About to get reconstructive surgery w/ Dr. Egydio (+ should I get an implant?)

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

Dan D

Hi there!

This is my first post, but I've been reading this forum for the past couple years. This community helped me a lot in dealing with peyronie's. Thank you for that!

If you feel the post is too long there's a TL;DR at the end.

My background:
Age: 30 years old
How long do I have Peyronie's: 3 years. The acute phase ended about two years ago and my condition has been stable ever since.
How does it look: I have 2 plaques: a small one just under the glans (causes a small dent) and a bigger one on the shaft, just above the base (this one causes a 35º bend to the left and hourglassing). I've lost around 2-3 cm in length (approx. 1 inch).
Previous treatments: oral drugs (pentox, colchicine, vitamin E) and traction. I gave up after 6 monthes without any noticeable results.
My problem: Well... peyronie's has hurt my sex life. What a shocker, right? LOL. Like pretty much anyone else with this disease I just want to have a fulfilling sex life again. I'm sure everyone here knows how it feels.

Anyway... according to the doctor, the hourglassing compromises the "vertical stability" of my penis, leading to weaker/unstable erections. I don't have any trouble getting erections, but keeping them for long can be a problem as they tend to alternate between hard and "not-so-much" after a while. This often leads to a somewhat "rushed" sex. It's hard to tell how much of the problem is psychological and how much is physical. Cialis seems to help a bit with that.
Even though I can have sex (without any drugs), the situation upsets me to the point that I'm considering surgery.

Current situation:
I'm consulting with Dr. Paulo Egydio. He's known for his technique and has a great success rate. I believe that he's the best in my country.

He suggested a reconstructive technique using relaxing incisions, so the tissues can stretch normally again.
He also suggested getting an implant. His point is that in my case he can't guarantee that the incisions alone will solve my problem for good, especially considering that there's some ED involved (even if mild). It may or may not be enough, while the implant is definetly a safe bet. Other advantages include not worrying about peyronie's ever coming back and a much easier post-op.

The way he uses the semi-rigid implant seems to be a good option: during reconstruction he makes space for one rod above the corpus cavernosa, preserving both chambers as much as possible. This way blood will still flow through the penis during an erection, which seems more natural to me than pumping. Of course, the length will always be at maximum and you'll still have to bend it upwards to have sex. He says that people tend to be very resistant to the idea of getting an implant, but the satisfaction rates are very high.

He advised me to take some time to consider the implant, but at the end of the day it's my call.
He also suggested to try to adapt to peyronies (taking daily cialis to help), as the worse it could happen is that I'd eventually come back ready for the definitive solution.


I'm tired of trying to live with it, so the only question left is if I should go for implants or just get the reconstructive surgery and hope for the best.

Put simply:
- Daily life with a semi-erect penis (I swim and ride a motorcycle, not exactly implant-friendly hobbies)
VS
- Hopefully getting great results from reconstrutive surgery
- PLUS the risk (and cost) of having to do another surgery to get implants 6 months later (Doc said it's happened before in a similar case)


Any thoughts?
It'd be great to hear from anyone who had this kind of surgery and/or has a semi-rigid implant.


TL;DR
Peyronie's gave me hourglassing and mild ED.
Doctor suggests reconstructive surgery with an implant for better/safer results.
I'm stubborn as hell, so I'm considering if getting the surgery without the implant is worth the risk or not.

TonySa

Wow, this seems like a completely different recommendation than I've heard anywhere else.  First, an  implant for peyronies and MILD ED.  Secondly, a rigid implant for a young guy with no agility problems in utilizing a pump.  And, thirdly an implant that maintains the CC's.  Don't know what to think.  You have a lot to consider, please keep us posted.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Dan D

Thanks for the reply.

Well, to be fair the 3-piece implant was also presented as an option.

I was personally leaning towards the semi-rigid one because I felt more confortable with the idea of just bending my penis up than pumping... and keeping the CCs functional is also VERY appealing. They'd be a little comprised by the rod, so there'd be less space to be filled by blood... but they'd be still be working nonetheless. Of course: this is what's expected. I'd be great to hear confirmation from someone who actually had this surgery before.

About the implant recommendation... well, that's the reason I'm so doubtful right now. I know that I have some ED, but I don't think that it is THAT bad. I can still have sex, after all...

It was explained to me that there are two reasons for the implant: providing vertical support and preventing further damage from plaques (as it keeps the penis streched at all times). So it's not just about the ED... Anyway, I can't say that I'm super excited about the whole implant thing.  :-\
To be honest, I was caught off guard by the suggestion and couldn't discuss it clearly. Can't say I took it very well at first.  ::)

I hope I'm able to question properly all the "whys" and "hows" of this procedure in my next appointment... so any doubts or remarks are welcome  ;)


Pfract

Man... Don't get the 2 piece. It's the worst thing you can do.

Eu falo português e posso-te ajudar. Não faças isso.  

Hawk

Without having the consultation you have had and living with your exact problem I am not ready to boldly recommend a course of action.  I am not even sure if you are married. I would strongly consider a 3 piece implant, however.   Even a 3 piece does not totally destroy the cavernosa.  it pushes it aside, at least when done by Dr. Eid and some others.  You would still likely feel some spontaneous fullness and your spongiosium would fill out and your glans would be full.  It is true that you would likely get that with a semi-rigid but the semi-rigid is always putting tension on the glans and they are known to cause erosion over time.  At your age, the term "overtime" has significant meaning.  A 3 piece would be more accommodating for your activities.  I am not sure what you dislike about pumping but it allows you to adjust the rigidity and fullness.  It might even straighten your penis without further surgery and trauma as is often the case.  If you think of it as being less spontaneous, remember, if you are on a date or even sleeping and want to be prepared, you can give a few pumps so it is semi-ready.  A few more pumps would likely do the job and with practice and dexterity could be done discretely under the covers or in a very brief entry to a bathroom, or even while your partner is distracted disrobing.  You would have a small pump in your scrotum that would be detectable if that area was fondled.

Summary as I see it:
PROS:
1. Totally deflated during other activities
2. Will not erode into the glans
3. Preserves spongiosium erection
4. adjustable firmness
5 .may straighten your Peyronies Disease out without any other surgery ? ? ?

CONS:
1. small pump in the scrotum
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Ricardo70


Hello,

We are going to see...

I have had to read you several times to give credit to what he was reading.

Are you 30 years old, a few "light" peironye and the supposed number one of the world offers you a semi-rigid implant...?

I do not know that to say without the moderator censuring me in this forum...

Dan D

Hawk

Thanks for the advice.

I'm not married... or at least not yet. My girlfriend and I will be moving in together next year. It's been a long distance relationship for the past couple years due to a work-related situation, and peyronie's certainly has added more stress to it.
Fortunately we're very open to each other and she's been very supportive through the whole thing.
Not having to worry about what my partner's going to think is a relief.

My age definetly concerns me, though...
If you really have to replace your prosthetics every 15-20 years I'm looking at at least 2 more procedures in my life. That's why a surgery to try to solve the problem without resorting to an implant is appealing, even if it has a smaller success chance.


vyrtual

Hi Dan. How are you?

I´ve read your post and I relate to it a lot. Could you explain to me what hourglassing is? If I´m not mistaken it´s related to the reducing the blood flow....

Thanks and good luck.

LWillisjr

Hourglassing refers to when a section of your Tunica doesn't expand like it used to. It results in a narrowing of your erection which therefore looks like the narrowing of an hourglass. It can make your erection weaker in this area and maybe more susceptible to bending. But it may or may not have anything to do with restricting blood flow.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History