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Bent Ding Dong

Hi fellow members, just a brief intro about myself:

Had a bent penis for as long as I can remember (possibly natural bend) but about 5 years ago things started to get worse and erections were poor and started losing size. Could feel a lump near the glans which continued to get bigger. Went to urologist and was given 4 options, nesbit, cut the lump out, penile implant, or Xiaflex. I wanted to get Xiaflex but the doc said he doesn't do it but can refer me to another doc that does it but it will cost about $7,000.
So long story short, I didn't go for any of those options as the first 2 would make the penis shorter than the lost size that I already have and an implant is the last option when all else fails and couldn't afford Xiaflex at the time.

I've been on the keto diet for the last 2 months and haven't seen any improvements. I've also been taking alcar 2000mg a day for 6 months and natural vitamin e as well as the occasional viagra and cialis. Tried many other things but no success as yet.

Cheers.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

Pfract

Hey man.. Please look around for the survival guide. Consider doing traction and ved to help you out.  

Bent Ding Dong

Hey pfract,

I will check it out cheers. I've tried traction without any improvements unfortunately.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

LWillisjr

Bent,

How bas is your curve. This can also dictate what options to consider.

Also, the following may be helpful.

MUST READ BEFORE YOU POST - Information for new members - Peyronies Society Forums

Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Bent Ding Dong

LWillisjr, the curve isn't too bad really, I've seen much worse photos. It's like a banana really with no sharp curves upward but the thing that concerns me most is the lack of expansion or blood flow in the glands area due to a large lump about the size of the top of my thumb right in the middle of the spongy tissue. This gives me weak erections and it's crap.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

TonySa

Has a doctor diagnosed this lump?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bent Ding Dong

A urologist did. Doctors were hopeless.  
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.

TonySa

What was the diagnosis, plaque?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bent Ding Dong

Yes, a nice big one. Strangely though it didn't really show up on the ultrasound but you can feel it quite easily.
Age, 40's.

Had peyronie's for more than 10 years. Developed glans lump, then had poor erections and soft glans.

Made a lot of progress over the years with diet and avoidance of sugar and high carbs. Still have the lump but it's much smaller now.