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Author Topic: Don’t know where I fit here  (Read 161 times)

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TDix

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Don’t know where I fit here
« on: November 03, 2018, 09:28:00 PM »

Just bringing this up as I’ve bounced around the various forum topics.  I do not have erectile dysfunction.  I DO have Peyronies.  Tried Xiaflex, and posted in appropriate area, however that was a disaster for me and now doesn’t feel the correct spot for me.  Burst a vein, have pain and discomfort.  Slowly seeing my penis worsen before my eyes.  Can’t do traction, as I’m not fully healed.  No VED either.  Quality of sex is subpar, as I’m worried of more damage, and I now suffer from PE.  Was totally leaning towards an implant to put an end to all of this, but I’m not a candidate as I can still get erections.  (Not a dr’s view, just suggested here).  What the hell does a guy in my situation do?  Or go? I’m so depressed and over this crap.  I don’t want any surgery that will take any length away that I already have, as I’m sure I’ve lost some already. I don’t want anymore frickin needles in my dick, as it obviously causes havoc down there.  I’m a lost nomad in this condition right now.  Tell me please I’m not alone.  Sure feels that way right now
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein/nerve damage, healing for 6 more weeks, surgery likely option, Dr Barton Wachs and consulting Dr's Lue, Gelman, and a few others

TonySa

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Re: Don’t know where I fit here
« Reply #1 on: November 03, 2018, 10:38:08 PM »

Hi, sorry you’re on this roller coaster.  I’m wondering if you could possibly get on pentox , low dose PDE5 inhibitors, l-arginine or citrulline and when healed consider getting back on traction to regain any loss length and address curve.  If not successful after several months, consider stage surgery after regaining any loss length w traction/VED?  It’s a long road, but I think you can get there.  I’d try to take a first step towards a long term plan to maintain hope.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

TDix

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Re: Don’t know where I fit here
« Reply #2 on: November 03, 2018, 10:43:01 PM »

Thank you for responding, I was almost ready to delete my account.  Not because of any particular reason other than I felt I just didn’t fit in here.  I will mention all you suggested to my uro when I see him in a few weeks.  Not too hopeful however to be honest
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45 yrs old, 1.5 yrs diagnosed, 3 shots of Xiaflex resulting in hematomas/burst dorsal vein/nerve damage, healing for 6 more weeks, surgery likely option, Dr Barton Wachs and consulting Dr's Lue, Gelman, and a few others

Hawk

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Re: Don’t know where I fit here
« Reply #3 on: November 03, 2018, 11:42:49 PM »

I would try Tony's suggestions.  Since paid if a huge factor I would consider ALC which has a clear impact on pain.  Also NSAIDs and I would consider Voltaren gel.  I have never used it but there is no obvious reason it should not work.

Best wishes
Hawk
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Prostatectomy 2004, radiation 2009, currently 68 yrs old - After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums
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