First 60 days...all major treatments --> more curve

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MikeSmith

I just took photos from the side and compared them from late January... After a full bottle of 90 pentox over about 45 days, 2 mos vit E, arginine, using fast size about 40-50 hrs, 1 verapamil shot...i now have 10 degeres (roughly) more upward curve.   The hourglass effect is about the same but I need viagra to get to the full erect state or the hourglass looks worse.  Without viagra, i couldn't take pictures equivalent to last time (when i also took viagra for a "baseline").  

I didn't even expect anything to improve but I hoped with all these mehthods, they would at least stay where they wore & not worsen.  I think i'm around 40 degrees up now.  It looks ridiculous.  

LWillisjr

mikesmith,
Sorry to hear the worsening progress. But what no one knows is that maybe your therapy approach kept things from getting even worse. Remember some of us hit 70 degrees ofr curvature and even more. I know of a few guys who were 90 degrees. I would keep at what you are doing and not let up in spite of the additional 10 degrees.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

BrooksBro

I have been on the same treatment plan for five months: pentoxifylline 400 mg 3x daily, 25 mg Viagra nightly, 2,000 mg L-Argenine nightly, and FastSize.  I am envious of having the time to wear the FastSize for 40-50 hours a week.  I average less than 20 hours most weeks lately.  Although I and my spouse were pleased with the initial progress, the length and girth increases seem to have plateaued.

ED continues to be a struggle, with even 100 mg Viagra sometimes producing less than optimum results.  1-2 years ago, 50 was sufficient, and 100 was outstanding.  20 mg Levitra was completely ineffective.  I believe my erection difficulties are endocrine system related, specifically thyroid, testosterone, and estradial hormones.

I am pleased to no longer have the pain that others report.

I was led to believe traction may require upwards of 12 months, greatly depending on the time spent using it.  I don't see that the VED protocol is significantly shorter in the number of months required, although it appears to require less time per day, but very dedicated time, unlike the FastSize.

With the most reliable treatments being surgery (plication, graft, implant), I am more than willing to continue the current plan, or others, until they all prove to be ineffective, or someone comes up with a silver bullet.  I have concluded that there are not any "good" choices here.

chiguy

Mike,

Sorry to hear it isn't working out. Unfortunately, none of the options are really good--they are either not very effective or a pain to complete. Dr. Levine said said people receiving verapamil may experience greater curvature at first. Not sure why. The second thing he said was fastsize can be used for 12 months, instead of 6, and his patiens have had success using it longer.

My plan is to use it until next January. That will give me 12 months. At that point, I'll stop.

MikeSmith

Quote from: chiguy on March 29, 2010, 01:16:02 PM
Dr. Levine said said people receiving verapamil may experience greater curvature at first. Not sure why.

Oh very good to know...thanks for posting that.  Maybe the shot added to the curve.  

Does anyone know when the "active" phase is supposed to stop?  I assume I'm in an "active" phase - first seeing it in december...but I'm not sure when there will be stability...or if it stabalizes.

Fast size has increased my flacid length I think.

newguy

Sory to hear about this Mike. Perhpas it's the case that things sometimes get worse before they get better. That the curve has worsens at least means that it's still a valid strategy to keep using pentox, traction etc, and your condition is not stable. Maybe you will reach a point where improvements will start to be seen. I say stick with it for another six months and evaluate the situation at that point.  

Fred22

Quote from: MikeSmith on March 29, 2010, 08:56:43 PM
Quote from: chiguy on March 29, 2010, 01:16:02 PM
Dr. Levine said said people receiving verapamil may experience greater curvature at first. Not sure why.

Oh very good to know...thanks for posting that.  Maybe the shot added to the curve.  

Does anyone know when the "active" phase is supposed to stop?  I assume I'm in an "active" phase - first seeing it in december...but I'm not sure when there will be stability...or if it stabalizes.

Fast size has increased my flacid length I think.

