recently diagnosed with pyronies. HELP

[Old Man]

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Sorry to hear that you have joined the ranks of the "anointed" with Peyronies Disease. It is a very terrible and devastating disorder of our most prized possessions, the ability to have sex and reproduce.

Now, let me add my 2 cents to your equation. Surgery is considered by most all on this forum as the last resort in treatment for Peyronies Disease. However, under certain circumstances it is a very viable solution to the Peyronies Disease problem. JackP can step in when he reads this post and add his situation and how he coped with it by getting a penile implant. His success story is posted elsewhere on this forum, so locate it and read his history.

First, my recommendation is to get started on some sort of therapy as soon as possible. There are many histories of how guys have been helped with the various treatment/therapies for their Peyronies Disease symptoms. Since you have a double bend and penetration seems impossible, you have a different situation than most, so you need some special attention to that. I have had great success using the Vacuum Erection Device (VED) therapy. Today, I have little if any, symptoms of Peyronies Disease which I attribute to the VED therapy that I used about 15 years ago.

At this point, you need to get a definite diagnosis of Peyronies Disease from a qualified urologist, if you have not already done this. Then select some form of therapy whether it be oral, traction or VED. Get started on whatever method you choose as soon as possible.

I am sure that others will jump in and relate their idea of what and how you should proceed with some form of treatment/therapy. Feel free to just ask any and all questions and I am sure that someone will give you an answer quickly. Good luck to you and again, get started on getting help soon.

Old Man

[brend]

Hi.
I have been diagnosed with pyronies and my urologist is suggesting surgery. From my own research it seems that surgery is not always successful and has side efffects. I have a double bend in my penis, it is nearly "S" shaped. Intercourse is impossible although I do get erection which is much smaller than before Peyronies Disease.  (Typically male. I am embarressed even writing about this). This started about six months ago.
I have a theory that pyronies must be related to other medical issues that I have. I have had fibromyalgia for many years. In the past two years I have also been diagnosed with dupitrons contracture. This is a build up of fibrous tissue in the hands resulting in my hands bending in like a claw, with fibrous nodules on the hand. Unfortunately I am attending three different consultants for fibromyalgia, pyronies and dupitrons. Each consultant looks after their own area of speciality and dismisses any connections betwwen symptoms. My GP agrees that the connections should be explored but unfortunately there is no way to do this.
Can I ask any of you who have had Peyronies Disease and have more experience and knowledge to reply to me. I need advice on whether to have surgery and also are there other treatments I can try first. What is the longer term prognosis.
Please I need help with this.
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