Is Xiaflex available on the NHS

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MarkDS

I've had some conflicting views, so maybe it's a postcode lottery.  

The surgeon I saw said that it wasn't, but a Facebook responder said they had the injections on the NHS.

Any recent experiences?
49 yrs old, Married
Peyronie's started 2016
Upward curve of 100 degrees  
Incision/grafting surgery in 6/2019.  Resulted in loss of length of around 1.5 inches, residual curve of over 40 degrees, some ED
12/2019 had failed skin anchoring procedure

redbullmaster

I think the London UCLH had it on trail, but not sure if its been approved for the NHS yet.

TonySa

I believe it's called xiapex in Europe.  
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Bobinlondon

HI,

I saw a consultant at UCH today who said it was not available on the NHS and cost about a £1000 a shot privately.  Not particularly good news.

Kind regards,



Bob
69 yrs old
Peyronies Disease + ED for 6 years. 90-degree sideways bend
Tried VED, diets, Pentox, Restorex plus electrical stimulation, DMSO without success, 
In a long-term relationship. 
Implant by Dr Christopher 22cm Titan July 2022 no RTEs.

TonySa

Will they cover verapramil injections?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.