constant stimulation required

[jackp]

Pete28

Yes injections into the penis, even just one, can cause peyronies and corporal fibrosis.

In my case I was trying injections for ED with little to no help. All they did was cause corporal fibrosis and even more problems.

I opted for a penile implant 10/23/08 at Vanderbilt. Now a great hard, straight penis that is read any time. I even gained back over 1" due to the VED therapy before my implant and then the AMS 700 LGX. www.amslgx.com.

Read my history for the rest of the story. Any questions please free to contact me.

Jackp

[Old Man]

Pete28:

I can understand your reaction to the doc's statement that "just one shot" can't lead to fast acting Peyronies Disease. He is as wrong as wrong can be.

I developed a nodule after one penile injection that within a week's time hardened and formed a small marble sized plaque that took months to get rid of with VED therapy.

Most docs just don't get it when a patient presents a classic case of Peyronies Disease. They don't seem to be able to grasp the gravity of it for the person on whose penis it has developed. They think that injections into the erectile tissue is just routine - far from it, in some cases it is trouble in the making.

You should take a course of corrective action regardless of what approach you use to start with therapy as soon as possible after realizing you have Peyronies Disease.

The above statements are strictly my own after dealing with this mess for years and the experience of dealing with others having the mess too.

Old Man

[Pete28]

Since the shot i received in the uro's office, to which i had no response whatsoever, my ED has worsened a lot within a very short period of time. I am unable to get any sort of erection. And i feel severe hardening in my left corpora.
Told this to the doc and he said this was impossible from just one shot.
He did say such severe ED soon or later leads to prothesis insertion.
I will choose for that option, am not gonna wait till 'maybe' within thirty years (then i am sixty) there will be a cure for this problem.

I just want to say this: don't want to 'minimize' Peyronies, but if 'just' have Peyronies without serious ED, be happy with what you've got, you are very lucky, i wished i was in that situation.

[Pete28]

I don't know. He didn't say that.

[aloneinthek]

The end diastolic velocity of 10cm/s is on the left or right side? or both?

[Pete28]

I had a Doppler the previuous week.

Doc gave me a shot but little to none response.

Diastolic flow velocity of more than 5 cm/s is suggestive of venous leak. I had diastolic end flow of 10 cm/s.

[Old Man]

SKW:

At my age and having had so many surgeries already, don't want to have any more than is necessary to keep me alive. And, with the VED and its retainer rings there is no problem with ED anymore. Just need to have a willing wife when I have the urge to do something.

Old Man

[skunkworks]

SKW:

Rats! No help for us older gents huh? Maybe someday.

Old Man

To be honest if your insurance would cover it I would give it a shot anyway. The worst that can happen is that it will revert back to how it was before.

Plus it is keyhole surgery, and done under local so you are in and out in hours rather than days.

[Old Man]

SKW:

Rats! No help for us older gents huh? Maybe someday.

Old Man

[skunkworks]

It is something that is not mentioned on these boards at all for whatever reason, but there are surgical treatments for venous leakage. Not very successful for the over 50 I am told, but for younger guys it can work very well. I personally know three people who have had their venous leakage treated successfully by an interventional radiologist, the most recent had his surgery in 07.

They go in and close or partially close the problem veins, either with a coil, or via vein embolization.

[Old Man]

SSmithe:

Venous leakage as explained to me by my uro is where the veins and/or arteries no longer function as they are supposed to during an erection. The blood in not held in the veins due to some malady where they relax and therefore do not hold the blood in as they are supposed to do. Even constant manipulation does not always produce enough blood retention to get nor maintain an erection long enough for sexual activity. Blood retention during sexual stimulation and any resulting erection was explained to me this way: There are "valves" for want of a better word, that act like a check valve in a water line to keep the blood pressure in the erectile chambers built up to hold up the erection. If for any reason they fail to work properly, the blood therefore leaks by and the erection fails.

Venous leakage can be caused by many factors such as a diabetic condition, especially Type I, which many guys have and may not know it. Borderline diabetics seldom realize that is the cause of their ED for whatever cause, etc.

Anyway, the above is what has been brought to my attention by consulting with my personal uro. It is only my understanding of the issue so take it for what it is worth.

Old Man

[SSmithe]

Pete28,
Pete, I am 30 years old and have almost the exact same symptoms as you.  Constant stimulation is required to maintain an erection, and I have not had morning erections in over 5 years.  I too had only a semi-erection when injected with Caverject.  My URO doubted venous leakage as the semi-hard erection lasted for over an hour.  I needed an adrenaline shot to make it go away.
From what I understand about venous leakage, it is pressure that forces the veins closed and maintains blood in the penis.  Therefore, if an erections remains at lower pressure (semi- hard), it should remain when hard.  This makes me think venous leakage may not an issue.  This may apply to you.

I am going to be checked for possible artery damage due to mountain biking later this month.  My URO thinks this may be the cause.

My guess / fear is that the Peyronies Disease has hardened and removed the elasticity of the tunica.  This makes it more difficult to get erect as your penis doesn't want to expand... Like it squeezes the blood right back out, or prevents it from entering.

Keep us posted if you find anything out.  I will do the same.  Its one day at a time for me.
SSMithe

[Old Man]

Pete28:

If I were in your position at this time, I would be seeking another opinion as to my problem. From what I know about the erection process, all factors must be in place to produce and maintain one firm enough and long enough for good sexual activity. A good portion of the erection process is mental which triggers the right nerve system. Other factor enters in too, so it all has to come together at the right time to produce the final results.

Usually, the injections of Caverject will allow a good erection for more than the 30 minutes or so you state. In my case, one injection lasted better three hours before subsiding. I even called the doc as it was getting close to the 4 hour top limit of holding an erection without permanent damage.

I still believe that you do have a venous leakage even if it is only mild. That in addition to possibly anxiety about the situation could be causing the problem. You just need to try to relax about things, and get another opinion from a sex therapist doctor who is in a better position to diagnose venous leakage problems.

Sorry that you are having this backset in your search for some relief. Just keep a positive attitude and hopefully you will find a solution soon.

Old Man

[Pete28]

Old Man


Thx for your answer. The problem is the following: last year i have had a Doppler and a MRI-scan (after injection of Caverject). My penis only went semihard. The uro told 'this is normal because it's only a chemical reaction without sexual stimulation and this was the reason full erection was not obtained'. According to him there was no venous leak. The semi-erection went away in about half an hour. This doesn't seem logical: how can you 'see' based on only a half erection if a man can obtain and maintain a full erection, how is this possible? This doesn't seem to make any scientific sense.

In the meantime my problem has worsened and the thing is, this uro is recommended as the best 'ED-specialist of neigboorhood, even of my country (Belgium)'. He is almost apathic about it, he thinks it's all in my mind and adrenaline. But i know my body best and it is not acting like it should.

Every additional advice would be very much appreciated.

[Old Man]

Pete28:

ED takes on many and varied forms. You will need to do several approaches to controlling it. First, I would say off hand that you seem to have a problem with venous leakage. However, you must see a good uro and get some tests to make sure of that. I developed ED when I was 55 and it turned out to be venous leakage.

I had to use retainer rings to maintain an erection firm enough for sexual activity. At age 65 had a radical prostatectomy which left me with so called total ED. The VED was prescribed and that took care of the venous leakage problem.

Another thing that may be causing the problem is anxiety about not being able to hold up a firm erection. Erections require a good mental attitude as we men age. So try to relax more and don't concentrate too much on the problem. I know that this is difficult to do, you can do it, just remember to try, etc.

I would suggest that you try to get an appointment with a good sexual therapist to get a good diagnosis of you problem.

Old Man

[Pete28]

I have got ED for over a year now. And things progress to worsen.
I need to constantly stimulate my penis in order to keep it 80-90% erect. Sometimes i think i reach a fuller erection. But when i leave stimulation, it goes down within 5-10 seconds. It's always the same, stimulation ... gaining a little bit hardness ... bit softer again ... harder ... softer ... I can keep it going with massive concentration and constant stimulation. The erection process is like climbing a mountain with a heavy backpack. Cannot remember last time when i have had descent morning wood.
Last time i visited the uro he seemed to notice some hardning in my flaccid penis. It turtles a lot.

Do others regognize this type of condition? Is it venous leakage?