How did I get here ? Ah yes I remember - I broke my dick! And now I'm fixing it

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Fix This

Hello fellow Peyronie's brothers. A club that this time last year I wouldn't have known existed

In July 2019 on the night of the World Cup Final, I was staying in Dublin for 1 night. Was flying to the USA the next day to work for a week. So I'd had a few Guinness whilst watching the World Cup Final and retired to my bed quite early that night. At around 1am I woke up and started thinking about my rather lovely lady and all of the good sexy times we've had. So I was happily masturbating away half asleep in my bed. I've always had a slight congenital curve to the left which never really caused a problem. But sometimes I would subconsciously try and ' straighten it' to the right when erect, and I sometimes found that I would do this and squeeze hard to prevent an orgasm if I didn't want one.  Anyway, I did this a bit too far and crack/ snap/ pop went my powerful weapon. From that moment on it has never been anything like as powerful! I jumped out of bed and shouted ' what the F~@Peyronies with a dorsal curve of about 30 degrees at the time he thought. Until that point he thought I didn't have anything. He advised the wait and see approach . And said he thought I might be ' one of the lucky ones ' and to do nothing for a year apart from take vitamin E. He also advised me in an email of this ' I think it's important to realise that we will not be able to get your penis back to normal' . Not the words anyone wants to hear from their uroligist ,  and for me simply not good enough

So on I went in my quest. Back in August last year I had used an electronic muscle massage machine ( for bad backs etc ) in an attempt to break up the scar tissue as you would with scar tissue in your back for example. Don't know if this helped or not. Onlt did that for a month or so. I also tried an electronic ' accupuncture pen ' ( infra red according to seller )on Amazon around August time. Which I could feel very much on the plaques. I still use it occasionally, but don't know if it breaks down the scar tissue or just makes it worse.  I tried an Andropeyronies around Christmas time . I emailed them as it apeared to make the curvature slightly worse initially. But I think I may have left ir on for 2 long without a break once.  They asked me to return it to them as I had not been refered by a uroligist to use this device. I suspect it would have helped if I'd persevered, but sent it back anyway and got my money back. I transfered my uroligy care back to one my local NHS doctors . I started using the Somacorrect VED whcih was arranged through them ( but had to pay for privately ) around May time. I've been using since then. once a day, for a about 6-8 weeks and have recently started using twice a day. Have spoken to the legendary Old Man on here , he is of course very helpful. But I have to admit I haven't been following his protocol exactly ( apart from  maybe  a week ) . I'm mostly using the medium cylinder ,but sometimes use the smallest cylinder as even though it is very tight, the penis is very straight within it. Occasionally use the large cylinder just to pump maximum blood in. I'm not sure if I've seen any actual improvement yet in the curvtaure. I would say there is a slight improvment in the narrowing/indentation ( to the right just below the glands with me ). But I do feel it's getting me there and will continue for now. The company who sell the Somacorrect also sell the Penimaster Pro, which I may try in conjunction with the Somacorrect at some point. I've also been using a 3MHZ ultrasound device from Amazon since about September last year. I'm thinking that it is beneficial to use this as a medicine transdermally ( will detail later )

I'm taking a ridiculous amount of medications . 5mg Ciallis prescribed by my Doctor for the last couple of months . Acetyl L carnintine, Vitamin E, L -Arginine , Kanchanar Guggulu, Serrapeptase , Nattikonase , Vitamin D3, Cod Liver Oil, Coq10 ( just switched to Ubiquinol 200mg ), PABA, Propolis ( just started). Also take a pro biotic tablet avery day ( have done for years for general immune health ). I used to take daily vitamin C high doseage between 1000-1500mg per day to keep colds at bay) . I was taking this at the time of my penis trauma last year, and suspect that my body may have had too much Vitamin C at the time ( unbeknown to me at the time, it seems that excess Vitamin C can lead to excess Colagen formation which of course leads to xcess scar formation in peyronies forming process). So I don't generally take Vitamin C now. I sometimes have bit of Coconut Oil,and have just in the last few days started having a spoonful of Olive Oil every day ( good for testosterone levels and Erectile dysfunction apparently ). Have adjusted my home diet to include lots of Spinach, Broccoli, Pomegranetes, Beetroot, Eggs , Ginger and other foods that are said to be good for testosterone levels and Erectile Dysfunction ( The original Uroligist did say that my Testosterone levels were normal for my age of 44) but I want to keep them as high as possible naturally anyway. The NHS ( National Health Service) here in the UK doesn't currently prescribe Pentox for Peyronies.  I think that they should and having read various success stories on here and reports elsewhere. I went back to my Doctor and have asked again about this. The doctor is currently making an additonal enquiry about whether this can be done. Otherwise I'll have to order it from Canada or wherever.

Current topical applications - Castor Oil daily( last 2 months maybe ), a little bit of Vitamin E gel ( from capsule) most days . I now mix these together with DMSO  ( 50% DMSO/50% water currently in the last couple of weeks only ) and have also been mixing in a little bit of l carnitine and PABA powders in . As according to another post on here, they have very small molecules that will pass through with the DMSO ( again quite recent with this ) . I've just ordered some emu oil which I'm going to add too. It seems to be the main ingredient for H-100 gel which appears to have great results? H-100 it seems , is only available currently via a prescription from a USA uroligist and to be posted to a USA address. After applying the mixture of ointments that I do have ( notmally after VED),  I normally use the 3MZ ultarsound device to hoepfully get them deeper into the penis ( not sure if it does or not ). Am also considering buying an Iontopherosis machine for this. Also have been mixing in a bit of ibuprofen gel when I apply my mixture. not quire sure why nobody seems to do that generally, as one of the main elements we're battling is inflamation

I have also been doing a bit of manual traction for the last few weeks. Thanks to NeoV for his great Youtube videos on Peyronies and advise on manual traction. Again I'm hoping this will help with my current regime . All of these changes are gradual with Peyronies as we all know

Have even tried the sonic toothbrush method recently. Normally before VED as it has a chance to stretch out any inflamation that may have been caused by the sonic vibrations  ( in my mind anyway who knows what the hell is really going on in there  ). I think further damage using a sonic toothbrush is pretty unlikely due to the fact that it's actually quite gentle, when compared to a lot of other treatments. Anyway this one I've just done on and off for the last couple of weeks

I can definitely say that the scar tissue is mostly less noticeable than it was last Summer after it happened. I think all of the treatment and meds have helped with that. And the VED. But there is still scar tissue present obviously

The curvature is much the same I think. I think it got a bit worse at the start of the VED treatment ( as advised that it would ) due to enlargement of the penisand forced full erection that hadn't been there for a while previously ) and then has got a bit better since, but I don't think it's really any different to how it was at the start of this year.

The erectile dysfunction doesn't seem to be getting much better. And I suspect that this will remain as long as there is scar tissue obstructing the penis. My girlfriend lives abroad currently, so this will be tested more accurately next time I'm with her!

I've been exercising 3-4 days a week, weights at home and a bit of cardio ( bike on turbo trainer mostly ) can't run at the moment due to a lower back injury (I'm falling apart ), but hope to get back to that soon for cardio and circulation

I have made enquiries about Xiaflex ( its' called Xiapex here in the UK ) and the P shot ( which  think may be more valuable than most people would suggest ).  Xiapex would probably be my next port of call, although it's expensive and only claims to improve the angle by about 30% generally it seems. I tend to think a combination of therapies will work best though. So maybe a course of that, and the VED/ traction, drugs and topical applications will do the trick! My Doctor says that ESWT is quite effective, but based on what I've read I'm not too sure. It is something that I may try anyway. It may not be that different to the sonic toothbrush / infra red accupuncture pen methods that I've already done a bit of

