STATINS - causing Peyronie's

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

Diamond

I'm new to the forum and this is my first post.  First let me thank the creators and contributors to this forum as I would be totally lost without it.  I diagnosed my Peyronie's myself before I saw my family doctor who told me to take vitamin E and come back in a month.  He then referred me to a Uro which was a total waste of my time.  This guy didn't seem too concerned and had a "we can't do much about it" attitude.  His idea of treatment was 2 Advil 3 times a day and take warm baths instead of showers. Thanks to this forum I have some good ideas about what helps and if necessary a list of Uro's who actually treat Peyronies.  The reason I'm posting in the Polls topic is I was taking Crestor for about a year and a half before my onset.  I'd be interested in finding out how many others were on some type of statin drug before contracting Peyronies.  Had I researched statins, I would have never started taking them.  They can do a lot of bad things such as irreversible nerve damage and mitochondrial damage.  As for me, I'm waiting on a shipment of Pentox to come in from Europe and taking Vitamin E and Aloe Vera.


LWillisjr

I had a heart attack in 2003, 4 years before my Peyronies appeared. I think most heart attack patients are put on a routine regimen of Crestor, Plavix, and possibly a beta blocker of some sort. Was told that this is a routine cocktail for heart attack patients.

I read somewhere once if there was some connection with these drugs and Peyronies Disease. But no evidence or studies exist that I am aware of.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

billybob

Hi Guys,
I had 2 massive heart attacks in 2006.  I am taking statins along with several other medications.  I started with peyronies around the middle of this past year.  My curve has gotten worse.  It is about a 45 degree at present.   My uro perscribed a 3 cylinder external vaccume system and gave me sheets for stretching.  The theropist/sales rep told me to start out with 15 erections daily.  I looked at him like he was crazy.  He said for me to pump it up slowly to full extension then let it stand for about 5-10 seconds and let it go back down and repeat for a total of 15 times.  Has anyone heard of this kind of/ or has anyone used this theropy????

cowboyfood

billybob,

Not only have we heard about, most here endorse it.  I'll assume you're "super new" to the forum, so you might not just yet realize our forum has an entire section dedicated to VED usage.

If what you say is true, consider yourself fortunate that your urologist suggested this treatment.

CF
Currently:  L-Arginine (2g), Vit D3)

Blade

Diamond,

I was taking Zocor about a year and a half before my Peyronie's showed up.

Because of very high cholestrol levels. These levels had been high for me since my early twenties. I used Questran in the
early days. (The sand-like, orange colored substance that was poorly diluted in water. Left a sandy feeling in your mouth.)

Blade

YMENOW

After my open heart surgery, I was put on the "cocktail" of sorts, atenolol, coumadin, and lipitor.  My urologist recommended a sexual health expert and he strongly recommended taking me off the atenolol since he believed that was a contributing factor for the Peyronies Disease.  I was on the old regimen for about 10 years.

LWillisjr

After a major heart attack, I had also been put on Atenolol. I had been on it for about 4 years when my Peyronies Disease hit. It certainly be interesting to see if there is some common factor.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Blade

I too was taking atenolol when my Peyronies presented itself. My doctor took me off of it and started  
another drug. He could not be sure but suspected there could be a link.

I had been taking it for about 3 years.  Interesting!


ohno

I was taking lipitor (and am still) prior to peyronie's. Peyronie's has been around for a very long time and statins not so long.

boomerang

I was taking Statins and also Beta Blocker "Bisoprolol" after a severe cardiac problem.  One of the side effects of beta blockers is listed as "peyronie's" on drugs dot com.

They did not work for me and only made my symptoms much worse and either the Statins or the Beta Blocker accelerated my peyronie's.

I also wonder how many people with peyronie's have had or will have a severe cardiac problem, is it a related condition?
Statins and Beta Blockers are standard medications for people who have cardiac problems.

YMENOW

Quote from: lwillisjr on April 19, 2010, 09:12:06 PM
After a major heart attack, I had also been put on Atenolol. I had been on it for about 4 years when my Peyronies Disease hit. It certainly be interesting to see if there is some common factor.

My peyronies presented itself with pain during intercourse at first, and then curve to the left which had me baffled because it just happened.  The plaque showed up and then the shrinkage which blind-sided me.

My question is if others here had the "same progression" and were able to get rid of the bend and pain, but not the loss of length girth and disfigurement.  It seems from reading other posts that the progression from those that started before age 50 with Peyronies, the causes are different as well as the serious symptoms.  

My uro has not been helpful in my pursuit of trying to do something about my sexual well being.  Perhaps due to my age, the uro figures I can give up my sex life.

ymn

LWillisjr

Quote from: YMENOW on June 01, 2010, 06:05:42 PM

It seems from reading other posts that the progression from those that started before age 50 with Peyronies, the causes are different as well as the serious symptoms.  

My uro has not been helpful in my pursuit of trying to do something about my sexual well being.  Perhaps due to my age, the uro figures I can give up my sex life.

ymn

Find a new uro.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

dun4life

Hello,
I have been on simvastatin for years, and also HCTZ and Lisinopril. I developed peyronies years after I started those meds, and I was wondering which of those meds, if not all, has caused my disease?

Also, if I stop the drug that caused the disease, will the Peyronies clear up?

Thank you
Joe

George999

Well simvastatin is known to lower serum CoQ10 levels and a recent study shows that CoQ10 can be effective in treating Peyronie's.  So go figure.  It certainly looks like there is a connection to me, but that is just my opinion.  Seriously though, anybody who is on a statin drug should be supplementing with CoQ10 and they should be using the Ubiquinol form if they are over forty.  See the attached docs for reference.

newguy

Many statin-like supplements (red yeast rice) often include CoQ10 to counteract the CoQ10 depleting effect of statins. It's surprising to me that many doctors prescribe statins without any thought as to informing their patients of this effect.

dun4life

Well, thanks for the replies, but still I would like to know if I stop my statins, can the Peyronies reverse?

My uro says no. And, in the meantime - what is the most effective treatment that has helped people here on this forum?

I need to do something. I cannot go on like this.
Joe

George999

Evidence seems to indicate that early Peyronie's inflammation can *probably* be reversed.  Stopping statins alone, however, will not do the trick.  Additionally, if Peyronie's has advanced past the inflammatory stage to the point were actual tissue damage has occurred, it is generally NOT reversible in the sense of putting things back to where they were before Peyronie's.  Many of us have, however, experienced significant partial reversal.  There are multiple treatments that are effective, many others that may be helpful, and many, many beyond that which are being heavily marketed that are ABSOLUTELY USELESS.  One thing that is VERY important is that if your urologist is uncomfortable with ANY of these treatments you need to ask for a referral to a Peyronie's specialist.  This will likely be an out of town doc, but it is well worth it.  You need to review the documents in the resource section of this website and search for a doc as close as possible who will be willing to provide Pentoxifylline.  I suggest you go over the posts on the Urologists thread and if you can't find anyone, let us no the general area you are located in geographically and someone here will probably suggest a specialist.

Oral treatments that are KNOWN to be effective at least in some cases:

1) Pentoxifylline - This is a prescription med.  It is the be all and end all at this point.  There is mainstream research that demonstrates its effectiveness.  Do whatever it takes to get access to it.

2) CoQ10 - This is an expensive supplement manufactured by a Japanese pharmaceutical company.  It is really a Japanese drug marketed as a sup in the US.  There is mainstream research demonstrating effectiveness for Peyronie's, but less than with Pentox.  If you are over 40, you need to take the Ubiquinol version since your body can not effectively process Ubiquinone any longer.

3) Acetyl L Carnitine -  This is an inexpensive sup with some mainstream research behind it.  In my mind that research is less convincing than with the above two.  However this one was helpful for me and others here have found it helpful as well.  But it is number three on the list for a reason.

Physical therapy type approaches:

1) Vacuum Erection Device (VED) -  Many here have found the VED to be VERY useful.  It stretches the affected tissues in a controlled manner in much the same way you would stretch and exercise an ailing limb.  There are people here on the forum who are experts at using this device and who can provide tips to help you get the most benefit out of it.

2) Traction Devices - Others here are using traction devices effectively.  They are actually recommended by some of the leading Peyronie's specialists.

I wish you the best!  - George

dun4life

Thanks George for the reply - it is very useful.

I feel my condition is advanced. I can feel a large scarring along the circumference of the penis. It is pretty thick and painful.

I will read more, and also ask my Uro about the medicine you highly suggest.
Will keep you posted on changes.
Joe

dun4life

Just called my doc and he is getting a script for the pentoxyfilline.
I don't know exactly when I am starting it or how long it takes, but he is willing to try it in lieu of surgery which I will NEVER get!
Joe

George999

You got a script for Pentox with a telephone call?  Hallelujah!  You apparently have a doc who is not still in the dark ages.  Congratulations!

Just for referrence, I am currently taking 400mg Pentoxifylline ER 3X/day and 100mg Ubiquinol QH 3X/day.  I take both ONLY with meals, ie breakfast, lunch, and dinner.  Pentoxifylline is famous for causing gastric upset if not taken with food.  I eat my meals at regular times, dinner no later than 6PM.  This combination is working very well for me.  For a list of Ubiquinol QH products see -> http://www.kanekaqh.com/kanekaqh-products.html  All of these products contain exactly the same ingredient produced only by the Japanese pharmaceutical company Kaneka.  As with gasoline products, many contain proprietary additives believed to improve the performance of the basic ingredient.  They sell for a wide range of prices.  You will need to look over these products and compare prices from competing vendors in order to find what is the best combination and value for you and to decide whether you wish to include it.  - George

dun4life

Quote from: George999 on October 08, 2010, 11:04:56 AM
You got a script for Pentox with a telephone call?  Hallelujah!  You apparently have a doc who is not still in the dark ages.  Congratulations!

Just for referrence, I am currently taking 400mg Pentoxifylline ER 3X/day and 100mg Ubiquinol QH 3X/day.  I take both ONLY with meals, ie breakfast, lunch, and dinner.  Pentoxifylline is famous for causing gastric upset if not taken with food.  I eat my meals at regular times, dinner no later than 6PM.  This combination is working very well for me.  For a list of Ubiquinol QH products see -> http://www.kanekaqh.com/kanekaqh-products.html  All of these products contain exactly the same ingredient produced only by the Japanese pharmaceutical company Kaneka.  As with gasoline products, many contain proprietary additives believed to improve the performance of the basic ingredient.  They sell for a wide range of prices.  You will need to look over these products and compare prices from competing vendors in order to find what is the best combination and value for you and to decide whether you wish to include it.  - George

No George, not exactly - I thought I was getting the script....I now find after the Uro talked with my regular doc, it is best he sees me next week first since I am on lots of other meds they wants blood work-ups and such...I guess it is best tis way - will keep you posted....I DO have confidence in the Uro guy
Joe

George999

If you are taking a lot of other meds, they are DEFINITELY doing the right thing.  IF your cholesterol tends to be out of range and/or if you have pre-existing cardiovascular issues, you DO need to be on the statin drug.  But IF you continue with the statin drug, you really need to be taking the Ubiquinol.  You also need your docs to check your serum Vitamin D levels.  They need to be in the optimal 40-60ng/ml range.  This often necessitates taking large doses of Vitamin D.  I have been taking 12,000IU of vitamin D per day for several years now to maintain my level.  But this REQUIRES physician supervision to make sure that you don't overshoot the range and get too high and that the vitamin D is playing well with the other meds.  For more info on Vitamin D look here ->  http://www.grassrootshealth.net and here -> http://www.vitamindcouncil.org.  Additionally many guys find that addressing lifestyle issues can be IMMENSELY helpful in improving their general health.  I highly recommend http://www.realage.com and http://www.doctoroz.com.  These guys have really changed my life and helped me improve my general health in a radical way.  They also have a health forum system -> http://www.realage.com/community/forums/ <- which is much broader in scope than this one.  - George

dun4life

Quote from: George999 on October 08, 2010, 11:42:29 AM
If you are taking a lot of other meds, they are DEFINITELY doing the right thing.  IF your cholesterol tends to be out of range and/or if you have pre-existing cardiovascular issues, you DO need to be on the statin drug.  But IF you continue with the statin drug, you really need to be taking the Ubiquinol.  You also need your docs to check your serum Vitamin D levels.  They need to be in the optimal 40-60ng/ml range.  This often necessitates taking large doses of Vitamin D.  I have been taking 12,000IU of vitamin D per day for several years now to maintain my level.  But this REQUIRES physician supervision to make sure that you don't overshoot the range and get too high and that the vitamin D is playing well with the other meds.  For more info on Vitamin D look here ->  http://www.grassrootshealth.net and here -> http://www.vitamindcouncil.org.  Additionally many guys find that addressing lifestyle issues can be IMMENSELY helpful in improving their general health.  I highly recommend http://www.realage.com and http://www.doctoroz.com.  These guys have really changed my life and helped me improve my general health in a radical way.  They also have a health forum system -> http://www.realage.com/community/forums/ <- which is much broader in scope than this one.  - George

Well - I had my Uro appointment today and I am very depressed and disappointed. He said because of the time frame I waited ti get treatment, he doesn't suggest anything oral. Nothing has been known to work whether it be prescription, herbal or anything else. For my condition and age - he only suggested to TRY Levitra to MAYBE give me a better erection, but that, as we know is not a cure or a Peyronie's treatment. He doesn't support nay traction devices or anything else, again, due to the time I waited to get treatment - Scars are too bad - So - I am done
Joe

George999

You are not "done".  You need to see a uro who is a specialist in Peyronie's.  The one you have seen is simply repeating out dated concepts.  Pentox and CoQ10 ARE helping me and I have had Peyronie's for six years.  They can help you to.  Your uro is simply WRONG about this.  His opinion is an opinion and it is dead wrong.  Once again, you need to find a Peyronie's specialist in the Virginia area who prescribes Pentoxifylline and you need to get your uro to refer you to this person for a second opinion.  You do need a doctor who can help you avoid any interactions with the meds you are currently taking.  The CoQ10 DOES NOT require a prescription so all you need to do to get on that is to use an interaction checker to make sure it doesn't conflict with any of your current meds and go out and buy some and get on it.  - George

By the way, what meds are you on specifically.

dun4life

Quote from: George999 on October 15, 2010, 12:20:58 AM
You are not "done".  You need to see a uro who is a specialist in Peyronie's.  The one you have seen is simply repeating out dated concepts.  Pentox and CoQ10 ARE helping me and I have had Peyronie's for six years.  They can help you to.  Your uro is simply WRONG about this.  His opinion is an opinion and it is dead wrong.  Once again, you need to find a Peyronie's specialist in the Virginia area who prescribes Pentoxifylline and you need to get your uro to refer you to this person for a second opinion.  You do need a doctor who can help you avoid any interactions with the meds you are currently taking.  The CoQ10 DOES NOT require a prescription so all you need to do to get on that is to use an interaction checker to make sure it doesn't conflict with any of your current meds and go out and buy some and get on it.  - George

By the way, what meds are you on specifically.

This IS a Peyronie's specialist. I mentioned the Pentox and other meds suggested on this web site and he said my case is so scarred, that it will not help. He is trying to save me the aggravation of wasting money.
The meds I take are simvastatin, lisinopril and hctz and allopurinol. I also take klonopin as needed and albuterol as needed. I don't know of any other uro's near Charlottesville Virginia anyway. He said my only other 2 options at this stage are penile injections which you do yourself, or implants, and I said NO THANK YOU!
Joe

newguy

In your shoes I would still go for treatment options that studies have shown to be possibly useful (pentox, acetyl-l-carnitine, CoQ10 and so on), in conjunction with a mechical method (VED, traction). I'd try that for a year and see where it got me. What's the alternative? If urologists refuse to go down this route, I would go see another, or go it alone. You can review the situation further down the line, and consider more drastic options if you are getting nowhere.

dun4life

Quote from: newguy on October 15, 2010, 05:53:38 AM
In your shoes I would still go for treatment options that studies have shown to be possibly useful (pentox, acetyl-l-carnitine, CoQ10 and so on), in conjunction with a mechical method (VED, traction). I'd try that for a year and see where it got me. What's the alternative? If urologists refuse to go down this route, I would go see another, or go it alone. You can review the situation further down the line, and consider more drastic options if you are getting nowhere.

I may have been upset when I said I am done, but I am not giving up. Truth is, right now, I can't afford anything other than prescription meds. I looked at prices on L-Carnitine and other things mentioned here and it is ridiculous. I just don't have the money. I read elsewhere some folks have had success with vitamin E oil and steroid creams used in conjunction with massage and heat therapy. Why not try? I am going to call my regual Dr today and tell him I was disappointed in the Uro he sent me to, and ask if HE will prescribe the Pentox. If he sees no conflicy with other meds I am taking, he just might give it a try. I don't even knoe if I am covered for it on my plan
Peace
Joe

newguy


dun4life

Quote from: newguy on October 15, 2010, 08:33:44 AM
You should print out evidence from the resource library, supporting the use of pentox:

https://www.peyroniesforum.net/index.php/topic,1004.msg23292.html#msg23292

https://www.peyroniesforum.net/index.php/topic,772.0.html

Hopefully that will work in your favor!

Thanks - I just got off the phone with my Internist, and while he DID say he would write a script for me for Pentox, he said that the use of Pentox increases blood flow to areas that are deprived, working much like Levitra or Viagra. He said it has nothing to do with dissolving scar tissue. So, he said why not use levitra instead. I told him I wanted to try the Pentox and he agreed. We'll see...from what I read, Pentox really only does increase blood flow, but since I am on this forum asking for help, I will take the advice of those here who have had success stories :-)
Joe

newguy


It doesn't sound like he's really aware of the full picture. Top urologists prescribe pentox and viagra together, and so they clearly feel that they are not one and the same. Pentox is a powerful anti inflammatory and is on record as reducing plaque in a number of conditions. It's positive that he agreed to prescibe it to you! Glad to hear it!

Quote from: dun4life on October 15, 2010, 08:37:45 AM
Quote from: newguy on October 15, 2010, 08:33:44 AM
You should print out evidence from the resource library, supporting the use of pentox:

https://www.peyroniesforum.net/index.php/topic,1004.msg23292.html#msg23292

https://www.peyroniesforum.net/index.php/topic,772.0.html

Hopefully that will work in your favor!

Thanks - I just got off the phone with my Internist, and while he DID say he would write a script for me for Pentox, he said that the use of Pentox increases blood flow to areas that are deprived, working much like Levitra or Viagra. He said it has nothing to do with dissolving scar tissue. So, he said why not use levitra instead. I told him I wanted to try the Pentox and he agreed. We'll see...from what I read, Pentox really only does increase blood flow, but since I am on this forum asking for help, I will take the advice of those here who have had success stories :-)

dun4life

Quote from: newguy on October 15, 2010, 09:06:25 AM

It doesn't sound like he's really aware of the full picture. Top urologists prescribe pentox and viagra together, and so they clearly feel that they are not one and the same. Pentox is a powerful anti inflammatory and is on record as reducing plaque in a number of conditions. It's positive that he agreed to prescibe it to you! Glad to hear it!

Quote from: dun4life on October 15, 2010, 08:37:45 AM
Quote from: newguy on October 15, 2010, 08:33:44 AM
You should print out evidence from the resource library, supporting the use of pentox:

https://www.peyroniesforum.net/index.php/topic,1004.msg23292.html#msg23292

https://www.peyroniesforum.net/index.php/topic,772.0.html

Hopefully that will work in your favor!

Thanks - I just got off the phone with my Internist, and while he DID say he would write a script for me for Pentox, he said that the use of Pentox increases blood flow to areas that are deprived, working much like Levitra or Viagra. He said it has nothing to do with dissolving scar tissue. So, he said why not use levitra instead. I told him I wanted to try the Pentox and he agreed. We'll see...from what I read, Pentox really only does increase blood flow, but since I am on this forum asking for help, I will take the advice of those here who have had success stories :-)

Well, I will post back as soon as I either have improvement, or otherwise - P.S. - He is giving me this with Levitra so it seems my Internist is more "with it" than the URO GUY
Joe

newguy

Quote from: dun4life on October 15, 2010, 10:12:42 AM

Well, I will post back as soon as I either have improvement, or otherwise - P.S. - He is giving me this with Levitra so it seems my Internist is more "with it" than the URO GUY

That's not a bad combo then. You could buy some l-arginine if you can stretch to find the funds. Some urologists prescibe the PAV cocktail (Pentox, L-Arginine and Viagra). It's probably not vital though. What you're taking , or soon to be taking is a step forward. I would consider using a vacuum device or traction too.  

George999

Quote from: dun4life on October 15, 2010, 05:41:16 AM
The meds I take are simvastatin, lisinopril and hctz and allopurinol. I also take klonopin as needed and albuterol as needed.

Simvastatin, a statin drug, will likely seriously aggravate your Peyronie's problem unless you take Ubiquinol a rather expensive supplement.  Statin drugs effectively block the body's own ability to produce Ubiquinol which can result in all sorts of serious health problems over the long term.

Lisinopril is one of the best blood pressure meds out there.  It will NOT aggravate your Peyronie's disease, if anything, it might be helpful.  Ubiquinol also lowers blood pressure.  If you take it, you would need to watch your blood pressure carefully, as your doc might need to lower the amount of Lisinopril you are taking.

HCTZ is one of the most effective blood pressure meds out there, but unfortunately not one of the cleanest.  If anything, taking it will aggravate your Peyronie's disease.

Allopurinol is typically used to treat gout.  Gout is typically caused by metabolic syndrome.  Any action you take to further deal with your metabolic syndrome would be helpful for your Peyronie's situation.

Klonopin is one of the best anxiety meds out there.  If anything it should be helpful for your Peyronie's.  I have taken it in the past myself and it has worked well for me.  I would recommend it for anyone out there struggling with anxiety, which, by the way, is usually caused by physiological issues rather than psychological ones.

Albuterol is used to treat pulmonary issues.  Its a good drug for what its designed to treat.

In short, beyond the above observations, I agree completely with newguy.  I suspect that Pentox would be very likely to be helpful to you in a number of ways beyond just Peyronie's.  For example, I suspect it would be helpful for both your lungs and your kidneys by increasing blood flow to both AND by blocking inflammation in both.  Pentoxifylline is a cytokine blocker, which your doc doesn't seem to understand.  That means that it is anti-inflammatory as newguy has pointed out.  Thus it prevents further tissue damage caused by inflammation.  Its original purpose was to treat IPF, Ideopathic Pulmonary Fibrosis, which is a progressive degenerative disease of the lungs.

Additionally, I would recommend that you get your Vitamin D levels tested and do everything possible to get them in a healthy range.  More information on that can be found at the University of California San Diego site which is http://www.grassrootshealth.net.  The process of correcting Vitamin D levels needs doctor supervision, so you need to collect the information and talk with your doc about it.  Over time doing this can bring significant overall health benefits.

In addition I would also recommend that you really focus on addressing life style issues.  On that level I recommend http://www.realage.com and http://www.doctoroz.com.  There are lots of people out there who have successfully reversed major health problems by getting some help and doing things right as a result of that guidance.  You are not too far gone physically to benefit from advances in modern medicine which point to life style solutions to serious health problems.  The more YOU learn about your body and how YOU can help it to cope with the stresses it is encountering, the better your eventual outcome will be.  For people who are overweight, for example, just losing ten pounds of weight can be a HUGE stress relief for your body.  And with the right guidance, doing it can be surprisingly easy.  I struggled for years to lose ten pounds and keep it off.  Dr Oz and Dr Roisen helped me lose forty pounds effortlessly and after five years I have only gained ten of that back.  I dread to think of where I would be now if I had not found that help and lost that weight.

I wish you the very best!

- George

dun4life

Thanks for that very informative reply!
I have already began lifestyle changes and I am discontinuing the Statin. Unfortunately, I can't do the same for the HCTZ because I don't want to mess with my pressure. It is under control and I am thankful for that.

Maybe with the weight loss program, pentox ans levitra I can live somewhat normally.
Thanks George!
Joe

George999

ANY weight loss you can squeeze out will help you with your BP  AND your gout issues.  The more the better.  If you are able to view the Dr Oz program where you are in Virginia, I encourage you to take advantage of that.  It is very encouraging and provides lots of helpful tips.  - George

dun4life

Quote from: George999 on October 15, 2010, 11:36:52 AM
ANY weight loss you can squeeze out will help you with your BP  AND your gout issues.  The more the better.  If you are able to view the Dr Oz program where you are in Virginia, I encourage you to take advantage of that.  It is very encouraging and provides lots of helpful tips.  - George

This is an update and a response to all the PM's I received so I don't have to type a lot of responses :-)
OK - My Internist apparently was not pleased either with the decision to just give me Levitra and see what it does.
My Internist went out of his way and actually called a friend of his who has Peyronie's and asked him how things have been with the "disease".
Well, it turns out, that after 5 years of Peyronie's, he is now cured. What worked for him was a combination of vitamin E oil, a very potent formula, used along with an ultra sound machine. It's not the same ultra sound they use to diagnose with, it is a therapeutic ultra sound machine.

My doc is getting me one to bring home with instructions for use and I will keep you all posted. Of course, I did try the Levitra last evening and that worked wonderfully, but I still experienced some pain so the plaque build up needs to go. I think I am on the way to a better life style now. Stay tuned. This treatment usually takes 6 weeks.
Peace to all
God Bless
Joe

George999

Please, please, keep us updated on how this works out for you.  I think a lot of us around here have heard of this approach, but I don't know of anyone here who has actually tried it.  I you have success with it, certainly we all will want to know more about it.  In any case, we wish you the very best with it and you should be very thankful that you have a doctor who has taken that much of an interest in your case.  - George

dun4life

Quote from: George999 on October 17, 2010, 11:10:05 AM
Please, please, keep us updated on how this works out for you.  I think a lot of us around here have heard of this approach, but I don't know of anyone here who has actually tried it.  I you have success with it, certainly we all will want to know more about it.  In any case, we wish you the very best with it and you should be very thankful that you have a doctor who has taken that much of an interest in your case.  - George

George - I will keep you updated, promise!
My attitude is a lot better since my doc has taken interest. The way he put it is..."The Levitra will help, but not cure, and the ultra sound with E oil has a good chance of helping AND curing....but at the very least, you and your wife can have some real fun with therapy" :-) My doc is awesome!
Joe

George999

You might want to review the postings on the "Ultrasound and Extracorporeal Shockwave Therapy (ESWT)" topic.  It does look like some other guys are now pursuing this route.  Guess I am out of touch on this one.  - George

dun4life

Quote from: George999 on October 17, 2010, 09:29:56 PM
You might want to review the postings on the "Ultrasound and Extracorporeal Shockwave Therapy (ESWT)" topic.  It does look like some other guys are now pursuing this route.  Guess I am out of touch on this one.  - George

I have been reading. Some success, and some not so good, but I start today, and attitude is half the battle for me. I believe it is going to work.
Time will tell, George.
Joe

newguy

Quote from: dun4life on October 18, 2010, 05:54:32 AM
I have been reading. Some success, and some not so good, but I start today, and attitude is half the battle for me. I believe it is going to work.
Time will tell, George.

From some of the studies I've seen, it hasn't been so useful for curvature, but has been for pain. I guess it's something the injury is still out on. It'll be good to read more updates in that section of the forum though. The more knowledge we have of all types of treatment, the better.

dun4life

Quote from: newguy on October 18, 2010, 08:54:40 AM
Quote from: dun4life on October 18, 2010, 05:54:32 AM
I have been reading. Some success, and some not so good, but I start today, and attitude is half the battle for me. I believe it is going to work.
Time will tell, George.

From some of the studies I've seen, it hasn't been so useful for curvature, but has been for pain. I guess it's something the injury is still out on. It'll be good to read more updates in that section of the forum though. The more knowledge we have of all types of treatment, the better.

Absolutely....The way my doc described me is, the curve isn't nearly as bad as dome he's seen. The curve is not what is stopping me from good erections or penetration, it's more the plaque NOT allowing proper blood flow. He has had a lot of success with the ultra sound destroying the plaque. I remember years ago when I had heel spurs and the podiatrist wanted to operate. I didn't allow it and he used basically the same treatment as I am going to get in a few minutes, except he used steroid cream instead of vitamin E. If the treatment broke up heel spurs, it has to have some effect on plaque, I would assume.  
Joe

dun4life

Quote from: dun4life on October 18, 2010, 09:56:37 AM
Quote from: newguy on October 18, 2010, 08:54:40 AM
Quote from: dun4life on October 18, 2010, 05:54:32 AM
I have been reading. Some success, and some not so good, but I start today, and attitude is half the battle for me. I believe it is going to work.
Time will tell, George.

From some of the studies I've seen, it hasn't been so useful for curvature, but has been for pain. I guess it's something the injury is still out on. It'll be good to read more updates in that section of the forum though. The more knowledge we have of all types of treatment, the better.

I wasn't quite sure how to post in the "improvements" section of the forum, so I figured I would come back to my original thread.
Nearly 2 weeks using heat, ultra sound and vitamin E oil, and most symptoms have disappeared already and I can now get substantial erections without the use of levitra or anything else. Curvature is all but gone and I cannot feel any scarring any longer. 4 more weeks and I go back for MRI's to see the real deal on this treatment. I am happy so far. I am 90% back to where I was 6 years ago!
Joe

George999

Joe,  Could you start making your posts on ultrasound treatment over in the Ultrasound section?  I think that would be much more appropriate and easier for guys interested in ultrasound to find.  -George

dun4life

Quote from: George999 on October 27, 2010, 11:51:12 AM
Joe,  Could you start making your posts on ultrasound treatment over in the Ultrasound section?  I think that would be much more appropriate and easier for guys interested in ultrasound to find.  -George

Sure - That's why I posted that I wasn't sure where to post. I figured here would be safe because people have been following me.
Thanks
Joe

skunkworks

Quote from: dun4life on October 27, 2010, 12:08:29 PM
Quote from: George999 on October 27, 2010, 11:51:12 AM
Joe,  Could you start making your posts on ultrasound treatment over in the Ultrasound section?  I think that would be much more appropriate and easier for guys interested in ultrasound to find.  -George

Sure - That's why I posted that I wasn't sure where to post. I figured here would be safe because people have been following me.
Thanks

I'd really appreciate it if you could do a full writeup (in the ultrasound section), from start to finish, of your experience with ultrasound. It is something I am considering as though I am functionaly sexually without much deformation, I still need viagra or cialis to get a good erection.

It would be very useful information for many on this board.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

dun4life

Quote from: skunkworks on October 27, 2010, 08:39:36 PM
Quote from: dun4life on October 27, 2010, 12:08:29 PM
Quote from: George999 on October 27, 2010, 11:51:12 AM
Joe,  Could you start making your posts on ultrasound treatment over in the Ultrasound section?  I think that would be much more appropriate and easier for guys interested in ultrasound to find.  -George

Sure - That's why I posted that I wasn't sure where to post. I figured here would be safe because people have been following me.
Thanks

I'd really appreciate it if you could do a full writeup (in the ultrasound section), from start to finish, of your experience with ultrasound. It is something I am considering as though I am functionaly sexually without much deformation, I still need viagra or cialis to get a good erection.

I intend to write a full write up but I am still in the process of treatment. I just wanted to give an update on my condition. It's really a very simple procedure, but you need to have your Dr. approve and get your hands on an ultrasound machine for home. They won't do this in an office. You do it on your own. I'll be back

It would be very useful information for many on this board.
Joe

chiguy

I can tell you about when I had the ultrasound performed at Rush University Hospital last December. Dr. Levine had me call the radiology department at the hospital and set up an appointment at any time before my consultation with him.

I am in Chicago so I drove to Rush that morning and made the earliest appointment possible (to avoid having to wait a while as they get backed up). After waiting 10 minutes the nurse brought me into a back room and explained the procedure.

The radiologist tech came in and performed the flaccid ultrasound. They rubbed the gel all over and then wanded. There are few conclusions that can be reached from this.

Then the not so fun part. The radiologist gave me a shot filled with the stuff that makes one erect. Except it doesn't actually make you erect. It provokes a response and your penis hardens, you are responsible for getting it erect. So they left the room and left me some magazines. I was nervous so it took a little while. After 10 minutes they came back in. They would have given me another shot but I had a full erection.

They took measurements then rubbed more gel onto me. Then they wanded again. This is the part where they can see the plaque and also measure blood flow. If the machine is producing loud sounds, that means you have good blood flow.

Then they leave and give you 10 minutes tomake your erection disappear. If you have trouble becoming not aroused, they give you another shot to chemically induce this.

Two days later I went back to Rush and met with Dr. Levine. He went over the reports with me. He did not see any plaque, only hard like tissue that he described as peyronie's like. Then he told me the blood flow was as high as possible so my ED was mentally induced. Sure enough, after hearing those  results, my erections returned to normal and I started the fastsize/pentox regimen.

George999

chiguy,

Actually the discussion here is regarding ultrasound therapy rather than diagnostic ultrasound.  - George