Pentox and gallbladder

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Walleye

So I've been taking Pentox for a few months, 400 x 3. Today I took one first thing in the morning a bit earlier than I normally do, and I had pretty decent dizziness and a throbbing head. I looked at side effects of Pentox and noticed "bile flow", and gallbladder inflammation in the side effects.

As it happens I just had to get my gallbladder taken out after a blockage caused pancreatitis. It was pretty severe. I was in the hospital for a week. The surgeon who took my GB out said he was surprised to see as much scar tissue and inflammation as he did, considering my history. As in a lack of any issues with my GB till a couple weeks before surgery.

Of course I can't say there's any connection at this point, but I'm wondering if anyone else has had gallbladder issues after starting Pentox?

TonySa

After several months on pentox I had my gallbladder out in emergency surgery.  it was severely infected and if had gone another day the surgeon said would have ruptured and I would have gone septic.  Crazy, didn't know it could have been related to pentox and MD suspected nothing.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Walleye

Interesting. Thanks for sharing.
This is from the WebMd page
RARE side effects
If experienced, these tend to have a Severe expression

Abnormal Heart Rhythm
Abnormal Liver Function Tests
Acquired Decrease Of All Cells In The Blood
Blockage Of Normal Bile Flow
Chest Pain
Decreased Blood Platelets
Decreased White Blood Cells
Giant Hives
Hepatitis
Inflammation Of The Gallbladder
Large Purple Or Brown Skin Blotches
Life Threatening Allergic Reaction
Low Blood Counts Due To Bone Marrow Failure
Low Levels Of Fibrinogen In The Blood
Meningitis Not Caused By An Infection
Seizures
Yellowing Of Skin Or Eyes From Liver Problems


My Urologist didn't seem confident in Pentox and said that according to studies, Cialis was as effective or more than Pentox. I've read that the combo is recommended, yet I'm giving Pentox some consideration.
I've had a hell of a time sleeping, and have been taking a Pentox before bed, so I now realize that's not the best idea, quite likely.
Today I had very serious dizziness and my head throbbed with every heart beat. I took a verapamil and soon after the issue stopped, yet not sure if it was related.

I feel like an Aids patient with how many pills I take now, and I'm not that surprised that one or more of these meds will or has had serious impacts. Peyronies Disease feels so frightening I've been willing to do anything to fight it. Yet I should be cautious I suppose, since fighting a curve in my penis could cause liver damage or things much worse.
I wonder if even without a gallbladder I can be effected by "Blockage Of Normal Bile Flow". I'd guess I could, and it's possible I'm already. Before my pancreatitis I couldn't even tell you where my pancreas was. Now I know how deadly serious pancreas issues can be. Pancreatic cancer is essentially a death sentence sadly.  

TonySa

I'm going to ask my doctor to file a incidence report to FDA re pentox and my septic gallbladder.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pablo88

Reading these comments makes me even more nervous to take this stuff , have 150 tablets but with having kidney and other medical issues on top of this peyronies mess i really dont want further health complications but on the other hand my plaques are getting worse and the pain is eating away at me so what choice do i have  

Walleye

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I feel your anguish. Yet I think its safe to presume that Gallbladder issues with Pentox are a rare side effect. 2 people with issues, is far from evidence the medical information is incorrect, regarding the 'rare' prevalence. Having reservations is a healthy attitude if you ask me, and the attitude I feel I should use from now on. Also noteworthy is its very likely dosage is a big factor in side effects. in other words, its possible that if I had taken a smaller dose I wouldn't of had issues. If in fact Pentox played a role in my Gallbladder. I believe it did to some extent, due to how sudden the onset, and by my surgeons comments at being surprised at the state of my GB. Yet my mother had her GB taken out in her late 20's, and I have a cousin with pancreatitis issues.

With the disclaimer of my advice not being anything more than my medical laymen's based, is to start with a low dose. Also perhaps have blood work done before, and after a couple months.

TonySa

I still support the recommended dose, every medication has rare side effects that can happen.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

Pablo88

You guys are right ill just have to bite the bullet and see what happens i tried taking acetyl l carnitine a few weeks back but ended up with a uti which i read can be is one of its side effects currently only taking coq10 i recently bought a blood pressure monitor with the pentox as an added precaution as my pentox isnt on prescription so cant blame the doctor if the sh*t hits the fan lol  

Walleye

[Full quote removed]

Why wouldn't you get a prescription? Your in Great Britain? If so I'm confused since I'm sure you have a national health care system also. I got my prescription from my family Dr by just asking for it and explaining why. Which would mean it's not difficult to get, or a risky medication. I'm not even sure how one could get it without a script, lol. Personally I'd never take a medication that didn't come from a pharmacy, with the direction from a Dr and pharmacist. Perhaps with your medical condition, you shouldn't even take it.
I'm not trying to freak you out, but taking meds without a prescription sounds pretty risky to me. I'm not suggesting you don't know what your doing, just concerned.  

Pablo88

Walleye

Are national health service isnt as good and straight forward as everyone thinks it is, its going down the pan and fast you have to see your normal everyday doctor first before they can refer you to a urologist and even thats a struggle and then wait months to get seen i finally saw my urologist 3 weeks ago and asked for pentox but he said it was useless and when i told him about the shrinkage hourglass he said the penis "cant shrink" and that he coudnt feel any plaque and that i was fine whilst sitting there slurping his cup of tea as for the pentox i ordered it of a website mentioned quite a few times on this forum, you have to have a online consultion with one of thier doctors which is basically just filling in a form as to why you need the medication also need to send proof of age so it seems legit  

Walleye

I see. Our health care system has its issues also. I would have had to wait 6 or 7 months to see the Urologist who specializes in men's sexual health, yet it would have been months for any Urologist. We also need a referral, yet that's understandable.
I have a good relationship with my family Dr, and she knows I'm basically a pre-med graduate with the studying and research I do.
Maybe ask your Dr? Ask to see a different Urologist? Just because some is a Dr or Urologist doesn't mean their good at what they do. There's good mechanics, and lousy ones. Same goes for Drs. Developing a relationship with a family Dr is very important and fundamental in taking care of yourself, yet I know it's not always easy, and sometimes near impossible.
Keep at it, and I would at very least let your Dr know your taking it, or perhaps the consulting Dr is thorough and follows up if and when needed.
With all that said, and from what I've learned, Pentox is pretty safe, at least to try.
I have a condition called 'Cluster headaches' and the online forums and resources have been the main source of not only my diagnosis, treatment and knowledge, but have also been instrumental in research and advancements in medical treatments. Migraine headaches get the lions share of funding for research, so the online community is a valuable tool for professionals. One member has gone so far as develop a unique, and an over 80% success rate treatment. He travels around the US and abroad attending and speaking at neurology conferences and such. All on his own dime, with virtually no hope of income or reinbursement. Great guy to say the least.

Anyways, the reason I bring it up, is that members have compiled a list of neurologists who are knowledgeable and helpful for us. Now a day, it's not as unheard of as it was 10-20 years ago, so the list isn't as vital as it used to be. Yet it's still helpful, in finding out what hospital or clinic has programs with resources. I think that would be a good addition to this site. Unless it already exists and I missed it.

My Dr got me a Urologist referral only to have them send it back, referring us to the specialist Uro who is the regional expert. I could have saved 3 months by just knowing his name in the beginning. Which is Dr Lee, for anyone in Southern Alberta.  I'll make another post about this, to see if that's something we can compile here also.  

TonySa

PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.