Dr. Appointment & Using VED and Traction to prepare for Implant

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SW01

Sitting in the exam room waiting for the dr. To inject me with tri mix to begin tests this morning. Watched that video from San Diego dr regarding damage to blood vessels from falls and bike riding. Wish I had done a better job 2 or so years ago in finding a dr. Willing to do the tests necessary to make sure I did not damage myself from hitting that board. Now i fear with the severe peyronies and atrophy from little to no erections for past 2 years the damage has been done. Will just have to see how today goes.  
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

Hawk

Best of luck to you.   Hopefully it will be a positive experience.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

SW01

Well this went just about as good as I thought it would. Blood flow was okay but leaking out about as fast as it was coming in. Dr was patient and gave me my options. I can do nothing and move up to trimix and see if that will help with erections but I still would have a 35 degree curve. Peyronies seems to have stabilized past few months. He would not suggest excision and grafting due to the venous leakage. Erections would probably be about what they have been past 2 years. To say the least unsatisfactory.

His best option would be a titan to correct the curve and the dent. He felt sure I would end up with a straight erection and girth would come back. He did measure me and best I could get was a semi. About 5.5 inches. He said to expect that as far as initial length would go but girth would get back to my old 5.5 or larger. Hard to imagine I would now be as wide as long. He did tell me I would get some more length back if I regularly cycled for the next 18 months or so even with the titan.

As for specifics. He has a below average infection and revisin rate. His policy is to try to get the length you have with the trimix. For me about 5.5. He prefers the titan for peyronies due to cylindrical strength. He tries to limit rte,s to one and use the longest cylinder possible. Did mention he follows the NYC dr and thinks his procedures are at the top of the practice. He does around 70 or so a year and uses the penoscrotal incision. My case due to several stomachs surgeries he might have to do a small abdomen incision just to be safe for the reservoir. My insides are out of general placement and just shoving it up through the scrotum might not be the best but would try that first to minimize cutting.

The only good news is that with the leaks bcbs  should cover it.  Well as so many on here says. The journey is beginning. Not sure where I will end up for the end of it. Have to say I like this dr. And he was upfront. Oh his first words about the implant was to tell me it was not this great thing to have done but in my case it was a good option and I should be very satisfied. The first 6 months are a learning curve and give it time. Do not rush it. Length girth gets better with time.

Sorry if I rambled a bit. Even though I got the answer I figured I would it still feels like I got kicked in the stomache. Well my wife gets her surgery done at end of dec. The only time her drs could get together. I guess I will plan on mine around March or so. Gives me plenty of time for traction and ved.
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

Hawk

It sounds like a good informational meeting and about as positive as you could expect.

I think you are well on your way to having your answers and understanding your options.  That is progress and success.  It puts you far ahead of those that just keep posting about their problem with no steps to move forward.

Just wondering.  Since you have good blood flow with venous leakage, have you tried an assortment of cock rings that would let arterial blood in and attempt to restrict venous flow?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Alibaba

Sounds very promising and that the doctor had a reasonable discussion with you. Cheers man.  
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

TonySa

Great first step.  I'd def do VED and traction from now until surgery to regain what you can.  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

SW01

The dr. Did talk to me about the bands and their use for the time being as long with continuing oral meds. I feel a bit dense but am still after numerous weeks of trying ved getting frustrated. I cannot seem to pull up an erection. I end up long and wide but never very erect. Have not tried with the oral meds yet though. A lot of time my foreskin gets full of fluid. I only leave it on 20 to 30 seconds at a time and start slow. I also have a pretty good dent in my shaft on the bottom, right where the band would sit so to putmorepressure there makes me nervous. Right now I am just trying to keep in a regime to get some elasticity and hopefully gain some length back. My main focus over the next month is to discuss with my wife to determine our options to keep peace in our house. Local or do I just take care of this myself somewhere out of state. Mine is not quite as supportive of the out of state dr as other spouses have been. She feels like if she can get her brain operated on by a local dr.  surely a local dr should be able to fix my penis. It becomes hard to argue with that. One day or a week at a time for now. Get one thing decided and opens up more issues. The only thing I know for sure is it will be a titan.  
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

TonySa

With the VED you never want a full erection, just bringing blood in out to heal tissue.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

Quote from: TonySa on November 14, 2018, 09:28:36 PM
With the VED you never want a full erection, just bringing blood in out to heal tissue.

