My first visit with Dr. Eid

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

cold brew

I just had my visit with Dr. Eid.

Peyronies Disease has cost me an inch, or little more. I was at one time 6 to 6 1/4". Now the stretch test was only 12cm, and 2nd try maybe 13cm. He said 18cm implant , or might can do a 20cm. He guaranteed 5", but that is still heart breaking. I can also tell I lost girth.
He also said I would still have a curve, (hang to the left when flaccid), but straight when pumped.  

I'm guessing the stretch test is fairly accurate? I am sure he has done enough to know about how to pull/measure to actual results. I did not get erect when he injected. I also do not get erect anymore with self stimulation. I still can ejaculate with soft penis.

So, with that said I am not sure what I will do, and when. Maybe I will try using the VED more, or buy a traction device to see if length will improve.

I can no longer have sex, it's been a year. My relationship with my wife is great. Yes, it would be better if sex was evolved.
My fear is waking up to 4.5" implant with little girth, and wishing I had not decided on implant. I mean if it doesn't work out, I will have to put up with walking around with a pump in my sac, and larger than normal flaccid penis.
I am just now 50 yrs old
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

p-diddy

Cold Brew,
Sorry to hear about your situation and I can understand your dilemma.  I think an important detail you didn't include is how long have you had Peyronie's Disease?
53 y.o, healthy, fit, married. 
Mild to mod ED starting 3 years ago,
Peyronies disease, penile trauma/fracture.
Implanted with Titan 22cm by Dr. Eid on 12/19/2018. 
Started cycling day 4.

cold brew

Maybe 14 - 16 months

Closer to 14
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

Pfract

Hey cold brew, it's very disheartening your current situation. Although, you have options before the implant to regain length. You can and should, use a vacuum device pre implant to regain some size, and also you should give restorex a try.

https://www.peyroniesforum.net/index.php/topic,10328.msg105575.html#new

You can also very easily find restorex website online, and no the studies they show there one of users regained up to 2cm of size back. You also have the link to this thread right here on the board to you see it in action.

http://file.scirp.org/pdf/ASM_2013012514045982.pdf

Also check this medical paper to learn about the vacuum protocol before implant! Please take action!

https://www.urologytimes.com/modern-medicine-now/implant-protocol-helps-reduce-penile-shortening

p-diddy

It's good that you haven't had years and years of atrophy from the Peyronies Disease. I see absolutely no downside to you using VED in the near term to see if you can regain some length pre-operatively while settling on a decision.  However, gaining some length isn't going to help you get an erection so an implant still seems like the most likely end result. A longer penis with no ability to get erect is of no use. You may even regain some of your length post operatively based on some reports.  One thing you have already done is chosen a great doctor.  If you do nothing you will end up losing more length and still have no erection and be unable to have penetrative sex.
So, I would think of it like this.  Plan on having implant surgery, get it scheduled a few months down the road and in the mean time VED twice a day for 10 minutes.  It looks like most of these protocols say 2 months is max benefit.  If you regain some length pre-op then great.  If you don't then you know what you've got is what you've got.  Then get the implant and at least you will have a nice, hard, functional penis.  Dr Eid will aggressively size you as well, if not better if not better than, anyone else.  After the implant aggressively cycle and see what you can gain post operatively.  
I wish you the best of luck and that you find peace in whatever decision you make.  
53 y.o, healthy, fit, married. 
Mild to mod ED starting 3 years ago,
Peyronies disease, penile trauma/fracture.
Implanted with Titan 22cm by Dr. Eid on 12/19/2018. 
Started cycling day 4.

Hawk

Cold Brew,

I agree with the others and if you are totally unsatisfied with your size would use both the VED and traction.  They have different advantages of stretch and oxygenation.

Now, if you gain no size I am not sure I see the point in not getting an implant.  It is not like you can't have sex with a 5" penis.  There are men with less that would be jealous of a man with a 5" penis that could stay hard for hours.

I have so far not found a patient of Dr. Eid's that did not end up with a little more than he promised.  

Call me again and we can chat

Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

cold brew

Yesterday, on the way to work one of the girls from Eid's office called. She told me the insurance (I think) said implant is excluded. I am so tired from the 22+ hr ride in 2 days that my mind is kinda cloudy. I know she said excluded. They will have to fill out a form, send it in, and it would be about 15 days until they would probably hear back from insurance.

I have an encore VED.
I am thinking I need to order one with different sized cylinders like this one. https://www.augustams.com/product/somaerectstf/
I will reread the ved instructions. So, when pumping you do not start out pumping for full erection/length. I have used this ved very little. I have always pumped up, but stop before any pain/discomfort.

Why does Dr. Eid not believe in using VED to regain size? He told me that wouldn't help. He also gave me info on the (restorex) traction device, but said he had not heard any feedback.

I just ordered the 3 cylinder VED from AugustaMedicalSystems. I hope starting off using the smaller cylinder with a fit snug, will help penis gain length.
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

SW01

I am sure that phone call was a kick to the stomache. Peyronies is s real pain. I have been dealing with it for a couple years. On the insurance thing look up your actual policy and see what it says exactly. I have bcbs and it said an implant was good for ed. It does seem like they define it differently. If I got an erection for a short period of time on drugs or shot but not long enough for sex, no implant. My satisfaction did not come into play. Last dr. Did the venous leak test and blood comes in and goes out about as fast, so should be ok as of now for implant. Get another opinion. Took me 4 to find a dr who did peyronies ed etc. And would listen to me. Really did not think xiaflex would help the plaque.

As for traction and ved. It definitely helps. I went from 7 inches down to 5.5 with a curve around 50 degrees. I started traction first and I could feel plaque getting narrower but longer. While it might not seem a lot, I did get my stretch in the traction device up to 6.25. Trimix with a semi erect penis put me at just under 6 when I had it done in Nov. The dr. I saw at the time said I would keep that length with the titan and would get some more length back over next 2 years of cycling. Plenty of comments from those here to back it up.

As to ved. I have the soma with three tubes. It is a good device. It works pretty well. I did find I start out with a couple of plunges. Wait a bit pumpsome more, etc until I get to length. In the soma I can pump up now to over 6.5. So it helps. When I started 6 was about it. My only issue is if I go to fast I get a lot of fluid in the skin as well as the shaft expanding. Go slow.

One thing I will say. Things have been crazy at our house for past three weeks and I have not done any traction or ved. First time back to using it last weekend and I did good to get between 6.25 and 6.5. Early dec I was getting over my 6.5 mark and felt I was on my way to my old 7. I also thought my curve was worse but hard to tell without a hard erection. So back on my traction ved plan until implant.  
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

Hawk

Just my gut feeling from my experience but there is arguably some logic behind it.

If you gain length from a VED or traction then slowly lose it over months then get it back by returning to the VED or traction, do NOT assume that will always be the case.  I think the window on that closes so if you make gains, at least throw the traction device on for 1 hour every other day to maintain what you gained OR use the VED once a day.

Keep accurate objective measurements so you know what is going on.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

cold brew

Quote from: SW01 on January 09, 2019, 07:58:11 PM
I am sure that phone call was a kick to the stomach.

I hope this is just standard procedure for the insurance co to have them fill out the forums before being approved.
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

Alibaba

It is common now to have exclusions for any procedure or device that promotes conception. If you have had a vasectomy or prostatectomy, conception is not possible so that is your battle answer. I fought that with my insurance company for several years.  DO NOT give up.  If you have had any pelvic trauma, surgery, med reaction, genital trauma, back injury, then that is your primary diagnosis and the peyronies scaring due to poor blood flow or whatever is secondary to the initial cause. That makes it a coverable expense. I paid all my own bills forever before I learned these things.  A detailed medical history is very helpful when it comes to denials. A co-operative and intelligent doctor and staff are too. Some staff just enter in a code, get a denial and on to next patient. Wash U in St. Louis handled mine that way. After years of denials, I discovered all my prescribed treatments WERE covered. It has to be handled properly.   BCBS pays for a lot of dick implants and care.  They are often suggested when other's insurance has denied. READ your policy to find the specific design of the exclusions.  AMS/BS's help line can get you on a conference call with them to help sort it out and they are very good and helpful. That does not mean you have to have an AMS, but no-matter what you go with, you have to get approval first and that is a resource to help get it. They are well versed in proper coding and getting people on the line that are not just date entry clerks. Good luck man.
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

cold brew

Hopefully I will hear back late this week from insurance.

Plans are right now to start pumping 1 or 2 times a day, but still take it easy. I have the encore, and somaerect stf pumps.
I will use the VED protocol for the somaerectstf 3 cylinder pump.

I am going to get myself in the best shape possible. I plan to lose 35lbs, and have already lost 10lbs.
I have not ate fried foods, no alcohol, no sugar drinks only water since 1/2/19.
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

p-diddy

Sounds like a great action plan!  You are on the right track
53 y.o, healthy, fit, married. 
Mild to mod ED starting 3 years ago,
Peyronies disease, penile trauma/fracture.
Implanted with Titan 22cm by Dr. Eid on 12/19/2018. 
Started cycling day 4.

