PENTOX effect on Peyronie’s

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George999

Iceman,  There are NO guarantees when it comes to treating or attempting to treat Peyronie's.  First of all, as Roy points out, you need to be certain as whether you have or do not have calcifications before you attempt to deal with them.  If you KNOW you have calcifications for sure, Vitamin K2 *might* be helpful.  The ONLY thing that has EVIDENCE of benefit is Pentox.  - George

betseyagopian

Iceman, I think you need to find an urologist ASAP. I'm sure there are some good Doctors in Australia. I mean, I live in a third world country and I was able to find one that's been really helpful.

I think you need one Urologist to stay in touch and get some professional guidance. It's weird that you visited one Urologist just once in five years! You need to know if your plaques are calcified in order to know what treatment is the best for you.

All the best!!! I really hope you get better!!!!! sorry for my english!

rellisacct

Betsey...

Your English is better than 90% of Americans. That's actually somewhat depressing when you think about it.  :-\
"Opportunities multiply as they are seized."
― Sun Tzu

betseyagopian

Quote from: rellisacct on April 18, 2013, 09:56:36 AM
Betsey...

Your English is better than 90% of Americans. That's actually somewhat depressing when you think about it.  :-\

haha! thanks! (but please call me bestseyagopian, betsey makes me sound like a woman! haha)

Hey Iceman, why don't you contact other users from Australia? Iguess they could help you finding a coo Dr... right?

james1947

Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

newguy

I admire your perseverance iceman. I spent between two and three years on pentox myself, so five is significant. Often it can be hard to tell if improvements are coming about or if taking it is reducing the impact of future bouts and so on. It's not an exact science, and people react to different treatments in different ways. As you say though xiaflex is on the horizon. It's easy to say "don't be downhearted" and I understand that the day to day reality often overwhelms positive sentiments, but really, strength builds on strength, and even on down days/weeks/months it's important to use the resilience this condition tends to create (out of necessity) to pull through.

MattFoley

I'm on 2,400 mg/day of Pentox. I have been since 12/12. Yes, there has been some improvement. I'm adding VED and traction to my protocol as well as some other experimental strategies.

Got Testosterone?

SDP

My doctor prescribed me Pentox 400mg three times per day - is that a normal dosage?
Onset 2012
60 degree bend upwards - will post update after next doctor visit

IhatePD

That is what I was prescribed along with daily Cialis, L-Arginine 2 x 1000 mg daily and traction 2-3 hrs. per day. I also take Acetyl L Carnitine 3 x 1000 mg daily and use the Vac3 Extension device on my Andropenis traction device as it is much more comfortable.

Skjaldborg

Typical dosage is indeed 400mg, 3 times daily for Pentox. I recommend always taking it with food and spacing out the dosages evenly (perhaps every 6 hours). Pentox can have some gastrointestinal side effects like heartburn, excess gas and general stomach upset. Taking with food and spacing out the dosages seems to help with this. If the side effects bother you, drop down to 400mg, 2 times per day (I did this per the recommendation of Dr. Lue, the drug is still effective).

Stick with it. Pentox is effective. I took it for 8 months total several years ago and it got rid of the pain in a matter of weeks. I noticed physical improvements after several months. Since stopping several years ago, I continue to see minor improvements over time.

Good luck,

Skjaldborg

james1947

I am taking 3*400mg daily, last not late than 06:00PM
Even now after almost two years of using it makes me gas excess and slipping problems.
If taking it after 06:00PM or/and not with enough meal, it makes me all the side effects Skjaldborg mentioned plus anxiety.
Three days ago I take the last at 08:00PM with little bit food and I was sick for 24 hours :(

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Njnist

Alright, since my pentox is coming in today or tomorrow I thought I should ask this question. I am currently taking ALC, Arg, coq10 and fish oil. I remember reading that somebody had heard from dr. Lue to discontinue the ALC to not interfere with pentox, but I see no research to back this up. Has anyone else had Dr. Lue tell them this? If it is relevant, I am 26, about 15 months since first pain and 7 months since first noticeable plaque.  

RoyHobbs

Dr. Lue prescribed me 2400mg of Pentox daily (2 pills 3x a day). He told me to stop taking other supplements because he wanted to see how the Pentox worked without any other interference. When I went back for my 3 month follow-up I asked again if he was in favor of me not taking any other supplements and he said he was. My Pentox dosage is very high and he didn't want me putting anything else in my body. He did allow me to stay on Cialis 5mg (which i cut in half) daily and I continued with Coq10 Ubiqiunol 300 mg daily. He also said that a multi vitamin, fish oil and echinacea would be okay. But here's everything else I was taking-

L-ARGININE 1000MG – 2X DAILY

ACETYL-L-CARNINE 750MG – 2X DAILY

GOTU KOLA 475MG – 2X DAILY

MILK THISTLE 205 MG – 2X DAILY

L-LYSINE 1000MG – 2X DAILY

SERRAZIMES 33MG – 1X DAILY

VITAMIN B-12 1000-MCG – 1X DAILY

VITAMIN C 500 MG – 1X DAILY

NATURAL E 400IU – 1X DAILY

BIOTIN 1000 MCG – 1X DAILY

By the way, there was a NY times article last week on supplements. You may find it interesting-

http://www.nytimes.com/2013/06/09/opinion/sunday/dont-take-your-vitamins.html?pagewanted=all

Lastly- it took nearly 5 1/2 months for the Pentox to really show some positive effect. But my girth has increased to the point where my bottleneck deformity has nearly evened out with the rest of my penis. And my erections are much harder. In addition, I have added 32 hours of traction in the last 3 weeks as well as daily VED. I had to take nearly 6 weeks off from VED in April and May because if a blister. I have since reduced hold times to 30 seconds which is why I added traction.

Ahsu

Does anyone know any doctors in NY or NJ willing to write prescriptions for this?

My GP referred me to a urologist who just didn't take his seriously.  Guy told me to start taking some vitamin E and that I was too concerned with my problem.  

Jonbinspain

Ahsu;

I'm guessing by the fact that he suggested taking Vit E that he has diagnosed Peyronies?  If that is the case, this Uro is a dinosaur. As for telling you that you were too concerned with it, words fail me! He is clearly not only a useless Urologist, but an a$$hole too!  

I think in your situation I would have told him that if it were his dick that was bent & painful, he might then be concerned. I think I would also have been tempted to pump a large amount of "F's" in his direction!...

I'm in Spain, so I can't help. There is a list of respected Uro's here, on the site. Hopefully, you can find one in your area. I'm sure a more local member will see this and make some recommendation.

MtnSurf

@Ahsu, did you ask your PCP to write the script pentox? It wouldn't take much research on his behalf to find out it's helped many men with peyronies. Also, it can be purchased online at "river pharmacy" along with cialis which can help also.

There is a separate section on this site to help fund a qualified urologist that understands peyronies. I'm sure there's one near you that can help.

Litani

I have been taking Pentox religiously for the past 5 weeks.  Last night I took new photos and I think the curve increased by 5 degree.  I know 5 week is not a long time.

My question is to members that have seen improvement with Pentox.  Did anyone get worse before getting better or this means that Pentox is not working for me?

I was just starting to cope with this disease.  This feels like a new slap in the face.  I am slipping back into depression.  Any info is greatly appreciated.

Care enough to throw everything you got at this disease but do not care enough to ruin your Life!

NeoV

Litani, sorry to hear that.

The drug is said to take a long time, I think 9 months was the quote by Lue? Other suggest 2 years for any real effect.

I've only taken it for a few months. Many posters here make it out to seem like a miracle cure, stopping pain and fixing the curve as a matter of fact. The evidence suggests that it does help the curve, so just give it time.

Peyronies changes so quickly, some days it's worse, others its better. Don't give up just yet. Try to stay on top of everything else you can and your health in general.

RoyHobbs

Dr. Lue told me it can take between 3 and 9 months for Pentox to take effect if it takes effect at all. You have to stick with it. At around 5 months I saw increased girth, though little or no improvement in curvature. 8 months in I still see little improvement in curvature, but I also have calcified plaques. So next month comes the real test when I visit Dr. Lue and check to see if the calcification has been reduced.

DWA911

Hi guys

I've been advised and read some promising posts about pentox and I was just curious to know if taking pentox alone will help cure some of my peyronies. I don't have any pain, don't have any issues getting an erection, just dealing with a slight curve which i would still like to try fix if possible, without having surgery.

My GP will quite likely prescribe me the the drug, and I do take L-Arganine and a Citruline malate supplement, but I don't really want to start using VED's unless they are vital in the treatment.

what do you guys think?

Cheers

D

rellisacct

Hey guys,

I just wanted to chime in here that I'm cautiously optimistic about Pentox. I just started taking it yesterday for the first time and am starting on 2X400mg daily regimen. After just the first dose, something felt different in the flaccid hanging state. Usually the scar tissue feels like shrink wrap around my penis constricting the girth, but the Pentox made it feel different. It was almost like it was trying to start remodelling the plaque. I'm not going to state that it will definitely help, but something happened for the better after just the first time taking it. I can't believe that I didn't start taking this a very long time ago (I am adamant against pills and medicine, but these are desperate times).

I think that it has taken 10 years for me to psychologically accept that I have this problem and begin seriously attacking it on all fronts. I'm beginning to treat this like a war and can see some improvement lately.

Cialis (Infantry) - Increase blood flow
L-Arginine (Infantry Reserves) - Increase Nitric Oxide
Pentox (Special Forces/Black Ops) - Soften/reshape the scar tissue from the inside
VED (Artillery) - increase size and quality of erections
PRP Injections (Air Force) - carpet bomb the penis to increase healthy tissue and fill in gaps

It may sound ridiculous, but covering all the bases, there has to be some improvement I would think (which I'm seeing)
"Opportunities multiply as they are seized."
― Sun Tzu

Litani

Thanks guys.  I will stay on it.  I take two a day now.  I am thinking about upping to 3 and see how my body takes it.
Care enough to throw everything you got at this disease but do not care enough to ruin your Life!

RoyHobbs

I take 6 a day as prescribed by my doctor. But I wouldn't do that unless instructed to.

Litani

Thanks RoyHobbs

I have an appointment on sept 17th.  I intend to talk to my uro about increasing it.  For now, I will see how I react to 3 a day.
Care enough to throw everything you got at this disease but do not care enough to ruin your Life!

james1947

DWA911

Pentox is not a miracle med. It helps and helped many with pain but also stopping or reversing Peyronies symptoms.
It take long time to see results, 9 moths, one year or even more. Adding to it low dose Cialis, (2.5 mg daily is not for erection so you don't need more) will help also.

Regarding VED, if you have nocturnal and morning erections I don't think you need it because your necessary blood flow to keep healthy penis is there.

James  
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

james1947

rellisacct

I am a very big fan of Pentox (maybe the no.1) but what you are experiencing may be coincidence.  ???
Maybe also fast effect on you personally. ;D Wish you will see further fast improvement. :)
Again, like everything with Peyronies, each case is different.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

damian


nycguy

Hello. I have three very important questions and I need help. I was diagnosed with Peyronies disease in July of 2012. I am now 14 months into the illness and it seems to be slowing down and not progressing. My real concern is over the obvious loss of size (length). My physician (Dr. Mulhall) wanted me to wait and see if anything significant happened in the course of a year. So far I have only a very slight bend (10 degrees). The only major deformity is the loss of length. My question is this, is it too late to discuss treatment with Pentox since 14 months has passed without any treatment what-so-ever? Does Pentox need to be taken right away at the onset of the illness? Also, has anybody noticed regain in length while on Pentox? Thanks!  