Surgery is of course the last resort generally. I'm not interested in the Nesbit procedure.  I felt as though I'd lost size anyway in the months after the injury ( maybe regained with VED now ), but I will not have an op which will reduce the size in any way. I want my original penis back, and if not exactly the same , I want it to be the same size at least .  It seemed to be quite a draw to my lady, and I want to keep drawing her in ( not that she loves me just for my penis, but I know it helps/ helped ). Our manhoods are very important to us fellas. We don't realise how important until something like this happens. Like most of you I'm sure, I've become quite obsessed with this. If I was to end up having surgery, then I think I would be looking at the Egydio technique, or maybe the ' sliding ' Egydio technique. I have enquired about costs by Dr Egydio himslef in Sao Paulo in Brazil, and it would seem likely to be very expensive currently. But if its the only way of correcting the peyronies and maintaining/ reganing the original size as he claims to be able to do , then  I still may consider that option in the future.  I know that there are surgeons who can perform the technique in the UK for a better price currently so would look at that option first. But am hoping that if I can not correct using the various conservative methods or injections , then by this time there will be further developments in treatment of peryronies and ' the cure ' will be found

I've stopped smoking anyway since Christmas, I know that my previous smoking and boozing maye have helped to induce this event and condition. I still drink, but generally quite a bit less and much less beer now. When I have a drink at home now, I tend to have red wine,  which has high ant oxidant levels, which are beneficial to Peyronies ( too much red wine is still not beneficial of course ) . Pinot Noir apparently has the highest levels of resveratrol which is the anti oxidant found in red wine. I'm sure you'll find various different opinions about this when you google

My moods have been very up and down with this, as I'm sure they are with most of us. But I'm an optimist, and I am going to ' fix this ' at some point. I realise that some of you have had much worse cases than me , and I wish you all the very best with your battles. We all have this in common I guess. I feel that at some time in the not too distant future, there will be a ' cure ' for this. Stem cell possibly, tissue engineering. Something along these lines. Maybe we all need to start lobbying the Governments to do something about this on our respective countries? 3-9% of the World's population is a hell of a lot of people with Peyronies. And I think due to the private nature of it, most of us suffer in silence. Just a thought for the future anyway

Apologies for the massively long intro. Seems like a lot had happened and hard to sum up in a paragraph or two

I'll keep you all posted with my developments /improvements and will probably make a few other posts from time to time...And will make them shorter than this one!

Cheers now

Fix This  
aka 'The Fixer'









47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

TonySa

Welcome, you're really attacking this disease with everything you've got!
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

pey ron

Drop the vitamin C. Research vitamin C and collagen and elastin.
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

Fix This

Thanks TonySA

Yes I've really upped the ante in the last few weeks esepecially. Attacking it from all sides and using multiple methods is the best way I think. Physical rermodelling with the VED/ traction, the vast list of medications, topical applications, exercise and nutritious food and maybe the extras like the ultrasound. sonic toothbrush all at the same time seem to be helping

AN UPDATE SINCE YESTERDAY! I took some photos yesterday afternoon of my old boy in an erect state. I actually noticed that the curve was less. I took a lot of photos from all angles to be sure. The curve is very much still there but it looks like it's ' smoothing out '  on the dorsal bend . Although strangely the longer underside of the penis opposite curve (the ventral) still looks like its swollen and sticking out as though it's compensating for the bend . But the bend looks like it's reducing, so I'm sure the opposite side will follow suit and straighten up as the bend seems to be doing. Probably a reduction of just a few percent maybe like 3-5 degrees I would guess out of the 30-40 degree curve) The penis felt better and a bit fuller than has been. I also noticed that viewed from above when erect it was starting to look fuller and better. With the peyronies, the narrowing on the right side towards the glans in particular and the curve upwards made it look much smaller than it used to.  Especially noticeable when I took photos from that angle. But yesterday it definitely looked like it was slightly fuller and I guess the slight angle reduction helps aswell.  I am very pleased about this , and I know this is happening now and it's possible to make progress with this. I'm going to continue attacking this as I have been, and hopefully adding Pentox asap if I can get it here.

Just a note also , that after saying I haven't been able to go running since last year because of my back . I went running yesterday too ( very slowly!). That was great for my mental well being and I'm sure for my circulation too ( which I'm sure is vital in this battle )

So overall feeling very positive. Will keep posting, and if, or rather when I get really good improvements and I do manage to fix this completely, I will of course post in the relevant group on here for those who've had success
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

Fix This

Thanks Pey Ron

I don't take vitamin C anymore more for that reason. What I was saying was that I used to take it pre peyronies injury ,and was also taking it during the period straight after the injury.  Not knowing that it could have contributed towards the development of the excess collagen and  the peyronies.