Tony, I have used a VED for over a decade and I don't understand your statement. Everyone that uses a VED for sex pumps up to full erection multiple times a week.  Like traction, a VED can only maintain size or reclaim lost size if it applies a stretch to the tissue.  Many people, that get great blood flow experience the advance of plaque and deformity.  Blood flow alone cannot be expected to stop size loss.

While I am on this topic I want to add that the amount of actual oxygenzation a penis gets from a VED is in serious question.  Much of the blood pulled into the penis under vacuum is oxygen depleted bloodbflow pulled back through the veins.  That is why the penis often looks darker immediately after VED inflation than it does with a natural erection.  I think the tissue must be regularly stretched, either with a VED or traction, or both.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

Oh, I thought he was using it to regain lost length in prep for surgery rather than for sex.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

If you read closely, I am addressing, recovering lost size.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

Ok, so you recommend VED as treatment then to pump to full erection? The one medical study I could find on VED for peyronies did recommend that but the protocols posted on the forum I understand go not advocate that.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Hawk

First I want to be clear, I am one man with one opinion.  I have no medical background.  I try to apply the best rational thought I can muster to such issues.  There is always the caveat that if there is one piece of information you do not possess that your logical thought is failed.  I have used VEDs' of well over a decade, however, and read the majority of posts on this forum for 15 years.  I have never followed the Agusta 3 cylinder VED's protocol posted extremely close because I did not have that unit and my primary source of correction was traction with VED as a secondary.

It is my understanding however that all VED advice I recall is that you should never pump to pain or any significant discomfort.  I do not ever recall that you should not pump to a full erection. I can see no logic it that.  Consider the following points:

1. If you do not pump to full erection you eliminate all stretching benefit from the VED

2. It makes no sense to suggest that pumping to full erection is dangerous or damaging because MANY patients with and without Peyronies Disease use a VED for sex prior to an implant.  Why would they pump to full erection multiple times a week for sex and avoid it for size preservation?

3. For men that use the VED only for deformity but have full erectile functioning, they get FAR better oxygenation with a natural erection so if the VED is only for oxygenation it seems a waste.

4. With men that have full erectile functioning, they get more stretch out of an erection than they would a VED that only fills them out to a chub or partial erection

3. We know traction and even manual stretching (done cautiously) benefit size recovery and correct deformity.

It seems clear to me that whether you can get natural erections or whether you have ED , that a VED usage that does not pump you to full erection is a waste of time.


Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

james1947

I agree with you Hawk on:
Quote...you should never pump to pain or any significant discomfort.  I do not ever recall that you should not pump to a full erection.
In any case you are pumping to full erection if you are using VED/ring for intercourse.

But I don't agree with:
QuoteVED usage that does not pump you to full erection is a waste of time.
If one have ED and no natural erection, day or night, the VED will induce much needed blood flow to keep a healthy penis (whatever healthy can be with Peyronies and severe ED). It is not must pump to full erection to achieve that.
Myself getting to full erection gradually.
VED helped me to gain back 1.5 cm and some girth.

James  
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Hawk

James, why would anyone NOT want to pump until they got an erection?  What would be the reason?  A full erection does not damage your penis.  A full erection as good for the tissue to stretch.  It makes no sense to stop before erection.  I keep waiting for someone to make sense of stopping and no one has any evidence or even any reason why you should stop a VED before you get an erection.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TonySa

Hawk I agree there is no evidence to conclude that there is not a reason to believe that pumping to full erection  would not be as or more helpful than not pumping to full erection.  Also, there seems to be no evidence to the opposite, that full erection is more effective than partial erection. There does seem to be more face validity that pumping to full erection will allow a full stretch and therefore should be more effective.  Then Only scientific study I found was to full erection, so I'd go w that and is what I did in addition to traction and regained my full loss of one inch pre surgery  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

