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Author Topic: Helping hand. Find the cure!!  (Read 466 times)

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Helpinghand

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Helping hand. Find the cure!!
« on: December 27, 2018, 07:57:02 AM »

First of all i want to apologize for my bad english writing.

I am 25 years old and having peyronie for over 2 years.
I am that type of Guy who only Read for answers all over the place and not write on the forums. But because there is still no real cure i decided to make an account and be like my username says a "Helpinghand"

My first know pain whas when i had having sex with my girlfriend on a evening day.i was worried and I looked for the symptoms on the internet and "BOOM" PEYRONIE DISEASE , i looked at the pictures and "BOOM" HORROR PICTURES. I freaked out and was immediately looking for cures but unfortunately there wasn't.

I went to the doctor en he said i need to go to the urologist. There i was and the urologist says i have peyronie and i Just have to wait like 9 months before the pain is over and i need to come back for help when there is to much curve that i couldn't have sexual penetration anymore.

there i was with a so called "Disease" that is very rare like 1% of the people have in there 18-25 years.

I looked for information and information on google. Page after Page and Saw some weird devices and surgery where your penis can get inches smaller.
Everything Just was a doom scenario.
So here is my Story and opinion of what i did to try release me from this s**t

NOTE : This is based on My opinion and i am not saying for 100% that these things work or don't work.

Important information about my peyronie.
I don't have a bend in my penis but a Hourglass shape and still i can have sex. I feel bumps left,right and top in the middle of my penis Shaft. I still after 2 years have pain when i get A erection for like 10 minutes and then the pain is slowly drowning away.
I also have a bad blood circulation because of the peyronie and while i urinate  i can't get the last drops out anymore. Also when i have an erection the top of my penis doesn't erect to the fullest sometimes.

Here goes what you probably was waiting for.

I tooked  Vitamin E for months : didn't work.

There was a so called Guy that used a "Sonic toothbrush" and used it for massage with very positive results also from other people on that forum. I bought one of the best Sonic toothbrushes on the market. (Philips Sonic care) about 100 euro's. I think also that that didn't work for me. And can't say if it became worse or better.

Next up

Hand massaged my penis gently with vitamin e oil and it didn't Made it better. YET. (bare with me)
Next up

Used Tiger balm. (Didn't work for me)

One Day i was in the shower en i was thinking about Heat therapy that i Saw on a forum. I picked the handshower and placed it close to my penis Shaft. Raised the temperature and immediately  felt a better blood circulation. I also immediately felt that i needed to urine and it was much more easier to do it with the warm water on my penis Shaft. I think This is a positive thing and now i do This everytime when i go to shower.
From what i have learned and read i Just think blood circulation is key for curing the Disease. That is probably why on This forum a "VED" gives positive reactions.
I am thinking to buy one soon. But for now i Just think don't Let the penis dead. I think naturally boners are good. And no matter what you do. DO IT GENTLE. Massage didn't work for me Yet but i think it is important to do it (GENTLE) .

SERIOUSLY NOTE: Accept the fact that you have peyronie. Try to get over it en keep thinking forward without stressing out. I certainly believe that stressing out make things worse. Believe me i also stressed out for months and since i accept it my penis feels better. (Hard to explain why) Keep calm we are not alone in This.

Let's find the cure we can do it together if we can give eachother even the smallest information of help what we do or don't do.

And also what i think that causes This so called disease (for me).
“trauma accident”. I remember once having great sex with my girlfriend and i Just pounded a miss and hit her vagina a little bit on top. I felt pain and from  i look now  how the shape of my penis is now today i Just think that day of sex caused the problem.

I hope i helped you guys with This story.
I Will keep you guys updated. Feel free to share information on This topic.
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mith76

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Re: Helping hand. Find the cure!!
« Reply #1 on: December 28, 2018, 07:26:17 PM »

I agree with what you're saying. There are others that have posted about heat therapy and natural boners being beneficial. You should try using handwarmers, I found them to be helpful in my case. I wish more people knew the benefits of heat and how it allows for proper blood circulation.
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TonySa

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Re: Helping hand. Find the cure!!
« Reply #2 on: December 28, 2018, 07:47:37 PM »

I agree with the heat and would encourage you to try pentox (May help w pain) and VED.  Also check out the guide f you haven’t read it yet: Peyronies Survival Guide - Information for New Members - Peyronies Society Forums
Thanks for sharing how it’s going for you!
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Helpinghand

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Re: Helping hand. Find the cure!!
« Reply #3 on: January 02, 2019, 06:07:25 AM »

Thanks for the reactions. It's good that we are all trying to help eachother.

