Re: Planning on implant for March - Offtopic discussion

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sonnyjim

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Pfract

Again, here's Mr SonnyJim at work. Such a simple search would let you be able to know the price of total consultation and implant. But no. You can't help yourself. Why are you like this Sonny?  

sonnyjim

Type in the search bar 'cost of implant' and see what comes up.

How are you even a moderator ?

You're supposed to help people not repeatedly reply with smart ass comments.  

I'm afraid to actually make a post here without you criticising me it's actually pathetic. It would be easier for you to offer advice than keep doing this crap.

Wtf man....
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

suicidecomingsoon

Sonnyjim not sure, but when I searched for it a long time ago, around 25000 bucks

Pfract

Quote
Type in the search bar 'cost of implant' and see what comes up.
How are you even a moderator ?
You're supposed to help people not repeatedly reply with smart ass comments.  
I'm afraid to actually make a post here without you criticising me it's actually pathetic. It would be easier for you to offer advice than keep doing this crap.
Wtf man....

I don't need to type that to know what comes up. And what is pathetic is your attempt to discredit me both as a person and a moderator. In the past, i replied to your posts offering you guidance, and possible places you could go for help, as well as exams you could to address your condition. And then, i started to realize, that it wouldn't matter, because regardless of what people replied to you, you would always ignore the post, or almost all of it and post questions about the same subject, but slightly different, and then back to the start again.

Hence, i started saying that you only want nothing but attention. I even offered myself to talk to you on the phone, via Skype anonymously and you as it was to be expected didn't even replied back to it. Really shows how interested you are in getting help?

And then.... all of the sudden you start posting about implants, and "high volume doctors". If you are mentioning high volume doctors, it is expected that you have a minimum of understanding on the procedure, the major doctors, the possible complications and outcomes, and obviously you read every single diary on this board, on the newly created Erectile Dysfunction/Penile implant section.  But no... heres what you did:

Anyone had an implant done by Dr Ralph? (UK) - Peyronies Society Forums


And as everybody can see, even Hawk said the same thing and then some. And... You could not be bothered with reading hawk's/tonySA/Pdiddy journals, and check their doctors website. Or.... by chance... god forbid you typed a few letters on the browser's address bar! you could have ended on Dr. Eid's website, which is ONE OF THE, IF NOT THE MOST COMPLETE WEBSITE EVER FOR PATIENTS TO LEARN ABOUT PENILE IMPLANTS, WHERE IT HAS ANSWERS FOR ALL THE QUESTIONS YOU MAY HAVE AND MORE. But no.

and you still want to discredit me? saying that i only go after you because i feel like it? get real.... both about posting on the board and about addressing your situation, because this is seriously getting to your head...


@bubba:
QuoteWondering the same thing. He is mean spirited. Constantly in attack mode. Hates on Bubba

Hey man! guess you posted in the wrong section... no? normally you only post if it is to hate on traction and to talk about YOU repeatedly, and your xiaflex history ad nauseam?  

sonnyjim

The one useful piece of advice I was actually given was to have a cavernosogram done which was actually useless because when I asked where I could have it done (it's not done in the UK) I'm told to search for the answers myself.

I've been reading and reading for f~@
I'm probably worse off than you are since your Erectile Dysfunction is only 'moderate' apparently. I have severe Erectile Dysfunction and nothing f~@
I'm trying to help myself but when I'm asking people for advice or some kind of glimmer of f~@
Listen, I'm not a millionaire. If I was, I wouldn't be here asking questions. Infact I probably wouldn't even have this sh!^^y pathetic condition. If I had the money I would of had this sorted out years ago but sadly I don't.

All I seem to be doing is being pushed around by urologists who just want to get rid of me because I'm not a paying customer (NHS).

Reading someone else's journal whos had their implant done by a doctor that's not in the UK is comparable to me buying BMW car parts when I have an Audi. I only asked because some people don't post here and maybe they would answer if I asked a specific question.

