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Author Topic: Chapter 2, Excision/Grafting Journey  (Read 4174 times)

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TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #100 on: May 20, 2019, 03:31:38 AM »

I wish I could say it was mental.  I was actually excited to be numb for a bit thinking it would help my PE issues.  If I didn’t lose my erections I would be happy to last and satisfy.  Ain’t it a b*tch how life likes to say “nope”
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Bubba dawg

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Re: Chapter 2, Excision/Grafting Journey
« Reply #101 on: May 20, 2019, 04:12:58 AM »

Can take a good long time to recover from any kind of Surgery. I have had 5 different types of Surgery. Recovery time varied. 4 months to a year
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5 Rounds of Xiaflex. Good results

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #102 on: May 20, 2019, 04:22:05 AM »

I hear ya bubba.  You get excited thinking surgery fixed everything and then realize....oops you’re not there yet
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Bubba dawg

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Re: Chapter 2, Excision/Grafting Journey
« Reply #103 on: May 20, 2019, 04:28:22 AM »

Ya you recover in stages. Complete recovery takes awhile. Surprised me how long it took after my first Surgery. Still doesn't look normal---I kept saying to myself back then. Your numbness will most likely just slowly fade away. I am not patient either man. especially when it comes to having sex lol
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5 Rounds of Xiaflex. Good results

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #104 on: May 20, 2019, 04:29:46 AM »

Me neither!  I was ready to get it on, but my body said hold on there bud
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #105 on: May 22, 2019, 02:04:19 AM »

No real news at the moment.  Letting things continue to heal.  Getting my Cialis scrip tomorrow, so will let you know how that helps
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #106 on: May 22, 2019, 03:27:54 PM »

Just got my Cialis....chocolate flavored lozenges.  Interesting
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #107 on: May 22, 2019, 04:01:17 PM »

They taste horrible btw
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TonySa

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Re: Chapter 2, Excision/Grafting Journey
« Reply #108 on: May 22, 2019, 06:50:39 PM »

If there to be dissolved under the tongue they may be more fast acting.  But if that’s not an issue, seems like one could just swallow it...
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #109 on: May 22, 2019, 08:33:12 PM »

That’s what I thought but it says not to
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TonySa

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Re: Chapter 2, Excision/Grafting Journey
« Reply #110 on: May 22, 2019, 11:16:13 PM »

Oh, maybe check w a pharmacist then.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Bubba dawg

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Re: Chapter 2, Excision/Grafting Journey
« Reply #111 on: May 23, 2019, 04:39:57 AM »

Yea let us know how it goes. Weird chocolate flavored lozenges that taste bad
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5 Rounds of Xiaflex. Good results

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Re: Chapter 2, Excision/Grafting Journey
« Reply #112 on: May 28, 2019, 02:46:28 PM »

9 weeks post op.  Still sore at site of graft, and still numb.  Progress is slow at this point.  Just continuing to heal and taking it easy
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #113 on: June 03, 2019, 06:54:31 PM »

Cialis has seemed to help bring a little more length back.  Haven’t been able to take it for a run yet with the wife.  Graft site soreness and hardness at base is still normal at this stage according to Dr Yafi.  Takes awhile for everything to return  to “normal”
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

pfract

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Re: Chapter 2, Excision/Grafting Journey
« Reply #114 on: June 03, 2019, 09:30:46 PM »

Hey Tdix! Somewhat curious here.  Did your doctor recommend traction or hand stretches to you post op?  I remember it was somewhat popular with Dr kuehas,  back when he was very recommended  here on the board

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #115 on: June 03, 2019, 09:36:52 PM »

He said it was up to me but not necessary.  I have held off a bit due to the soreness at the graft site and hardness in base
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

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Re: Chapter 2, Excision/Grafting Journey
« Reply #116 on: June 04, 2019, 04:18:21 AM »

Is this journal of mine helping anyone?  I hope so.  I’m running out of things to say but will continue to post.  I won’t disappear, as I know the information online is few and far between.  I ask Dr Yafi a lot of things because nothing is online and I hope what I post will help you guys. 
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #117 on: June 04, 2019, 01:55:27 PM »

Just found out my insurance covered everything.  I don’t know what dr Yafi did, but all I had to pay was my $300 deductible! Whew
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TonySa

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Re: Chapter 2, Excision/Grafting Journey
« Reply #118 on: June 05, 2019, 02:58:32 PM »

Great news and will be reassuring to many who read your posts now and in the future!  Thanks for updating us.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Frank55

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Re: Chapter 2, Excision/Grafting Journey
« Reply #119 on: June 07, 2019, 07:16:11 AM »

These journals always help TDix. Thanks for taking the time to post. You may not have as many "daily incidents" as you continue to heal but all of this content is valuable.

Please keep us "posted" (ha).
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Single and 57 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #120 on: June 07, 2019, 03:52:22 PM »

Thanks guys.  It’s amazing how little info is out there for our condition.  Sometimes I’ve thought I should have documented with pictures, but that is just a little too personal to throw out to the world.  My little guy has gone from normal to disfigured, swollen, puffed up like an eggplant, to “different”.  I’m slowly getting back to normal, but it’s a long process after surgery
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #121 on: June 08, 2019, 02:21:12 AM »

So my wife is an occupational therapist, and has been dealing with a rotator cuff issue.  She went for physical therapy, and in talking with the therapist my situation came up. Immediately she said”oh he has peyronie’s, I have a lot of clients with that”.  She strongly suggested I go see her to have pelvic floor therapy.  Will keep you updated
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #122 on: June 11, 2019, 02:24:30 AM »

Was able to be with the wife this morning.  3 times since clearance.  First two weren't that great as I wasn't on Cialis and would lose my erection due to my numbness.  Today was the first time while on Cialis.  It did help, and I was able to "finish", but the numbness still causes issues.  I never really know if I'm in or out as I can't really feel.  I thought it would be a bonus as I have had PE issues, but not knowing if you are even inside is kind of a bummer.  I know, baby steps.  Also, afterwards I was very sore.  We were not rough by any means....I mean, we know rough (ha), and we were very gentle.  Also had a stinging sensation in my urethra, which I have read is a side effect of antidepressants, which I am on.  I'm not complaining, as I was able to be with my wife, just sharing what I am going through 12 weeks post op.  It's gonna be a long road guys.  Also, can only really get a good penetration from behind.  Any other position I have no idea if I'm in or out
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #123 on: June 11, 2019, 03:51:43 AM »

😳
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Bubba dawg

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Re: Chapter 2, Excision/Grafting Journey
« Reply #124 on: June 11, 2019, 04:20:32 AM »

You may want to read up on Peripheral Nephropathy. I have it sometimes in my nose and upper lip due to a blow from a crow bar. I was trying to pry something and it slipped and popped me at the base of my nose. So many nerves in that area.  I can't find any good treatment for PN. Has many different causes. Not saying that is it. Just a possibility
 Glad you can get back in the sex game. That is good news
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5 Rounds of Xiaflex. Good results

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #125 on: June 11, 2019, 04:29:44 AM »

Thanks bubba, I will wait out the 6-12 month period Dr Yafi said it could take for my feeling to come back.  If it is still an issue then I will pursue a solution.  I am not going to let this condition Win
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #126 on: June 12, 2019, 02:37:30 AM »

The pain from yesterday has gone away.  Learning as much as you guys are how healing from reconstructive surgery goes
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Frank55

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Re: Chapter 2, Excision/Grafting Journey
« Reply #127 on: June 12, 2019, 09:44:49 AM »

TDix - Question for you. When you were selecting a surgeon, did you consider Dr. Gelman? Think he may work at the same center as Dr. Yafi.

Just curious. I think Gelman does both grafting and plication.
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Single and 57 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #128 on: June 12, 2019, 02:10:52 PM »

I did but he does not take my insurance
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Frank55

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Re: Chapter 2, Excision/Grafting Journey
« Reply #129 on: June 13, 2019, 08:07:18 AM »

OK thanks. Just like Dr. Yafi, Gelman also seems to be very good. Have seen multiple positive results here on the forum.

That facility (UC Irvine Urology) appears to have quite a urology talent pool. Worth a look for anyone considering grafting or plication.
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Single and 57 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #130 on: June 13, 2019, 02:31:00 PM »

I agree, UCI has a specialist for every urological condition
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #131 on: June 13, 2019, 03:17:54 PM »

I did bring Gelman up to my urologist, and he said, just his opinion, that he didn’t like his bedside manner anddidn’t like that he doesn’t take most insurance.  He did say that if you have anything wrong with your urethra Gelman is the man to see.  He was who recommended Dr Yafi.  Told me Dr Yafi is young and takes a very modern approach to Andrology.  Funny side note, he also told me Gelman is a black belt in karate
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Frank55

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Re: Chapter 2, Excision/Grafting Journey
« Reply #132 on: June 14, 2019, 07:05:30 AM »

Thanks TDix. Interesting info about Gelman. I've had one appointment with him and agree that his patient manners are not the best. He sometimes comes across as condescending. This has been noted by other members.

In contrast, Franklin Kuehhas has excellent patient manners. He performed a grafting surgery on me in June 2016. That surgery flopped.

Point being - those excellent manners don't mean anything after a surgical failure. It is a terrible (and expensive) disappointment and all the good manners in the world don't lessen that disappointment.

This is not a new idea - it has been covered in other threads in the forum. I'd take a surgeon with less favorable manners and a higher degree of surgical skill and experience any day.

Gelman apparently has an impressive record of positive surgical results. Maybe he is a case of what Dizzy Dean said - "it ain't bragging if you can back it up."
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Single and 57 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #133 on: June 14, 2019, 12:53:27 PM »

Yeah I understand.  Like I said I did look into Gelman but he does not take my insurance.  I was not going to pay for my surgery out of pocket, especially seeing how much it cost with Dr Yafi
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #134 on: June 14, 2019, 11:57:36 PM »

Dr Yafi sent a script for pelvic floor therapy at the suggestion of my wife.  Will update how that goes
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #135 on: June 14, 2019, 11:59:56 PM »

Also was able to be with her again last night.  Did not finish but had a very nice experience.  No soreness today so that is viewed in my book as positive
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #136 on: June 15, 2019, 05:38:10 PM »

Closeness with my wife is getting stronger.  Early on with this condition we tended to stay away from sex as we didn’t want to do more damage, and she was scared of hurting me and I was scared of causing more damage.  Now, 3 months post op, we have grown closer as my length returns and the pain slowly gets less and less.  We’ve been closer the last few weeks than we have been in over a year.  She understands that it’s not going to be perfect, and I may not finish, but we are in this journey together
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #137 on: June 19, 2019, 02:57:28 AM »

Feeling more and more “normal”.  As things relax I am back to an acceptable length and am able to enjoy being with my wife again.  As much as I dreaded surgery, I can say that it was a good decision for me.  Not only that, I am happy that I got connected with Dr Yafi.  I truly feel I am in a specialists hands as opposed to simply a urologist.  Like I’ve said there is less and less things to post but I will continue to contribute here.  I have become obsessed with this place and feel I need to help as many as I can, so don’t hesitate to reach out.  I probably visit this site more than any other on a daily basis!
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Bubba dawg

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Re: Chapter 2, Excision/Grafting Journey
« Reply #138 on: June 19, 2019, 06:19:21 AM »

Glad to see its working out for you TDix! Gives a lot of hope to others. Just to not give up. One thing might not work for you but other treatments can work
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5 Rounds of Xiaflex. Good results

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #139 on: June 21, 2019, 07:42:53 PM »

3 month update.....still get sore after sex, but it goes away.  While I am straight,  I am not like an arrow.  I have a slight bulge where the graft is, and bend a little where the plication happened.  Nothing serious, but I look a little like a slightly curved road😂.  Dr Yafi says this is normal and will take a few more months to stabilize.  Will be starting pelvic floor therapy soon on the advice of my wife.  Not really looking forward to it as I’ve seen it involves a lot of going up the bum in men.  Will keep you updated
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

MarkDS

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Re: Chapter 2, Excision/Grafting Journey
« Reply #140 on: June 22, 2019, 02:46:13 AM »

Glad things are getting better, and thanks for sharing your journey.

I hope To be in the same position 3 months down the line, but at the moment feel as though I am in a very different place.
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diehardpatriot

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Re: Chapter 2, Excision/Grafting Journey
« Reply #141 on: June 22, 2019, 10:48:16 AM »

I wanna say, although I haven’t been replying I have been following this whole thread. I am against surgery as much as possible but agree it can be a good solution for peyronies and am open to it in the future. many many times I have read that it truly takes 6 months to recover from these surgeries. I believe this because I have had penis injuries that have led me to not have a single erection for weeks. I am only 19 years old. A surgery is very traumatic to the body, not to mention the stress of recovery and dealing with pain doesn’t help. There was this guy on the forum (can’t remember his name, I think it was Kusher but don’t remember), who had surgery from dr Kuehhas and coming out of surgery claims to not get a single erection for around 3 months. He was really sad about it. Around 4 months later he came back saying he woke up with an erection and ever since he was okay! These surgeries make our bodies really weird
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17 year old who had stable peyronies. Now battling a new acute injury. Don’t know wtf my symptoms r

kusher

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Re: Chapter 2, Excision/Grafting Journey
« Reply #142 on: June 22, 2019, 12:07:18 PM »

 Everybody is different. After kuehhas surgery, i did not have good erection for 365 days. But now things are fine. I regained my natural erection through Neov's hand stretching routine, cialis and sport.
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Bubba dawg

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Re: Chapter 2, Excision/Grafting Journey
« Reply #143 on: June 22, 2019, 12:38:50 PM »

I think there are 2 types of Peryrones. One is injury related and one is age related. Treated differently and recover  differently. A lot of members, in their 50s, can't recall being injured. I was never injured while having an erection. I think stopping having erections would make me worse off
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5 Rounds of Xiaflex. Good results

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #144 on: June 22, 2019, 02:06:59 PM »

Yeah seeing as my brother also has peyronie’s I would say mine is genetic.  I have read somewhere it tends to happen in a lot of Northern Europe men, and seeing as we are of Norwegian descent it may well be the case.  Thank everyone for commenting.  Yeah I will say recovery is happening but slowly.  Every week is a little better, but nothing dramatic
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi
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