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Just married

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Wife22

Hi!! I don't even know how to start .. well here I go.
We got married less than a year ago (my husband is 31 and I'm in my late twenties) and after couple months of being married I notice was hard for my husband to have initiative at the time of having sex...long story short he was diagnosed with this illness, which was totally something new for both, he started treatment with Xiaflex and he says is improving but very slow, since he started the treatment we haven't had intercourse (more than 3 months so far) I am trying to understand him and being supportive but the wait is driving me crazy, even making me feel like there's a problem with me and how I look, he said I am not the problem but everytime is harder for me, I just try to be patient and thoughtful but is getting harder and harder.  I really need help and advice to keep my first months of marriage ok, I've tried to tell him we could try another ways to keep our sexual life active such as oral sex, or masturbation but he is just not even trying it.... I don't really know what else to do or think.
Also I am wondering if beside the treatment would be good to help him to change his diet since he is not good at taking care of his food habits. At this point I am overthinking probably but I'm getting desperate. I just would like to hear more from  women in the same position and as I said advice since I'm totally amateur in the marriage life and dealing with these situations.
I am very thankful to have found this forum and I'm looking forward to find support. Thank you again.  

Monty

Hi, welcome to the forum, you need to contact "Stabler67" she runs the female only thread, and can help you a lot through these trying times.
loads you can be doing to help your situation, Viagra type pills, use a VED, just for starters.
any thing you what to know just ask for help, we will need you husbands condition details before the best treatment can be offered.
just ask, PM if you want it private.
71 UK, ED from 2011, unable to get full erection, Peyronies Disease from  2015 acute bend to left, VED & hand traction + 20mg of Tadalafil twice a week, or when i'm feeling lucky, forum member November 2017. Fav Film&Song, TheGoodTheBadThe Ugly. A Day in the Life

Stabler

Hello wife22

We are happy to have you here in the forum I have granted access to the Ladies only room for you there are a lot of resources there,posts from others wives etc. I would like to start by saying your patience here is crucial I feel your husband while he may not say so is going through an emotional struggle most likely and trying to understand what is happening you haven't said how many treatments he has had with Xiaflex but there is a waiting period with no intercourse in the beginning so as not to re damage the penis. I will be sending you a PM with some helpful links throughout the forum please let me know if you need help finding anything and PM or email me any time with questions.

Stabler67
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

betterbend

Hello,  it sounds like your husband is having trouble coming to grips with this, which happens to many of us. The way you think of yourself as a man sudden changes over night.  Did you visit the doctor with  your husband?  Many experienced Peyronies doctors know the importance of having the spouse/partner involved.   There is a psychological and relationship component that they often help address.  It's difficult for both of you... I hope you can help your husband work through this.  Good luck
55 - Onset May 2017.  38 degree bend up.  Failed Xiaflex treatment.  Still functional so I decided to stop treatments.  Only take 400mg Co-Q10 and occasionally use Restorex

TonySa

Welcome, you'll find lots of info and support in the ladies forum.  Any chance your husband would access this forum as well?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Wife22

Hello everyone and thank you for your answers, well the issue here is that he is actually not giving me a lot of information, I just know he  has pain even when he tries to pee sometimes, I pretty much had to push him to go to the doctor because I knew something was wrong (this happened at the begging when he was starting to have the condition), so now he is going to have his third cycle with Xiaflex, after something around 2 months trying vitamin e without results, I did a lot of research about the illness and Ive been trying to encourage him to do the exercises and another things I read, just to follow the right steps for a faster recover, I want to go with him and the doctor so I can know more about his condition and how to help but he is not allowing me, I feel he's very embarrassed, I told him I am here to help but if I don't know more about the situation will be hard for me to help...  

skunkworks

One of the big obstacles men face with this is the shame and embarassment we feel about the loss of our sexual identity. I can never be the person I was before this (sexually) because the fear of re-injuring is ever present. And I am one of the ones who has had a huge amount of success treating this and have great sexual function.

I think you are quite correct in your assessment about him not wanting you to attend the appointment, it will absolutely be embarassment and also a certain fear of his sexual function becoming a clinical topic between you.

Do you know when and how the injury happened?
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]