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Author Topic: Peyronie's matched w/ other health issues  (Read 794 times)
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SSmithe
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« Reply #13 on: July 13, 2010, 01:57:07 AM »

DannyOcean,
I have looked into the "inability to relax my perenium" symptoms for myself.  For me, I think I have a mild form of what is called CPPS or chronic pelvic pain symptoms.  It is often confused with prostatitis.  However it can be caused by chronic muscle tension due to stress.  I agree with you in that I have read that the muscle tension can cause low blood flow and increase inflammation... 

I have looked into trying to reduce stress via the Paradoxical Relaxation... mostly used for CPPS sufferers.  It will probably do nothing for the Peyronie's, but less stress couldn't hurt either.
SSmithe
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30 years old. Peyronies Disease for 5 years. Dorsal plaque along entire neuro-vascular bundle. Taking PAV cocktail.
DannyOcean
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« Reply #12 on: July 06, 2010, 04:56:36 PM »

A few of these resonated with me as well. 

Sinus infections - I had these constantly as a kid and was on antibiotics much of the time.  There was probably a 10 year stretch where I was on antibiotics at least 3-4x/year.  My senior year of high school I was probably on antibiotics more than I was off them.

Tight lower back/pelvic muscles - In high school my nickname on the track team was "Mr. Stiffy". Smiley

Unable to relax perenium - This one, in my mind, might be the biggest one that sounded alarms.  I've noticed over the last couple of years that I have a lot of tension in this area of my body.  My theory (and it's certainly only a theory) is that the tension here has restricted circulation to my penis and this caused, or at least contributed, to my Peyronies.  What's interesting is that the two times in the last 5 years where I've had the biggest problems (when I first "discovered" Peyronies about 4 years ago and more recently when I discovered a new nodule) where the times I was under the greatest stress.  Obviously stress reeks havoc on the immune system generally but my guess is that during this period of time I was tensing up this area of the body more than normal.

I'd love to explore this last piece in more detail.
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slowandsteady
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« Reply #11 on: June 03, 2010, 08:12:37 AM »

Many of these symptoms seem related to magnesium deficiency, I can't help but notice.
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boomerang
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« Reply #10 on: June 03, 2010, 07:40:12 AM »



I have had many symptoms all my life most minor but some have really had adverse effects on my quality of life.

I had migraines when young (which incidentally is also an indicator of an auto immune disease called Hughes Syndrome)
I have been affected by caffeine from my early 20s in that it gave me rapid heart rate(Atrial fibrilation/flutter) either that day or the day after consumption.
I don’t take caffeine now in any form.
I had stiff lower back since teenage years.
My sinus infections started in my 30s which were made worse by food intolerances particularly milk and dairy products but also wheat.
My blood pressure was always low which my doctors thought was very healthy.
I have a feeling that my testosterone levels are much lower now I am in my late 50s.

I have always been very physically active in sporting fields and this I suspect has helped keep me healthier than otherwise would be but my sporting achievements have been severely affected by physical effects of my disease even though I excelled at any sport I chose.

I have had multiple symptoms which I think all relate to my blood being too thick all my life.

The symptoms appear to relate to cellular Hypoxia (low oxygen in the cells, not blood) and cellular Hypoglycaemia (low glucose to the cells, but not of the blood)
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BrooksBro
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« Reply #9 on: May 21, 2010, 04:30:45 AM »

Big nipples in men are one of the ways that gynecomastia (aka man boobs) presents.  As you say, it is most common among adolescents.  http://en.wikipedia.org/wiki/Gynecomastia


I hard big /hardened nipples during puberty to, luckily they shrank when I got to like 19, as I didn't think they looked good.  My one friend had huge nipples in puberty and in swimming class they used to call them "dinner plates" I just gotta laugh, gotta love high school.

Comebackid
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ComeBacKid
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« Reply #8 on: May 21, 2010, 12:47:57 AM »

I hard big /hardened nipples during puberty to, luckily they shrank when I got to like 19, as I didn't think they looked good.  My one friend had huge nipples in puberty and in swimming class they used to call them "dinner plates" I just gotta laugh, gotta love high school.

Comebackid
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Old Man
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« Reply #7 on: May 20, 2010, 07:28:34 PM »

Les and newguy:

If you remember, you also had what was called down South, USA,  "kernels" in your armpits, groin area and sometimes under your jaws and in your neck. Just a part of "growing" into manhood Shocked Grin

Old Man
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56 Plus years with Peyronies Disease and still counting
lwillisjr
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54 y/o 1.5 yr Peyronies free


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« Reply #6 on: May 20, 2010, 06:52:48 PM »

I had it as well. I don't remember the mdeical term my doctor used. I think it is pretty typical of teen males entering puberty.
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newguy
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« Reply #5 on: May 20, 2010, 04:19:41 PM »

Yes, I think you're right OldMan. I don't personally think that it's an indicator of peyronie's.
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Old Man
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Peyronies Disease/56 yrs. Arrested state w/VED, straight again!!


« Reply #4 on: May 20, 2010, 04:06:52 PM »

newguy:

Most every male teenager has the "hard nipple" thing. It usually happens during the puberty stage of a male's life. Mine lasted for about a year when I was about 12 or 13. My cousin was a GP doctor and he examined me and laughed. He told me that it was a part of "growing up" into manhood!!! Then he told me that is was the hormones kicking in which is normal.

Old Man
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56 Plus years with Peyronies Disease and still counting
newguy
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« Reply #3 on: May 20, 2010, 02:11:58 PM »

I had the hard nipple thing as a teenager, but not since then.
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SSmithe
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« Reply #2 on: May 20, 2010, 01:00:46 PM »

S&S,
Yes they are interesting similarities.  I have always wondered why the lumps in my nipples have remained.  I was told they would go away one day but they never did.
Guessing by the lack of respondents to my list, there doesn't seem to be a lot of people with similar traits...
Take care,
SS
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30 years old. Peyronies Disease for 5 years. Dorsal plaque along entire neuro-vascular bundle. Taking PAV cocktail.
slowandsteady
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« Reply #1 on: May 19, 2010, 12:28:52 PM »

Interesting list. I have some similarities. My testosterone is quite good for someone in their mid-forties. I am a slow caffeine metabolizer (too bad since I like coffee), had some painful lumps behind my nipples at about that age (but they went away at some point in my youth), some muscle issues with trigger points, chronic sinus infections yes (very low grade but they seem to linger), and my blood pressure is fairly low (on waking, 103/54 and 66 bpm).

s&s
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SSmithe
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« on: May 18, 2010, 10:43:20 PM »

Hello,
I am 30 and I have had Peyronie's for about 7 years now.  I only recently saw a urologist and was diagnosed.  I think I got Peyronies Disease from repetitive downward force and injury to my suspensory ligament during sex.  I have hourglass at base, pain with erection, and a dorsal band of plaque the whole length of my penis, but minimal curvature.

I have been trying to find any connections between Peyronies Disease and other heath issues I have had.  Below is a list, and I would love to hear if anyone else has similar matches. (some I already know exist, like low testosterone)

- Low testosterone (338) with low LH and FSH to match.
- Caffeine allergy when young. (migraines 24 hours after drinking)
- Gynecomastia (hard, harmless lumps in nipples which appeared around 13 years old, and still remain)
- Tight pelvic and low back muscles. Seemingly unable to consistently relax my perenium. Basically constant tension in that area that led to poor posture.
- Chronic Sinus infections
- Staff infections
- Low blood pressure

Please let me know if anyone has any similarities... 
Thanks,
SS
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30 years old. Peyronies Disease for 5 years. Dorsal plaque along entire neuro-vascular bundle. Taking PAV cocktail.
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