Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

                                            Visit Our Revised, & Expanded, Erectile Dysfunction Forum - Please Read. New Erectile Dysfunction Forum - Peyronies Society Forums

Pages: 1 ... 13 14 [15] 16 17 18   Go Down

Author Topic: Stem Cells & Adult stem cell injections for Peyronie's  (Read 201400 times)

0 Members and 2 Guests are viewing this topic.

krazylord

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 153
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #700 on: June 05, 2016, 11:11:56 PM »

Hey dumbguy,

Can you share with the community where is this, which doctor, and details like that?

Also, and I am sorry for the questions, but this will benefit everybody, some questions here:

- Is the hourglass effect present in semi-rigid and erect, or only in one of both?
- Do you have an hourglass with a clear plaque explaining it, or is it just the hourglass and you cannot feel any plaque arund the shaft?
- Will the Doc inject the ADSC ONLY around the tunica around the shaft? Or will it inject it in the Corpora Cavernosum? Or both?

Also, could you share pictures of your hourglass in the photos section?. It would be nice to see a before and after picture. Of course, this is totally up to you, but it would help our data of objective treatments (positive or not).

Thanks a lot.
Logged

Dumbguy

  • Voting Member
  • **
  • Country: mx
  • Offline Offline
  • Gender: Male
  • Posts: 17
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #701 on: June 06, 2016, 12:46:48 AM »

Puebla, Mexico. The name of the doctor is Jenny de Jesus Ayala Certero (G.P), the total cost Would be around 1900 USD
remember this is mexico, so the price would be the wage of around 6 months of an average or little above average worker
well i am not that sure on how bad is the progression at this time. The plaque does feel in flacid and erection, its not fully hardened but its hard for sure, last weeks i´ve been noticing retraction in flaccid and erection, i am almost feeling healthy then i try to use ved and i F~@< up again (thats been around 3 or 4 times), despite my efforts to be cautious ved just F~@ks me and i think has provoked me more injuries, i have not yet a penile extensor but just pulling it 40 min a day has made me see a nice difference whit retraction, nice nice difference this last days
also i have some Erectile Dysfunction i have no morning woods but i can F~@< so not sure where i am
and well doc sais will put all the liquid in my penis she can whit a high high high concentration of stem cells and less prp so she can fit more of it inside, and the rest will go intravenous. She also will send me to some radio frequency therapy that she sais has helped her get rid of most of fibrosis she had from a recent lipo where they use hyperthermia and after that the radio. I think its the hyperthermia the one working. Well i will try to take photos but im not sure if i will be capable to achive a full erection now as i am i a new, new, new acute stage atm.
Logged

Dumbguy

  • Voting Member
  • **
  • Country: mx
  • Offline Offline
  • Gender: Male
  • Posts: 17
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #702 on: June 11, 2016, 07:23:48 PM »

Hey!

I´m really excited and i hope i keep it this way, i really do

It´s been around 3.5 hours since the last stem cell injection, it was 10 cc prp plus 10 cc adipose derived stem cells, the procedure was a lot less painful or even bothersome than i expected. still i think the doctor was a little less hygienic or even ethical that other clinics (she attended a cell phone call during the lipo, and after the lipo was attending other patiens as her asistant (wich also seems to be her maid) did all the centrifugation and filtration proces), also im still having my doubts on how well she knows to inject a penis. Anyway you get what you pay for and well i think it well worthed it and if not she sent me some cyprofloxacin just in case lol.

So after all the process the injections begin and i think it was gonna be just like the other things, more bark than bite but i was wrong
it did hurted a lot, more the stem cells, it lingers, so anyway it was around 20 shots all over the penis  and my penis turtled to 4 cm or so, it was horryfing, and there was a time when i thought i f'~@<Erectile Dysfunction it i just f'~@<Erectile Dysfunction it this was an awful idea but well i continued the shots as more than the half wasnt still injected
oh another detail she tried fastening me a elastic ribon to provoque me a erection but erection was not posible
well my penis looks now a lot wider and the hourglass is a lot less noticeable im honestly really happy for have it done, some of it must be inflamation but she injected a lot and some of it must have sticked

i feel really hopeful :D

sorry guys i forgot to take a photography of it before, but have some of the procedure
god bless us all


Logged

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6575
  • Age 70. Peyronies from January 2009
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #703 on: June 14, 2016, 12:24:30 AM »

Dumbguy

Wish you success with the treatment, update us how is the progress

James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

rich68

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 63
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #704 on: June 14, 2016, 09:57:37 AM »

Thanks for the update Dumbguy, this is good to hear. I wish you continued good luck.
Logged

Dumbguy

  • Voting Member
  • **
  • Country: mx
  • Offline Offline
  • Gender: Male
  • Posts: 17
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #705 on: June 28, 2016, 11:39:53 AM »

its been a long time for me, maybe its relatively little, today i feel kinda hopeless

well first i have to say i was 5 days whit no pentox before injections and that around  7 cc of the stem cells prp coctail were injected in the new lession, the rest were in other parts of the penis however its suposed they travel to the injury no?, anyway, i couldnt have an erection that day. so maybe it reduced its efectivenes
i was almost ok before i could have erections, damn hard erections despite it was difficult to get it hard, but once hard it was hard so i decided to stretch a little that lost size whit a VED and i f'~@<Erectile Dysfunction up more. I think im now getting a bottleneck insted of a hourglass on the top of the shaft
now its just fuuuuuuuuuuuucking hard to get an erection, retraction and hard flacid were restarting.

something maybe interesting is that the hourglass felt flacid on the flacid state
but later i noticed in fact all that lenght was inside if i pull it the hardness is there
maybe it will take months untill i see some progress, im hoping so
anyway i have gotten back since 2 days ago whit pulling my dick cause it had shown some promising results, but this time as more time as passed its harder to get the same results
i had some big succes whit hiperthermia those good times
so im getting back to manual stretching, hiperthermia and im getting a male edge extensor this week, im determined to do 5 hours a day
i feel if i do nothing now im just F U C K E D

i will cease prp following injections by now
if stem cells dont show much promise i just dont see the point on prp

hope to have better news some months later
whit love dumbguy
Logged

popopo

  • Major Contributor
  • ****
  • Country: nl
  • Offline Offline
  • Gender: Male
  • Posts: 406
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #706 on: June 28, 2016, 06:22:58 PM »

Hey man, thanks for keeping us updated. Do you think you might be overdoing it with the VED and traction? If you let the shots do their work now you can tell if it really works or not. Maybe the extra stress slows down healing. For me it doesn't work anyway, but I know it helped others so maybe you can let it heal from the shots first and then try again with the VED and traction. I hope you'll see results either way.
Logged
Age: 20
Date of onset: 20
Symptoms: mild curvature + Erectile Dysfunction
Treatments tried: Co-enzyme Q10 + carnitine + arginine
Relationship status: single

kuaka

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 637
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #707 on: June 30, 2016, 01:32:45 PM »

VED and traction both are mixed bags.  Undue stress on the original fibers of the Tunica is one of the reasons for this disease in most cases.  Scarring develops as the body's way of healing a wound. 

The objective any treatment is to remove the scar tissue which impairs erection and replace it with something less restrictive which still maintains the outer bounds provided by the Tunica in a naturally functioning penis.  Without this outer bound, excessive engorgement is quite possible, AND it is this outer bound which results in erection.  The classic case of Peyronie's is where this outer bound has been bunched up by scar tissue.

Remove the scar tissue, and VED/Traction therapy with a great deal of caution is appropriate.  The purpose of the VED/Traction therapy is to prevent the tissue from bunching back up.  Providing adult stem cells so that the body has something to work with beyond normal scarring processes is not a bad idea, but still bringing the penis up to fill size often during the healing process is important.  Overdoing it can just cause additional scarring and make things worse.  It is a tight rope walk no matter how you look at it.
Logged

Jack1909

  • Major Contributor
  • ****
  • Country: it
  • Offline Offline
  • Gender: Male
  • Posts: 439
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #708 on: July 06, 2016, 01:45:50 PM »

I still not believe we have nothing better than technologies from seventies..that's embarrassing. I'm so angry I can't accept that my life has been ruined like this I have no peace...we are at the dawn of 2017..
Logged
Please go to PROFILE then FORUM PROFILE to replace this text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Dumbguy

  • Voting Member
  • **
  • Country: mx
  • Offline Offline
  • Gender: Male
  • Posts: 17
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #709 on: July 09, 2016, 05:18:26 PM »

Hey
Just reporting back
i have a good new, my "gf" told me some days ago my dick is bigger in erection, i also think it does looks wider.
before treatment, even before manual traction the fibrous band seemed hardened and... well now it does looks different in the flacid state is like a hard flacid but more widespread and  mmm not sure it varies i think that i would have gotten more injury of the lasts ved tries whitout stem cells, my gf also sais is longer but not as when we met (before i had bad peyro).
as i said i really did thought to get into hypertheermia now that colagen is not as dense, but i read hypertermia kills stem cells so i decided i will wait till 3 monts after the shot to get back to it.
anyway im in traction right now, androextender, really carefully.
for personal complicated" reasons i ve been overusing my dick this week whit sex, and it feels sore and inflamed but i will be taking a rest of one week full at least.

welll, somethimes i feel hope sometimes i feel its just delusional

but well my gf sais it is bigger, and it should be progressing, so i know they worked but do not know how much will it last

end of this report
ah guys what did i get myself into, f~@ved

thanks for your suport, and i really hope i have better news for us all soon
stay safe, take care.

Logged

popopo

  • Major Contributor
  • ****
  • Country: nl
  • Offline Offline
  • Gender: Male
  • Posts: 406
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #710 on: July 10, 2016, 02:56:13 PM »

Yep jelqing is horrible. And I also talked about it on some of those forums but they actually get offended when you warn them. I feel like a lot of these forums are scam and it seems that moderators benefit from keeping people dumb and will use everything to ban negative review. The harsh reality is that it will eventually be positive for us. I imagine loads of guys will hurt themselves doing jelqs and they will later join us and bring a cure for peyronies and maybe a legit way of enlargong the penis closer to us.
Logged
Age: 20
Date of onset: 20
Symptoms: mild curvature + Erectile Dysfunction
Treatments tried: Co-enzyme Q10 + carnitine + arginine
Relationship status: single

Dumbguy

  • Voting Member
  • **
  • Country: mx
  • Offline Offline
  • Gender: Male
  • Posts: 17
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #711 on: July 10, 2016, 10:16:21 PM »

yo, i know dude, my life at this moment could be so great, but well im stuck in here
have you read about  the penuma penis enlargement implant?, is a silicon sheat under and around the penis that for what ive read works the same as traction, eventually the penis gets the size of the sheat and its permanent as it´s silicon. it was FDA aproved this year and is performed by dr elist
i dream to get one of em, and after that another one
im starting to break down mentaly
so much f~@
dude life is hard
Logged

Dared

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 183
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #712 on: July 15, 2016, 03:09:00 PM »

just checked out the implant you were talking about and it looks pretty cool. I would consider getting this as a last resort.
Logged

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6575
  • Age 70. Peyronies from January 2009
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #713 on: July 16, 2016, 02:27:31 AM »

Dumbguy

Can you guide us to the FDA approval?
Quote
it was FDA aproved this year
Make a search on the forum regarding Dr. Elist and see what forum members wrote about him
His forum name is drelist, you may want also to read his posts:
http://www.peyroniesforum.net/index.php?action=profile;u=12155

James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

popopo

  • Major Contributor
  • ****
  • Country: nl
  • Offline Offline
  • Gender: Male
  • Posts: 406
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #714 on: July 16, 2016, 05:45:52 PM »

I've looked into dr.Elist's iimplant too and I wouldn't risk it. Even without peyronie's there's a risk of scarring and I've read a lot of horror stories about it. I'm still curious how many people actually improved their sexlife with it, but so far it doesn't seem like a very good option.
Logged
Age: 20
Date of onset: 20
Symptoms: mild curvature + Erectile Dysfunction
Treatments tried: Co-enzyme Q10 + carnitine + arginine
Relationship status: single

FriskyDingo

  • Solid Contributor
  • ***
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 115
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #715 on: July 16, 2016, 06:38:53 PM »

A quick google search of dr. elist implants and you will find some legitimate testimonials and comments pointing to another forum. The testimonials and comments, which seem genuine, do not speak well of Dr. Elist at all. I would highly recommend research him further.
Logged

nowhereman

  • Voting Member
  • **
  • Country: ca
  • Offline Offline
  • Gender: Male
  • Posts: 53
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #716 on: July 17, 2016, 08:02:34 PM »

In the penis enlargement world the name Elist is synonymous with the word BUTCHER. An understatement if anything. The word Sociopath could be added.
Reconstructive surgeons have made lots of money from repairing this guys handiwork, as well as the work of others. I don't think I've seen a single positive review. At least ones that were actually real.
-That implant is no good.
-FFT will resorb into the body
-Lig cuts will only gain someone flaccid length, and you can be left with a nasty scar..

I think gaining .5-1" is possible for length if one really works at stretching, Cutting the ligs won't help, It's not generally something people say they would do again if they could go back.

The least invasive method for permanent girth gains is a filler like PMMA, there have been some success stories/pics, but there have been many semi-negative/negative ones as well (mostly aesthetic problems like nodules). Though, nothing like the horror people who have had Elist operate on them. The best forum for this just started charging to see certain parts of the forum, If they didn't do that I could have showed you guys a great example of an Elist implant gone wrong. Dudes dick looks like a chewed up dog toy.(after reconstruction with the best in the world.)

The best option for girth gains is expensive at this time, and not permanent, but that's the best thing about it (IMO). It's the filler Hyaluronic acid. It is injected in the dartos like PMMA, but if there are problems, or nodules form you can just inject an enzyme that makes it go away immediately. I think it usually lasts a couple years, but obviously gradually starts going away long before that. I am not interested in any of this but for peoples safety I just wanted to throw out the REAL options. I wouldn't want anyone going to the maniac "Butcher of Beverly Hills".

Here is that forum I mentioned before:
PhalloBoards (Version 2.0)
Logged

Dumbguy

  • Voting Member
  • **
  • Country: mx
  • Offline Offline
  • Gender: Male
  • Posts: 17
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #717 on: July 23, 2016, 08:58:49 PM »

yo, i know we are getting off topic but i found this: https://www.youtube.com/watch?v=BlYPAt2KtgM

lately i think due to andropenis i have been experienced increased Erectile Dysfunction (ZERO response)
so im in lose lose desicion making scar retraction and poor function or zero erectil function and retraction for atophy. hope i have still time to rethink cause i could have worked better whit some function but now...
i will be going to see a good andrologist in some days.
so im planing and praying caverject will get it hard and flexible for the time needed to convince my dad to pay for any implant.
im not covered by insurance and he would have to sell the property that was supposed to be my heresy, however ive read so many stories and dude, this is already going downhill just faster and faster.
anyway interesting procedure (video), i think ive heard those second names in the forum once.
i doubt a lot i can get that one made but i would be glad if that could help anyone and maybe be real or good
my mental sanity is geting lost sometimes
dont know what else to do. i know this is already off topic.
btw i found a paris stem cell human performed work that sais its until the 3 months when cells stop growing but honestly i already have lost fait on it.
im reading your post on psychological distress and Erectile Dysfunction, sometimes it helps
before i had some hopes whit neov method but now it just doesnt seem to work i mean it doesnt inflate minimally
i really pray caverject helps



Logged

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6575
  • Age 70. Peyronies from January 2009
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #718 on: August 01, 2016, 01:40:26 AM »

Both Dr Franklin Kuehhas and Dr Egydio are well known and respected surgeons, including in this forum
Please do not compare them with Dr Elist!!!

James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Dumbguy

  • Voting Member
  • **
  • Country: mx
  • Offline Offline
  • Gender: Male
  • Posts: 17
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #719 on: September 10, 2016, 11:13:32 PM »

well 3 months after the procedure, progresion still happening (my penis is narrower (cone) and shorter(1/2 inch))  and i still feel inflamation, sometimes i have good erections, sometimes i have 0. it depends on if i do traction or dont, if i dont i get better erections but i  feel shorter

to consider:
i used pentox tratment 3x500 5 days before the treatment
i used some heat treatments during those 3 monts

sorry guys, i am still hoping i was injected whit a scam and real stem cells work

Logged

AlexSamo

  • Solid Contributor
  • ***
  • Country: ru
  • Offline Offline
  • Gender: Male
  • Posts: 121
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #720 on: October 01, 2017, 02:01:25 PM »

Any news&updates for stem cells clinical trials&treatments?
Logged

Paolo

  • Major Contributor
  • ****
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 830
  • 56 Year old with stable Peyronie's
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #721 on: November 23, 2017, 03:29:55 AM »

Guys, looks like stem cell research still continues;

Inhibition of penile tunica albuginea myofibroblasts activity by adipose‑derived stem cells

https://www.spandidos-publications.com/etm/14/5/5149



Logged
You throw sand against the wind,
And the wind blows it back again.

popopo

  • Major Contributor
  • ****
  • Country: nl
  • Offline Offline
  • Gender: Male
  • Posts: 406
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #722 on: November 23, 2017, 09:50:38 AM »

Sounds good, I might stick around to see this happening one day. I just hope I can regain my interest in women again without feeling angry and feuatrated when the day comes I dont have to feel that way anymore.
Logged
Age: 20
Date of onset: 20
Symptoms: mild curvature + Erectile Dysfunction
Treatments tried: Co-enzyme Q10 + carnitine + arginine
Relationship status: single

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2054
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #723 on: November 23, 2017, 03:26:28 PM »

Nice to hear this gives you hope popopo 😎
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6575
  • Age 70. Peyronies from January 2009
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #724 on: November 23, 2017, 06:40:51 PM »

Gives me hope also, but at 70 I don't know if I will be around enough time for this treatment :)

James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

swiss

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 450
  • 30yr old with stable Peyronies Disease, 31° to 26° and counting
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #725 on: November 24, 2017, 07:20:52 PM »

Inhibition of penile tunica albuginea myofibroblasts activity by adipose‑derived stem cells

Paolo, can you explain this to me in lamens terms I can understand? lol.
Logged

kuaka

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 637
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #726 on: November 24, 2017, 08:09:50 PM »

just pick it apart...

Inhibition = reduction/prevention
penile tunica albuginea myofibroblasts = fibrosis lumps on the tunica
adipose-derived stem cells = a particular stage/type of stem cell reflecting its ability to become something else

Using this type of stem cell reduces or prevents additional fibrosis lumps on the tunica.  Sounds good to me.
Logged

swiss

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 450
  • 30yr old with stable Peyronies Disease, 31° to 26° and counting
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #727 on: November 24, 2017, 08:49:55 PM »

You so smart bro. Thanks!
Logged

Paolo

  • Major Contributor
  • ****
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 830
  • 56 Year old with stable Peyronie's
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #728 on: November 25, 2017, 06:15:12 AM »

Cheers kuaka  :)
Logged
You throw sand against the wind,
And the wind blows it back again.

LuvWhiteSand

  • PDS Newbie
  • *
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 1
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #729 on: December 13, 2017, 04:26:40 PM »

Has anyone heard about or tried Dr. Landers stem cell therapy in California?
His website claims to use 3 forms of treatment in the process:

SHOCK WAVE TECHNOLOGY- Provides deep tissue energy that breaks up the Peyronies plaque
STROMAL VASCULAR FRACTION- Contains adult stem cells and growth factors (signaling molecules) derived from fat tissue. This may provide anti-inflammatory and regenerative effects on the abnormal corporal tissue.
PLATELET RICH PLASMA Contains additional enriching growth factors (signaling molecules) which are obtained from a person’s own blood that is processed with a centrifuge.

I have seen this type of treatment work successfully with people who have Knee issues... but haven't seen or heard of any results for peyronies.

Thanks,
Mike
Logged

james1947

  • Major Contributor
  • ****
  • Country: ro
  • Offline Offline
  • Gender: Male
  • Posts: 6575
  • Age 70. Peyronies from January 2009
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #730 on: December 14, 2017, 08:06:53 AM »

I don't know about the first two treatments, but the third one is just PRP.
We have just one forum member, maybe two that got good results.
You can read the PRP related topics

James
Logged
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

PeetyPeet

  • Solid Contributor
  • ***
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 275
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #731 on: December 14, 2017, 11:33:41 AM »

Of these three only Stromal Vascular Fraction uses stem cells and could be considered 'stem cell therapy'.

According to Wikipedia, the nominal stem cell is the Mesenchymal stem cell. It can differentiate into several tissue types, but apparently it is quite inefficient. Currently there's no research that demonstrates its effectiveness.

With the exception of the liver smooth muscles tissue of most organs cannot regrow well, if not at all. Alas, I'm not optimistic about this treatment. I also fail to see how the regrowth of tissue would remove an already existing fibrotic plaque.
Logged

JS1991

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 303
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #732 on: February 01, 2018, 03:06:02 AM »

(Repost, if it's too much take my thread in the main forum down.)

Hello all. I will give a more formal introduction of myself in the new member area in a few days; I am currently deeply absorbed in Peyronie's research and will not stop until I've read everything I need to. For a brief overview of my case, you can check my comment in Neo's youtube video here: https://www.youtube.com/watch?v=ypvCSSCnmq4

I just wanted to link to something I saw recently on the Joe Rogan Experience. Mel Gibson and Dr. Neil Riordan were guests, and the topic of discussion was Stem Cell Therapy, specifically using IV infusion of "day zero" umbilical cord cells donated to the clinic. It is located in Panama, as that is currently illegal in the United States. Umbilical cells are different from embryonic cells, in that they are apparently more effective and less dangerous. They are essentially "super" stem cells; most are the age of the patient at time of extraction, and umbilical cells are literally "day zero." Watch the video if you really want more info. The part I'd like to highlight, however, is Mel's story of his father. At age 92, his father could barely walk and was on the brink of death. Out of desperation, Mel brought him to Panama and his father received direct injections into his hips, as well as an IV infusion of umbilical Stem Cells. His father, now age 99, can walk and is thriving. Interestingly there were some collateral effects too: he regrew some pigment in his hair, his eyesight improved, and he found great improvement in erectile function.

This is very promising to me. I'm currently on the verge of receiving stem cells for a torn meniscus, cubital tunnel hydrodissection of the ulnar nerve in the elbow, and wrist tendinitis. I would consider adding on Peyronie's treatment and flying out to Panama for it. Here is the link: https://www.youtube.com/watch?v=OtL1fEEtLaA

Here is the exact part I'm talking about: https://youtu.be/OtL1fEEtLaA?t=8m27s but I highly suggest watching the entire video.

Here is the link to the clinic in Panama: https://www.cellmedicine.com/ Apparently they treat Autism as well, and with success, along with a multitude of other disorders. Amazing stuff.

I'll be posting again soon.
-JS

Paolo

  • Major Contributor
  • ****
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 830
  • 56 Year old with stable Peyronie's
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #733 on: February 01, 2018, 03:18:40 AM »

That is very interesting indeed if true  :-\
Will drug companies quash this kind of research as if true they are going to lose tons $$$. Medicine runs on controlling conditions, not curing them so you become a dependant/consumer.
Logged
You throw sand against the wind,
And the wind blows it back again.

Christopher1

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 354
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #734 on: February 04, 2018, 09:46:02 PM »

Doctors in the US are already using stem cells for erectile dysfunction.
Logged
NEW MODALITY: Erectile Dysfunction and Peyronies Disease - Peyronies Society Forums
Water fasting for autophagy should be done with Snake Juice <-- YouTube it.

bummedout

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 96
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #735 on: February 10, 2018, 03:16:59 PM »

https://www.ncbi.nlm.nih.gov/m/pubmed/26414724/

I’m assuming someone has posted this already, but in case they haven’t here it is.  Has anyone heard of anymore trials?
Logged

pey ron

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 377
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #736 on: February 11, 2018, 11:44:51 AM »

Doctors in the US

@Christopher1: can you mention which doctors you know of?
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

JS1991

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 303
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #737 on: February 11, 2018, 10:06:43 PM »

pey ron, Dr. Landers in California is one: Lander Regenerative Urology | Certified Diplomat of the American Board of Urology

I'm currently considering application to this institute in Manhattan: Stem Cell Therapy | Stem Cell Transplant | Stem Cell Transplant Therapy | New York - Park Avenue Stem Cell, NY 10075

There are several more, just google it.

bummedout

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 96
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #738 on: February 11, 2018, 11:42:16 PM »

JS1991,

How do you know these places are legit?  Did you read the fine print?
Logged

JS1991

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 303
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #739 on: February 12, 2018, 12:24:35 AM »

bummedout, Lander has been doing the procedure with mixed results for years. You can read about it in the earlier pages of this very thread. Regarding the Manhattan clinic (and any other for that matter) I personally look into reviews for the clinic and each and every doctor I can find that works there. So far so good; the only red flag I've seen is that they seem to be apart of a bigger network of Stem Cell centers, similar to Regenexx. This actually might be a good thing in terms of quality, not a good thing in terms of cost. Regardless, they are the only people in New York (my state) who offer specific Peyronie's treatment with a Urologist on site, so it is worth looking into. I plan on contacting them soon.

Regarding fine print, it doesn't really matter. Stem cells are an effective treatment that is still in its infancy. Therefore, I understand the inherent risk involved. Nonetheless I believe in the treatment, and as long as I can get a reputable doctor to apply adipose-derived stem cells directly to my plaque, I'm taking the best chance I can. I'm willing to accept failure in the stem cell department, to be honest; I just can't accept not going through with the procedure when I have the means to do it.

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2054
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #740 on: February 12, 2018, 11:57:20 AM »

Any idea what they charge for the stem cell injections into the plaque?
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

pey ron

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 377
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #741 on: February 12, 2018, 01:21:46 PM »

I had called one of these networks and they said 10000 dollars.
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

bummedout

  • Voting Member
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 96
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #742 on: February 12, 2018, 03:07:00 PM »

JS1991,

I look forward to hearing about your results.  I was under the impression that stem cells have not yet been successful in treating most conditions.  Hopefully your experience will be different.
Logged

JS1991

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 303
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #743 on: February 12, 2018, 08:21:55 PM »

Our own member, rd, "cured" himself with stem cell treatment applied by the aforementioned Dr. Landers in California: Peyronies Gone - Peyronies Society Forums . Contained within that link are literally his last posts on this forum; apparently he no longer needs it.

For more on his story, read the first few pages of this thread. I'm hopeful myself because my own injury occurred the night of January 19th, so if I get the treatment by the summer I am guaranteed to still be in the early acute phase, which can only be a good thing. I've been controlling the symptoms with traction and heat therapy, along with sexual abstinence (one careful orgasm per week limit). I'm receiving Cialis, CoQ10, L-Arginine and Acetyl L-Carnitine in the mail this week and I have an appointment with a Urologist to hopefully get Pentox in early March (until then I'm substituting with coffee). On top of that I'm attempting to change my diet and I'm also getting a VED soon. I don't think anyone has caught it this early and attempted the stem cell therapy, so I'm looking forward to seeing how things play out.

Aside from that, I have a torn meniscus, cubital tunnel syndrome in the elbow, and wrist tendinitis and I plan on treating these all with stem cells as well. High level athletes and celebrities, and increasingly the general public, use it to regenerate tendons, ligaments and tissues such as an ACL. Checkout this video: https://youtu.be/OtL1fEEtLaA for more info on the topic. Skip to 8:27 for specific mention of Erectile Dysfunction, but I highly suggest watching the first 8 1/2 minutes as well. It's amazing what can be done in 2018.

I plan on posting a full summary of my own experience (pre-stem cells) soon, but as things are still in motion I'd like to see how it plays out for another week or two before I post. Good luck, everyone.

-JS

JS1991

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 303
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #744 on: February 20, 2018, 05:48:04 AM »

I found an interesting article; one of the most up to date I've come across in my research. It has 4 recent clinical trial results for Erectile Dysfunction contained within, all with positive results: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5209555/

Also, an update on myself: I received a call from Dr. Landers' office Friday afternoon, but when I returned it they were closed. I plan on speaking with him this week and will report back when I do.

-JS

pey ron

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 377
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #745 on: February 21, 2018, 02:19:15 AM »

@JS1991: will these be autologous stem cells from your own body or will you need to be on immunosuppressants for the rest of your life?
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

JS1991

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 303
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #746 on: February 21, 2018, 09:45:58 PM »

pey ron, I'm looking at three options right now, none of which would require me to be on immunosuppressants:

Dr. Landers, California: Shockwave Therapy, PRP, Fat-Derived Stem Cells from my own body. ~$8-10000

Dr. Zahalsky, Florida: Amnion + PRP. ~$3000 per shot (I've heard; haven't contacted yet.)

Dr. Riordan, Panama: Umbilical cord-derived Stem Cells injected locally as well as infused intravenously. ~$25,000 (waiting to see if they will accept me. IV infusion might clear up other issues/injuries I have as well making it very cost-effective.)

Going to Panama for their week-long treatment would be pulling out the big guns in terms of cost and effectiveness. And it would also be a nice vacation. But we shall see.

pey ron

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 377
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #747 on: February 22, 2018, 03:25:46 AM »

do they filter out mutated cells?
Logged
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

JS1991

  • Major Contributor
  • ****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 303
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #748 on: February 22, 2018, 03:56:45 AM »

I know for a fact Riordan does, I assume the others do. I will ask when I speak to them.

TonySa

  • Think Tank
  • **
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2054
Re: Stem Cells & Adult stem cell injections for Peyronie's
« Reply #749 on: February 22, 2018, 09:30:16 AM »

Peyron, is the tx for Erectile Dysfunction or peyronies?
Logged
PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte
Pages: 1 ... 13 14 [15] 16 17 18   Go Up
 

Related Topics

  Subject / Started by Replies Last post
0 Replies
3308 Views
Last post July 23, 2011, 07:13:43 PM
by Charl
1 Replies
2881 Views
Last post March 13, 2014, 05:53:27 PM
by james1947
2 Replies
1955 Views
Last post October 27, 2015, 01:57:53 AM
by edzo67