I've been in "active" phase since spring of 2006.  At least I've been experiencing almost daily pain since then, which I believe is an indicator that the condition is still "active".

fred

newguy


LWillisjr

Quote from: Fred22 on August 11, 2010, 12:59:31 PM

I've been in "active" phase since spring of 2006.  At least I've been experiencing almost daily pain since then, which I believe is an indicator that the condition is still "active".

fred

Fred,
That's an interesting observation. Typically the active phase is quoted in books as being 12-18 months. This is supposed to be the time at which the plaque is forming/stabilizing. I'm not sure it is necessarily indicative of pain. It would explain why some on the forum have had pain for years, but may or may not be indicative of pain. I'm not sure of the right answer on this one... just hadn't thought about it before.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Brightdog

Quote from: lwillisjr on March 28, 2010, 11:05:12 PM
mikesmith,
Sorry to hear the worsening progress. But what no one knows is that maybe your therapy approach kept things from getting even worse. Remember some of us hit 70 degrees ofr curvature and even more. I know of a few guys who were 90 degrees. I would keep at what you are doing and not let up in spite of the additional 10 degrees.

Les

And then there are the total freaks like me who reached 160 degrees! I had no idea how extreme my case was until I got in here. The more I read in here, the more I understand why the surgeon was so quick to say "You can't live like this," and scheduled me so quickly (I had been told in May by his office to expect November - I saw him at the end of June and was slated for surgery in July).

I do wonder why the previous urologist wasn't more concerned when I was 90 degrees. Probably my own fault - I didn't make a big fuss about it, assuming that the doctors would be able to SEE that this was not a tenable position. Some doctors don't think you have a serious problem unless you get all dramatic about it.

MikeSmith

Quote from: newguy on August 11, 2010, 07:24:17 PM
Any update on your condition Mike?

Yeah - I had another ultrasound.  There is calcification all over the place now... much more than at the start in March (one dot at that point).  Now it's all over the tunica and on the septum.  I had no response to the VIs or the pentox, though I could retart the pentox.

I am supposed ot keep using traction. I just cant wait to go through the airport backscatter body scanners with the pump in at the TSA line.  They don't really blur out your genitals...
http://blogs.miaminewtimes.com/riptide/2010/05/rolando_negrin_beats_mia_co-wo.php

It was bad enough when I went thru with FastSize in my carry-on... they WILL stop you with that thing...and it went back to my destination via UPS.  Not going through that again.

zariche

Stories like these make me pretty scared to go to the Urologist on the 27th in fear of what an ultrasound will show, lol I even had a bad dream about it the other night.  Right now I think I am in the same situation with nodules all over the right and a few on the left side, it looks like a mess even while flaccid.  It's a shame that there was nothing that could be done to stop or improve your conditions before it got to the state it's in now.  This seriously is a horrible disease, not knowing how far it's going to advance and having next to nothing to stop it is pretty draining on ones psyche so I can see how you would just rather get it over with.  

Have you tried or able to try VED?  

Brightdog

Quote from: MikeSmith on August 13, 2010, 05:13:00 AM
The fact that there are calcium deposits all over my penis make me think that grafting surgery will be hopeless, though he favors that first - before implantation - because he says it creates more room and reduces the true deformity.  I think any operation on the penis creates scar tissue and shrinkage - so I'd prefer ONE operation to place the implant, remove the scar tissue / nodules - and let me go back to my life again - even if it means I have to learn to pump my penis via my testicles.  It does not look like I will ever have the anatomy I want ever again without

Yes - the weird progression of this disease is frustrating. Learning to constantly re-adjust is also frustrating - and there were points in my long journey where I was thinking exactly the same thing: make me bionic and let me get on with my life! While it is true the operations on the penis cause scar tissue, they are also an opportunity: the tissues are more malleable and stretchable while they are forming, before they harden fully.

QuoteI just cant wait to go through the airport backscatter body scanners with the pump in at the TSA line.  They don't really blur out your genitals...
http://blogs.miaminewtimes.com/riptide/2010/05/rolando_negrin_beats_mia_co-wo.php

It was bad enough when I went thru with FastSize in my carry-on... they WILL stop you with that thing...and it went back to my destination via UPS.  Not going through that again.

Thanks for the warning about this - it hadn't occurred to me! I have a couple of trips planned in the near future, and I will be sure to put this into my checked baggage (although my most recent trip to the US meant having my bags searched 3 times...)

NeoV

Mike are you using VED and traction? (manual traction even)?

Those two things are the only things that have helped me and reversed the damage of the disease that I can tell.  

james1947

Don't wait for answer from MikeSmith.
Last time he was online it was at March 23, 2011.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum