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Author Topic: My meeting with a urologist.  (Read 543 times)

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Atomic EnerG

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My meeting with a urologist.
« on: January 10, 2019, 10:26:21 PM »

So I met with my urologist today. Not going to state names because reasons. However essentially he referred me to another urologist. Dr Brock is his name. I found his name on the paper from the Canadian urology society for peyronie's recommendations. Has anyone had any experiences with him?


Second. I talked to the urologist I saw about starting pentox and a low dose of cialis. He said there's essentially no evidence for those things helping. Or PABA. Said xiaflex doesn't have enough evidence in Canada. Pretty much said injectible calcium Channel blocker is the way to go.

Claimed Dr Brock is a great doctor. He did say during the assessment that peyronie's is very likely yet it seems to be in the acute phase and that the plaque was smaller than he expected but there. Claimed it didn't feel normal his exact words were a normal plaque feels a lot like a shreddy. (the cereal)

Any thoughts?
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Date of onset. Summer 2017. Worsened significantly past few months.
Single but would like to mingle.
Original length 6" now 5.7" with angle.
Pain remains intermittently, feels constricted.
Seeing a uro in January.
Will post results of treatment.

Bubba dawg

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Re: My meeting with a urologist.
« Reply #1 on: January 11, 2019, 04:25:17 AM »

Unless you have different dicks in Canada, Xiaflex has been shown to work here across the border. Not familiar with injecting Calcium blockers. You need an Experienced Xiaflex injecting doctor if you decide to go that route
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5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

kingprof

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Re: My meeting with a urologist.
« Reply #2 on: January 11, 2019, 05:34:10 AM »

I love the way Bubba dawg puts things :D  I'm sure Xiaflex has the same efficacy there. The calcium blocker here is verapamil. It also has some collagenase activity. Xiaflex is an eater of collagen, that is how it works in Peyronie's.

Here is actually a good video provided by tonyode

https://www.youtube.com/watch?v=l8BLsd3QF9o

Verapamil is discussed in there, along with Xiaflex
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58 yrs old, 45 degree bend to the left, noticed Peyronie's first in April, 2018. Three rounds of Xiaflex.

Atomic EnerG

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Re: My meeting with a urologist.
« Reply #3 on: January 11, 2019, 09:34:56 AM »

Hey folks thanks for the replies. Yeah I thought this was kinda ridiculous for an appointment. I mean the doc said it as a calcium Channel blocker. I knew it as verapamil.

Just felt weird from this appointment. I would have happily started pentox and cialis as it seems to have some benefits in the acute phase.

Kinda frustrating to wait 3 months to see a uro. Get basically no answers and now have to wait again. But Im looking forward to Dr Brock.

And Bubba. Surely are dicks must be a little different across the border (kidding.)

Sounds like all in all it was a weird appointment. Certainly not what I was expecting. I guess I look forward to seeing the next one.
Logged
Date of onset. Summer 2017. Worsened significantly past few months.
Single but would like to mingle.
Original length 6" now 5.7" with angle.
Pain remains intermittently, feels constricted.
Seeing a uro in January.
Will post results of treatment.

jj21

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Re: My meeting with a urologist.
« Reply #4 on: January 31, 2019, 02:59:01 AM »

I had a similar experience with the first doctor I saw - he didn't know much about pentox and said xiaflex was useless and didn't have much research behind it. He also said there was no point in doing an ultrasound because there is no cure if it even is peyronies.

Second doctor actually prescribed Pentox and cialis daily and did an ultrasound. After few weeks on pentox and cialis my erection ability has returned and I've also seen some very slight improvement.

So hang in there and try and find a better doctor who specialises in peyronies.

JJ
Logged
Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

Bubba dawg

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Re: My meeting with a urologist.
« Reply #5 on: January 31, 2019, 08:10:11 AM »

JJ your doctor was wrong about xiaflex. The only drug approved for treatment of peyrones in the USA.  Meaning it was scientifically proven to help people have near normal sex. Yea there is no cure. But stupid to say is useless. Beats taking a pill because the injections zero in on the problem. I got a major improvement from xiaflex. I am not cured. Could even be better if I didnt have calcification. A lot of doctors are still ignorant about peyrones and xiaflex
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5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

blackdiamond

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Re: My meeting with a urologist.
« Reply #6 on: January 31, 2019, 01:08:47 PM »

XIAFLEX is the way to go.........
The injections, modeling, traction, VED, after 8 months took me from a 75 degree bend to 15.............
Whoever says it doesn't work........RUN.........
Now I'm sure it doesn't work for everyone but it was great for me..........
Good Luck..........
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62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

jj21

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Re: My meeting with a urologist.
« Reply #7 on: January 31, 2019, 07:29:42 PM »

BubbaD - Yes, that was the first doctor who didn't specialise in peyronies and wasn't much help at all he actually did a physical examination and said he couldn't feel anything. In contrast the second doctor recommended a range of treatments and was able to feel some fibrosis thus recommending an ultrasound.

So advice for the original poster was to hang in there and find a better doctor.

I'm glad you have had success with xiaflex BubbaD.

JJ
Logged
Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect - approx 20-25 degree curve... No noticeable plaque. Waiting on Ultrasound results.. Mild Erectile Dysfunction..

Atomic EnerG

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Re: My meeting with a urologist.
« Reply #8 on: February 11, 2019, 11:41:22 AM »

Wow I didn't notice these comments. Been off for a while. That's really awesome news. I'll hold tight and hope this next Doc can help. At 25, let alone any age this kinda sucks. I've had a nearly 2 year long active phase it seems. So I'd really like to start getting better. However the worst of it has seemed to come the last 4 months. Anyway. Thanks folks. This forum has been the only thing giving me hope for this pain in that ass pathology.

You're  all wonderful.

Logged
Date of onset. Summer 2017. Worsened significantly past few months.
Single but would like to mingle.
Original length 6" now 5.7" with angle.
Pain remains intermittently, feels constricted.
Seeing a uro in January.
Will post results of treatment.
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