SW01

Probably wrong place to post this but I am really having an issue with the ved. Not doing it just issues. I have the soma 3 tube but only use the medium and large one. I am going to use traction and ved until I can get my surgery done hopefully early March. Traction is no biggie. Works pretty good and I have noticed it helps. Been doing ved but my foreskin usually fills up with fluid when I pump up fully. My head gets squished in the middle tube and my glans expands to fill the tube. When I am done the skin usually has fluid in it which takes a day to go down. I notice it is on the glans side of my dent and curve. Makes me a little nervous so am alternating traction and ved. I have gone very slowly with ved. Say start with a couple pumps, deflate, go a couple more, etc. Figure whatever it has to help in prep for surgery.
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

Alibaba

I do not know if you have a type pump or cylinder that allows it but have you tried wet pumping with warm water? Pull your foreskin back and pump with the cylinder 1/2 full of warm water but stop before the water gets into the pump mechanism. Do not pump too long of a period of time. I know when I was on pumping forums, even those who were butchered by the circumcision cultists would have problems with it filling with fluid around or above their scar.  With the right set up you can wet pump sitting in a hot tub too.  Face it, dicks like warm.  
Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan 22cm + 1.5 cm extenders

Pfract

Man.. I just saw this now. So, you are going forward with the implant? There was a video about using a pump on YouTube which was very informative. I can try and search that for you. Please, try to be able to use it for speed implant prep so you try to regain some size back!  

SW01

Oh yea. I am not dealing with this any longer than I need to. I have no issue with getting an implant. I have had 4 docs tell me due to my peyronies curve I will need an implant. The last one did tests and I have a venous leak so the ed is not getting better. For me this is a no brainer. I am looking at March after my wife gets back on her feet from her end of december surgery. My only issue is back to dr. Choice. I prefer Kramer in baltimore because one of my sons lives there. But my wife prefers me to use the last one I saw. She is coming around on the implant now but is worried she will not feel like traveling with me, and if something goes wrong she would not have the energy to travel to an out of state hospital. Will figure this out. It takes about 4 weeks for insurance authorization and about 6 weeks lag time for surgery. One thing I know is this is happening in March. I have to much farmland to take care of come mid April so need to be on my feet by then.
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

Hawk

Quote from: SW01 on November 20, 2018, 01:39:09 PM
One thing I know is this is happening in March. I have to much farmland to take care of come mid April so need to be on my feet by then.

Better make it no later than the first part of March.

Do all the doctors you saw use the scrotal approach with a vertices incision?
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

SW01

I am only considering dr in Cincinnati if I do local. He said all the right things and pretty much guaranteed I would keep my length right now and with traction until surgery could do better. He uses scrotal incision for the implant but did say with my prior stomachs surgeries he might have to make an incision in the abdomen for the reservoir but did not think he would have to. Just depends what the muscles look like going up through the scrotum. I have been cut open from my belly button to the top of my penis so I really do not want anyone messing with it if they do not have to. Still chatting with the wife about just going to Kramer or eid on my own. Dr. also does not plan on using more than 1 rte unless pump and tube placement would be an issue due to a scrotal issue. I asked if he kept different sizes on hand and he said he does. Will have to see how much marital discord traveling would cause. I definitely do not want to add to her issues. Might have to roll dice this time and hope for a good outcome. I do feel comfortable with this last dr. I just wish he did more of these rather than the 1.5 avg a week. He said he was a follower of eid techniques. Has some good reviews online but not many of them. Will see how things go. My wife's surgery is dec 19. What an xmas present for us. She will be in ICU probably unless they move her to regular bed by then. We really just want both these surgeries over.
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

Hawk

I would not worry about it right now.  Do your prep work, support your wife, play it by ear. I think by the time you pick you can be out of surgery within 6 weeks or less if you push for it.  That means you until at least the 2nd week of January to make up your mind.  If your wife comes through surgery well, it will be an excellent Christmas present.  
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums