My story

[jfest]

Hello all,

Let me say that this board has been a great resource for me since my diagnosis. Just to let you know my story...

Starting in November of 2017 (at age 47), I started to get some erectile dysfunction with my recently prescribed blood pressure meds. I was 40 pounds heavier than I am today, and I'm sure that contributed to it. During the next 6-7 months I would get semi hard and still engage in intercourse with my wife. My current Urologist at Baylor believes this was the likely cause. During 2018, I continued to lose weight, and changed blood pressure medication. I started to get rigid erections again. But when I did, I noticed a more than usual bend to the left at the base. As of right now, I have hour glassing at the base with a more pronounced curve (maybe 30 degrees).

At first, I didn't think much of it. Didn't even know there was such a thing as Peyronies. Fast forward to September 2018, while at my urologists office, I saw some literature on it. The doctor (who I'm not going to anymore) thought nothing of it. December 2018 hit and while the hour glassing hadn't shown up yet, the bend was still there, along with tremendous pain (it has subsided a lot now). That was when I finally got my diagnosis.

Since then, the constricted band at the base is more pronounced. The Urologist I'm seeing now has me on Pentox, L-Arginine, daily Cialis and has recommended traction. I get an ultra sound in another couple of weeks. And I will see him again in six month. I've started restorex, but to be honest, I feel the counter traction may be too painful. I don't want to do any more damage and may switch devices.

As for lost length, I never was a porn star. My 6" has gone down to just over 5". I consider myself lucky to have not lost anymore...yet. I have to be honest, this board is in many ways a God send. The psychological hit of this disease, along with me recently finding out that my wife had an affair last year has been absolutely devastating. But I've read some great stories, and can see that there is strong community here of positive people.

I have thought long term. If traction doesn't work, do I go for a surgery? Intercourse is now getting pretty difficult. And of course, if my condition worsens, there is always a penile implant. Anyway, thanks to all who have provided valuable insight into their respective conditions. It's been very helpful. Likewise, I will post any changes and updates as I get them.  

[TonySa]

You may want to see about adding xiaflex to traction and maybe pentox and low dose daily PDE5i.  Be sure to check out the survival guide.  Peyronies Survival Guide - Information for New Members - Peyronies Society Forums

[BAtBAt]

Hi jfest and welcome. Its good that you found it helpful and it seems you are in a really positive track that many still wish to find. Hopefully the results will come better. All the best