

[jetedwardz]

ok i threw out the verapamil just in case i didnt feel it was a good thing and seemed to be doing ok with the rest of my supplements ........I amGoing to attempt to work out the hour glassing by using a narrow attachment on a vacuum cleaner.........i will post my regiment and keep it updated. i think it will help. i cant be swayed from thia its just my personality. but appreciate any concerns. the attachment will be the standard house vac attacment that is a rectangulag tube that has the angled end. trick is doin this with the house empty and to be positioned in front of the driveway window so i dont get busted.  

[Old Man]

jetedwardz:

After reading your post below, I will not even address the problems you might be causing with such an off the wall "treatment'' you propose.

Just hope that you don't suck your scrotum and testicles into the tube!!!

Old Man  

[George999]

There are more than a few emergency room visits that have occurred as a result of this procedure and more than a few penises that have required amputation.  Household vacs are not designed to be penis straighteners and once your dong is in the hole the damage is done.  I think you are messing with insanity on this.  You can cause damage to your penis with a VED if used incorrectly for crying out loud and you are going to use a house vac?  Are you out of your mind?  - George

[newguy]

jetedwardz - It sounds like you've made good progress with your oral regimen etc. This vacuum cleaner idea sounds dangerous though. With a handpump you effectively get to set the pressure and go about it in a conservative and safe way. It's not a case of 'the more suction the better', because improvements can often take months to appear. I would think the suction level of a vacuum cleaner to be set by the manufacturer and above that of a medical grade VED. It would be a great shame to take one step forward, then try this and take many steps back.

[GS]

I hope this is all a joke.  I know I had to laugh when I read it this morning.

Surely no one in their right mind would actually do this.

jetedwardz, if you are seriously considering this, you better reconsider quickly.

[Lennyman]

  jete-   I hope you are joking too!!  If you are serious, at least have the power button within reach, a torniquet ready, and a phone to call 911 you idiot!!

[jetedwardz]

wow thanx for the responses. i havent even bothered with it but what i had in mind isnt too severe. way back in the day when i was just gettin into puberty i used a vac a few times cuz i was a horn ball without an issue. but anyways i also figured it would just take up the skin.
Other things ive been doing that forgot to list. i now use my left hand for masturbation; its the opposite of the bend and i for a long time even before my accident had a slight bend from my right hand. it took awhile but i can use the left the whole time now. This is probably not important but i still do it regularly now; i always adjust my unit to hang in the opposite side as the bend. in my boxer briefs. i dont think it matters but it helps me feel lik im bein pro active at least. AND I JUST SAW in another topic someone getting supplements thru swanson pharmacy online....r these thing s good y are they so cheap???i havent been takin the acetyl carnatine for a couple weeks cuz of the price . are they re products as good as stuff from walmart.

[jetedwardz]

havent done much of anything since this last post. didnt try the vaccuum cleaner thing; not gonna bother either. i hav been masturbating a lot less as constantly going online to do so has basically made my imagination boring or lazy and im bored by the sites i use nad prob all of them so i definetly want to take a break. o yea and i havent been laid by my girlfriend in about 4 months; maybe once in that time maybe. so i did notice a halt in progress of bend and indent. hasnt gotten worse thankfully tho. based on this i think it is very important for the erections in the progression;but i know that is pretty much common knowledge on here at this point. also i was using verapamil but tossed it cuz i read about some bad affects and i was seeing progress without it. i am going to get the manual ved soon. its not even too expensive but money comes and goes so quick with me, 20 dollars in gas a day adds up. Also a bit off topic but mirena the birth control my girlfriend is using is we believe and many others evidently based on web searches; basically makes a girls libido non existant. shes gettin it removed on the 23rd so hopefully that helps out our situation a little. sorry bout this long kinda venting rant thing. I was wondering if the hour glassing is usually the last part to get fixed because i have seen no progress in this aspect at all. but i am very releived with the bend subsiding so far tho.  

[jetedwardz]

indent is two finger widths long from top to bottom and about a half finger width deep;maybe a slight bit more. i started usin verapamil again and havent really seen any results but it has only been a month. i also wear tighty whities now hopin the added heat to my dong from my body will increase blood flow. im gonna give my other supplements time off. just my reg multi vit and arginine

[crashbandit]

You still havn't been able to get pentox? That should be your main focus. What about some Cialis or trazodone to take at night? I don't think it's a good idea to never use your tool, try to find some form of activity to keep the tissues in use somewhat.  

[jetedwardz]

yup i still use it one way or another 3-4 times a week. i am going to try to find someone in mass to perscribe the pentox. last night i had sex and i was relieved to find im becoming more rigid and more easily aroused; but i think thats cuz of the psychological factor and im becoming more used to not getting my attempts shot down since my girlfriend is off her crappy mirena thing. but i noticed last night at times i was really rigid and stuff and would see a decent amount of bend again so im gonna really try for the pent and the ved

[jetedwardz]

just ordered my manual vitality single cylinder pump. should b here in  5 days or so. is it more advantageous to seek additional sized cylinders. will the single cylinder protocol take a lot longer? im just excited to finally be gettin this thing thanx