You are not better than me.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Pfract

Quote
The one useful piece of advice I was actually given was to have a cavernosogram done which was actually useless because when I asked where I could have it done (it's not done in the UK) I'm told to search for the answers myself.

If you had read anything about how to start addressing your condition, you would know that you have to start first with a duplex ultrasound. You. Can get those for sure in the UK. After you know your blood flow you can go for the next step.

Quote
I've been reading and reading for f~@I'm probably worse off than you are since your Erectile Dysfunction is only 'moderate' apparently. I have severe Erectile Dysfunction and nothing f~@
It's a shame you call it bashing. Nothing but being sincere with somebody else. But normally the truth hurts. Instead of whining like that, be humble and reach out for help. Like, really have a down to earth talk about what can you do.

QuoteAll I seem to be doing is being pushed around by urologists who just want to get rid of me because I'm not a paying customer (NHS)

I have relatives in the UK and I know that the healthcare there is worse than in Portugal, but you should be asking for referrals for the best urologists in The country. Have you been to the urological association website of your country to find which are the best doctors in the UK for Andrology and Erectile Dysfunction diagnostic and treatment? I bet not.

Quote
Reading someone else's journal whos had their implant done by a doctor that's not in the UK is comparable to me buying BMW car parts when I have an Audi. I only asked because some people don't post here and maybe they would answer if I asked a specific question.
You are not better than me.

Again you are being pathetic. By reading other guys journals, you learn about the procedure, recovery, and the things they go through and what can go wrong. That way, you have an idea of what to do and expect if later on you decide to go ahead with having a penile implant.

And you say you are worse than me. Fine. Let's assume so. It's pretty simple? Can get your wiener up? Buy a medical grade Ved and try it out. Does not work out? Go to your GP and ask for penile injections for Erectile Dysfunction and start getting erections for a while to see the results. Doesn't work, or you don't like it? Have an implant done, or stick with the VED. This is what the general guidelines of the ISSM and the European urological association recommend.

So yeah, you have been here for a long time and couldn't understand such a simple thing. Apparently, I am better than you. Now get your crap together.


curved

Cost for penile implant for self pay will range between $25,000 - $27,000 not including travel/hotel.  This is for one of the top surgeons and includes pre op, surgery, post op, post op consultations, OR and anesthesia and implant.  The implant itself is $8,500 - $9,000 depending on which you go with.
51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no ED
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE

SW01

One thing about it, these things are not going to get any cheaper. You can bet if they ever do come up with a better version in 5 - 10 years, it will be way more costly, and todays implants will be the cut rate version. Big discussions on google in a variety of sites that since the number of these procedures are dropping due to the increase in the use of oral and injectable drugs, the cost is rising. Fewer are being implanted and marketers need a volume in order to drop prices. The fewer installed, the less reason to lower prices. Someone has to pay the price for them to recover r and d costs.

It sucks to be one of the ones with no options except the implant to fix my dick. I am just hoping my insurance comes through for my install date on March 7. I should be okay, but worrying until I get that call. Did my EKG, stress test, pulling labs this week.  
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

TonySa

Who will be doing your surgery?  Maybe add a signature line w info?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

sonnyjim

Quote from: pfract on February 16, 2019, 08:17:06 PM
If you had read anything about how to start addressing your condition, you would know that you have to start first with a duplex ultrasound. You. Can get those for sure in the UK. After you know your blood flow you can go for the next step.

It's a shame you call it bashing. Nothing but being sincere with somebody else. But normally the truth hurts. Instead of whining like that, be humble and reach out for help. Like, really have a down to earth talk about what can you do.

I have relatives in the UK and I know that the healthcare there is worse than in Portugal, but you should be asking for referrals for the best urologists in The country. Have you been to the urological association website of your country to find which are the best doctors in the UK for Andrology and Erectile Dysfunction diagnostic and treatment? I bet not.

