Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

ALL Members PLEASE Add a Signature line with age, history etc
PROFILE -> FORUM PROFILE -> SIGNATURE
More instructions here -> Signature Line - History - Peyronies Society Forums

Pages: [1]   Go Down

Author Topic: Anyone with repeated active phase?  (Read 431 times)

0 Members and 1 Guest are viewing this topic.

Hontas

  • Solid Contributor
  • ***
  • Country: 00
  • Offline Offline
  • Gender: Male
  • Posts: 299
Anyone with repeated active phase?
« on: March 24, 2019, 08:39:26 PM »

Is there anyone out there that has another injury(or active phase) happened to them multiple times throughout 2-3 years? I see people talking about AN injury. I never had AN injury, i always have small traumas that lead to new active phases and curvature. Anyone else same?
Logged
Never out of Active phase, painful erections.

jj21

  • Solid Contributor
  • ***
  • Country: au
  • Offline Offline
  • Gender: Male
  • Posts: 201
Re: Anyone with repeated active phase?
« Reply #1 on: March 24, 2019, 10:35:00 PM »

I believe that's what happened to me, I never really had one specific injury which caused the condition but rather a few minor traumas (where there was no pain and I didn't notice much difference so continued my sex life). Eventually one day just ended up with curvature which then lead to Erectile Dysfunction.
Logged
Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

skunkworks

  • Global Moderator
  • ****
  • Country: au
  • Offline Offline
  • Gender: Male
  • Posts: 1526
Re: Anyone with repeated active phase?
« Reply #2 on: March 24, 2019, 10:40:17 PM »

Quite a few people have reported that over the years. This is a disease of healing incorrectly, if you don't fix that, no wonder you can get it happening again and again.

Hontas

  • Solid Contributor
  • ***
  • Country: 00
  • Offline Offline
  • Gender: Male
  • Posts: 299
Re: Anyone with repeated active phase?
« Reply #3 on: March 25, 2019, 06:56:14 AM »

I tried every type of medicine that could be remotely useful for peyronies except tamoxifen and some dangerous biologics. I take 0 grams of sugar and only a few grams of carbonhydrates every day. I tried intermittent fasting as well. I don't know where to go or what to do since there are literally no treatments for repeated active phase which is the worst. I am not even counting the constant pain i had over the years, for progression to stop i would do literally anything
Logged
Never out of Active phase, painful erections.

skunkworks

  • Global Moderator
  • ****
  • Country: au
  • Offline Offline
  • Gender: Male
  • Posts: 1526
Re: Anyone with repeated active phase?
« Reply #4 on: March 25, 2019, 11:46:55 AM »

Human bodies are weird. I read about Jordan Peterson's daughter, if she eats anything other than meat she gets huge allergic symptoms and arthritis flare ups. Before going carnivore she had two joints replaced due to how aggressive her arthritis was.

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2468
Re: Anyone with repeated active phase?
« Reply #5 on: March 25, 2019, 06:04:41 PM »

Pentox and low dose daily PDE5i can help during the acute stage as can traction (restorex studies during acute phase).
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Hontas

  • Solid Contributor
  • ***
  • Country: 00
  • Offline Offline
  • Gender: Male
  • Posts: 299
Re: Anyone with repeated active phase?
« Reply #6 on: March 26, 2019, 07:07:23 PM »

I dont want any medicine to help my acute phase, i want a medicine to not get in acute phase at all. As i said i tried every medicine of course including pentox and PDE5 and only cialis was a bit supportive. Pentox was the worst
Logged
Never out of Active phase, painful erections.

jj21

  • Solid Contributor
  • ***
  • Country: au
  • Offline Offline
  • Gender: Male
  • Posts: 201
Re: Anyone with repeated active phase?
« Reply #7 on: March 27, 2019, 01:27:32 AM »

Hontas - Pentox is pretty bad but if you deal with the side effects it does have it's benefits.

Have you tried the keto diet? That's the only thing I can think of which may keep you out of the active phase while you're on it as it reduces inflammation.

Logged
Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2468
Re: Anyone with repeated active phase?
« Reply #8 on: March 27, 2019, 03:48:24 PM »

Time to find a real peyronies specialist for such a complicated case.
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Hontas

  • Solid Contributor
  • ***
  • Country: 00
  • Offline Offline
  • Gender: Male
  • Posts: 299
Re: Anyone with repeated active phase?
« Reply #9 on: March 27, 2019, 05:31:12 PM »

Pentox made me worse is what i meant to say. I could take side effects as bad as chemotherapy if it could provide me solution. Its just that its doing the opposite of helping to my case.
Logged
Never out of Active phase, painful erections.

jj21

  • Solid Contributor
  • ***
  • Country: au
  • Offline Offline
  • Gender: Male
  • Posts: 201
Re: Anyone with repeated active phase?
« Reply #10 on: March 27, 2019, 11:37:27 PM »

What are you symptoms I think I read your improvement story?

Have you had the ultrasound and seen a specialist?
Logged
Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

Hontas

  • Solid Contributor
  • ***
  • Country: 00
  • Offline Offline
  • Gender: Male
  • Posts: 299
Re: Anyone with repeated active phase?
« Reply #11 on: March 28, 2019, 07:32:39 PM »

I have been to 3 specialists and at the time ultrasound didn't show it but doctor said he could feel a palpable plaque. My symptoms are that i constantly have a new scarring that is near my first injury and it doesn't stop worsening. I tried every possible thing to stop its progression. So don't even ask if i tried something. I probably did. I even did a full autoimmune and gene test. Nothing comes up positive so i can't treat it right now. It is impossible for me to stop worsening. Life shouldn't be like this ,this isnt life...I would rather have cancer and a normal sex life.
Logged
Never out of Active phase, painful erections.
Pages: [1]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
7 Replies
2156 Views
Last post September 15, 2012, 06:27:47 PM
by Hawk
26 Replies
5141 Views
Last post October 17, 2014, 08:57:27 PM
by LWillisjr
1 Replies
754 Views
Last post March 05, 2017, 07:51:22 PM
by LWillisjr