Pentox effectiveness after 18 months ?

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sonnyjim

Is pentox still effective after 18 months.

I mean, in shrinking plaques etc. Or is it basically hopeless after that amount of time?

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

JS1991

A lot of members have have used Pentox in the chronic phase (which you are in), so I'd assume it won't be an issue.
Do your homework before attempting a prolonged fast. JS1991 Timeline - Peyronies Society Forums (updated)

sonnyjim

Just wondered because if I knew all of this crap I would of started taking it straight away and might not now have ed and all of these other problems.

Feeling like I missed my chance to beat this...
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Silverado30

I am in the Acute phase. I was told to stay on it for a year by Urologist. 400mg 3 times a day. I am not hearing alot of good results from Pentox so I'm worried I'm wasting my time


sonnyjim

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

sonnyjim

What could I have damaged to make my dick like this is what I don't get.

This is like insanity.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

I'm wondering that myself, so far it's been about a year and a month for me. I think we both had penile fracture and tore the corpus spongiosum. I'm trying to find a uro in atlanta georgia who will do a doppler ultra sound erect

sonnyjim

You said your first injury healed though.

Ive been dealing with this crap for about 19+ months now and not had any improvements only worsening (ed).

Probably end up with an implant if I'm lucky.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

my first injury did heal, but it took an extremely long time. i think maybe 2-3 years. i'm having a tough time too. Im working full time 40 hours a week. doing IT work for a company and a lot of time im sitting on a chair which makes it worse and i have to wear pants. and my penis is constant making some tingling feeling. my penis is always hard flaccid now and its always uncomfortable. Often time i'm worrying if my co workers think i'm weird because im constantly fidgeting. iv changed my chair 3 times. i've brought a seat cushion to work. the first day i've been unbuckling the top button of my pants everytime i sit... its very stressful.

can you not hold erections at all when masturbating? can you orgasm and cum? just keep taking your cialis.. i quit pentox. also do you get tingling feeling too? because i remember that you mentioned that

sonnyjim

It's not a tingly feeling anymore but there's a weird sensation but literally 99 percent of the time I feel nothing just occasional pain usually when I'm sitting.

What were your symptoms when your first injury happened? I mean my ED is that bad now that I literally feel no pleasure at all it honestly feels unfixable.

I can get an erection but they are very weak and only happen if I'm watching porn and manually stimulating myself otherwise nothing. No spontaneous erections no morning wood not even if I wake up and I need a piss. Basically, dead and turtled (much smaller) dick.

I cannot ejaculate either because I'm guessing the scar tissue is stopping that from happening.

Honestly don't know what to do now.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

Yikes it must of been pushed down pretty hard or something. Guess the only thing we can do is wait and take cialis. Over time itl heal, maybe it's a good idea to never have sex with that girl again and never have sex drunkagain.

Gabriel

Hey Sonnyjim,

Have you tried going nofap ? I'm not kidding: just before my Peyronies Disease started, I had totally lost my night/morning erections, not speaking about the spontaneous day ones, and I could only achieve incomplete and unstable erections with porn/masturbation, which I had been doing on a daily basis for 15 years without being AT ALL preocuppied by it.

I went nofap, not in an ideological but just an experimental perspective, and after three very, very, very (very...) hard months, night erections started reappearing, even without cialis. Last months, I even had the pleasure to have a 80% erection without cialis (had not taken it for 3 or 4 days) with a girl, which had not been the case for much time...

So, I can only recommend you to try it mate!!
- 35 yo, Peyronies Disease with chronic pain, general hourglassing with girth and length loss since 09/01/17.
- Pain almost cured with Hirudoid cream and diet/lifestyle changes (see my topics on this); deformity still here, but partly reduced with traction + VED.

sonnyjim

I've tried everything man, you have to remember I have been dealing with this for almost two years. The ED has been this severe for about a year now.

I've taken every pill that people here are taking and seen no improvements at all but yet I'm told there is no problem when I had an ultrasound. Why do I feel a rock solid lump then? :S

Can pentox still shrink the plaque after this length of time or will they just soften them? I've been taking it for three months and nothing has happened yet.

Maybe it is calcified already. Bit confused as to why that wouldn't show up on an ultrasound either as people here say that it lights up like a Christmas tree on an ultrasound.

For me it hasn't.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Gabriel

Hey Sonnyjim,

I hear and understand your distress. We will work and find a solution, whatever it takes! Regarding the fact that your uro can't find your plaque, I suppose you already went to several including the best ones (I tell you that because it took me actually 3 Peyronie's specialist to finally see my plaque located and diagnosed properly).

Regarding the eventual calcification, however, I can bring you a little hope: there are big chances that my plaques were partially calcified according to my firsts ultrasounds, which coincided with my own daily palpation of a rock solid lump at the center of my shaft and right under the glans. But after ~7 months of my routine (usual oral pills, traction, VED, essential oils ointment and exercise), I feel my plaque are very soft now, and my competent uro cannot find any calcification on her fancy ultrasound machine.

And about ED, what about the Angion Method which seems to be encouraged by some reliable folks here? Did you go to several ED recognized specialists (like Dr Virag in Paris, which is obviously a little far for you, but you see the idea)?

All the best man!
- 35 yo, Peyronies Disease with chronic pain, general hourglassing with girth and length loss since 09/01/17.
- Pain almost cured with Hirudoid cream and diet/lifestyle changes (see my topics on this); deformity still here, but partly reduced with traction + VED.

sonnyjim

Thanks for your replies.

I guess I will keep taking these pills then.

How long did it take for your plaques to calcify from when you first noticed symptoms? I think my scar tissue must be in the spongy tissue and that is why I have such severe ED.  
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

kusher

Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Gabriel

Hey Sonny,

Actually I don't know how much time it took for my plaques to calcify, because the first MRI I had, 2 months after the first symptoms, concluded that my plaque was already partially calcified... Which concorded with my palpation, as I could feel an already very strong nodule at the center of my shaft. So, actually, I don't know; but I can strongly tell you that I'm positively convinced that my plaques did soften... And who says soften plaques (even in corpus spongiosum) says more possibility to re-shape them! I'm not saying it's going to be easy or immediate, I'm saying there surely are things that can be done, and that you should keep hope and pursue your researches.

Stay strong!
- 35 yo, Peyronies Disease with chronic pain, general hourglassing with girth and length loss since 09/01/17.
- Pain almost cured with Hirudoid cream and diet/lifestyle changes (see my topics on this); deformity still here, but partly reduced with traction + VED.

sonnyjim

So mine definitely must be calcified in one year 8 months then ://

I thought (and hoped) that it took longer than that, like 5 years. But nevermind.

Guess this isn't getting better any time soon then.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

it gets better after it hardens. the cialis and blood flow and hard erections end up breaking the plaque.

Gabriel

@Sonnyjim: it's not sure at all bro, because when I had my first MRI, 2 months after the symptoms, the doctor concluded that this partially calcified plaque "actually seemed to be there long time"... Which was obviously strange (how could I had not noticed it before then?), but still very possible, like everything is possible when it comes to Peyronies Disease. Anyway, we do have some cases of de-calcification, so add vit. K2 to your daily medications if you haven't already done so, and keep hope :)
- 35 yo, Peyronies Disease with chronic pain, general hourglassing with girth and length loss since 09/01/17.
- Pain almost cured with Hirudoid cream and diet/lifestyle changes (see my topics on this); deformity still here, but partly reduced with traction + VED.

sonnyjim

So an MRI also shows calcified plaque ?

I am basically hoping to regain the flaccid size I had before I got this crap people have said they took pentox and have done that after pentox shrunk the plaques but I'm not so hopeful right now with the severe ED that I have.

It's just psychologically F^@$!ng me up walking around with a flaccid size that is half that of before this. Like a 12 year old.

I can't even get a hard erection because I guess the scar tissue is stopping my penis from expanding fully so it's basically weak where I'm able to bend it even with Viagra and Cialis.

Give me some hope somebody please because I feel like I'm close to giving up with this life of misery and hopelessness.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

Don't give up dude. I'm not giving up so you can't either. We all have challenges in life to get through. You gotta do it no matter what. Things will get better in the future. Your plaques will get softer and you will get better blood flow

Gabriel

Hey Sonny,

Fortunately you mentioned something for what I can give you hope: 1) Yes, although less acutely than ultrasound, MRI does show calcified plaques; which means I'm the living exemple that calcifications can be reversed (today I'm close to absolutely 0 calcification, and my plaques keep on softening). 2) About flaccid length: that was never a real concerned of me, but I always had a small flaccid. Well, a few months of traction, did not so thoroughly, added at least 2-3cm to my flaccid...

So YES it's possible, and NO there is NO reason that some of the things that work for other won't work for you. Just accept, cry, then take courage, chin up, and search, try, fail, try again, and finally succeed, whatever the number of endehavours it takes. This condition works like this, and everyone who finally beat it had to get over dozens of failure before reaching happiness. You will!

Stay strong,

G
- 35 yo, Peyronies Disease with chronic pain, general hourglassing with girth and length loss since 09/01/17.
- Pain almost cured with Hirudoid cream and diet/lifestyle changes (see my topics on this); deformity still here, but partly reduced with traction + VED.

sonnyjim

Even if the ultrasound did show it (which it didn't .. I don't know why) they still wouldn't of really offered me a treatment that would work apart from an implant.

I don't want an implant but if I have to go down that route how much length will I lose (already lost a bit) any more will put me under average which I don't want.

The scar tissue that's causing all of these problems isnt softening at all. How long will pentox take? I've taken everything (coq10, l arginine l citrulline pentox (3 mos)

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

TonySa

Give it 9-12 months but add VED or traction  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

sonnyjim

I always do manual stretching but that hasn't really given me any length back and I've been doing it for over a year.

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

sonnyjim

What are the side effects of pentox apart from nausea etc?

Does it age you?
Make you look worse?
Etc...

These are things I'm worried about. I don't want to age or look worse than I do.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

sonnyjim

Anyone ever seen a reduction in size of the plaques in the chronic phase? Or only softening ?

I would like to regain my length and girth but it doesn't seem likely as the scar tissue stops me from stretching to my previous size. :(
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

I'm sure your ed got a little better by now.

sonnyjim

33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

sonnyjim

Anyone who can speak from experience about taking Pentox after 18 months?

I know others had success at softening the plaques but do they still actually shrink in size ?

The only person I've seen make good comments after 18 months was comebackid and they haven't been active for 6 months on the forum.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

cheeznips

is the underside of your penis still numb?

sonnyjim

Yeah, nothings changed...

Feels like I'm gonna be like this forever.
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Pressure

Well people, I have now been constantly taking Pentox (3x400mg) daily for 3 years and 4 months now!

Probably won't make a difference if I stopped now, and I still get no side effects.
Age early thirties, peyronies 4.5 years

sonnyjim

Did you notice any positive changes and how soon after symptoms started did you begin taking it ?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Pressure

Well started taking it 1 to 2 months after symptoms started, and it didn't get worse after starting to take it. It would of stabilised symptoms at that time, over 3 years ago, if there was a positive effect from it.  
Age early thirties, peyronies 4.5 years

james1947

sonnyjim
You have asked:
QuoteWhat are the side effects of pentox apart from nausea etc?
I know my answer is late by a few months.
One of the dangerous Pentox side effects is that it may weaken the immune system. It is stated on the box.
After 18 months I had to stop taking Pentox as I was getting severe flue every 6 weeks or so.
Stopped Pentox, everything back to normal.
I had many benefits from Pentox but sadly had to stop.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

sonnyjim

Pentox isn't doing anything for me. I guess I have calcified plaque... Why wouldn't it show up on an ultrasound then ?
33yo, single
severe ed caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

james1947

Calcified or not, a plaque will show up in the ultrasound if you have a competitive doctor.
QuotePentox isn't doing anything for me
It may be, or it is just stopping the progress of the Peyronies so it is "like" not doing nothing.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum