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DD8000

I've checked out this forum for a while, so thought I'd finally sign up and post.

I first got Peyronies Disease around 7 years ago. I got it from having sex when I was very drunk. At one point I was only semi erect and that's when I was injured. I didn't really notice the injury initially and it only seemed to reveal itself about a month later.
The curvature is difficult to describe because it only seems to be noticeable when semi-erect and it probably around 30 degress. When fully erect there is very little curvature, if any. I don't have any calcification, just scar tissue below the glans on either side, as well as a thin band across the middle. The scar tissue is more noticeable when flaccid; when erect it seems to stretch and is barely visible at all. I also still have pain quite often, though only when flaccid. In terms of length, I think I've lost approx an inch, however. I was around 6.4 inches erect and have gone down to around 5.4  I'd also say that I have problems with erections, both maintaining and nocturnal,  though I'll come back to erect length and quality a little later.

Obviously, like everyone else with this awful disease, it's caused lots of problems with mental health and I feel like my self-confidence has been shattered. I suffered with lots of depression/anxiety/insomnia. I used to have a pretty good sex life; now it's non-existent.
I saw a urologist some time ago but he was next to useless. He just recommend I take vitamin E and that was it. He had no interest at all.

As a consequence of the deep depression I was in and being alone, I ended up turning to porn, and I realize now that this was probably the worst thing I could have done. I think that it has desensitized my mind and has affected my erections, not to mention healing and my mental health. I think it's fair to say that I've probably become addicted to it. I think part of it is obsessing over whether everything still works down below.  

Like I said before, when my erections are at their fullest, there is barely any curvature at all. Unfortunately, I think too much porn and masturbation has limited my nocturnal erections and therefore the blood supply and oxygenation to the tissue. My theory is that if I abstain my erections will improve, and I'll reach a plateau in terms of healing. I quit porn and masturbation for a short while a couple of years ago and there was a definite improvement in terms of erections and pain etc. Stupidly, however, I went back to it. I also think that with abstinence and with consistent nocturnal erections, the length will improve eventually, too.
That being said, I'm also anxious that if I abstain and reach a plateau, I may get more curvature when erect. Obviously, only time will tell on this, but it's something that worries me.        

From what I've read, Peyronies Disease seems to stabilize or plateau in a lot of people. Mine still seems to be in a sort of chronic early stage. Again, I'm hoping with consistent, strong erections again things will improve.  
My main aim at the moment is quitting porn and masturbation forever, because I'm pretty certain that this had made my condition worse and more painful.  I want to get to 30 days free and go from there. I'm not taking any medication apart from Vitamin D3 as I'm deficient; I'm hoping that this will improve testosterone and therefore nocturnal erection quality.        
I'm considering trying serrapeptase as well as heat treatment and possible traction in the future, but my main aim is to abstain from porn and improve my nocturnal erections initially.

Anyway, thanks for reading and I'd be interested to hear what anyone has to say.

Best wishes to all.

PS
Just a quick final thought/bit of information. I'm not sure, though feel that this is connected in some way to Peyronies Disease. When I was a kid I used to play a lot of racket sport. When I'd wake up in the morning after playing tennis or squash, I'd always wake up and my bottom two fingers would be contracted, like stuck to the inside of my palm. After a couple of hours it resolved itself, but it was pretty annoying at the time. It wasn't a Dupuytren's contracture, (which I know is linked to Peyronies Disease) but something similar I suppose.

Also, when I first developed Peyronies Disease, on the inside of my ring finger I also developed a calcified deposit or cyst where the joint bends. I had it for a couple of years and it was pretty painful but one day it just disappeared. I think it was a ganglion cyst, though am not completely sure. Anyway, I just felt it was odd that this happened at the same time.    
   
Age 36. First got Peyronies Disease approx 7 years ago. Saw a urologist a long time ago and was given no treatment (or really any help) apart from being told to try vitamin E. Curvature is to the left and varies depending on state of erection.

betterbend

DD8000 it's good you checked in, certainly I am not speaking as an expert, but it seems to me that you have multiple things happening which may or may not be Peyronies related.  If you had an injury 7 years ago, you are far from early stage... Most cases of Peyronies stabilize  18-24 months.  Now maybe you have a worsening Peyronies condition, or a secondary scar.  But your ED and other issues may not be straight from Peyronies. I think your ED issues are related to depression and maybe a porn/ masturbation addiction, possibly And not Peyronies.  If you have the means, you should consider seeing a therapist to deal with those issues, it's quite possible your ED could improve by getting to the root of those issues.  

