Took me by surprise.

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SW01

I have been dealing with Peyronies Disease for about 6 months. My urologist is pretty much useless, just wait and see what happens. I do not have any pain, just an hourglass shape at the bottom along with some plaque. He suggested stretching it 3 times a day and 800 mg VE a day, but that was it. I was wondering if anyone knew of a good Peyronies Disease doctor in the central KY area. I cannot seem to find to much on any local doctor. If nothing pans out here, I saw DR Milam in Nashville has a good reputation. This really is a bewildering affliction, and I have been dealing with Lupus for about 14 years, so am familiar with chronic issues. This tops that for me. Pain with Lupus I can deal with. A broke you know what really aggravates me.

I have done some research and am supplementing my vitamin E regimine with Bromelaine, Aloe Vera, Probiotics, Gotu Kula, ALC. Also VE oil twice a day. I also apply heat from one of those Wahl massagers with the heat head for 20 minutes every other day. It does not appear to be getting worse, but all in all, I feel like this is a losing battle. Erections are week with Sildenafil, so no sex. Wife is unhappy, and you know what that means. I would like to find an aggressive DR for this issue. It surely cannot hurt.
Dealt with ED, Peyronies, & venous leak for 3 yrs.
implant on March 7, 2019 w/ a Titan 18 cm plus 1cm RTE
Revision after hernia surgery. Dr. Andrew Todd, Richmond KY
Removed Titan and put in LGX 18 cm plus 2 RTE's, 20 cm total.

hope794

Hi SW01,
i am not from USA, so i can't help you with finding a good doctor.
Regarding the therapies, just take a look around; you'll learn a lot about Peyronies Disease, way more than you can do from a doctor.
Wish you the best!
26 yo from Italy.
Peyronie's since abt 2014
Abt 20-25° bend, w/ a moderate twist to the left
ED for 4 years and getting worse
From pornstar-like to moderately depressed - still fighting for a solution.

Thomas2

You are basically trying only integrators, no drugs, no manipulative therapies. If you are getting worse, maybe it is time to try something else...  
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james1947

Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum