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Author Topic: Asking the right Questions  (Read 334 times)

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Alexander88

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  • 28yr old; 20° curve and 0.5" deep indentation
Asking the right Questions
« on: May 23, 2018, 03:09:09 AM »

I have Peyronie's for 3 months now, which means in my case a 30-degree curve and an indentation. I have been to three specialists for Peyronie's, who all recommend XIAFLEX as the first choice of treatment in my case. The next appointment is going to be the last before starting XIAFLEX treatment and I would like to prepare some questions.

What are the right questions to ask?
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WhatNext81

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Re: Asking the right Questions
« Reply #1 on: May 24, 2018, 03:58:09 AM »

First is a general suggestion. Be open and honest about any concerns or worries, no matter how stupid/embarrassing/silly you think they might be. Have they done an ultrasound to diagnose properly?

How many injection treatments they have preformed?
Do you recommend hand modeling, traction, VED, cialis or viagra as a part of treatment?
How are treatments carried out and what to expect pre and post treatments. When to begin hand modeling, traction etc after injections. If they do hand modeling, ask them to show you how to in office.
Wrapping the penis to help prevent swelling after injections?
You can ask about success rate or an estimated correction of curvature based on your current state of peyronie's and their expierence. Keep in mind not everyone responds the same. Sounds like you're getting an early start, so you have that going for you. Keep a positive attitude.

Any good treating dr should be thorough with explaining options on any and all treatments. As you get to talking about it, questions will come naturally. Also, keep in mind you'll probably think of more stuff after the consultation. Just ask at the next visit. Same throughout the course of treatment. Just communicate.

 Best of luck to you.
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Crooked_Stick

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Re: Asking the right Questions
« Reply #2 on: May 24, 2018, 11:06:27 AM »

Having had they full four rounds and will little success, I would ask how they plan to locate the proper placement of the injection. If they don't get it in the correct spot it can do more harm than good. Also make sure you are comfortable with the person who is doing the injections. Very often Uros leave that task up to an RN like mine did. I wish I had it to do all over again.
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WhatNext81

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Re: Asking the right Questions
« Reply #3 on: May 25, 2018, 02:28:23 AM »

What? An RN administering xiaflex is common practice?
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Tsanchez12369

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Re: Asking the right Questions
« Reply #4 on: May 25, 2018, 12:44:19 PM »

I'd be very concerned.  Now a Nurse Practitioner or Physician Assistant (both Master's degrees) with much experience would be another option.
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WhatNext81

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Re: Asking the right Questions
« Reply #5 on: May 25, 2018, 02:03:44 PM »

Agreed, but also xiaflex training should be established. A uro that does surgery is ideal imo. They've had practice and understand things better as they preform surgeries and have a better overall understanding of what's going on inside. That's not to discredit any assistants that might actually have more expierence in administering xiaflex and other similar injections. A lot of variables depending on the treating drs practice, their team and how they operate.
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