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Tombone

Hi guys!

I`ve been browsing through your site and different posts for hours now and Im afraid Ive come to the right place. First of all pardon my french as Im norwegian and english is not my first language.

Lets take it from the start.

In 2016 I noticed my penis had a slight curvature to the left and a bend upwards, not much and it has probably been that way since early age. Tho I could feel hardened areas where the curve and bend was located. I went to two diffrent urologist, one told me he could feel a nodule and said it was Peyronies Disease in the chronic fase and the other said it she couldnt feel anything and told me everything was normal. Time went buy and I enjoyed my erections and had plenty of sex since.

Around 5 months ago my anxiety in wich I had Peyronies Disease came back and I couldnt get erections due to psychlogical reasons. I used a vacuum device wich a sexologist gave me to get a full blown erection, and that was when the disaster struck. I got injured and it was not very painful but slight pain. After this I had mild pain for weeks, went to get ESWT a couple of times and the pain has gotten worse. Ive been to three different urolgists several times and they say it is not Peyronies Disease. Altough I have severe pain and its coming and going. One of the urologists says its normal to get pain when scar tissue develops in the helaing process from that injury, but he do not define it as Peyronies Disease.

What is yours opinion on that matter? Ive done some research and think the two are the same? At this point I have painful night erections, throbbing pain but only when im sexually active and touch the area where I can feel the nodules. They are not big but I think they are growing and getting harder. I do not think I have lost much girth or length and I can not see any significant curvature other than I had before the injury (hard to tell tho). I imagine its more curved and smaller in flaccid but not quite sure, my penis changes  changes in size all the time with temeprature, exitement etc.

Anyways. Do you guys think it is Peyronies Disease in its active fase? Will it normally bend, curve or shrink after this period of 5 months with no critical changes? And can touching it, masturbation and sex make the inflammation worse and eventually lead to more scarring? It surely feels like innflammation to me. But strangely it has begun to itch if I let it rest. Like it heals and the scarring itches in a way. Have you guys experienced anything similar to what I describe? Sadly I can not stop touching it since Im anxious for them to grow.

Im currently taking Ibuprofen, diclofenac (for pain) and neprinol wich contains coenzym Q10, serraptenase and some other herbs, not sure if it has any effect, tho I read that it can reduce inflammation and remove plaque (seems not likely to me). Anyone with experience on Neprinol? Maybe thats why I have no more significant curvature??

This was a lot of questions, sorry guys. But as youve probably understand Im being insecure, confused and anxious in the early fase of this thing. I still have a hope that its not Peyronies Disease but I think maybe I just have to accept the fact and be open for advices and alternatve treatment from you guys.

BTW I stopped using the VD after injury because Im afraid it will do more damage than good. But I see you have another take on that. Am I right? Should I continue using VD carefully to get blood flow? Ive been thinking of traction device but im very sceptical to those.

If someone takes the time to answer only a couple of my questions I would be truely grateful :)

I also think I have some more indention than I had just beneath where the nodules are. It has a weird hourglass only when semi erect. And strangely sometimes I feel the plaque and sometimes I almost dont. Im very anxious, depressed and confused but refuse to give up hope. Hopefully I can be of some help sharing experiences and advices in time to come.
Slight curvature to the left when erect (10-15) More curvature when flaccid. Severe pain. Anxious. Got diagnosed with Peyronies Disease chronic phase in 2016. New injury 5 months ago. Been seeing several urologists wich all say its not peyronies. 38 years old.

Hawk

Tombone, Welcome to the forum.  I am sorry you have to be here but hope you can find the information and support you need.

The first thing is to read this carefully at least twice.  https://www.peyroniesforum.net/index.php/topic,3180.0.html

It has a lot of important information in it.  Due to some of your comments, pay close attention to the importance of measurement and how to do it.  

VED's are relatively safe if you are not aggressive trying to pump a larger erection.  I would however lay off of the VED as long as you have pain.

Peyronies Disease vs regular scar tissue. -  Every injury must heal and most healing involves scar tissue.  Peyronies Disease is when scar tissue goes beyond any injury and over -runs healthy tissue.
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Tombone

Thank you for yor reply Hawk. I did really pump agressive. Do you think that can be cause of peyronies or just the healing process taking time to recover? It seems like I have a slight more tilt after the injury. Is that normal because of scarring and less elasticicy? I will for sure lay of VD as long as it is pain. Tried again today and yesterday with VD and the pain was back to where it was several weeks ago.

I did read the survival guide. Sadly uros in norway are very conservative and they refuse prescribing medications like cialis and strong painkillers. Although I can buy diclofenac at the pharmacy. I will get ariginine and CQ10 online for sure.
Slight curvature to the left when erect (10-15) More curvature when flaccid. Severe pain. Anxious. Got diagnosed with Peyronies Disease chronic phase in 2016. New injury 5 months ago. Been seeing several urologists wich all say its not peyronies. 38 years old.