New Forum Member--My Experience--

[chiguy]

Vitamin e's effectiveness is doubted by many doctors, though some report success. Pentox is the medication you want. It breaks down scar tissue and increases bloodflow. Also, l-arginine supplements increase bloodflow.

Rather than gentle massage which could cause damage, you should use either a VED or traction device.

These are the standard conservative treatments. There is a lot of information on all these treatments on this message board. Let us know if you have further questions or PM me with anything specific.

[CP]

Does it stand to reason that a gentle massage in the opposite direction of the curvature will help?    It seems to me that the vitamin E will soften the placque over time and the mechanical motion of the massage sould begin to break down the scar tissue?   Any comments from those who know?

[lwillisjr]

neidz,
Be aware that a 60 degree bend is close to what most doctors would consider "severe". And that whether you use either VED or traction therapy that there are few cases where a 60 degree curvature was fully corrected. But it is worth trying to see if you are able to achieve some or any improvement with these techniques.

Les

[Old Man]

neidz:

From your description of your curve looks like you would be a candidate for the three cylinder VED therapy rather than the traction. As you state where your symptom is might interfere with attaching the mechanical portions of the traction device.

Read up on the VED boards about how it is used, some success stories and the 26 week protocol for using the various VED models.

If you have further questions then about VED usage, just let us know.

Old Man

[neidz]

I feel good and hopeful from reading your comments and begining my research on this forum.  My curvature is possible different than most.  If you were to compare it to your finger; the center joint of the finger (I'm thinking) is the area that most people have the curve.  For me, my curvature would be at the joint closest to the fingernail--also the area where the plaque is--which I think is an area that is difficult to straighten with a device like I have used.  If you bend the middle joint of a finger and pull on it to straighten it--that seems to work well.  If you bend the joint close to the fingernail and then pull on the finger to straighten it, it is a more difficult angle, so I am not certain how to address it.  My curvature seems to be almost straight upward at possibly 60+ degrees when erect, with approximately pencil width by about 1.5 inch length of plaque--which starts at about the tip/hood of the penis.

[zeppo]

Thanks Old Man - much appreciated.

[Old Man]

Zeppo:

The jury is still out for me on the Herazy thing. I do not adhere to the method that he is touting on his web site and later on this forum.

I have stated that I will not address him or his method in any way further on this forum. So, maybe someone else can help you with your question.

Old Man

[zeppo]

Old Man,
Thanks for your reply to my post.  I have read about Dr. Herazy's manual stretching method.  Is there any way to find out if, (or how well), it works?  I'm guessing that some
of the forum members have tried it.
Thanks,
Zeppo

[Old Man]

Zeppo:

Yes, the forum consists of many "boards" with subject titles for the many areas of Peyronies Disease that it covers. You simply log in to the forum which will bring up the home page. Scroll down the page and it lists all the boards that are on the forum. You can select one by simply placing your mouse pointer on the subject title and then clicking it to open that board. There are sub topics and titles under these boards for the various subject matter pertaining to that board.

Feel free to ask any and all questions you might have. There is always some member of the forum that will help with an answer to your questions.

Sorry to hear that you have joined the "Peyronies Disease family". It is very devastating to learn that one has the disorder.

Old Man

[zeppo]

Hello all!  I'm a new member, as of January 30,  and having a bit of trouble  navigating around the forum.   Would I be correct in saying that the forum consists of multiple boards? 
I was diagnosed as having Peyronies in October, 2009.  The doctor said it would improve  over time.  Since I am not currently in a relationship, the only time I have an erection these days is sometimes in the middle of the night, which causes me to wake up.  The only thing I have tried so far is  800mg per day of vitamin E, and for a while I was using   vitamin E oil  topically as well.    I Also started taking PABA recently.  I have quite a bit of curvature, and  I'm not seeing any progress so far.
I'd appreciate any suggestions.
Thanks,
Zeppo           

[ComeBacKid]

One thing caught my eye about your post.  You said you think fastsize made your curve worse.  I used the VED, it def helped me gain girth and length but appear to worsen my curve or aggravate it.  Mainly my curve is when semi erect, and then it straightens out when fully erect, but I have venous leakage problems and loss of size problems.  I think sometimes the plaque needs to be softened before being stretched, or the stretching has to be done extremely lightly as not to tear the plaque more.  The science of this is complex, and looking at cells on a microscopic level to figure out the exact right amount of tension to get the best result.  With that being said have you tried pentox? Or the VED? You may want to ditch the fastsize for now, I was on pentox for nine months, now am breaking and doing VED daily, like a hybrid treatment series, soon I will start the VED again.

Comebackid

[GS]

Neidz,

I feel for you too.  One other thing you should think about immediately is not having sex again with anything close to a soft erection.  Your penis will incur more damage and it is easier to buckle with the Peyronies curvature.  I use a small dose of Viagra for intercourse just to make sure I'm as erect and hard as I can be.

My Doctor prescribes 100m and I just bite off about a fourth of it each time.  It's cheaper that way.

Also, I wouldn't have sex again until your penis has had time to heal and you feel no tenderness.

GS

[chiguy]

Neidz,

Sorry to hear you have this condition. During the first 12 months, known as the active phase, the curvature can worsen. The curvature may not be attributed to the fastsize device. Dr. Levine says that the traction device may be limited during the active phase. For maximum results, have much have you worn the device? Have you tilted the device away from the curve?

[Old Man]

neidz:

Sorry to hear that you have joined the ranks fo the Peyronies Disease family! There is some light at the end of the tunnel for you. You state you are into research on the forum, but you must force yourself to do at some. There are valuable posts all over the different topics that pertain to your particular case. You are not alone with this, so stay the course, get into some form of therapy as soon as possible.

The traction device has in some cases caused further injury. So has the VED when used improperly, but in the end success has been achieved with its use by many. So, do some research in the VED board where there are many topics relating to the use of the VED, how it has helped guys and the results of its use.

Based on what you tell us in your post, you do have a problem. Since your wife is now on board with help for you, enlist her into researching the boards on the forum for you. She probably will learn more than you about Peyronies Disease and be able to guide you into the right direction. Peyronies Disease is a mutual admiration society, if you will, so your wife is a very essential part of any resulting success you gain from any treatment/therapy.

Before you decide on any course of action, get all the facts and information you can about Peyronies Disease and how it relates to your particular situation. Sorry that the Fastsize has most likely caused your further damage. Your curve appears to be quite a bit, so you need to work on getting it straightened. The VED therapy has worked for many of us by getting some return to a basically normal size and straightness.

Let us all know if there is anything we can do to help. Feel free to ask any and all questions that come to mind. All here will be glad to assist you in any way.

Old Man

[neidz]

I am 54. I had a radical prostetectomy (prostate cancer Gleason 6) July of 2007.  My wife has depression and had a very difficult time dealing with it; which cause performance anxiety for me.  Consequently a lack of firmness during our physical relationship caused buckling on several occasions (I knew at the time I was injuring myself--never dreamed I could damage that part of the body).

Bottom line:
-I have Peyronies--curvature went from about 30% to 60% (first noticed it about 9-12 mos ago)
-I have taken Neprinol for 2months--not seeing results (they say it can take 6 mos. w/100% results --Dr. Levine
    supported device
-I have worn the FastSize extener for over 3 mos (have had to alter it--upside-down, various ways of wearing)
-My curvature is towards the tip (thinking FastSize has increased the curvature)
-Frustrated w/current approach.
-Been to (3) docs that supposedly specialize in Peyronies Disease treatment (felt I knew as much as them --none of them gave me any hope
-In good physical shape. 
-I believe and have great desires for improvement and coerection

Considerations for improvement:
-Continue Neprinol ($150 for 2 mos!! wow!)
-Continue FastSize or return it?
-Download Bill Bodri's book on how to get rid of the disease
-2nd Meeting with Peyronies specialist (has treated over 1,000 cases)on Feb 1st
-Haven't tried Vitamin E, D, Verafamil, Pump,
-Bend against the curve exercise
-dig into the forum and facts on this website

Can anyone help me?  I have wrestled with this on my own--no one to discuss it with.  My wife is finally on board.  I'm not into spending countless hours researching.  I would like to get to the point with what appears to be an effective approach starting asap.............looking for a little input.

Thanks,
Neidz