Last week i did some research about Heat therapy and came across benefits of infrared light.

Infrared is a Heat that penetrates deep in to the skin. Blood circulation wil get better in the deep area of your Shaft where the peyronie is located. So Your bloodcells can reach closer to your Disease.

I also find a negatieve side of infrared therapy that it breaks collagen. But from what i have learned is that peyronie IS COLLAGEN. So maybe that is in our situation positive?

I suggest you do the research on yourself it is very easy to find the benefits of infrared and also the negatives. (Because my lack of good english)

Maybe there are people who knows more about this stuff on the forum? Keep in mind i am Just a regular Guy trying to help . So be carefull and do your research for yourself or ask your doctor. Internet is a great invention but also a dangerous one.

I Will keep you guys updating when i have more to tell.
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Bubba dawg

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Re: Helping hand. Find the cure!!
« Reply #4 on: January 02, 2019, 06:56:06 AM »

I wouldn't go into unchartered waters you might burn your dick and be in a world of pain. Find a peyrones doctor and do what he or she says. The internet can get you in trouble. What makes sense to you may not be medically sound. May be even dangerous.
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50s
Peyrones
Plaque and calcium on top
Treated with 5 rounds xiaflex
80% back to normal

skunkworks

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Re: Helping hand. Find the cure!!
« Reply #5 on: January 02, 2019, 07:55:38 AM »

@helpinghand, there are a 3+ studies on hyperthermia being used to treat Peyronie's, so yes there is science there. All had quite good results as I recall.

One is linked right here -http://www.peyroniesforum.net/index.php/topic,294.msg2735.html#msg2735

I will find the rest when I have time unless someone else chimes in with them.

All had pretty good results as I recall. Just keep in mind, heat is bad for your balls and low testosterone is not going to help you treat your Peyronie's.

Helpinghand

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Re: Helping hand. Find the cure!!
« Reply #6 on: January 02, 2019, 08:14:08 AM »

I wouldn't go into unchartered waters you might burn your dick and be in a world of pain. Find a peyrones doctor and do what he or she says. The internet can get you in trouble. What makes sense to you may not be medically sound. May be even dangerous.

I understand your worries. But it's not that i (or someone else) is buying a infrared Heat lamp that is not for medical use.
The infrared i am talking about has to be medical save. You can find sorts of infrared "medical use" devices on the internet.
People use it for all sorts of stuff like back pain. There are even infrared sauna's where you can go to.

If you are using a shower basicaly your top layer of your skin gets the most exposure of the heat.
 for a  medical infrared light the Heat Will penetrates more nanometers deeper in the skin. And it will stay on the same (save chosen medical) temperature.

At This point i am still in research so i thank you for replying.

Note : i have been to a docter (if you read my story on the first page) i Will first try some SAVE treatments and if my peyronie gets worse over time i Will see the urologist again. Basicaly the only thing the urologist said that i can do nothing about it and maybe only try vitamine E. (what didn't work for me)

Every person has there tips and tricks to make diseases better.
And for the people that are reading this i 110% agree with you. Listen to your doctor and do your own research! Please be save

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Bubba dawg

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Re: Helping hand. Find the cure!!
« Reply #7 on: January 02, 2019, 08:20:36 AM »

Studies dont mean much.  Early studies showed Vitamin E was great for heart patients. New studies show the opposite.  Just one example of many. Xiaflex can be good in the right doctors hands. Can wreak havoc with an inexperience doctor. You shouldn't read a study and think you are qualified to doctor yourself. I dont think I am qualified to inject myself with Xiaflex. Same with putting heat to your penis
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50s
Peyrones
Plaque and calcium on top
Treated with 5 rounds xiaflex
80% back to normal

james1947

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Re: Helping hand. Find the cure!!
« Reply #8 on: January 02, 2019, 06:16:58 PM »

Vitamin E didn't helped no one with Peyronies. You may want to search vitamin E on the forum and you may find out yourself.

I bought an infrared device, same as the physiotherapist using here in the hospital, $50. It has a clear warning that maximum session length should be 12 minutes.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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