recently diagnosed with pyronies. HELP

[GS]

Brend,

I have had Peyronies for 21 months now and found this forum about 6 months ago.  Prior to finding our forum, I had little hope for improvement and was very depressed.  I had wasted a lot of money chasing different treatments offered across the internet.  There is a lot of information on our website and forum.  You will need to spend the time researching all the information offered here, but it will be well worth your effort.

Good luck to you.

GS

[diminishedhope]

Greetings Brend,
 I also have been diagnosed with peyronies disease. Though I do not have a significant bend (so far at least) in my erections. The diagnosis was made based on the palpapable lump on my left upper side of my penis near the base. The many scans the urologists (seemed like the entire group on staff had to be consulted,,Ugh!) took of my penis all indicated the lump was attatched or within the tunica albuginia so even though it doesn't cause any noticable bend in that area they said it is best diagnosed as peyronies disease.

I also have the similar concern that my peyronies is connected to my other health issues;
   I have keloids mostly on my chest (since my early teens).
   I have frequent attacks of muscle knots and cramps (only for the past 6-7yrs).
   I have been getting Recurrent Priapism in systematic cycles since early childhood.
   I have hypermobility in some joints.
In my family there has been numerous joint issues, including fibromyalgia.

I can't give you any experienced input as to treatments or surgery. I'm basically here to learn more about that stuff myself.
My penis has become so numb to sensation that I wouldn't likely gain much by having surgery to correct a bend (if that were to develop in my case).
   We should inform each other if we learn something concerning the possible connections between health issues.
-diminishedhope

[related]

Hi Brend - I also have been diagnosed with Peyronies Disease. I had one bend which pointed up, rather severe about 3/4 up from the base of my penis during erections. This effect has disappeared with my taking oral doses of vitamin E and B complex. Now my erections are not as full as they used to be or as large, but I can have intercourse and without pain. I also have  Dupuytren's Contracture. I developed both at the same time. I am seeking treatment for the hands now and have had contact with the Center in Boise Idaho - Dr. Kline. I am considering NA and then radaition following NA. Both of these diseases began about 5 or 6 years ago, but I only suffered with the full effects of Peyronies for about a half a year, before that seemed to go into remission. I have a great sympathy for what you must be going through. If I can help you in any way please ask!
-related

[Old Man]

brend:

Sorry to hear that you have joined the ranks of the "anointed" with Peyronies Disease. It is a very terrible and devastating disorder of our most prized possessions, the ability to have sex and reproduce.

Now, let me add my 2 cents to your equation. Surgery is considered by most all on this forum as the last resort in treatment for Peyronies Disease. However, under certain circumstances it is a very viable solution to the Peyronies Disease problem. JackP can step in when he reads this post and add his situation and how he coped with it by getting a penile implant. His success story is posted elsewhere on this forum, so locate it and read his history.

First, my recommendation is to get started on some sort of therapy as soon as possible. There are many histories of how guys have been helped with the various treatment/therapies for their Peyronies Disease symptoms. Since you have a double bend and penetration seems impossible, you have a different situation than most, so you need some special attention to that. I have had great success using the Vacuum Erection Device (VED) therapy. Today, I have little if any, symptoms of Peyronies Disease which I attribute to the VED therapy that I used about 15 years ago.

At this point, you need to get a definite diagnosis of Peyronies Disease from a qualified urologist, if you have not already done this. Then select some form of therapy whether it be oral, traction or VED. Get started on whatever method you choose as soon as possible.

I am sure that others will jump in and relate their idea of what and how you should proceed with some form of treatment/therapy. Feel free to just ask any and all questions and I am sure that someone will give you an answer quickly. Good luck to you and again, get started on getting help soon.

Old Man

[brend]

Hi.
I have been diagnosed with pyronies and my urologist is suggesting surgery. From my own research it seems that surgery is not always successful and has side efffects. I have a double bend in my penis, it is nearly "S" shaped. Intercourse is impossible although I do get erection which is much smaller than before Peyronies Disease.  (Typically male. I am embarressed even writing about this). This started about six months ago.
I have a theory that pyronies must be related to other medical issues that I have. I have had fibromyalgia for many years. In the past two years I have also been diagnosed with dupitrons contracture. This is a build up of fibrous tissue in the hands resulting in my hands bending in like a claw, with fibrous nodules on the hand. Unfortunately I am attending three different consultants for fibromyalgia, pyronies and dupitrons. Each consultant looks after their own area of speciality and dismisses any connections betwwen symptoms. My GP agrees that the connections should be explored but unfortunately there is no way to do this.
Can I ask any of you who have had Peyronies Disease and have more experience and knowledge to reply to me. I need advice on whether to have surgery and also are there other treatments I can try first. What is the longer term prognosis.
Please I need help with this.
Brend