Really Hating Life right now

[ThrobbingGristle]

Hi all, sorry for the depressing title. I developed Peyronies Disease 4 years ago.  I dont know exactly when. I just know that my penis started really hurting in a way I didn't really know how to describe. I went to 3 urologists, all of whom were complete assholes. Without any testing at all they all basically accused me of lying and wasting their time. They were really indignant with me. They would say things like "so what you have feelings (referring to my describing my discomfort) " we all feel something". He told me to take advil and dont come back. The last one I saw said things like "it's not my fault you don't find your wife attractive (referring to my ED). I'm not kidding, this is the treatment you get in Toronto.

I went for like two years with no treatment because of this. I eventually found the plaque myself, after a long period of gradual deformation. I went back to the 3rd urologist and had to insist I had Peyronies Disease.. He grabbed my penis really hard - like aggressively and then finely sent me for an ultrasound. The ultrasound showed 3 calcified plaques. He then told me, "well once it's calcified it can't be treated",. And just be lucky you dont have cancer". And I was referred to a 4th specialist. This guy again told me there was nothing to be done and referred me to a surgeon in London ON. I read some horror stories and decided I was better off just living without dealing with these people.

Now, at this point I don't even care about the deformation. I lost about 1.5 inches in length and the deformation first hourglassed and then eventually settled into this sort of thick frontal girth with my glans pointed upwards.

Now my problem in addition to the pain, is that I basically can't feel my penis anymore. It's not fully anesthetized, but there is no pleasure in it. I have not had sex with my wife or enjoyed masturbation at all in 4 years. Masturbation was possible but became more of a medical process than anything fun. I also have ED that is progressing as I age. I had pretty much given up though.

Then, about a week ago I masturbated. Nothing crazy, just normal. Anyway. Immediately afterwards I felt a great deal of pain and a week later I still have it. So, it appears I'm acute again. This comes after a period of dealing with a ton of stressful things - almost quitting my job and going on a stress leave. 2 days after I go back this happens. What's more. It feels like several other plaques  my also exist under the other one - so I feel them down about half of my penis. I'm pretty horrified. I tried to make an appointment with urologist #4 and basically was told to F~@< off and that I should have gone to the surgeon. She (the secretary) told me to go to my family doctor - which means the cycle will just start over.

I'd like to note I am not a difficult person. In fact in retrospect I wish I did give these people more of a hard time.

Anyway, I made an appointment with one of these "men's clinics" , that will hopefully do something, but have a reputation for milking people for money.

I guess what I'd like to know more than anything is why there is this numbing and adhedonia. Is it blocking a nerve? Right now my whole penis including my testicles are pulsing with pain. It feels like I got kicked in the balls and it won't go away. My skin is also oddly flushed for some reason.

This has ruined my life. I broke my tailbone around the same time and it never really got better, so between this and the Peyronies Disease I just find no joy anymore. I used to ride motorcycles long distances and this completely ruined that. Now I can barely get if the couch. Why my partner stays with me I have no idea. If I didn't have her I'd certainly throw myself in front of a train.

Sorry to be so morose, but I can't catch a break with this stuff. Really upsetting.

[Hawk]

ThrobbingGristle - Man I feel for you,  I even hate typing your forum name.  I am glad you are here however because for starters you need to realize that most of us can relate to a lot of your experiences although you seemed to have gotten a particularly bad crop of urologists.  Most of us have some bad urologist stores to share.

First,  look over this document Peyronies Survival Guide - Information for New Members - Peyronies Society Forums
You might find a couple things in there that could help and have no chance of hurting.  Next, fill in your signature line below your posts.  It will help a lot in getting better responses.

I would immediately try OTC NSAIDS and Acetyl L-Carnitine for the pain.  give it a few days to see if it is going to work.  Be careful with the NSAIDS, they are rough on the stomach.  I will let others address the loss of sensation.  Somehow, that is one of the symptoms I missed through all of this and it is not typical to most men with Peyronies Disease.

Good luck,  You are in the right place.

[NeoV]

I really am sorry to hear how much you're struggling too. Consider all treatment options, see a true specialist, and commit in any way you can to improving your symptoms. Have you tried many oral therapies? Physical therapies?  

[diehardpatriot]

The hopeful thing is you haven't tried any treatment. See a good doc, please do not let him object tournament penis, you seem to have a metabolic issue like some of us here on the forum. 4 years in pain is not the norm. When you see the doc ask for Pentox and consider changing your diet to Ketogenic or low sugar  

[ThrobbingGristle]

Hi all, andnthanks for the encouragement. Canada just seems to not want to experiment if they are not familiar. My recent doctor,  is  supposed to a specialized had not heard of Pentox. I later sent him a document saying that it could be prescribed in Canada for this purpose. I hope agrees to let me have it. Otherwise he gave me a script for a cream #(starts other a V).

Now I had the first of my sonic shock treatments. My hopes were not high. It however, almost instantly, allowed me to feel my penis and festivals in a way I have not sincentuis began. The nurse focused on the plaque specifically, and I'm not sure why but this has made a significant improvement. I was doubtful was possible , even if it will likely not affect curvature. It also stopped the pain I was feeling by about 80%.mind you I'm only 2days in. I am still in some discomfort, but I'm hoping this was a blessing in disguise if this treatment continues to work and any future deformation can be halted. So some good with the bad I guess. Has anyone else experiencing this? I personally think she disturbed the p!aque enough to allow a nerve to become unblocked but I'm not certain. I was convinced for years this was not ever going to improve. I just hope it's long term.

I wonder if it would make sense to buy one of the machines. Can't be more than a few grand.


Also, I have tried and use all the supplements recommend,,ncluding ubiquinol and serrapeptaise. ALCAR, nalt, ala, nac, arginine etc....I buy n bulk quantities so always have it around. Just need some vitamins E.

I'll update my signature soon. Happy to be a member here. It's so necessary to have these connections? thanks.

[betterbend]

Dont know how it works in Canada, but before you keep running around to different doctors, or let a secretary send you back to  GP, look online for a urologist who treats Peyronies, see if they have a video or website.  I cant ever see a urologist who knows about Peyronies treat you like you are the problem.  Sorry for that experience, I was so much less stressed when I got to my doctor and everybody there, especially the female nurses, and female PA's, treated me like I had a medical condition that need specialist care.  

[skunkworks]

Just out of interest have you had an hba1c test at any point in the last year?

[Christopher1]

Canadian doctors sound worse than American docs. My God.