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Author Topic: Peyronie's Disease Clinical Trial  (Read 1413 times)

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FD_Study

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Peyronie's Disease Clinical Trial
« on: May 17, 2018, 09:04:00 AM »

If you have one of the following fibrotic disorders - Peyronie’s disease, Dupuytren’s contracture, frozen shoulder or Ledderhos’s disease - and would like to participate in a clinical trial, please click here to learn more or call 914-683-0000. No visits required, compensation offered.


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WhatNext81

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Re: Peyronie's Disease Clinical Trial
« Reply #1 on: June 04, 2018, 12:14:50 PM »

Has anyone called or participated?
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curved

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Re: Peyronie's Disease Clinical Trial
« Reply #2 on: June 05, 2018, 11:39:43 AM »

I called last week and they were to send out the dna swab kit then.  I expect to receive it any day.  They are offering $100 gift card to participate.... although the findings are of what would be most interest.
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hope794

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Re: Peyronie's Disease Clinical Trial
« Reply #3 on: June 05, 2018, 02:37:24 PM »

Curved, good job. Keep us updates please.
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blackdiamond

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Re: Peyronie's Disease Clinical Trial
« Reply #4 on: June 05, 2018, 03:40:50 PM »

Cruise is that you ????
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blackdiamond

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Re: Peyronie's Disease Clinical Trial
« Reply #5 on: June 05, 2018, 03:45:49 PM »

I am a current patient of Dr. Werner and involved in the study..........
It's very Legit and professionally run......
All that can should try and participate....No visits needed as they send you all you need......
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WhatNext81

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Re: Peyronie's Disease Clinical Trial
« Reply #6 on: June 05, 2018, 06:14:38 PM »

Thanks for the update. Has anyone shown this link/information to their treating drs to get their opinions on this test? It'd be interesting to hear what some of the top peyronie's experts think.
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Afeb1996

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Re: Peyronie's Disease Clinical Trial
« Reply #7 on: June 17, 2018, 11:20:47 PM »

Hey Pfracture, I have been attempting to contact you for a while but your PM box had been full,

I think I may have had a minor penile fracture that went unnoticed by imaging. I was wondering if you maybe knew what to do in my situation. I had a penis with a slight upwards congenital curvature. One day I had an Injury in which my penis was bent downwards forcefully from the base while erect. I lost part of my erection to about 70 percent at this moment. Ever since, my penis points slightly downwards while erect. It appears there was some sort of injury at this specific area.

I was given imaging studies and they came back normal, but I have since been developing narrowing at the base of my penis when flaccid and when erect as well, and it tilts to the side and I feel as slight pea sized "adhesion" inside the tunica or maybe the urethra.

This all happened in March and I think I may have peyronies as the curvature has slowly been getting worse.

THE THING IS: I forgot to mention that following my penis getting bent downwards forcefully from the very base, I started having pain near my perineum. This along with the fact that  my penis now hangs when erect as if the blood of the glans is too much for the base to support, makes me also suspect a minor suspensory ligament tear.

Anyway. These are all speculations. I was just wondering if you have seen anyone with something similar in this forum, and if there is anything I should do. I was thinking about traction because of the peyronies I have, but If it turns out I have a suspensory ligament tear then this would probably agravate the problem.
Any thoughts?
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Dressa

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Re: Peyronie's Disease Clinical Trial
« Reply #8 on: July 09, 2018, 09:18:53 AM »

Hi!

Do you know if there is a link between ehlers danlos syndrome and peyronies?
/Andreas
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