Greetings! Noob here

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Steering to the left

Hello all!
1st Time here and I'm glad.  Not really having anyone to talk to about my problem that would understand or even worse make fun of my situation.  I guess I'm special in a way, I got the golden trifecta- ledderhose disease, dupuytrens contracture and topping of with peyronies.  When i first went to doc, I didn't have any curvature, just hard nodules, so he pretty much told me, without a bend there was nothing he could do for me.  Well it's been 3-5 months since then, and now I've developed the curve along with round nodules (pearls i think is what they call them) at base and a tight band around the middle of the shaft. I've lost probably 2.5-3" overall, and I am ashamed,embarrassed and fell less of a man.  Even without an erection, I have a constant ache, and god forbid if I have a good dream and get aroused.  The pain is almost unbearable.  Fortunately I have a very understanding a loving wife who sees the pain I'm in and never tries anything.  Not really sure what I needed to say for my opening post to introduce myself .... I've never done a forum before.  But I am 44, I was taking testosterone for low T, but I had to quit that, because it was increasing my libido ... and in turn, Causing things to happen that hurt.  So no more testosterone for me.  (Off the wall comment) but anyway.  I look forward to talking to y'all and reading/learning.
Thanks
Have a great weekend!!

(Sorry for typos or sentences that don't seem to make any sense, I'm writing this from my phone. Promise, next time, it will be from a computer, to where I can see ) lol  
Jason
Peyronies - 2018
Not here to complain about my conditions but to LEARN and HELP when i can ! !

TonySa

For the pain and reversing peyronies I'd ask for pentox asap.  Also, ask for diclofenac sodium gel 3 or 4% forbthe pain.  Once pain is under control try T again and low dose daily cialis.  Low T contributes to peyronies and cialis can (like pentox) remodel plaque.  Consider traction/VED/xiaflex.  You can treat this.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Thomas2

it is a route as long you have a goal and you walk. Don't burden with all the time you have left in your mind, live in the now, with and for the love you have around, tackle the problems with available treatments and fill your head with a fighter attitude, not a prey attitude. This can be treated and it CAN improve!  
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Steering to the left

Tsanchez12369 .. thanks for the reply and info.  I will definitely check into what you mentioned.  
Thanks again!! Have a great week!
Jason
Peyronies - 2018
Not here to complain about my conditions but to LEARN and HELP when i can ! !

Steering to the left

 Thomas2 ... thanks for the motivation and you are correct.
I hope you have a rest week !!

Thanks again!
Jason
Peyronies - 2018
Not here to complain about my conditions but to LEARN and HELP when i can ! !

Thomas2

steering don't be a stranger!
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Steering to the left

Thomas2 .. thanks... I'll try not to be! But considering how long it's been since I've replied to this.... lol well.. let's say.. I need to try harder
Jason
Peyronies - 2018
Not here to complain about my conditions but to LEARN and HELP when i can ! !

TDix

I'll be rooting for you.  I have had a difficult road as well.  We are all here to support you
47 yrs old, 3 yrs diagnosed
Xiaflex w/original uro resulted in a fracture
Excision/grafting by Dr Faysal Yafi 3/26/19
Implanted by Dr Yafi 8/11/20, Titan 20cm + 1cm RTE

Thomas2

Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc