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Author Topic: Chapter 2, Excision/Grafting Journey  (Read 2663 times)

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TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #50 on: April 01, 2019, 01:14:02 PM »

Thanks Tony, yeah that’s what I thought too.  I was wrapped pretty good for 48 hours after surgery.  Removed first wrap after 24 hours, and the final one after another day.  Doctor said it’s normal, and is happy I’m having nocturnal erections.  As painful as they are it is a really positive sign
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #51 on: April 02, 2019, 03:22:18 PM »

No more pain meds for me.  Dr Yafi doesn’t like his patients on them for more than a week.  Going to try Advil and Tylenol going forward and see if they help
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #52 on: April 04, 2019, 02:10:41 PM »

Think I finally turned the corner on at least my daily pain.  Pain at night with nocturnal erections is still there, but today I feel I finally came out of the day long pain.  Still swollen but nowhere near as bad as this time last week
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

pfract

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Re: Chapter 2, Excision/Grafting Journey
« Reply #53 on: April 04, 2019, 06:19:08 PM »

Nice! How does it look like after you wake up with the night time erections?

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #54 on: April 04, 2019, 06:34:07 PM »

Dr asked me the same thing “it’s straight though”...I told him the pain is too intense to even really focus on that right now.  Still swollen, and without pain meds it’s a rough go at night.  I guess 9 days post op I shouldn’t expect to be pain free and unswollen.  Going to keep relating how things are day to day until pain goes down more as well as swelling.  I will say I am a lot less swollen than I was a week ago but still have a long way to go
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #55 on: April 05, 2019, 02:12:05 PM »

Each day seems to get a little better.  I think I’ve gotten used to the pain, as it’s pretty sore every morning due to nocturnal erections.  I was able to see how I am last night, and I am straight, but still swollen, so I look shorter than normal.  Stretching and possible traction after my follow up visit should help.  Glans is numb as is expected.  Returning to work in a few days even though I feel I need more time, but I have been using comp days I have accrued over the years for my time off.  Just waiting for the day the pain subsides and I can work on molding myself back to semi normal
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #56 on: April 06, 2019, 12:54:23 PM »

Well just as I say I’m used to the pain, today I am not enjoying it!  Is it normal to still feel this way 11 days after?  I know I’m still in the early phase of this, but man, every day having pain is not fun. 
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #57 on: April 06, 2019, 11:06:40 PM »

I feel the participation here is lacking.  I feel like a circus animal.  “Hey mom, look at the freak”.  I appreciate the few that comment on my posts, however if no one else wants to contribute what am I doing??  Yeah providing my experience, but if only 3-5 people respond what does that do for me? 
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TonySa

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Re: Chapter 2, Excision/Grafting Journey
« Reply #58 on: April 07, 2019, 09:55:02 AM »

My pain decreased pretty much after 2 weeks.
Sorry you’re not getting much response, but Even future readers will benefit from reading your experience here.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

swiss

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Re: Chapter 2, Excision/Grafting Journey
« Reply #59 on: April 07, 2019, 08:10:44 PM »

This is really important. Thank you for posting this. I am considering exision and grafting in the future. How much would it have run you without insurance?

swiss
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TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #60 on: April 08, 2019, 12:49:27 AM »

So far all I paid was my deductible of $300..hopefully my insurance came to their senses, because I was told $3700 by the dr office, down from $16k after Dr Yafi intervened.  That was just the facility fee however as I was covered for everything but the facility
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

swiss

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Re: Chapter 2, Excision/Grafting Journey
« Reply #61 on: April 08, 2019, 09:40:50 AM »

I am going to definitely consider this in the next few months to correct my deformity/ hinge. Mine is near the base so stretching the scar has proven difficult though there has been some progress the last year.
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TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #62 on: April 08, 2019, 01:14:48 PM »

Swiss, pm me your location.  If you are in my area I highly recommend Dr Yafi
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #63 on: April 08, 2019, 03:14:54 PM »

Dr Wachs just called to see how I’m doing.  Wants to see me on Thursday.  I don’t think I can equate how nice it is to get a random call from a urologist that genuinely wants to make sure I’m doing OK.  Like I’ve said, dr Yafi is the specialist, and is a very busy doctor, but Dr Wachs is way more personable and caring.  I feel lucky to have both involved in my care.
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Juice

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Re: Chapter 2, Excision/Grafting Journey
« Reply #64 on: April 09, 2019, 02:21:19 PM »

TDix, you’re an inspiration! I’m scheduled for my surgery May 10th with Dr David Peters of Stonybrook Hospital, he seems very confident that I will 1. Straight 2. No length loss.  I am anxious and scared SH&tless at the same time..  please keep posting your results I would love to know what I can really expect!!! 
Thank you
Juice
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TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #65 on: April 09, 2019, 02:26:38 PM »

2 week mark.  Still painful erections at night, mainly at the base.  Notice that when I am getting them however I am not expanding.  I get hard, but do not “grow”.  Concerned I called the office, who calmed me by saying this is normal.  I am still very early in the healing process.  Have two dr visits in the next few days so I will post how those go.  This is not a race but a marathon it seems!
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #66 on: April 09, 2019, 02:33:22 PM »

Glad I can help Juice.  Many days I feel like walking away from the forum because I feel I’m talking about some very personal stuff to a few people on a worldwide stage, but when I get posts like yours it makes me want to stay and help guys like you out there.
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TonySa

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Re: Chapter 2, Excision/Grafting Journey
« Reply #67 on: April 09, 2019, 02:45:49 PM »

I agree Tdix-it’s a marathon.  I expect you’ll have lost no size due to grafting/excision rather than just plication.  Stay positive and keep us posted! 🌝
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #68 on: April 10, 2019, 01:32:25 AM »

I am getting the operation notes mailed to me.  Be interesting to see what they did
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Frank55

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Re: Chapter 2, Excision/Grafting Journey
« Reply #69 on: April 11, 2019, 09:50:10 AM »

TDix - how did you originally hear of Dr. Yafi? Was that an insurance referral or some other way?

Thanks for your excellent account of this experience, by the way. I'm one of the users who does more reading than posting.  ;)
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Single and 57 yrs. old - first peyronies symptoms Fall 2015
Failed incision/grafting in June 2016 - curvature returned
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #70 on: April 11, 2019, 12:25:39 PM »

I was referred to him by my urologist dr Wachs after my complications from Xiaflex
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #71 on: April 11, 2019, 03:26:48 PM »

Saw Dr Wachs today.  Said everything looks really good and professionally done.  Said my swelling is normal, and all my concerns are normal.  Said I already look straight even through the swelling.  My suture line is healing really well, and said they did a really good job compared to some other's he's seen.  Prescribed me some more pain meds to handle the nocturnal erection pain, and said to hang in there for the next month or so till the swelling goes down enough to have a true erection.  Right now there is so much swelling the blood cannot fully engorge everything and the back pressure is what causes my pain.  Found out they used a tutoplast graft on me as well
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #72 on: April 15, 2019, 12:57:48 PM »

Visited with Dr Yafi today.  All things look good.  The pain at the base is the result of a hematoma, but other than that I am healing very nicely.  Dr said I was 50 degrees prior to surgery and am now under 5 degrees.  Won’t be able to truly see until my hematoma and swelling go away
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #73 on: April 18, 2019, 03:33:52 PM »

Every day that goes by things get better.  Hematoma is getting smaller and less painful, and swelling is slowly going down.  Waiting game now to see what I truly look like post surgery.  Dr Yafi will see me again on May 9th after he returns from Europe
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

pfract

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Re: Chapter 2, Excision/Grafting Journey
« Reply #74 on: April 19, 2019, 04:36:32 PM »

So... How are your erections coming along? Did he prescribed you cialis or Viagra to help at this point?

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #75 on: April 19, 2019, 04:50:13 PM »

Erections are strong but still swollen, so not really expanding much.  Dr Yafi is holding off on Cialis right now since I get quite a few at night.
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #76 on: April 21, 2019, 02:41:25 PM »

Finally able to start modeling...straight as an arrow!
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #77 on: Yesterday at 02:10:21 AM »

Doing daily modeling now.  Hematoma pretty much gone and pain has decreased substantially.  Working towards getting me back to semi normal!
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi

Frank55

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Re: Chapter 2, Excision/Grafting Journey
« Reply #78 on: Yesterday at 08:35:35 AM »

Excellent news TDix. Please continue to keep us posted.
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Single and 57 yrs. old - first peyronies symptoms Fall 2015
Failed incision/grafting in June 2016 - curvature returned
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

TonySa

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Re: Chapter 2, Excision/Grafting Journey
« Reply #79 on: Yesterday at 04:40:40 PM »

What instructions did Dr Yafi give for modeling post surgery?
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

TDix

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Re: Chapter 2, Excision/Grafting Journey
« Reply #80 on: Yesterday at 04:49:32 PM »

I see him on May 9th.  I am just doing light stretching at the moment twice a day
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein or fracture at tip, excision/grafting surgery March 26th successfully performed by Dr Yafi
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