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[Squeel7]

Hello everyone. I am a 22 year old male and potentionally have peyronies. In 2017, I tried (and though was super careful) foreskin restoration as I have a tight circumcision. I did it on and off for a few months, but one day I felt really sore after and I experienced hard flaccid/pain in my shaft. A couple months pass and things are a lot better. However, a couple months after things got better and I noticed an indent and a lot of pain in my flaccid penis. The next few months my penis would be bent almost 45 degrees while flaccid, and often it is formed than normal/locked up and won't relax like it used to. It'll kind of point out, and is hinged where the indent is. I have mild ED, but can get and maintain erections. My erections have always pointed up, and the only change  to them is it twists slightly to the right, and i don't feel that pleasure/rush when it engorged as much. I feel heat and discomfort in the indented area when erect, but it is not too bad. I feel it much more constantly and intensely while flaccid. There's no bump, but internally the tissue feels harder/inflamed. This has been consistent since it started.

It's been a year since everything began. I've been to a local urologist 4 times since then and he didn't feel or find anything that concerned him, so I haven't received a diagnosis or treatment yet. However, I want to know if it truly is peyronies (I'm pretty sure I have early stage peyronies as everything else I have heard of or researched doesn't fit my symptoms at all compared to peyronies. But I want an official diagnosis, and after browsing these forums have an appointment setup with Dr. Lue. However, my appointment isn't till the end of next month.

My fear is that I do have it, and the plaque will calcify before I see him and Pentaox/Oral treatments won't be nearly as effective as if I have started before. That's my main fear- that when I do get treatment for whatever this is it'll be too late. My appointment will mark the 13th month point of the onset. My main symptoms and concerns are the almost  constant pain, some ED (not terrible, I think it's cause I'm afraid of getting an erection due to the stretching/discomfort feel, but no bend when erect), and a flaccid penis that is almost always indented/twisted on the right side. Sometimes it hangs freely and straight/relaxed, but often it feels hinged, bent and locked up. I've found sometimes after bowel movements it tightens and twists a lot more too. So I think I may have some right pelvic muscles. Waiting for an official diagnosis though.

Ironically, though this is one of the most mentally trying and Worrying obstacle I have faced in my life, it's helped me appreciate what I do have in life, not lose hope and better myself as I person. I count my blessings and realize there are people faaar worse than I am. I decided to join the forums, just to get this off my chest and out of my mind. It's real, it's there, and I want to fight and move on.

I wanted to ask a couple questions:
1) what can I do to fight calcification? It doesn't feel like it's calcified, but one day it feels easy tighter, the next day loose. It's so all over the place I can't tell if it's getting worse or better.

2) are pentox/oral treatments still effective 13 months in. I'm so worried it'll have been to late to start when I do, and that I would be much better off if I was able to get treatment earlier. That's the biggest challenge I'm facing mentally right now. That I should have been more proactive in getting a diagnosis/treatment, and I would have been way better off if I started earlier. This is an aside too, but I have OCD and constantly worry that it's too late and I'll go from getting firm sections to completely impotent in the next couple months and it'll be too late to do anything by the time I start treatment. I'm fighting to overcome these thoughts.

Thank you for taking the time to read, I apologize for the long post. I wish all of you a good recovery. It's amazing seeing how an anonymous form can lead to people afflicted with the same/similar things helping each other out so much.  

[TonySa]

Welcome.  Dr Lue is great and after his work up you'll where you stand and what your options are.  I doubt much will change by next month, so know you're on a path to take action and as much as possible try not to focus on predicting doom as much as you can.  

[NeoV]

Avoid all masturbation and erection checking and start gentle traction. Let your penis rest other than daily traction. Do not masturbate or erection check for two weeks if possible.

Consider the basics, CoQ10 and ALCAR, but remember that they are a coverup for an underlying problem at the root of this disease.

There is no reason for it to calcify if inflammation and the underlying metabolic cause is taken care of in my opinion.

You absolutely have pre-peyronie's bending, and it will turn into full blown Peyronie's or erect deformity unless you do a few things. These are 1. Modified Sexual Habits, 2. Extreme Anti-insulin Diet 3. Physical Therapies.

At your stage, ultrasounds may not show anything, as you have inflammation and penile hematoma or what I call "pre-peyronies."

[madorno17]

Para NeoV: Você citou no caso acima a inflamação no pênis, no meu ver, PODE ser que o calor gerado pela inflamação seja o responsável pela fibrose, isso desnaturando algum ELEMENTO existente no organismo. No meu caso não tive a inflamação, mas tomei uma injeção de papaverina que queimou por dentro, nos corpos cavernosos, foi um calor intenso, no dia seguinte já estava com a fibrose. A fibrose cística só aparece no pulmão depois de um estado febril. O pênis durante a masturbação sofre alguns apertos demasiados e estes podem provocar calor pelo atrito exagerado. Pense a respeito.
For NeoV: You mentioned in the above case the inflammation in the penis, in my view, IT COULD be that the heat generated by the inflammation is responsible for the fibrosis, that denaturing some existing ELEMENT in the body. In my case I did not have the inflammation, but I took an injection of papaverine that burned inside, in the cavernous bodies, it was an intense heat, the next day I was already with fibrosis. Cystic fibrosis only appears in the lung after a feverish state. The penis during masturbation undergoes a few too many grips and these can provoke heat by exaggerated friction. Think about.

[betterbend]

Don't worry about calcification right now.  That process takes a long time, years.  Short of re-injuring yourself, there isn't much harm in waiting until your appointment.  Since you can't change what you didn't do in 2017, just focus on what you can do now.  You are still early in the disease and a lot of options are on the table.  I don't think it's too late to start Pentox and cialis.  DIscuss with your doctor ...