My Journey and Intro

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ringo1

I am 37 and developed what I believe undiagnosed Peyronies Disease 1 year ago and fought hard...a it long but interesting struggle

so  about a year ago since separation from my wife got hooked to weed and porn ..and thought I got the next best thing masturbation hours looking at porn and smoking weed... after 1 week on my divorce during a masturbation session felt as if some razor has cut me from within and saw some discoloration on the glans and couldn't get an erection...went to uro next day he said its all in my head(due to divorce) gave me a muscle relaxant and 5 mg daily Cialis(no mention of peyrinies). erection came back..was on cials for 1 month but noticed could get erections only in a certain position. And there was always numbness and tingling feeling..fast forward..stopped Cialis erections were there but not spontaneous ..still knew something physical was wrong (soft pain always there).. has the first dopplor was ok(was taking Cialis the stupid dr never advised to stop Cialis for the dopplor told the dr but he said it does not impact the ultrasound)..confused...is it mental or physical ...even I had some pain. Stupid enough to go to a   to  physiatrist who messed up my brains all BS eventually got tinnitus in right ear(constant ringing no cure) due to antidepressant with cialis ..came back again got hooked to weed and masturbation BAAM one session of masturbation and saw major discoloration in the penile shaft with scar tissue ..inflammation...skin becoming thick....and same razor cutting feeling from inside penis .went to URO he said is all good(no mention of peyronies by top uro) I should keep on taking Cialis and muscle relaxant...fast forward....had 2 other dopplors showed venous leak and then had an MRI to rule our Peyronies Disease came back normal with finding of unknow fluid signal between tunicia albugenia and buck fasia with no structural deformity within ...had 2 Pshots in dubai with top urologists & also saw british uro(dr gulio ) showed him all my finding but he did not mention anything about Peyronies Disease....shockwave nothing seems to work ....got erection with manual stimulation but position dependent ..always mentioned the all URO that after 2nd episode of prolonged masterbation my penile shaft became discoloured ..inflammation  but no one mentioned peyrionies just venous leak... wanted to do everything to defeat erectile dysfunction focused of venous leak not Peyronies Disease which I had....hooked up with one Dr geng in Taiwan had a brutal operation for fix venous leak (7hours)..bad decision..lost size ...pain ...more scar tissue ...condition worse than before no erections now and lost size.

had a video consultation with the master Dr. EID...he listened and told me I had peyrionies since day 1 and veins ligation are a scam...  I asked him I did not have an curvature or plaques ..he said that not always the case and venous leak erectile dysfunction in peynoines is due to scar tissue. he told me I could have managed better if I had been diagnosed correctly...

I saw top uros  in 3 countries and no one was able to diagnose that I had peyonies since day 1 except Dr. EID...now wishing for heal from the scam surgery in Taiwan which has damaged me intensively...did not pursue this forum cause I felt I had veins leakage and not peyrinies as I did not have plaques or curvature ...but all other symptoms inflammation...egg plant shape all there..I damaged my tunici and scar tissue healed leading to penile thickening and inflammation and I shouted to all uro my penis skin has become think and dark but one one cared...I hope my story help a lot of guys ...looking for prayer to heal from the stupid operation...and advices what to do next..
37 yrs//ED & undiagnosed Peyronies Disease since 1 year/tired all pshots- shockwave..thought I had Venous leak
Had vein stripping scam procedure in Taiwan..now totally damaged.
Planning on an Implant

Hawk

Welcome to the forum Ringo,

Do you still have unmanageable erectile dysfunction and if so do you plan on a penile implant by Dr. Eid?  Have you tried Pentox?  Have you already made your mind up on your course of action?


Keep in mind a curve is caused by one side of the penis becoming non-elastic.  If the scar tissue is distributed rather than concentrated in one spot you can end up with all sides of the penis having some scaring.  This will result in loss of length but no bend.  In some cases, you will bend one way for a short time then straighten or you will be straight but have a dent or a narrowing.


You will see in my signature that I received an implant from Dr. Eid about 4 months ago.  I should have done it years ago.

Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Pfract

Hey man... Is this doctor, the one you are talking about?

Hsu`s Andrology

If so, there used to be a big thread on another ed forum which is now down about this, and the lack of success on it. A lot of guys falling for it. I even talked to a Portuguese guy, who spent all his money to go there and had no luck. Poor guy. Tried to reach back to him, and couldn't.

How are you going to truly know the type of ed and blood flow valves you have? When are you getting an ultrasound?  

ringo1

Quote from: Hawk on December 04, 2018, 08:56:21 PM
Welcome to the forum Ringo,

Do you still have unmanageable erectile dysfunction and if so do you plan on a penile implant by Dr. Eid?  Have you tried Pentox?  Have you already made your mind up on your course of action?


Keep in mind a curve is caused by one side of the penis becoming non-elastic.  If the scar tissue is distributed rather than concentrated in one spot you can end up with all sides of the penis having some scaring.  This will result in loss of length but no bend.  In some cases, you will bend one way for a short time then straighten or you will be straight but have a dent or a narrowing.


You will see in my signature that I received an implant from Dr. Eid about 4 months ago.  I should have done it years ago.

Hawk

thanks for all your advise I wished I should have come here early  yeah I had scarring all over my penis with sharp pains after erections but none of the doctoros were able to diagnose my condtion ,,,and now I believe I have more scarring after this brutal operation with dr. hsu..my plan as of now is to heal ..its been a month since the surgery and I am still in pain..just wishing to recover enough to get the implant done..loss of length is there after the operation..stupidest decision of my life..

can pentox help me becoem more elastic to regain a bit of size...
37 yrs//ED & undiagnosed Peyronies Disease since 1 year/tired all pshots- shockwave..thought I had Venous leak
Had vein stripping scam procedure in Taiwan..now totally damaged.
Planning on an Implant

ringo1

Quote from: pfract on December 04, 2018, 09:11:14 PM
Hey man... Is this doctor, the one you are talking about?

Hsu`s Andrology

If so, there used to be a big thread on another erectile dysfunction forum which is now down about this, and the lack of success on it. A lot of guys falling for it. I even talked to a Portuguese guy, who spent all his money to go there and had no luck. Poor guy. Tried to reach back to him, and couldn't.

How are you going to truly know the type of erectile dysfunction and blood flow valves you have? When are you getting an ultrasound?

bro I have done it all... ultrasounds..MRI..cavesongrams..NPT...the end the result was always was always I have multiple venous leakage.... which was due to scar tissue after trauma which could be seen after observation of my penis but somehow in all test the internal structures were always reported to be ok...  where as I believed I had damaged the erection related veins with masturbation, so I did a lot of research on veins ligation in which the literature said that for a brief period it will work and then the effect wear off ..so the plan was to be ok for a short while and then go for the implant...but I believe it was a BS plan ....surgery specially the one dr hsu does is no joke.. there are very series phiycal complications such a deformity and loss of size and sensation after a 5 hour opp...I was much better off prior to surgery with a I/e score of 17..anxitey got to me specially being single after divorce ..one advise from my side the cure for ED if reported venous leakage is never in surgery instead of finding ways of getting better like before... the goal should be as medical proven is always to manage your conditions with pill/medication so that it doesn't get worse....I tried sex multiple time and could perform but as it was undiagnosed Peyronies Disease I noticed my condition getting worse with passage of time and after this surgery just praying that I don't develop too much scar tissue outside the tunica to affect my sensation and size for the implant.
37 yrs//ED & undiagnosed Peyronies Disease since 1 year/tired all pshots- shockwave..thought I had Venous leak
Had vein stripping scam procedure in Taiwan..now totally damaged.
Planning on an Implant

Hawk

Quote from: ringo1 on December 05, 2018, 03:19:18 AM
thanks for all your advise I wish I would have come here early.  its been a month since the surgery and I am still in pain..just wishing to recover enough to get the implant done..loss of length is there after the operation..stupidest decision of my life.

can Pentox help me become more elastic to regain a bit of size....

I think there is a possibility it can.  Some respond to it and some do not.  It might depend on some unknown factors but the length of time and whether the plaque is calcified are known factors.  If it has only been a year since your first symptoms, I would think there is a good chance it could help.  I do not think it would reverse ED but might help maintain length or even regain some if used with the VED or traction.  If nothing else it might prevent new plaque prior to implant surgery.  I would also suggest gentle VED or traction in the time period after you heal but before the implant, if there is going to be a delay between that time.

Have you thought about when you intend to set up the implant surgery?  Would you travel to the US and have Dr. Eid do the surgery?  Also, just so you are aware, we have a board on implant surgery in the Erectile Dysfunction section of the forum.  At this point, you are probably better off to start posting there since you have your introduction.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

I would def try to have a consult w a good implant doc such as Dr Eid.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.