AGain not speaking as an expert, but just based on what you wrote it doesn't seem like the usual progression of Peyronies injury, it seems that Peyronies has caused some psychological issues causing your depression and ED ... Just an opinion...
55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

DD8000

Hi Betterbend, thanks for your response. Yes, no doubt a lot of the problems in terms of ED are caused by porn/masturbation/depression. I saw someone about the depression element a while ago but it was of limited help. The options here in Britain on the NHS are fairly limited, and I don't have the means to pay privately. I am working on this issue, however; and am determined to quit porn etc.

In terms of Peyronies Disease, yes 7 years is a long time ago but I've had pain on and off all that time. I suspect it hasn't settled because of masturbation and not getting a chance to heal properly. It's why I'm worried that when it does eventually settle down there may be curvature when erect. At present the curvature is at semi-erect or flaccid. Sometimes I do see a small curvature when fully erect, however.

I feel pretty annoyed with myself because I know I've probably made the condition worse. I hoping that if I allow myself to heal, thing may settle.

Anyway, thanks for the response. I just have to try and push on and hope for the best. It just isn't that easy at the moment as feeling pretty bad about everything. Feel like I've lost my identity a little.

Anyway thanks for the response.  
Age 36. First got Peyronies Disease approx 7 years ago. Saw a urologist a long time ago and was given no treatment (or really any help) apart from being told to try vitamin E. Curvature is to the left and varies depending on state of erection.

YoungFella

Total testosterone and free t tested , alondside e2 and prolactin.
Insist on getting this .
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

Bubba dawg

Erectile dysfunction can be caused by narrowing of the arteries in the pelvic floor. This can be caused by smoking, riding a bicycle etc. Could be stress related. Too much sugar in your diet. Honey can cause it. Peyrone likely won't go away. I think xiaflex is better than surgery. Surgery would be my last resort
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Hawk

Bubba, this is not the place (meaning the topic) to debate this but you will never convince me honey or sugar causes artery narrowing in the pelvic floor.  I do not believe there is any evidence of that much less proof.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Bubba dawg

Oh no didnt mean to imply that honey and or sugar caused narrowing of arteries anywhere. Just that they can cause erectile dysfunction. I was eating a tablespoon  of honey a day many years ago and started having problems.  Stopped the honey and it went away and never returned. May have been the type and amount of honey. I have eaten a tea spoon of honey a day with no problems. But no that was separate from the pelvic floor deal
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

DD8000

Youngfella, thanks for your response.  I've had blood tests and my testosterone levels are all within normal range.  
Age 36. First got Peyronies Disease approx 7 years ago. Saw a urologist a long time ago and was given no treatment (or really any help) apart from being told to try vitamin E. Curvature is to the left and varies depending on state of erection.

DD8000

Bubba dawg, thanks for your response. I'm pretty certain that the ED problems are caused by stress/depression/porn addiction/masturbation. I used to smoke but quit around 5 years ago. I don't expect the Peyronies to ever go away now; I just want to get to a stage where my erections are consistently good and I've healed as much as possible. As I said before, I don't believe I've allowed myself to heal properly , which has made things worse.

 
Age 36. First got Peyronies Disease approx 7 years ago. Saw a urologist a long time ago and was given no treatment (or really any help) apart from being told to try vitamin E. Curvature is to the left and varies depending on state of erection.

YoungFella

Quote from: DD8000 on November 24, 2018, 10:15:27 AM
Youngfella, thanks for your response.  I've had blood tests and my testosterone levels are all within normal range.
Normal range ;D
Post it
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
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DD8000

Youngfella, can't remember what I did with the test results. I had it all written down somewhere but can't find them. Like I said, however, it was within normal range. I really don't think this is anything to do with low testosterone. I know a great deal of it is to do with stress/depression/overuse of porn in terms of ED.  
Age 36. First got Peyronies Disease approx 7 years ago. Saw a urologist a long time ago and was given no treatment (or really any help) apart from being told to try vitamin E. Curvature is to the left and varies depending on state of erection.

Bubba dawg

I watch a lot of porn myself. Wife is menopausal. Meds that treat depression can cause ed . Try b12. Dark chocolate 90% coco. Both can help with stress and depression. Fish oil works too. All depends on how long you smoked and how much . Arteries wont fix themselves after smoking. Sad to say. My dad had to have surgery to repair the arteries in his legs after many years of smoking. I hope your peyrones clears up. Xiaflex worked for me. Peyrones did not cause ed for me. Just shortened and bent erections. I dont claim to be an expert about anything. I am not a know it all lol.  
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Bubba dawg

Low t does not cause ed. I had low t before taking testosterone  and didnt have ed. Low t symptoms are fatigue  and weakness  , weight gain and lack of muscle tone.  
5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

Hawk

Topic is locked because it exceeds the number of post slowed for introductory topics.  Please continue posting in the many forum boards.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums