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Author Topic: Stem Cells & Adult stem cell injections for Peyronie's  (Read 193841 times)

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pey ron

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TonySa

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #751 on: February 24, 2018, 05:04:29 PM »

Treatment
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #752 on: February 25, 2018, 02:31:44 AM »

Peyron, is the tx for ED or peyronies?

I think it is for peyronies, but you should ask the people that have looked into it...
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #753 on: February 25, 2018, 07:43:29 PM »

Tsanchez, yes it's for Peyronie's specifically. They inject stem cells directly into the plaques. They also have treatment for ED, although the Peyronie's treatment should collaterally address both.

Kerze

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #754 on: February 27, 2018, 11:18:06 PM »

JS1991, are you referring this one to Dr. Riordan (inject directly into the plaques)? Where did you get the info about the peyronies treatment? I've checked their web page upside down and didn't see nothing about peyronies.

I'm seriously thinking about applying for peyronies and as you put, other minor issues through blood infusion.

Would you please share the info and update your results whit the chosen treatment?

Good luck!!!
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #755 on: February 28, 2018, 01:52:12 AM »

Kerze, I have no idea if they will accept me. I have a feeling they might, just because of the litany of issues I have, and due to the fact that they've never treated it and might be interested in the results. Also, money talks. They require background information like test results in the application, so I'm in the process of going through urologist visits, but unfortunately I probably can't get all of my tests done until early April.
'
In the meantime, I'm in touch with Dr. Landers of California via e-mail, I really need to make time to call him for a phone consultation, since he offered one. I also plan on calling Dr. Zahalsky in Florida as mentioned in one of my recent posts. Once I receive all of my test results for Peyronie's and mild venous leakage, I will submit my application to Dr. Riordan's clinic and give them a call. I can talk well, so I'm hoping to convince them to treat me.

I do have an ace up my sleeve if they don't accept me though. I've decided that I will go to Landers or Zahalsky for treatment, as well as get an additional extraction of either fat or bone marrow stem cells (yet to be decided) for the purpose of storing, multiplying, and eventually being shipped to my house, where my friend who is a nurse can legally administer it to me intravenously. I'm a little crazy so disclaimer there lol. But although it is illegal for doctors to apply stem cells intravenously in America, it is not illegal for me to pay to get mine extracted, multiplied, then shipped to me on ice for whatever I so choose. Here is a video explaining said process: https://www.youtube.com/watch?v=mUNrr_eJP-Q skip to 10:41 for the exact information. It's being featured in Men's Health magazine. There is a video of him actually doing it if you want to google it. The entire thing is worth a listen though.

Kerze

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #756 on: February 28, 2018, 01:37:40 PM »

Thanks JS1991!

Indeed, the only reason Dr. Riordan won't accept your application is for lack of expertise in peyronies treatment. However I do think they might have an urologist in their staff to assess this particular case.

I will start to fill the application in order to know what background info they need it, so I can begin to collect them all (already have the medical report for peyronies).

I'll keep following your results closely. Good luck mate!
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #757 on: February 28, 2018, 09:24:58 PM »

However I do think they might have an urologist in their staff to assess this particular case.

This is precisely what I was thinking. Regarding tests, I believe an ultrasound workup that shows the plaques, if any, as well as the test that shows blood flow (cavernosography? forget the names) if you have any form of ED from the Peyronie's. This coming Tuesday (March 6th) I'll be going to the urologist and getting a Peyronie's diagnosis; I believe Dr. Riordan would need a full workup of plaque locations to know where to inject, etc. Good luck!

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #758 on: March 06, 2018, 08:53:27 PM »

Update on my own situation: I saw my urologist today, and got my Peyronie's diagnosis in written form. That's step one completed. At this point I'm being referred to a Peyronie's/ED specialist that will give me all the tests necessary for the clinic I choose.

Speaking of which, I spoke with Landers' office in California. It's $150 for a phone consultation, which is scheduled. I plan on proceeding with this, just to get that conversation out of the way. Also planning on contacting Dr. Riordan soon. Will update when I do!

Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #759 on: April 09, 2018, 04:00:28 PM »

Bump.
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #760 on: April 14, 2018, 04:02:18 PM »

Hey Christopher1, here's an update: I also need a stem cell injection for my torn meniscus as well as Peyronie's, so I'm juggling my options between:

US Stem Cell Clinic, Florida (~$15000 combined): Stem cell injection into penis, knee, iv infusion (stem cells from my own fat). I also have $500 off if I use them because I applied via the Ben Greenfield promotion.

Stem Cell Institute, Panama: Hopefully umbilical cord injections into penis and knee, as well as infusion. Possibility they will make me go to the RMI in Texas for my knee, also possible they won't be able to do injections into the penis in Panama; will find out within the month but I consider this the best, most expensive treatment option. (~$25000)

Landers Regenerative Urology, California: Injections from my own fat into the penis (~$8000). I would need to get my knee done elsewhere and wouldn't be able to get an IV infusion. I do believe, however, that Landers is the most experienced and has the best technique when it comes to the application of injections into the penis.

Overall, I'm leaning toward the US Stem Cell Clinic in Florida. I have a very big decision to make here and I want to make the right one. I'm finishing up all my testing as I research where to go; just got an ultrasound on my bladder, kidneys, and a urine test. Still need a blood test (mainly for hormone levels) and then finally an ultrasound on my penis to show plaque location/size and blood flow. Will update when I'm closer to a decision; I plan on going for the stem cells in late May or June.

Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #761 on: April 15, 2018, 09:04:56 PM »

Very big decision indeed.

I, too, plan on using stem cells for the penis. The reason I am waiting is because I am currently a resident physician and pay is not great as a resident. So I am waiting on becoming board-certified, working my butt off, and then getting the stem cells.

Please keep us updated. I, too, will report my results on this forum when the time comes. We are in this together!
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AlexSamo

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #762 on: May 01, 2018, 06:39:42 PM »

Any news&updates?
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Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #763 on: May 06, 2018, 08:05:06 PM »

Bump.
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ed2018

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Jack1909

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #765 on: May 25, 2018, 02:43:51 AM »

Don’t know if it’s effective or not but it’s clear that we entering a time with new options.
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ed2018

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #766 on: May 25, 2018, 06:05:09 AM »

ok Thanks Jack1909
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #767 on: May 26, 2018, 04:15:56 AM »

An update: I've been in contact with several clinics over the course of the past month, and depending on how my phone consultation scheduled for June 5th goes, I believe I am going to go with US Stem Cell Clinic. My main concern is whether they will be adding PRP with the cells, as well as if I can get shockwave therapy along with this treatment. US SCC is also going to be supplying me with an IV infusion of my own cells on top of it all. I feel the Stem Cell Institute in Panama is a bit expensive for me at the moment, and I'm better off using my fat while I'm young, as the cells are biologically aged at date of extraction (I'm 26); umbilical cells (which they use in Panama) are day zero and I can always use them down the road. I'm getting an ultrasound done June 14th and I expect to get the cell procedure done soon after, hopefully before the 4th of July, but I don't know how soon they can get me in; I'll find out on the 5th of June. I'm also considering supplementing down the road with amniotic fluid injections via Dr. Zahalsky if necessary. I will update after my consultation.

Also, CaverStem uses bone marrow, which I am using on my knee; I believe fat-derived cells are better suited for penile issues. But that article is excellent news!

Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #768 on: May 26, 2018, 11:26:22 AM »

Awesome news!

I am also going to try this. Please keep us updated!
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ed2018

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #769 on: May 27, 2018, 05:16:14 PM »

"Also, CaverStem uses bone marrow, which I am using on my knee; I believe fat-derived cells are better suited for penile issues."

JS1991
Thanks
Good to know
And best wishes to you
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hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #770 on: May 28, 2018, 11:44:56 AM »

Hello guys, i have got a question for JS1991:

I don't speak english perfectly, so i'm not sure that i understood well.
You're taking part of a new developmental treatment with stem cells, right?
I read about something REALLY promising here:

https://www.ncbi.nlm.nih.gov/pubmed/26414724?dopt=Abstract

Is this the treatment you're going to do? When are you going to do it, and can give us some news? Thank you very much, let's keep in touch.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #771 on: May 30, 2018, 08:03:24 PM »

ed2018, thank you for the well wishes.

hope794, I am going to be getting stem cell treatment, yes. Read through the previous posts in this thread and you will be able to read more about my efforts. I have been updating this thread since January, so no worries, I will be here.

Christopher1

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #772 on: June 02, 2018, 09:30:52 PM »

Okay. = )
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #773 on: June 05, 2018, 05:29:30 PM »

So, I just had my phone consultation with the US Stem Cell Clinic in Florida! The lady on the phone (Kelly) was very nice and answered all of my questions. Overall I'm pretty happy. Here is what I've gathered:

They do offer injections directly into the penis for erectile dysfunction, and they have had a small number of patients come for Peyronie's. The treatment involves drawing some blood and two mini lipo-suction procedures, followed by injection same-day into the plaques of both stem cells AND PRP. They also have experience with other connective tissue disorders such as Dupeytren's, I'm told. The treatment for the penis is $6,000, with the option for an extra $3000 of adding on additional extraction of fat cells for same-day IV infusion, with the rest going to a cell bank ($250 per year to upkeep), which will be culture expanded providing a total of about 25 treatments that I can literally get mailed to my house whenever I want for whatever I want, including additional penis injections. These are also going to be 27 year old cells (I'm turning 27 this month) that can be re-injected into my older body in the future. In addition to this, I can get my torn meniscus taken care of for an additional $1000. Normally this would be much more expensive, but since I'm getting everything bundled up, and I got $500 off with the Ben Greenfield promotion, the total cost of meniscus repair + Peyronie's treatment + stem cell IV + banking = $9500.

They do not offer shockwave therapy in their treatment, but recommend it and referred me to a clinic in NY. Christopher1 has a great at-home alternative that I might just do instead. I can also get this stem cell/PRP procedure done in as little as 2-3 weeks from now (July 18th marks 6 months that I've had Peyronie's; I'm still in the active phase so this is great news). Overall I'm very happy, I was expecting to pay about 50% more than what I was quoted. The only downside (in my opinion) is that although they have done many procedures for ED, they have done only a handful for Peyronie's, so the technique when injecting into plaques may not be as good as someone like Dr. Landers who has done this procedure hundreds of times (although it is $300 just to speak to him, and this consultation was free). I am luckily getting an ultrasound by my uro on the 14th, so I assume that will help guide them.

Lastly, there is a clinic on Long Island that is associated with US Stem Cell, which I am going to call this week. If they quote a similar price range, I might get it done there to save money on flights and hotel. If not, I'm probably going to just fly to Florida by the end of the month. We shall see, I will update soon!

Edit: I forgot to include this: https://www.youtube.com/watch?v=H4T6WReGPro&feature=youtu.be which is a video they linked me through email featuring what they do.

hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #774 on: June 05, 2018, 06:42:38 PM »

JS, thanks for keeping us updated!!! So, you're going to do all this treatments in 2-3 weeks?
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #775 on: June 05, 2018, 07:58:49 PM »

No problem! If all goes as planned, I will be doing this all in the same day at the end of June, yes. I'm also considering adding on treatment for some herniated and bulging lumbar discs that I have.

hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #776 on: June 06, 2018, 04:16:31 AM »

I wish you the best, JS1991. You're doing something great: sharing your experience with us and keeping us updated, even when you'll get cured. I feel this is going to be a succeed.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #777 on: June 13, 2018, 04:40:04 PM »

Update: I'm officially scheduled for treatment on Tuesday, June 26th. I just need to order my plane ticket and book my hotel room and I'm good to go! The day of the procedure I will be updating this thread quite a bit. Final cost: $6,000 for Peyronie's, +$1,000 for torn meniscus, +$3,000 for IV infusion and cell banking, -$500 for applying through the Ben Greenfield promotion = $9500.

Edit: I might also try to get a single treatment of shockwave therapy in New York a few days before I fly down to Florida to help break up the plaque and cause a bit of inflammation (which will help the stem cells).

hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #778 on: June 13, 2018, 05:18:35 PM »

JS1991, thank you very much for keeping us updated!!!

P.S.= Update your personal diary too, and read the PM i sent you  ;D

I wish you the best, sincerely. You give us a great motivation!
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #779 on: June 15, 2018, 02:51:19 AM »

I got an ultrasound done today, and my urologist (who is great by the way) did not see any plaques, although he acknowledged a broad area of the shaft felt thickened. My erect curvature I've actually managed to get down to 5 degrees from 15, as measured by a protracter. My uro, who scoffed at my alternative treatments such as Pentox and traction at first, admitted that they perhaps have contained my plaques thus far.

Regarding stem cells, my uro told me to do what I want, but specifically mentioned avoiding Dr. Zahalsky, who he knows personally. He said Zahalsky uses amniotic fluid which has "growth factors" and no actual living cells, and is therefore similar to a PRP shot.

To conclude, I'm hoping that this treatment I will be receiving reduces the thickness of my plaques, or erases them entirely. We shall see!

Edit: This is the official readout of what I'm receiving, as stated on the form I must sign:

Blood Draw & Adipose Extraction
Platelet Rich Plasma and Adipose Derived Stem Cell Isolation
Intravenous Injection of Adipose Derived Stem Cells Suspended in Saline
Joint (Knee) Injection of Adipose Derived Stem Cells Suspended in Platelet Rich Plasma
Penile Injection of Adipose Derived Stem Cells Suspended in Platelet Rich Plasma
Cell Banking

pey ron

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #780 on: June 16, 2018, 03:29:26 AM »

@JS1991: I wouldn't say the name of your uro given he'd not have advised you against a doctor he knows in person had he known that you would have posted it on a public forum indexed by google... I think you could remove the name of your uro and keep the advice to avoid Dr. Zahalsky.
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #781 on: June 16, 2018, 05:46:33 AM »

pey ron, You're completely right. I just edited my previous post, thank you very much for the heads up!

Tony52

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #782 on: June 17, 2018, 08:56:00 PM »

Thanks so much, JS1991, for keeping us all posted with such thorough and complete information.  It is greatly appreciated.  I wish you all the best as you pursue this treatment.  I will definitely be following your progress posts.  Good Luck!
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #783 on: June 25, 2018, 02:58:31 PM »

Thank you for the well wishes! My flight leaves in 3 hours, so the next time I post I'll be in Florida, post-procedure. Expect a detailed summary of my experience tomorrow afternoon.

hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #784 on: June 25, 2018, 07:14:48 PM »

@JS1991 Good luck bro!!
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Tony52

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #785 on: June 26, 2018, 12:52:39 PM »

Good Luck, JS1991!
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #786 on: June 26, 2018, 04:45:14 PM »

Hello everyone! I just got the procedure done, and it was a lot easier than I thought it would be. The most uncomfortable part of the procedure was the mini liposuction but even that was more discomfort than pain. The clinic was nice enough to give me a free shot of PRP in my uninjured knee (that has recently sustained a minor injury) so I’m very happy about that.

The penile injection didn’t hurt, and there were no issues even though I have hard flaccid. My penis is swollen at the points of injection, which I expected, but there is no pain. I was instructed to abstain from sex and masturbation for a week, which is good because I began NoFap (PMO) Saturday, so I’m already 4 days strong abstaining. I plan on continuing to abstain for as long as possible. So, altogether not a bad experience. Now the waiting game begins, so I will update as frequently as possible on my penile status.

If anyone has any questions, feel free to ask!

suicidecomingsoon

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #787 on: June 26, 2018, 05:01:54 PM »

Edited sorry, I just saw the price
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hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #788 on: June 26, 2018, 07:17:08 PM »

JS1991, i'm really happy for you. How much time did the doctor say that you have to wait before seeing results? and for how much time should you see results? i remember that RD said that, after 1 year, he was still seeing some changes..
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #789 on: June 26, 2018, 08:48:56 PM »

hope794, I actually didn’t ask for specifics on how long it will take. The clinic I went to doesn’t specialize in Peyronie’s, more erectile dysfunction and joint related injuries. Personally, I’m going off of what RD said, and I’m also using joint injuries for reference. Joint injuries usually heal with stem cells starting from a week out going all the way through to a year out. I was told they have had success treating Dupeytren’s contracture, which is a connective tissue order almost identical to Peyronie’s that affects the hand. I was also told they have some guy from Silicon Valley with ED that flew out to treat it, and now gets his banked stem cells sent to him in the mail ($500 per dose, very concentrated, kit included) and he actually injects repeat doses into his penis himself, apparently with success. That is not something I would do, but I could always ask my uro or a local stem cell clinic to do it for me (not saying I will need it, but they’re so cheap I might as well).

I was also told they have someone calling from Italy inquiring about stem cells for Peyronie’s, could that be you, friend? Lol

hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #790 on: June 27, 2018, 04:41:07 AM »

LoL, i think that it's probably me. I'm famous now.  ;D
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #791 on: June 28, 2018, 05:11:04 PM »

I just had my follow up call with the clinic (I wasn't able to speak to them yesterday because I was mid-flight back to NY), and was able to ask about a timeline on progress. They said that anytime before or up to the 6 month mark I should be seeing results, all the way through to a year, and as soon as this month.

I'm also debating just shooting my banked stem cells into my own penis, since it's only $500 per dose to get my banked cells shipped to my house on ice with a full kit for same-day use. This is extremely cheap therapy, considering these cells are culture-expanded in the lab and therefore contain a far higher count of autologous mesenchymal stem cells than the stromal vascular fraction I received. I can also do this for my knees, IV therapy, anything. Men have been known to be given injections to take home with them to induce erection in certain cases of ED, so it's not that far-fetched of an idea.

Unrelated to stem cells, I plan on trying a 7 day water fast to reset my system and relax my muscles, hopefully relieving me of my hard flaccid and pelvic floor tension, as well as fully refilling my glans/cs. This will be accompanied before and/or after with a full ketogenic intermittent fasting diet (props to NeoV and his amazing YouTube channel for the suggestion!), as well as trigger point therapy and stretches for my pelvic floor. I've also completely quit smoking weed or consuming THC in any fashion (smoking kills stem cells and I wanted to take a break anyway). I've been having dreams all week for the first time in about 10-15 years, it was pretty interesting. Apparently you don't dream when consuming marijuana daily.

No one can say I'm not doing literally everything in my power to fight this damn condition(s)! Haha.

hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #792 on: June 28, 2018, 06:51:46 PM »

I wish you the best JS1991! Keep us updated, thank you for your contribution.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Gabriel

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #793 on: June 29, 2018, 07:15:07 AM »

Same here : Thx a lot JS, all your adventure is fascinating, you are undoubtedly THE figurehead of Peyronie's empirical research in the world!! We will follow your progress from very close, so don't hesitate in posting a lot :-).

Regarding marijuana, yes I can testify that it prevents you from having dreams (or at least remebering them). Personnaly, I almost totally quit a year and half ago, and feel much better.

About fasting and ketogenic diet I'm not sure it can help, but I did not try it very seriously though; anyway I'll be on IF all summer as usual (first time with Peyronies Disease), and will keep you up to date about any progress we could attribute to this protocol.

All the best to you JS!!!
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hope794

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #794 on: June 29, 2018, 08:48:48 AM »

Guys, trust me: DON'T SMOKE MARIJUANA.
It lows testosterone and other androgen hormones. They are ESSENTIAL for peyronie.

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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate ED since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Werther

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #795 on: July 03, 2018, 05:31:54 PM »

I just had my follow up call with the clinic (I wasn't able to speak to them yesterday because I was mid-flight back to NY), and was able to ask about a timeline on progress. They said that anytime before or up to the 6 month mark I should be seeing results, all the way through to a year, and as soon as this month.

How is the treatment structured? Are you going to get injected twice a year?
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #796 on: July 05, 2018, 04:29:03 AM »

Werther, the treatment included the injections I received on the 26th, as well as banked cells that I can use as early as August. For $500 I get a cultured (higher concentration of MSCs) adipose-derived batch of my own stem cells delivered to my doorstep on ice for same-day use with a kit including a syringe and saline solution to dilute. I plan on self-injecting into my penis and bloodstream every two months until I'm out of the acute phase. I could pay extra to have a doctor apply the injection, but I figured why not just do it myself; doctors give take home medications to inject that produce erections for certain patients with ED.

lukewill

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #797 on: July 05, 2018, 04:42:47 AM »

Wow this thread has been going on for three years. Seems like you’re a bit of a pioneer here. Have you noticed any changes in the few days since treatment ?
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JS1991

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #798 on: July 05, 2018, 04:54:57 AM »

lukewill, the swelling has gone down completely and I have no adverse side-effects thankfully! I had what I would describe as a small grain of rice on either side at the injection sight towards the tip of my penis, although one was not embedded in the tunica; it was literally floating between the skin and penile tissue. I think it might have been clotted blood or something, not sure, but it is completely gone now.

Regarding results, well, I don't have any evidence other than feel and look, but my penis seems like it got a little bit bigger. Feels heavier, thicker and longer. I will need to measure my penis again, which I haven't done in a long time. The last time I measured I was exactly 7 inches, and I didn't measure girth, but this was in January when I got the disease. I ordered a tape measure that should be here by the weekend for this purpose, but I do want to note that I have been applying traction to my penis pretty much daily since shortly after I got the disease in January. This could definitely have added length, although it wouldn't explain the slightly larger feeling penis since last Tuesday (it has been about 8 1/2 days). Again, there is no proving it is not in my head since I don't have precise written record of length and width, but I do feel as though it is slightly larger. Luckily, I will be keeping written record of size from this weekend and on, including after my future injections. And one more time, these results (in the long term) could be slightly clouded by traction therapy, which I believed had added slight length prior to these injections.

I'm hoping that these injections prevent calcification and reverse girth loss in the tip of my penis as well as the slight curvature I have (5 degrees erect, although it varies when flaccid). I plan on reporting back to this thread once a week for an update, as well as answering any and all questions you guys have for me in between my updates. If all goes well I have pictures since day one to prove everything I am saying too, if it is necessary to produce them.

lukewill

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Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #799 on: July 05, 2018, 05:09:10 AM »

Thanks for the reply. I think the penis does always seem heavier after injections in general. For example like with xiapex as effectively the penis has had a small vile of substance injected into it so until it dissipates it will make the penis feel heavier. I haven’t read through all the posts yet as there are so many but what was your curvature like before or I guess now, and what were you told might be likely outcomes for reduction ?
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