First Post

[MDX_2018]

Hi,

A year ago i was diagnosed with Peyronie's disease. i went to a urologist and he straight up told me i have it and i insisted on an ultrasound but he was resistant and on top of it, didn't have to necessary equipment. in short he was't the most compassionate doctor, he told me to take Vitamin E for 3 months and see him again. i did take vitamin E but i didn't go see him again. so it's been almost a year now, i'm still in the acute phase and the pain is gradually fading. my erections are completely normal(no deformity), sometimes there's pain(burning feeling) sometimes there isn't. however there is a slight bottlenecking when semi-erect but i think that is just the inflammation because my plaque is in the middle left side of the shaft. Vitamin E is the only thing i'm taking, and just recently BRUFEN 600 for the inflammation and the pain. i'm 26 and i haven't had sex since the diagnoses so i can't say if there is pain during sex or not. somedays i have hope it will resolve somedays i'm in complete despair. my depression worsened after the diagnoses but i try to keep a consistent routine of exercising to keep my mental health in check. i've been reading about cases on this forum on guest mode since the diagnoses and today i decided to sign up to have your support and maybe tell what you think about my case.



Thank you.

[Stabler]

Hello MDX,

I'm glad that you found and signed up with our group. It is time to find someone new. If you haven't yet please visit out list of specialist and see if there is one close to your area. https://www.peyroniesforum.net/index.php/topic,4063.0.html

You should have the ultrasound if for no other reason than to help your state of mind, the bottle necking is a good indication that you do have it however you want to make certain of what you are dealing with. The Vitamin E is not going to harm anything but it isn't going to help either, it isn't a benefit. There is a list of items that the members use that they find to be beneficial in treatment.

CO Q10 - 200 - 400 mg daily divided into 2 or 3 doses. (If over 40 yrs old, consider substituting the more expensive Ubiquinol)
Acetyl L-Carnitine 1.5 - 3 grams per day divided into 2 or 3 dose
L-arginine 1.5 - 3 grams per day divided into 2 or 3 doses

A urologist can add Pentox and low dose cialis/viagara

There is alot of helpful information here:
Peyronies Survival Guide - Information for New Members - Peyronies Society Forums

If you need help finding anything here in the forum please ask. the members here are great and always willing to help.

Stabler67

[MDX_2018]

Stabler67,

Thank you for your feedback. i think Vitamin E is working for me, i've noticed reduction in plaque size; maybe its the natural course maybe its the Vitamin. Also, everywhere i read that the plaque is supposed to be hard and inelastic which is completely confusing for me because my plaque is soft (squishy)

[hope794]

My plaque is soft too. Everyone has a different shape of Peyronies Disease. You will have to read a lot of posts here and find out what worked for guys with a similiar situation of yours. Good luck bro