PLEASE HELP! Teenage son with congenital curvature

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

RedSunn

My son was diagnosed with congenital curvature so severe that the doctor said that sex would be impossible for him.  He curves down and twists to the left.  One side is 7 inches long, the other is 5 inches long.  I was wondering if there are treatments alternative to the nesbit procedure or shortening his penis.  He is extremely upset about having to hace some of his penis 'cut off' in order to 'fix it'.  The doctor said that any other surgeries like grafts or whatever can go very wrong and that permanent erectile dysfunction could occur.  What about dmso treatments?  Is there any verifiable evidence that it affects curvature in a positive manner?  I also saw that dmso can be toxic or permanently detrimental if used improperly, how would you know how much to use and when?  What confirmed positive and negative results can happen when using dmso?  I saw something about skin clearing that using dmso can make your skin translucent while using it.  Is this permanent or long term?  Please help, we have been suffering through this for years, first doctors poo poo'd him, then sent him to urologists who had no idea what to do with him, then we got this doctor who seems to be educated and does a lot of penis specialty surgeries, but seems unpersonable when it comes to the aprehensions of a teenage (18) boy.  His entire life seems to be on hold until he can get 'his biggest problem fixed'  because he will not have relationships with people, especially girls because of it.  I know this is a mental thing that needs addressed, but he does not want to have to deal with a girl finding out about it or having to tell her, so he simply stays away.  We are making the arrangements for the nesbit, because he sees no alternative to it, and his health insurance to cover the surgery most likely runs out in June. PLEASE HELP!

nemo

I'm so sorry to hear this - it sounds like you're going through a really rough time with this.

If this is indeed congenital curvature and not Peyronie's plaque causing the bend, then forget about DMSO.  DMSO is thought to work on the plaque associated with Peyronie's, and even that is highly questionable.  I used DMSO as part of the "Thacker's Formula" spoken of on this site several years ago and it didn't have any real impact other than I did notice harder erections for a while.  But if your son has no Peyronie's plaque, then there's nothing for the DMSO to work on - it's not a miracle "straightening" potion, by any means.  I would forget that option.

If it is congenital curvature, and has been affirmed as such by more than one doctor, I don't know of anything other than the Nesbit procedure that would straighten his penis.  But many men have had this procedure with succesfule results, so I wouldn't live in fear of it.  Does anyone want to lose length on their penis? No.  But if your son, in fact, could not have sex the way it is, I don't see that there's anything to lose.  

Now, the main thing, as I see it, is to have a second opinion that: a) it's congenital, not Peyronie's; and b) that the current curve would make sex impossible.  I would want to be double dog sure on both these things before I had surgery of any sort.  In fact, I would probably try to see Dr. Lue in San Fran, or Dr. Levine in Chiacago, as they are the best in the field and could put your mind at ease regarding whether you're following the right course or not.  If this is not possible, I'd just be sure to get a second opinion from a respected urologist in your area.

Again, so sorry you're dealing with this, but again, the Nesbit is a relatively simple, effective procedure, as I understand it, and if it needs to be done, it might well be the answer to your son's problem.

Good luck,
Nemo  
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Tim468

Redsunn

There is a forum policy that we do not make multiple copies of the exact same post here. We do understand your degree of urgency, though.

Sometimes that which terrifies us is of almost no interest to others. It is aggravating to find others unresponsive to our pleas for help. But the group does respond here. You do not need to post multiple copies to be heard.

This policy against multiple posts is to be found in "Read This First - Guests and New Members" which is the first and top most forum listed here. Please read there the rules, but also tips about how to go about finding the information that will help you the most. You will save a lot of time, and when you show that you are trying to do your part here to understand how this forum works, folks tend to respond more to you.

Hang in there - it sounds pretty tough for your son. Have him join and come here to learn more as well.

Tim
52, Peyronies Disease for 30 years, upward curve and some new lesions.