Again you are being pathetic. By reading other guys journals, you learn about the procedure, recovery, and the things they go through and what can go wrong. That way, you have an idea of what to do and expect if later on you decide to go ahead with having a penile implant.

And you say you are worse than me. Fine. Let's assume so. It's pretty simple? Can get your wiener up? Buy a medical grade Ved and try it out. Does not work out? Go to your GP and ask for penile injections for Erectile Dysfunction and start getting erections for a while to see the results. Doesn't work, or you don't like it? Have an implant done, or stick with the VED. This is what the general guidelines of the ISSM and the European urological association recommend.

So yeah, you have been here for a long time and couldn't understand such a simple thing. Apparently, I am better than you. Now get your crap together.

I am seeing the best urologists in the country according to my GP, UCLH is apparently 'the best'. I didn't ignore your post I have only just read it.

The reason why the healthcare is so crap here is because of the amount of people and also, it's 'free'. I could of had this sorted years ago but I don't have that amount of money in all honesty.

Why should I pay 30k for something which may or may not work and then pay extra for each revision when I'm still younger than 99% of candidates for penile implants. I'm not working all of my life to have something which to be honest, EVERY man should have and not have to pay for.

The NHS will pay out for women to have boob jobs and cosmetic surgery because they are "depressed". What about men without penises? Because that is what we are... Why should I pay ridiculous money for something I had two years ago and no explanation of how crap got this bad?

I'm not here to argue with people but if I ask a question it's a genuine question, I'm worried about my future and NO urologist gives a F~@<. Why would they? It's fine I can wait 6 months between each appointment because that's how long it takes unless I somehow get 30k given to me.

I've tried Cialis, Viagra, pentox, doesn't work.

VED doesn't even give me an erection. I don't know why, I haven't really been taken seriously until recently and I've been going to appointments for years.

If you think that, in 2+ years I haven't done any reading, your wrong. It's ALL I do. But I still don't understand how anything could get this bad so quickly.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

curved

Question for the group on traction vs VED prior to implant surgery.  I have implant surgery scheduled for 3/28 and obviously would like to maximize size of implant. I have been using the RestoreX device on/off for the last several months (e.g. 1x day vs 2x day for 30 min). I have consulted with several UROs and everyone seems to have a differing opinion on the efficacy of VED vs traction for maximizing size loss due to Peyronies Disease.  Given I have 30 days does anyone have an opinion on weather or not to focus on traction vs VED or perhaps both. One surgeon I spoke with strongly encouraged VED 1- 2x day (15 min sessions) 2-4 weeks prior to surgery but not traction.  He felt that traction caused too much trauma and VED done appropriately was better.  I know there is a fair amount of literature on the success of traction for regaining lost length as well.  My plaques are quite hard and not pliable at all which is why I am unsure if traction will help much over the next 30 days and perhaps I should focus on VED in terms of expanding both size and girth.  Thanks in advance.
51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no ED
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE

TonySa

I'd do restorex x 2 Dayband VED 2x per day as so little time to surgery.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

tomas1

I can't give an opinion for Peyronies sufferers, but I think just using VED is normally best.
I also did not get the size I got with VED since it was longer than my lifelong length.
That's what I ended up with and that's fine.
85 years old.
Implanted 01/22/19 by Dr Avila.
18cm AMS 700 CX, 3.5cm RTE 100cc reservoir
Diagnosed with Gleason  6 prostate cancer.
Monitoring it for now.

curved

Thanks for the feedback.... perhaps best to throw the "kitchen sink" at it for the next 30 days.
51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no ED
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE

Pfract

Hey man. Definitely use the ved before surgery and try not to injure yourself otherwise they will cancel the surgery. Some doctors only recommend vacuum for that amount just before the implant, so IL should help out a bit. Take measurements please!  

curved

Thanks Pfract.  will take measurements and post before and after photos in my implant journal. Appreciate the feedback.
51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no ED
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE