Young people with Peyronies-dont be shy and join!

[Hontas]

Hello,

I have been looking for any kind of treatment for the last three years and its safe to say that i have failed for now. But seeing a lot of young men getting this disease in a much more horrifying way compared to older people in an age that can cause a big crisis, i wanted to create an environment where we can help each other and tell the problems we face that is different than late onset peyronies. This thread in no way is to say that older people dont have problems, but it is in no way comparable to a guy who is manifesting with a much more aggressive version of the same disease at the brink of teenage or in 20s. There are some articles claiming young people that have the disease have it much worse and the disease progresses much faster and you are almost sure to have another fibrosis and worsening. This needs to be issued and from now on i suggest any young person in this forum to simply share their experiences as objective as possible so we can actually gather data and act accordingly to find a reasonable treatment.

The main point of this topic is to relate it with some genetic predispositions, general health and possible incidents that may have caused further trauma. I suggest all people having the same issue to stop invasive treatments to their dicks and join so that we can actually solve this, instead of relying on the surgery which is not an option for us. As cheesy as this crap sounds, we have to gather to make a database and act logically. I will post here some articles that probably proves my point but honestly i have got nothing to prove, i know a lot of young people come here and post once and then leave in despair. Every time i read the introduction posts i feel bad because it reminds me of the time i first got the disease and how lonely i felt. Lets gather and discuss about which medications could help us stop the active phase and possible worsening.

PS: Any type of troll will be reported as there are many on this forum lurking and afraid and probably very insecure since they are young. Don't make them more agitated by commenting stuff that doesn't in any way or form help the topic. I have had a very very hard time dealing with this over the years and unless we gather more people to understand why it happens i doubt we will solve the problem in any other way.

"Clinical and epidemiological characteristics of young patients with Peyronie's disease: a retrospective study"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4501350/

"Peyronie disease in younger men: characteristics and treatment results."
https://www.ncbi.nlm.nih.gov/pubmed/12514077

"Peyronie's disease in teenagers."
https://www.ncbi.nlm.nih.gov/pubmed/21981606

[ConcernedandWorried]

I got it at 26. No one in my family has Dupuytren's or Peyronies. As weird as it felt to do, I asked my dad, in fact.

Judging by the intuitions from people here that metabolic issues may contribute, I'm guessing that I got Peyronies for the following reasons: In very early 2018, I started living on my own. I was incredibly depressed, and over-eating sweets on a regular basis, in synchronicity with my dips in mood. Because I was fit, I did not gain weight, but I was likely incurring insulin resistance and setting myself up for inflammatory issues. In February, I had sex with a girl under circumstances that made me nervous enough that I could not really get it up, and yet I still tried to go hard at it. This probably caused some initial damage, although nothing that was particularly obvious. About a week after that, while masturbating (with lube, although vigorously) I suddenly began to feel intense pain in two spots towards the base of my penis, and noticed an immediate change in my erection's shape. Due to my depression, anxiety, and OCD, I continued to try to delicately masturbate for weeks after the initial injury, instead of leaving it alone. There is a deep relationship between anxiety and compulsive masturbating for me. This allowed the inflammation to continue. At the same time, I was biking for transportation in the winter, which probably significantly reduced blood flow to the affected areas. My diet also continued to be very poor in quality. All these factors together have given me plenty of dents and a very minor bend. I'm lucky in that, with the half dose of Cialis I was given, I don't experience any serious Erectile Dysfunction. I still have much damage on my penis and do not have a lot of hope for the future. I didn't intervene with traction early enough to prevent these growths from proliferating, and the bend is not responding to traction that I started around the 11 month mark. I've also been held back with anxiety about penile growth, because I am unsatisfied with my girth (5") and desperately hoped that despite the damage, I would end up like some other men in their late 20's, and "fill out" a bit. Now I've waited too long to act on my Peyronies. There isn't really anything I can do. I planned on doing the dramatic fasting that JS1991 did, but he started around his one year mark, and I'm at 1 year, 5 months as of the 28th of July. I also held back on fasting because I knew that if there was any growth left to occur naturally, it would halt that growth permanently. The two original plaques will have hardened, and are much less likely to soften, be remodeled, or shrink. I have other plaques that are newer, but I don't really know how many. I think I have a bunch of small ones, which makes my wishes of growth seem foolish because I know that anywhere there is scar tissue, there will be no growth. It's over for me.  

[Hontas]

Brother, i have the exact same symptoms as you. And no, its not over. Everything can be done. I have managed to do myself a list which will help me get through this in any way shape or form. I have started this topic in order to gain more knowledge and maybe act accordingly. In terms of medical diagnosis, me you and many other young men on this site have a unique subtype of Peyronies(as quoted from an article). We may have constant progression and pain however we have full erectile function (%97 out of many people that was tested in a clinical trial), so there are things to do before totally giving up. I have a few plans such as

1)Total genetic, metabolic and cytogenic background check. Use available Biologics accordingly.(Psoirasis and Rheumatoid Arthiritis are really common in the family of people with Peyronies)

2)Trying new Oral medicines and supplements

3)Ultrasound Guided Collagenese injections with a mini-injector(insulin injector like)

4)Wait for upcoming regenerative Tunica surgeries and treatments

and as a last resort,

5)Find the most durable Implant and get implanted to stop further scarring and improve erectile quality


There is a lot to do before suicide. Lets gather a community so that we can actually do something instead of sitting on our asses like a bunch of maggots