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Author Topic: First months with Peyronies Disease  (Read 924 times)

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YoungGuy97

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First months with Peyronies Disease
« on: September 11, 2018, 08:15:09 AM »

Hi everyone,

First of all, nice to have a place like this. It's a goldmine for information and we can all use some support.

Mid june I got my first Peyronies Disease symptoms: A 15 degree bent to the left and mainly some plaque in between my corpora's.
At the moment these are still soft tissue plaques, as they are not calcified/hardened (yet).
My first two uro's (in the local area) weren't of any help: they struggled with the diagnosis and I had to manage for a few months with some vitamin E, anti-oxidants and Q10.
A week ago I finally saw a better uro who prescribed me tadalafil (5mg/day) and pentox (400 mg,3x/day). He also said I could try VED or traction.
I tried both meds now. Tadalafil is great; especially for my erections overnight and in the morning. I also didn't note any side effects yet. 
Unfortunately I didn't react so well on pentox: my hands and feet feel weird and tingly.
I contacted my uro and he says this side-effect isn't described yet and advised me to stop taking it and see if it fades away. If it doesn't, I should go see a doctor.

I'm kind of worried about it since I only took a one tablet the day before yesterday and the day before that.
Also I have read some very positive things about pentox (in the literature and on the forums) so I'm not really happy about reacting bad on it so i may have to quit.
On the other hand I'm glad my condition is not really worsening (or at least very slowly since the difference since the first symptoms aren't very big).
My next step will be to order a VED device since I'm still in college and don't have much time to do traction.
If pentox doesn't work out I'll probably be looking for some other supplements to combine with the VED therapy. 

I have just turned 21 and it sucks to be confronted with this so early. Luckily I have a very supportive girlfriend and parents.
Hopefully I can learn a lot of you guys about how to deal with this situation. Any good advice is welcome!

Kind regards and the best to you all,

YG
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TonySa

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Re: First months with Peyronies Disease
« Reply #1 on: September 11, 2018, 10:44:14 AM »

You’ve caught this early and came to the right place for support!
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3rte

YoungGuy97

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Re: First months with Peyronies Disease
« Reply #2 on: September 14, 2018, 07:05:29 AM »

Thanks!
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YoungGuy97

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Re: First months with Peyronies Disease
« Reply #3 on: September 18, 2018, 05:49:21 AM »

Past week I've been trying pentox and tadalafil.
Instead of stabilize or getting better my condition got way worse. I don't understand: it stayed the same for a while and with the start of treatment it gets just really bad (especially the lost in girth). What should I do?? I'm really desperate.
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TonySa

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Re: First months with Peyronies Disease
« Reply #4 on: September 18, 2018, 11:52:35 AM »

Doesn’t make sense that those meds would result in worsening, probably unrelated.  What doses are you taking and for how long?
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3rte

limitless2222

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Re: First months with Peyronies Disease
« Reply #5 on: July 02, 2019, 03:09:55 PM »

HI,

last week I was diagnosed with peyronie's. I'm also 21 years old and live in Germany. My bent is 10 degress to the left with an indentation on my penis shaft. My Uro also prescribed me tadalafil(5mg/day) and recommended me VED which I already bought and I started to use. How is your Progression so far? Did tadalafil help (since you're using it since september 2018)?

Could you stop the Pogress? How are things now? We're both young and I hope you're doing well.

How do you cope with it psychologically? Sorry that I ask so much, I'd really appreciate any answer
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TonySa

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Re: First months with Peyronies Disease
« Reply #6 on: July 02, 2019, 03:16:02 PM »

Sounds like a good treatment plan limitless.  Just want to check if you have the link to the survival guide: Peyronies Survival Guide - Information for New Members - Peyronies Society Forums
There’s also a section in the forum on psychological impact: Psychological Component - Coping with Peyronies Disease - PDS - Peyronies Society Forums
Please keep us posted and ask any questions.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3rte

JCH

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Re: First months with Peyronies Disease
« Reply #7 on: July 04, 2019, 08:26:50 PM »

You are soo young. I agree, this site is wonderful. I feel like I am talking to brothers who understand my emotional and physical condition. We will all make it through this together.
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JCH - 49 years old dealing with Peyronies for the last year
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