26 and recently diagnosed..

[Sadman]

Life seemed too good, I literally thought that a few days before developing this horrible disease. Ironic? I left where I grew up to go work for a job in another city for 4 years, met a girl and bought a house. As my contract came to an end, I was left with a choice to come back to the city I grew up in for a few months in order to advance in my career. Everything was looking great, I received a substantial raise and was on my way to becoming fully certified in my field of work. I was back home for about a month and went to masturbate one day and felt a small pain in my penis upon orgasm. I thought not too much of it and brushed it off as nothing. I waited about 4 days and masturbated again, this time I noticed a tiny dent on the dorsal part of my penis. It was alarming but this time I had no pain upon finishing. Now this is where it all gets so much worse.. I waited again a few days to see if it was getting better, I even told myself, "give yourself an erection to see if it fills out completely but do not finish." Well retarded me finished of course, and what came with that was an insane pain. I have never felt anything like it before. I immediately lost my erection and havent had a normal one since. At that point my erection was normal length/girth but with a tiny indent. I noticed the next day when urinating that I had a lump on the dorsal/ventral part of my shaft about 3/4 of an inch under the glans, and traveling into the glans. I did not get an erection at night for 2 weeks, and I could not give myself an erection. I saw a doctor and she sent me to get an Ultrasound. After about 3 weeks I started to get night time erections, but at first they were maybe 50% full, and I had pretty sever hourglassing just below my glans. Week 4 I started getting stronger erections at night but still with the severe hourglassing and I must have lost at least an inch in length. I had a noctrunal emmision during this week and I woke up in pretty severe pain. My penis tends to burn quite often now. The doctors now received my ultrasound and called me and confirmed Peyronies, sad day . I was then referred to a urologist and upon doing my own research found he was not the one for me and to be honest I was told by his assistant that I would not be seen until August this year. I went back to the doctors office this friday and asked for pentox but was denied.. I told him I wanted it and he insisted that I would get to see a urologist much sooner then August and that he would be the one to prescribe me the Pentox. He also informed me of my results.. I had Calcification of the midposterior Corpus Spongiusm, 12mm by 2mm irregular shape.. This is my story so far, I am very depressed about this and can't believe this is a thing and never even knew it existed. I have no idea what caused it and I dont understand how my plaue calcified in 2 weeks from injury? That was the absolute last thing I wanted to hear.. When I touch the lumps I can feel very hard bone like masses. It is like my Septum is complete bone... Where it is bony I have no increase in girth from flaccid to erection, it doesnt feel like it fills up even a bit. How could it change so fast?? I had no issues before that slight pain. I posted a picture of what I feel (green is the Calcification). Needless to say I feel like my life is over, my girlfriend is very supportive and I know even though I have this she will support me and we will work as long as I don't change too drastically. So I figure I only have one option, if it even is an option. Can surgery even fix something like this? I saw this article where if you scroll down and look at figure C, thats what mine feels like. (Graphic content) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3855482/ It begins just under the Glans which is an awful feeling.. My glans are a lot more white and the tip is quite cold to the touch, also sensation is almost nothing, it feels as if id be just touching my hand. I feel it but very little sensation. I think im done for, I can't see any surgery correcting this other then that surgery that I posted the link too. They obviously removed that from a mans septum so I truly hope I could get a procedure similar, problem is mine begins in the Corpus spongiusm. Even with a impant I would have severe pain upon orgasm and I dont believe my Corpus Cavernosum could ever expand without that restriction excised from me. Guys I really am at a loss for a description of what the hell is going on. I feel like if I hadnt masturbated that last time it would still be an issue but not as severe, but maybe I would have had that nocturnal emmision anyways and it would have all been the same? I am very unsure of where to begin, I live in Canada and to see a Peyronies specialist (Theres only 2 now, one in Toronto and London) will take almost a year. I wanted to see the doctor in Ottawa because he is quite famous and is literally 15 minutes away but he is no longer taking patients. I would like to move back to be with my girlfriend through this but I have to see if I will be covered to come back and see a specialist. Mine seems to be so severe and in such a bad spot compared to almost everyones, am I done for?

[TonySa]

Hello, you came to the right place and will get through this.  I agree, masturbation likely did NOT cause your condition.  Start reading the survival guide and fight to see a specialist, and in the mean time a doc that will treat peyronies.  Ask any questions and please keep us posted.  Peyronies Survival Guide - Information for New Members - Peyronies Society Forums

[Bloodflow]

Im 26 too bro , i have almost the same thing which i got a bit after adult circumcision i think i hurted myself after masturbation now i have an hourglass penis , feels cold where the plaques is , can get a proper erection when standing , also reduced random and morning erections , have to constantly stay stimulated this is getting me depressed , went to see a doctor to him telling me i was fine , there is no peyronies expert where i live he was an uro. Dont know if i start VED if it will help , cant even find one where i live... if you want to talk about it you can message me . This is something really hard to cope with specially when you are young and should be living life at this age

[Sadman]

What's really scaring me is it came out of nowhere. I have masturbated my whole life and never had an issue. I have read that peyronies doesnt typically start in the spongiusm and that most times when its there its cancer that replicates symptoms of Peyronies. Has anyone else had the same thing as me? And how did it calcify immediately? Doesnt it start palpable and then over time calcify, surely I would have had these symptoms with even palpable plaque.

[Bloodflow]

Not sure about this, dnt even know if mine has calcified yet , ive had this for almost 5 years now , i doubt about the cancer thing but you would have to check with a doctor. Also in my previous reply i mean can't have erections standing , autocorrect mistake.