Like Rod Stewart said - 'I wish that I knew what I knew now..when I was younger! '.....One year younger in my case!
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

Fix This

I forgot to add, I've also been using heat treatment for the last month or so. One heat pad per day generally. I started by ordering some hot hands handwarmers, but I actually found them too hot at times and they burnt the top of my thighs' groin area one day. I ordered some cheaper ones on Amazon which were not quite as hot so much better to apply direct  ( I can provide a name but not sure if I'm supposed to do that on here ) I've since noticed that my local Poundland ( cheap shop in the UK) sells the ones that you can stick to your back. These are still quite cheap £1 for 2 and they are bigger than the Amazon ones so less likely to fall out form your boxer shorts!

Anyway, my feeling is that the daily application of heat is helping too. Most of these heat pads retain these heat for between 8 and 10 hours. Then you throw them away.  You can get reuseable ones, but these tend not to stay hot for as long and you need to be at home near your kitchen to keep reheating .

I'm sure I'm preaching to the converted with most of you here, but worth mentioning anyway

Cheers all
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

Bubba dawg

You tried acupuncture on your penis? You know you could just create more trauma.
According to the doctor and medical test performed, you had or have a easily treatable case of Peyrones. Not much plaque. Then you went off the deep end with all this self medicating. Understandable but not the scientific way to treat a disease. May do more harm than good. May harm the rest of your body as well. Mixing all these drugs is not harmless. Your doctor said you might improve with time
Find a Peyrones specialist and go from there. Leave yourself alone is my advice
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Fix This

Thanks for your concerns Bubba Dawg

No it wasn't acupuncture. As I said it was an ' electronic acupuncture pen '. It sends an electronic current which is sold as having a similar effect to real acupuncture, but there are no needles, and the skin isn't pierced. Neither is the flesh or scar tissue or any part of your body or penis in this case! My theory was that it could help relax and break up the scar tissue (as that it was actual acupuncture can do ) . You may be right though , it may not have helped and was a bit of a risky move. I'm not using that treatment as part of my regime anyway. It was something that I tried last year,and I don't think it made things any better, but it didn't seem t make things worse either. I wasn't suggesting to anyone else that they do that. I was just listing all of the various treatments that I've done.

I can see that you've had Xiapex several times?  I would view this light use of this albeit unknown method  ( the acupuncture pen ) of treatment as far less invasive and potentially damaging than injecting foreign materials and pharmaceuticals directly into your penis , as with Xiaflex/ Xiapex injections that it looks as though you've had ? Whether it's FDA approved or not, that is surely more potentially inflammatory and damaging than an electronic signal. Anyway I don't wish to get into a debate or argument with you. I appreciate your opinion and I'm sure that you can appreciate mine also. I'm well aware of most of the Peyronies treatments available as I have ( as you have I'm sure ) spent hundreds of hours researching this on the internet since developing it .

Perhaps you haven't read my update on the improvement in the curvature and size which I'm currently witnessing. I know that this is due to everything I've done and am continuing to do  to beat this disease. And I know it would not have improved 'by itself' . I do not have an ' easily treatable case ' of Peyronies as you said . And I have not been treating it easily. Far from it, as you can see I'm performing maximum conservative treatment on it .  And the Uroligist did not say it was ' easily treatable ' at all. In fact , as I said previously he said there was 'no way could return my penis to it's normal state'  . Which I have 100% refused to accept, and so should any of you if you are told that. I had/ have a curvature of between 30 and 40 degrees, narrowing from midway down my penis, loss of size and erectile dysfunction . I chose and choose not to leave this alone and ' wait and see . It's just too mprtamt to do nothing about .  There are dozens, if not hundreds of cases on here ,where Uroligists have told Peyronie's patients to ' wait and see '. Meanwhile the condition most often gets worse within the first year and a half . Often to the point of calcification, or to the point that it's more difficult or impossible to treat.If we all listened to this kind of advice , none of us would be on here, and most of us would have deteriorated over this time.

I now have decent NHS urologist who I'm finding helpful currently, rather than the first  ( private ) one that I saw. A Peyronie's specialist Uroligist is indeed a good idea. And as you can see in my first post I have been in touch with a number of Peyronies specialists both in the UK and even in other continents!  Although I'm going to continue with my intensive conservative treatment for now and go the specialists if I am not winning the conservative battle. Most people in the UK don't have private health insurance. So going to one of these specialists and ultimately having intralesional treatment or surgery is expensive. But if I need to do that I will, but currently I am starting to see genuine progress with my treatment.  Which is fantastically, and almost unbelievable to me too!

I would suggest other members try to view this as a positive, and maybe even take something from it rather than criticising me. Nothing ( apart form the acupuncture pen which I'm not generally using )  that I'm doing is groundbreaking, or hasn't been done or talked about my other members on here. Perhaps I'm just combining more therapies than most people ( VED/ traction/ meds/ topical/ heat ) But then I'm very determined to beat this as you may have noticed.

I certainly will not,  and cannot be taking your advice to ' leave myself alone'. I can't actually understand that attitude on a forum which is meant to discuss ' not leaving yourself alone ' . And especially as I'm starting to experience success by my own methods

As I said thanks for your concern. We all have different methods and approaches to dealing with our conditions. You carry on doing what you wish and I'll do the same.

I'm not going to be able to spend time like this defending my methods. If this is going to become something that I'm going to have to do a lot , then I'll probably just step back from this and not log in for a while. As this is too time consuming for me and I don't really want to debate and argue with people. Especially when we're all aiming to do the same with this disease.

I will post updates on my improvements though as and when they happen. And they will happen. I'm all about being positive, even though this disease makes you feel anything but positive most of the time. When you do start to see an improvement, you feel fantastic! And I'm sorry, but I'm not going to allow any amount of negativity to affect that

Cheers all . Thumbs up. Strong arm emoji
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

Bubba dawg

5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Fix This

47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

Bubba dawg

Right under where you say you are taking a ridiculous amount of medications
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

philtered

 Those supplements are nearly all natural apart from cialis. I take Acetyl L carnintine, Vitamin E, L -Arginine l citruline, flaxseed oil, ubiquinol,vit B ,ginko,pine bark. i've had regular blood and liver function tests for a liver disorder and they're all good.. It's mixing pharma medications that can cause problems.

 I've followed a very similar path in tackling this to you "fix this" and i'm also in the UK with little to no help from the urologists i've seen. I've had to take the initiative myself with the help of the research i've done. This forum is fantastic and such a help to keep me positive about my recovery which is key to any battle.

 I also use VED and traction, but don't make the same mistake as me and overdo it. i hurt myself with VED by overpumping and stopped it for a while, but i've resumed gentle 10 minute sessions lately and it's defo helping.  
AGE 59
Acute since  Dec 2017
VED, traction & supplements
Went from 30 degree curve to 80 during acute stage  stabilized since May 2019
Curvature calculated at 80 degrees by Dr Ralph from emailed photo.
Titan  22cm with 1cm RTE's Prof ralph Feb 2022

Bubba dawg

I have taken supplements too. I am not anti supplement. But NO supplement will have any effect on plaque and/or calcium in your penis. Xiaflex, for example HAS to be injected directly into each plaque to have any effect. I am sure the Xiaflex company would rather have an oral version. The injecting part is what scares people away
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Fix This

Quote from: Bubba dawg on May 23, 2019, 04:03:07 PM
Right under where you say you are taking a ridiculous amount of medications

I didn''t say that Bubba . YOU said that. And that is your opinion, and a completely unfounded one.  But then having read many posts on here , it seems that you have negative and dismissive opinions about most people's posts and treatments.  

All of my supplements are nearly all natural and non prescription apart from the Ciallis. I may at some point go for some blood and liver / kidney tests to make sure all is OK there as Philtered does. But I don't feel there's any danger there at the moment with these non prescription mostly natural supplements

Bubbs, no need to reply again. You appear not to take on the responses and corrections that are made to to your previous criticisms. So there seems to be no point in conversing with you further about any of this

Cheers and good luck
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

Fix This

Quote deleted by moderator!
Read the forum rules!



Good to hear from you Philtered. Thanks for the positive encouragement and advice. What traction are you using by the way? Are you under an NHS urologist?
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

jj21

Good to hear you're doing the known therapies. I have also seen some slight curvature improvement from cialis daily, pentox, manual traction, VED and heat.

You're right we do not value our penises until something like this happens. We tend to take it for granted and become accustomed to daily strenuous dry masturbation. Now we realise how valuable our male organ is.

I also agree surgery should be an absolute last resort. And if you're able to have sex with your curvature definitely don't opt for surgery. After a few months of treatment i've been able to have some good sex even with the hinge n curvature.

You're on the right track with treatments n it's great you're not giving up neither am I.

I also noticed that a combination of cialis daily and Pentox had a significant impact on my ED. Really improved it. So hopefully you can get some Pentox soon.

I recently started Keto which may benefit you as well, have noticed better erections since starting. Have a look at NeoV's vids on keto etc if you haven't already.

Hopeful for you bro that we will conquor this.

JJ
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

TonySa

There are European studies that show supplements (esp in combination with other treatments) can be therapeutic.  Search multi model treatments on this forum.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bubba dawg

Quote from: Fix this on May 28, 2019, 05:32:20 AM
I didn''t say that Bubba . YOU said that. And that is your opinion, and a completely unfounded one.  But then having read many posts on here , it seems that you have negative and dismissive opinions about most people's posts and treatments.  



Here it is right here. You should read you own words:


'm taking a ridiculous amount of medications
. 5mg Ciallis prescribed by my Doctor for the last couple of months . Acetyl L carnintine, Vitamin E, L -Arginine , Kanchanar Guggulu, Serrapeptase , Nattikonase , Vitamin D3, Cod Liver Oil, Coq10 ( just switched to Ubiquinol 200mg ), PABA, Propolis ( just started). Also take a pro biotic tablet avery day ( have done for years for general immune health ). I used to take daily vitamin C high doseage between 1000-1500mg per day to keep colds at bay) . I was taking this at the time of my penis trauma last year, and suspect that my body may have had too much Vitamin C at the time ( unbeknown to me at the time, it seems that excess Vitamin C can lead to excess Colagen formation which of course leads to xcess scar formation in peyronies forming process). So I don't generally take Vitamin C now. I sometimes have bit of Coconut Oil,and have just in the last few days started having a spoonful of Olive Oil every day ( good for testosterone levels and Erectile dysfunction apparently ). Have adjusted my home diet to include lots of Spinach, Broccoli, Pomegranetes, Beetroot, Eggs , Ginger and other foods that are said to be good for testosterone levels and Erectile Dysfunction ( The original Uroligist did say that my Testosterone levels were normal for my age of 44) but I want to keep them as high as possible naturally anyway. The NHS ( National Health Service) here in the UK doesn't currently prescribe Pentox for Peyronies.  I think that they should and having read various success stories on here and reports elsewhere. I went back to my Doctor and have asked again about this. The doctor is currently making an additonal enquiry about whether this can be done. Otherwise I'll have to order it from Canada or wherever."
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Fix This

Entire post a "Quote" deleted by moderator!
Read the forum rules!
Next you will be watched!!!
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pfract

"As I said , I've noted your critical troll like attitude to everyone on here, and I will not be permitting it again on my posts"

Hey TonySa, i don't mean to discredit you here or belittle your opinion but here you have another example of the type of attitude i was talking about, from Bubba Dawg. Even the user "Fix This" noted it. It starts to be disheartening unfortunately. :/


TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bubba dawg

I am not the type to cheerlead when I see somebody doing something potentially harmful to themselves. Sorry . That is just me. The man admitted he is taking a ridiculous amount of drugs. I agreed with him. That is like trying to fix a car by throwing parts at it instead of letting a mechanic diagnose it and do the repair. I thought we were here to help people
Not tell them what they want to here. My bad
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Pfract

@Bubba: we are here to help and listen too. Apparently, you like to comment on every thread with your opinions but you never care to answer back the questions you made after said allegations. Your posts reek of logical fallacies and others have already started noticing that. Till when, will this go on?  

Fix This

Yes , but you're not a 'mechanic ' are you Bubba ?

Most people on here are already seeing urologists ( Mechanics ) so we don't need to be patronised about that. We've all had full diagnosis and are all undergoing ' repairs ' . And as we all know, the 'mechanics' don't always get the peyronies treatment right and sometimes it's just not enough - hence this forum and hence conservative self treatment such as mine.  Just to clarify - Ziaflex is not the be all and end all treatment for many people. It had no effect on some people's Peyronies and it is expensive in places such as the UK. It may have worked for you, but to keep touting it as the only treatment option I believe is misguiding people

None of the supplements that I'm taking are random or have been thrown at this condition. Nearly all are either backed up by Clinical studies or are standard treatment for this condition. Most members on here will likely have a similar list of supplements to battle this condition. If you genuinely find an article that says that for example mixing Cialis with L-Arginine can be dangeroius , then I'm sure we'd all like to know. But that appears not to be the case

With regards to me saying I'm 'taking a ridiculous amount of supplements '. I said to you in my last post ( which you've ignored again ) that I was being ' tongue in cheek' with this and it wasn't literal . It may be perceived by some people as a ' ridiculous amount' . People such as yourself. But most people here will not see it as ridiculous, Especially as most are natural and quite frankly what most people take. A

You claim to be ' trying to help', but it doesn't come across that way I'm afraid. You misread my post initially about the electric accupuncture and when I correctly explained to you, you refused to acknowledge .

I don't want anyone to cheerlead thanks. But if you're going to criticise and debate people's methods, then you also have to accept that people will reply to you in the same tone and manner. And you should have the courtesy to acknowledge what someone has just said , rtaher than switching to antirely different criticism.

I'm sure many of the people that you've 'refused to cheerlead' on here have had success with their treatments, regardless of whtheer you approve or not.

You don't have to be a cheerleader. And you're certainly not a uroligist . I don't need you to tell me ' what I want to hear ' . I'm an educated individual and  I can make up my own mind thanks. So as I said before, it's best if you refrain from posting on my threads again. I find replying to all your negative misinformation to be time consuming and a drain

Good luck with your own personal peyronies battle

Fix this
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs

Bubba dawg

I gave you my honest opinion. You took offense, because it didn't agree with what you are doing.  That is your problem. I am taking tribulus and E. 625 mgs and 200 mgs daily. Tribulus has had cases of Kidney damage. Hopefully they were at higher dosages. E is said to cause strokes at 400 iu daily over a 10 year period in new studies. Google both. I am not making that up. The drugs are not harmless. The kidneys and /or liver are effected by what we take. Some good and some bad. In the desperate quest to fix our dicks. We can over look the damage we may be doing to other parts of our bodies. Just pointing that out. Youre taking a much wider variety of chemicals. I have taken a lot too over the years. Not many had any effect on my dick and some just made things worse
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TonySa

Perhaps this is just a case of needing to agree we disagree and let this be fixits thread to keep us posted on his own treatment approach?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Fix This

Quote deleted by moderator!
Read the forum rules!


I'm not taking Tribulus so that won't affect me, but if you're concerned because you're taking it then you can stop of course . The vitamin E / strokes link is certainly something worth looking at thanks. That would be something that would affect most of us on here as I'm sure most of us include Vitamin E in our regime. I would certainly hope not to still be fighting this condition in 10 tears time, b7t of course it's possible

I didn't take offense at your opinion. As I said you're entitled to your opinion. It is frustrating that you appear to not acknowledge responses to your ' opinions' and move onto voicing another opinion about something else entirely. If you can't accept that other people have opinions or acknowledge what they've said m then I;m afraid it's actually your problem, not mine

Hey ho, we've both had our say.No need to discuss further.  Let's carry on with our own treatment plans and as I said before - good luck with yours

I'll be updating here as TonySA mentioned

Cheers y'all
 
47 , penis trauma July 2018 leading to Peyronies. 30-40 degree dorsal curvature, narrowing after plaque. 

I'm attacking it though, and I will fix this!

VED, traction, DMSO, Ultrasound, Acupuncture, meds, herbs