MattFoley

James, just one thing I wanted to share.

I get morning and nocturnal erections all the time yet because of the scarring in my penis, the blood doesn't hold. So I would definitely recommend VED treatment in addition to traction.

Got Testosterone?

james1947

Yes Matt, I agree that VED usage have many benefits.
I got back 1/2" by using VED from the 2&1/2" I lost.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

dplookin

James.....2 1/2 " ?  Now I don't feel alone.......I have the same problem.  Not Good.

DWA911

Is VED only really necessary if you have issues getting an erection? I can get them just fine, i may have lost a cm or so but will a VED break up the scaring?  

Old Man

DWA911:

VED therapy can and will help with scarring if the plaque has not calcified (become hardened) in the area of the scar or hourglass effect. VED therapy works best for scarring and hour glassing effects before the areas harden with calcium deposits. So, it behooves any member considering VED therapy to start it as soon as possible after learning for sure that they have Peyronies Disease, even in the acute stage - first year to 18 months, etc.

Some uros state that VED therapy should not be undertaken until AFTER THE ACUTE STAGE! I have had many Peyronies Disease symptoms for just over 60 years now and I have learned that VED therapy must be started as soon as one realizes for sure that they have Peyronies Disease. I have completely gotten rid of my Peyronies Disease symptoms with using a one cylinder VED, the old Osbon Erecaid Esteem unit when it was first prescribed for me in 1995 after a radical prostatectomy. It took just about one year using the VED on a daily basis to get me to where I am today - no visible signs of any Peyronies Disease! :) :)

BTW, I used the VED for many years to obtain good solid erection using the cock rings that came with the package. A present, I can achieve a natural erection and hold  it up long for sex using the same cock rings as with the VED erection.

Hope the above helps in some way with your Peyronies Disease.

Old Man

Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

MattFoley

Old Man, that is awesome information.

Just to back you up, Dr. Lue agrees with your protocol with regard to VED.

Thanks for that info.
Got Testosterone?

Litani

I was diagnosed with Peyronies end of June.  I saw a uro two weeks later that prescribed Pentox (2 per day).  After 2 weeks of taking pentox, I felt like my penis appeared much larger than normal when flaccid.  I assumed this was a side affect of Pentox.  A week ago I had another appointment.  Since I was doing fine with Pentox side affects, the Uro increased Pentox to 3 a day.  Today, I noticed that it looks smaller.  I am puzzled now.  Has anyone experienced this?  Does it mean anything?
Care enough to throw everything you got at this disease but do not care enough to ruin your Life!

Norm

Probably doesn't mean a thing. We all respond differently.  
Plication Surgery Dec. 2013. Straight Again!

LWillisjr

I agree with Norm. Pentox does improve blood flow and many claim to hang fuller as a result. But flaccid penis size is impacted by so many different factors including temperature, stress, nervousness, etc. I don't think I ever look the same way twice flaccid.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Litani

Thanks a lot boys. I really appreciate it. I am glad I found this forum. So much dedication from the members.

One thing for sure, you pay a lot more attention to your penis after this disease.  I have learned more about my penis in the last 3 months than the 49 years before that.
Care enough to throw everything you got at this disease but do not care enough to ruin your Life!

james1947

Litani

You are not the only one that:
Quotelearned more about my penis in the last 3 months than the 49 years before that
:) :) :)
It includes also me and I suppose almost all the forum members.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

DWA911

Thanks for your reply old man, my scaring feels really soft like the tissue has become weaker doesn't feel hard in any areas, but i do get that hour glass effect when cold.  Is there any VED you or any others would recommend, I don't have loads of money to spend on one. I was thinking about asking my GP to prescribe me Pentox, but I don't have any issues with pain so i'm not sure if will benefit me.

Thanks

D

LWillisjr

Totally agree. I didn't realize how much I didn't know. I've studied penile anatomy so much in the last 5 years since contracting this that I think I ready to take the urologist board exams.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History