Alibaba

Peyronies pain if you have it is also a way to get insurance to pay if you have that issue. Primary diagnosis would be the pain and peyronies would be the cause. Only way to get rid of the pain is fix the cause.  

I am glad you have an action plan. I am a firm believer of having a plan and then stick with it unless something proves a change is needed. Cheers man. Lost 10 lbs. Doing great!  
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

FloppyNoMore

 Cold brew
Don't give up on the implant it's the solution to your situation Talk to Ruby at Dr Eids office she will work to help you get approval.
Dave  
Born 1952
RRP 6/1/18
Total ED since
Viagra stopped after RRP
Injections painful didn't work
10/26/18 Dr. Eid Titan 20+1

cold brew

Nothing really new to report.
I emailed Janice, and Ruby early Friday morning 1/25 if there was any news on covering implant. Hopefully they will reach out to insurance co next week. I was expecting to hear yes/no within 2 weeks.  
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

Pfract

Hey curved! So what about Ved and traction? Have you tried those out?  

cold brew

sad day

I have received the denial letter. Policy exclusion, Janice said there is no way around it.
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

Stabler

They can appeal the denial and their office should know how to do that. Please ask them.

Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

cold brew

I will

but I just got off the phone with insurance, and my policy section 44 excludes prosthetic implant.

Actually, I already asked Janice what else could we do. She told me to call customer service. I did, and said my policy does not cover implant, that it is excluded. When Janice said, that I could call customer service at BCBS I knew it was end of hope for coverage.
If it's in the policy that it is excluded I do not see them covering.

Insurance companies are some of the wealthiest in each state. I pay almost $80+ a week, and it does not cover what I need, but I have to take it.
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

Pfract

Dr eid offers financial assistance too. Check his website for more information on this.  By the way, did you read my post?  

TonySa

Cold brew, what about changing insurance plans during open enrollment?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Alibaba

Quote from: TonySa on January 28, 2019, 08:00:45 PM
Cold brew, what about changing insurance plans during open enrollment?

Employer based insurance may require a job change unless it is a company that changes often as some do. Buying a private plan may be an option as long as pre-existing conditions are not a basis for denial.  AMS, before being purchased by Boston Scientific, had a patient assistance program and a finance program though it was not available in 4 states because it was considered to be a "kickback" by the big pharma supporting pols in the state. My state, Missouri was one. The person I talked to at the time told me to contact them again when I moved to another state, then I would qualify. I would not want another LGX, but if that was the only option, then to should be considered. Sorry BCBS is giving you a hard time.
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

cold brew

Last year insurance covered it. I actually took a better insurance this year, or so I thought.
Both were BCBS ppo
Last year $3k deductible $51 weekly
This year it's $800 deductible $80 weekly
Out of network is better coverage, but just doesn't cover implant

Maybe things changed and even the other BCBS insurance won't cover it now.

I will call and let the local urologist fill out paper work again just to make sure. That is where I had it approved last year.
I will give them new insurance card info.
I hope they would do it without another appointment = more money spent

I have 2 BCBS insurance options at work.

51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

cold brew

Quote from: TonySa on January 28, 2019, 08:00:45 PM
Cold brew, what about changing insurance plans during open enrollment?

I can go back to my old BCBS plan, but it will be a year. It would still be expensive, but doable.

I will look at all options. I have already borrowed on 401k to send kid to college. I am only able to have one loan at a time on this 401k plan.

I believe I read that I can take money out of 401k for medical/surgery without penalty. Who needs to retire anyway, right.

I was hoping to have this done by May this year.  
51 yrs old. Married, Had venous leak since young.
Couldn't maintain erections.
Injections did not work,
Had a 45-degree bend for over one yr.
Using VED trying to regain size.
Implant March 9th Titan 22cm by Dr. Lentz

Hawk

I have Medicare as primary and government BCBS as secondary and they paid every cent other than the initial video consultation.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

Cold brew, what about plan in changing insurance next year.  Meanwhile save up for the deductible and use VED regularly (both for sex and maintaining health/length).  Injections are an option in the interim if they work and PDE5's do not.  Low dose nightly cialis or viagra also improve the health of the penis.  Maybe regular traction to maintain length/prevent loss. Just some thoughts, hang in there!
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.