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Author Topic: Uro refused to perform ultrasound?  (Read 1081 times)

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Steve W

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Uro refused to perform ultrasound?
« on: September 22, 2018, 04:21:42 PM »

During the acute phase, as I started to learn more about Peyronies Disease, and before the start of Verapamil injections, I asked my doctor about an ultrasound. He said it wasn't indicated because my plaque mass was large, increasing rapidly and easily felt running along the dorsal side. I asked again following Verapamil course (which actually helped me a little) and he refused again for the same reasons. I can't help feeling a before and after injection treatment might have been informative. Have any of you encountered something like this?
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64, Albuquerque, NM. First onset 18 years ago. Original bend reach 90 degrees, now 60. Verapamil helped slightly, as did pumping early on. Now using traction and waiting for Medicare & my private insurance to cover an implant next year.

tiagofil

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Re: Uro refused to perform ultrasound?
« Reply #1 on: September 22, 2018, 06:40:21 PM »

.
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TonySa

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Re: Uro refused to perform ultrasound?
« Reply #2 on: September 22, 2018, 07:14:24 PM »

I think having the ultrasound done holds the doc accountable for their treatment as it provides pretreatment measurements of the plaque.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Steve W

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Re: Uro refused to perform ultrasound?
« Reply #3 on: September 22, 2018, 08:19:34 PM »

He also never induced an erection to determine just how severe the bend was.
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64, Albuquerque, NM. First onset 18 years ago. Original bend reach 90 degrees, now 60. Verapamil helped slightly, as did pumping early on. Now using traction and waiting for Medicare & my private insurance to cover an implant next year.

Alibaba

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Re: Uro refused to perform ultrasound?
« Reply #4 on: September 23, 2018, 12:08:37 AM »

Ultrasound for a look?  Ultrasound for therapy?  I bought my own ultrasound machine for hand issues. Got tired of the chiropractor bills. I used it on my penis for a while on the side with the plaque and it seemed to soften it up so it would fill a little faster with less curve and indentation (which always resolved in a few minutes in the vacuum tube anyway) but it did not seem to last. Maybe if I did it daily??  Upon implant, that side was said to have a lot of scaring. The 3 students said they took turns for an hour getting through it. Made it worse, made it better? Who knows.  Now that I have an implant, maybe I should try it on a pumped up dick and see what it does. Chiropractor says it reduces inflamation thus swelling in the tendons why it works on my hand. Making me think about this might be a new project to work on. Cheers.
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Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan

Steve W

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Re: Uro refused to perform ultrasound?
« Reply #5 on: September 23, 2018, 06:55:04 PM »

Alibaba,
I wanted the ultrasound done for reference thinking it would give the doctor more info. and could also have been done following Verapamil to gauge any change. He also never saw me erect with what was a 90 degree bend.
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64, Albuquerque, NM. First onset 18 years ago. Original bend reach 90 degrees, now 60. Verapamil helped slightly, as did pumping early on. Now using traction and waiting for Medicare & my private insurance to cover an implant next year.

blackdiamond

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Re: Uro refused to perform ultrasound?
« Reply #6 on: September 24, 2018, 02:24:53 PM »

The first thing my Doc did was an ultra sound........
How can anyone plan a treatment until they know what they're dealing with ? Also didn't induce erection ?  Sounds a bit off..........
I'd go to a diff Doc..........
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62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

pfract

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Re: Uro refused to perform ultrasound?
« Reply #7 on: September 24, 2018, 05:44:15 PM »

I totally agree with blackdiamond. That's the way to go. You need to know where to stand and if you had improvement or not. Also, surprised to read ali bought his own ultrasound machine? Wow
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Penile fracture during sex, Portugal, August 2014 (no surgical repair, left with moderate Erectile Dysfunction) / ultrasound, full assessment with Dr Irwin Goldstein, San Diego, California March 2016 / Saving for implant; Dr Kramer, Dr Eid? 2020?

Alibaba

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Re: Uro refused to perform ultrasound?
« Reply #8 on: September 24, 2018, 07:49:20 PM »

Ultrasound Dopplar to look is one kind and the Ultrasound for therapy is another which I tried. Different types of plaque too. I asked Dr. Rybak if it is possible for the plaque and scar tissue to calcify like my lymph nodes. He said absolutely. He told me sometimes it is exactly like bone and you can hear it crunch when you break it up.  If a person needs a urologist in the St. Louis area, I would recommend Dr. James Rybak across the river in Belleville, Illinois. He is a really nice guy, answers you questions and does not rush you through the visit.
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Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan

james1947

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Re: Uro refused to perform ultrasound?
« Reply #9 on: December 19, 2018, 02:57:53 AM »

As Alibaba noted,
Quote
Ultrasound Dopplar to look is one kind and the Ultrasound for therapy is another
I found many, prices from $16 to $250. Most for facial treatments.
If I will read some success stories regarding Erectile Dysfunction, plaques, I may buy the $16 for a try

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

jj21

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Re: Uro refused to perform ultrasound?
« Reply #10 on: December 19, 2018, 05:04:41 AM »

I would definitely try and get a second opinion from a different urologist.

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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect 5-10 degree curve only (relatively normal).. No Plaque found.. Mild Erectile Dysfunction...Possible suspensory ligament damage...

Bubba dawg

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Re: Uro refused to perform ultrasound?
« Reply #11 on: December 19, 2018, 07:25:10 AM »

My doctor didnt use ultra sound either. Nor did I get an erection in the office. He did it by touch and ask me about the curve. Not very scientific but he has a lot of experience. I didnt know enough to question it. Seems to have better results than many. I compare it to a book mechanic compared to a naturally born mechanic lol
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50s
Peyrones
Plaque and calcium on top
Treated with 5 rounds xiaflex
80% back to normal

tonyode

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Re: Uro refused to perform ultrasound?
« Reply #12 on: December 20, 2018, 08:18:21 PM »

Ultra sound is used to check for calcification and have baseline data such as measurements. Xiaflex does not work well or at all if their is calcification. Shot for erection so the Doc can measure the curve. Many insurance companies will not cover if less than 30 degree curve. I went to one uro who didn't do anything except a physical exam in about 10 seconds. Told me to come back in 6 months. That wasn't good enough so I did research online to find an experienced doc in this area. I honestly don't know how a doc can move forward without doing a thorough examination using the above. My two cents....
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Early 50s, 7 months diagnosed. 55 degree curve, indentation at base to the left.

Bubba dawg

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Re: Uro refused to perform ultrasound?
« Reply #13 on: December 21, 2018, 06:42:51 AM »

I agree with you Tony. I run a business and couldn't drive 30 miles for another urologist. Plenty of urologist near me. They just did not treat peyronies. Everything turned out well anyway compared to many reports on here. Except the cooridi action between the insurance company. I had to foot the bill for most of the injections. I got a grant for the medicine.  If it weren't for the calcification , I think my penis would be perfectly straight. No long term side effects. So I think the doctor did a great job with that needle. I am going to talk to him about my chance of more improving. Maybe he didnt do an ultra sound because my insurance would not approve it? Dont know. He said he did what was called for. Everything turned out ok. The medicine got to where it was supposed to go and did not cause me any damage that I know of. Some on here had terrible results
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50s
Peyrones
Plaque and calcium on top
Treated with 5 rounds xiaflex
80% back to normal

Christopher1

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Re: Uro refused to perform ultrasound?
« Reply #14 on: December 21, 2018, 10:13:11 PM »

Not sure if you want the ultrasound.

Peyronies Disease is mostly a clinical diagnosis anyway - meaning you do it based on history and physical exam (not imaging or lab work).

Either way, if you do the ultrasound, they will probably induce an erection with Trimix - which can make your Peyronies Disease much worse. This is how I got my Peyronies Disease. Stay away from Trimix.

jj21

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Re: Uro refused to perform ultrasound?
« Reply #15 on: December 23, 2018, 06:14:47 AM »

Christopher1 - did you develop peyronies from one injection of Trimix or was it multiple uses?

Thanks,
JJ
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Age:30 - Symptoms for 6-7 months no improvement or worsening.... Prominent Left + Upwards curve when half erect.. Fully erect 5-10 degree curve only (relatively normal).. No Plaque found.. Mild Erectile Dysfunction...Possible suspensory ligament damage...

Christopher1

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Re: Uro refused to perform ultrasound?
« Reply #16 on: December 25, 2018, 09:01:00 PM »

So I injected multiple times. It each time caused a very, very small scar. I don't notice the small ones.

Here is the thing. The first time - my urologist said he had to "show me how to use it." Lol. He injected way too much. I only needed like 1 or 2 cc. I am not sure how much he injected. But it was a lot. I had an erection for like over 2 hours and had to take a medicine to bring it down.

I firmly believe his injection caused it. I curse that man to this day. The worst decision of my life was to go see that urologist. The reason I kept injecting 6 or 7 times after that big injection by the urologist was because it took some time for the Peyronies Disease to set it and for me to notice it and connect the dots.

I would've probably sued if I weren't a physician myself. I kind of cannot sue him because he is essentially my colleague (sort of). I will never have anything to do with him again though. Of note - he also never told me to apply pressure to the site for a couple of minutes after injecting. Always do your own research. I know docs tell you not to, but you really should. Always Google. Always get a second opinion if you are worried. It's your health.

Alibaba

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Re: Uro refused to perform ultrasound?
« Reply #17 on: December 26, 2018, 10:27:36 PM »

Christopher1, please check again what you are using. Most erection inducing injections are made with a 1 cc (1ml) insulin syringe. Only reason to use 1-2cc  is if you want to put a Rhino into cardiac arrest. Usually the insulin syringe is divided into 100 units and the large marks are 1/10ths of such.  1-2/ths is a normal beginning dose and 3/10ths a common starting to edge toward heavy dose. I would not want someone to see 1-2 cc and cause a catastrophic event. Cheers man.
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Milam 1/13/16-LGX 21cm - BAD service & surgical outcome Hated infrapubic.
Kramer revision 3/1/17 Titan

Christopher1

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Re: Uro refused to perform ultrasound?
« Reply #18 on: December 27, 2018, 07:52:17 PM »

I must be off with my units. I can certainly appreciate that. The story holds true though. My urologist inject a great deal. It is at this very location that my plaque developed.

I myself used insulin syringes as well.
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